ABSTRACT
Objective: Atlas of Axial Spondyloarthritis in Spain 2017 aims to better understand the reality of the patients suffering from this disease from an integrated approach. Methods: The Atlas 2017 based its results on an extensive cross-sectional patient survey conducted in Spain (2016), validated by a multidisciplinary group of experts on spondyloarthritis. Results: Data from 680 patients with axSpA were obtained, most of them suffered from AS, were HLA-B27 positive, older than 45 years, and live as part of a couple. A large percentage had university studies, were disabled and members of a patient association. Patients reported a diagnostic delay of 8.5 years, high disease activity (BASDAI 5.5±2.2), moderate-important stiffness (61.0%), medium-high functional limitation (74.9%), and psychological distress (GHQ 5.7±4.5). A total of 54.7% reported taking NSAIDs, 28.4% DMARDs, 36.3% biological therapy and 32.2% were not receiving pharmacological treatment. Conclusions: The Atlas survey data reveals still a long diagnostic delay, high disease activity, psychological distress, while an important proportion could be undertreated
Objetivo: El Atlas de Espondiloartritis Axial en España 2017 tiene como objetivo comprender mejor la realidad de los pacientes que padecen esta enfermedad desde un enfoque integrado. Métodos: El Atlas 2017 basó sus resultados en una amplia encuesta transversal de pacientes realizada en España (2016), validada por un grupo interdisciplinar de expertos en espondiloartritis. Resultados: Se obtuvieron datos de 680 pacientes con EspAax. La mayoría de ellos sufría EA, eran HLA-B27 positivo, mayores de 45 años y vivían en pareja. Un gran porcentaje tenía estudios universitarios, discapacidad reconocida y era miembro de una asociación de pacientes. Los pacientes declararon un retraso diagnóstico de 8,5 años, alta actividad de la enfermedad (BASDAI 5,5±2,2), rigidez moderada-importante (61,0%), limitación funcional moderada-alta (74,9%) y problemas psicológicos (GHQ 5,7±4,5). Un total del 54,7% declaró estar tomando AINE, el 28,4% FAME, el 36,3% terapia biológica, mientras que el 32,2% no recibía ningún tipo de tratamiento farmacológico. Conclusiones: Los datos de la encuesta Atlas revelan todavía un enorme retraso diagnóstico, alta actividad de la enfermedad, problemas psicológicos, mientras que una proporción importante de pacientes podrían estar infratratados
Subject(s)
Humans , Male , Female , Adult , Middle Aged , Spondylarthritis/epidemiology , HLA-B27 Antigen/isolation & purification , Spain/epidemiology , Epidemiologic Research Design , Morbidity Surveys , Cost of Illness , Quality of LifeABSTRACT
OBJECTIVE: Atlas of Axial Spondyloarthritis in Spain 2017 aims to better understand the reality of the patients suffering from this disease from an integrated approach. METHODS: The Atlas 2017 based its results on an extensive cross-sectional patient survey conducted in Spain (2016), validated by a multidisciplinary group of experts on spondyloarthritis. RESULTS: Data from 680 patients with axSpA were obtained, most of them suffered from AS, were HLA-B27 positive, older than 45 years, and live as part of a couple. A large percentage had university studies, were disabled and members of a patient association. Patients reported a diagnostic delay of 8.5 years, high disease activity (BASDAI 5.5±2.2), moderate-important stiffness (61.0%), medium-high functional limitation (74.9%), and psychological distress (GHQ 5.7±4.5). A total of 54.7% reported taking NSAIDs, 28.4% DMARDs, 36.3% biological therapy and 32.2% were not receiving pharmacological treatment. CONCLUSIONS: The Atlas survey data reveals still a long diagnostic delay, high disease activity, psychological distress, while an important proportion could be undertreated.
