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1.
Hum Pathol ; 38(8): 1212-25, 2007 Aug.
Article in English | MEDLINE | ID: mdl-17490722

ABSTRACT

This report presents an overview for pathologists of the development and potential applications of a novel Web enabled system allowing indexing and retrieval of pathology specimens across multiple institutions. The system was developed through the National Cancer Institute's Shared Pathology Informatics Network program with the goal of creating a prototype system to find existing pathology specimens derived from routine surgical and autopsy procedures ("paraffin blocks") that may be relevant to cancer research. To reach this goal, a number of challenges needed to be met. A central aspect was the development of an informatics system that supported Web-based searching while retaining local control of data. Additional aspects included the development of an eXtensible Markup Language schema, representation of tissue specimen annotation, methods for deidentifying pathology reports, tools for autocoding critical data from these reports using the Unified Medical Language System, and hierarchies of confidentiality and consent that met or exceeded federal requirements. The prototype system supported Web-based querying of millions of pathology reports from 6 participating institutions across the country in a matter of seconds to minutes and the ability of bona fide researchers to identify and potentially to request specific paraffin blocks from the participating institutions. With the addition of associated clinical and outcome information, this system could vastly expand the pool of annotated tissues available for cancer research as well as other diseases.


Subject(s)
Medical Informatics/organization & administration , Pathology, Surgical/organization & administration , Specimen Handling/methods , Tissue Banks , Humans , United States
2.
AMIA Annu Symp Proc ; : 938, 2007 Oct 11.
Article in English | MEDLINE | ID: mdl-18694038

ABSTRACT

As part of the Markle Foundation's Connecting For Health (CFH) Reference Implementation Project, Regenstrief Institute participated in the design, creation, and public distribution of server and client code that allows for the secure electronic exchange of protected health information between disparate computer systems.


Subject(s)
Computer Communication Networks , Medical Record Linkage , Medical Records Systems, Computerized , Computer Security , Systems Integration
4.
Health Aff (Millwood) ; 24(5): 1214-20, 2005.
Article in English | MEDLINE | ID: mdl-16162565

ABSTRACT

The Indiana Network for Patient Care (INPC) is a local health information infrastructure (LHII) that includes information from the five major hospital systems (fifteen separate hospitals), the county and state public health departments, and Indiana Medicaid and RxHub and that carries 660 million separate results. It provides cross-institutional access to physicians in emergency rooms and hospitals based on patient-physician proximity or on hospital credentialing. The network includes and delivers laboratory, radiology, dictation, and other documents to a majority of Indianapolis office practices. The INPC began operation seven years ago and is one of the first and best examples of an LHII.


Subject(s)
Cooperative Behavior , Information Management/organization & administration , Medical Records Systems, Computerized , Patient Care , Indiana
5.
AMIA Annu Symp Proc ; : 515-9, 2005.
Article in English | MEDLINE | ID: mdl-16779093

ABSTRACT

The Shared Pathology Informatics Network (SPIN), a research initiative of the National Cancer Institute, will allow for the retrieval of more than 4 million pathology reports and specimens. In this paper, we describe the special query tool as developed for the Indianapolis/Regenstrief SPIN node, integrated into the ever-expanding Indiana Network for Patient care (INPC). This query tool allows for the retrieval of de-identified data sets using complex logic, auto-coded final diagnoses, and intrinsically supports multiple types of statistical analyses. The new SPIN/INPC database represents a new generation of the Regenstrief Medical Record system - a centralized, but federated system of repositories.


Subject(s)
Confidentiality , Database Management Systems , Databases as Topic , Information Storage and Retrieval/methods , Pathology , Hospital Information Systems , Humans , Logical Observation Identifiers Names and Codes , Medical Records Systems, Computerized , User-Computer Interface
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