Subject(s)
Spondylarthritis/epidemiology , Absenteeism , Adult , Aged , Anti-Inflammatory Agents, Non-Steroidal/therapeutic use , Antirheumatic Agents/therapeutic use , Comorbidity , Cross-Sectional Studies , Delayed Diagnosis , Female , HLA-B27 Antigen/analysis , Humans , Male , Middle Aged , Severity of Illness Index , Socioeconomic Factors , Spain/epidemiology , Spondylarthritis/drug therapy , Spondylarthritis/economics , Spondylarthritis/psychology , Spondylitis, Ankylosing/drug therapy , Spondylitis, Ankylosing/epidemiology , Spondylitis, Ankylosing/genetics , Surveys and QuestionnairesABSTRACT
Objetivos. Estimar la proporción de estudiantes de una escuela de ciencias de la salud con una conducta académica deshonesta y conocer su opinión respecto a la realización de esta conducta. Método. Se utilizó un cuestionario autoadministrado, anónimo y voluntario, que se entregó a todos los estudiantes de la Escuela Universitaria de Enfermería, Fisioterapia y Nutrición Blanquerna, en febrero de 2004. El cuestionario tenía 3 bloques: en el primero se pretendía valorar la conducta académica durante los exámenes, las prácticas y la presentación de trabajos; en el segundo, la opinión de los estudiantes respecto al hecho de copiar, y en el tercero, el conocimiento que los estudiantes tenían acerca de la conducta deshonesta de sus compañeros. Resultados. Se recogieron 468 cuestionarios (participación del 42,5%). Un 28% (120/468) (intervalo de confianza [IC] del 95%, 19,11-26,7) declaró haber copiado durante un examen. El 20% (IC del 95%, 16,6-23,9) dijo haber copiado textos idénticos de otras fuentes sin citar su origen. Dejar el trabajo a otros compañeros para que sirviera de modelo lo había hecho un 49,7% (IC del 95%, 45,1-54,2). Un 68% (IC del 95%, 64,1-72,5) dijo que en algún momento de la carrera todos tienen una conducta deshonesta. La única sanción que creen que se debería aplicar sería invalidar el trabajo, examen o ejercicio; un 20% consideró innecesaria ninguna sanción. Conclusiones. Los alumnos estudiados no difieren mucho de los de otros países en cuanto a copiar exámenes, plagiar trabajos o utilizar material de Internet como si fuera propio; aunque ellos no lo juzgan como conductas especialmente graves
Objectives. To determine the proportion of health sciences students who engage in academic misconduct and to identify their opinion of this behavior. Method. An anonymous, voluntary, self-administered questionnaire was given to all students in the Blanquerna School of Nursing, Physiotherapy and Nutrition, in February 2004. The questionnaire consisted of three sections: the first aimed to evaluate academic behavior during exams and practical sessions and when handing in coursework, the second was designed to determine students' opinion of copying, and the third aimed to determine their knowledge of academic misconduct among fellow students. Results. A total of 468 questionnaires were analyzed (participation rate 42.5%). Twenty-eight percent (120/468) (95% CI: 19.11-26.7) of the students reported they had copied during an exam. Twenty percent (95% CI: 16.6-23.9) admitted to copying entire texts from other authors without referencing the sources. Approximately 49.7% (95% CI: 45.1-54.2) gave their own work to other classmates to be used as a model. Sixty-eight percent (95% CI: 64.1-72.5) believed that all students cheated at some time during their university course. Students believed that the only punishment that should be applied was to invalidate the corresponding exam, exercise or test while about 20% considered no punishment was necessary. Discussion. Our students are similar those in other countries in terms of copying exams, plagiarizing texts or passing off material from the internet as their own. However, the students in this study tended to see academic misconduct as not especially serious
Subject(s)
Male , Female , Adult , Humans , Fraud/statistics & numerical data , Education, Premedical/statistics & numerical data , Educational Measurement/statistics & numerical data , Students, Health Occupations/statistics & numerical data , Deception , Underachievement , Surveys and QuestionnairesABSTRACT
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