ABSTRACT
BACKGROUND: Suicide in young people is a leading cause of death. Interventions that are reflexive, tailored, and developed in concert with this at-risk population are needed. This study aimed to integrate lived-experience into the design of a suicide prevention intervention delivered by phone to young people post-discharge from an emergency department (ED) for suicide risk or self-harm. METHODS: Qualitative study was conducted at the Queensland Children's Hospital, Brisbane Australia. Four focus groups with young people with lived-experience, parents or carers and ED mental health clinicals were conducted. In total 5 young people with lived-experience of suicidality (17-21 years, Mage = 19.20), 3 parents and carers with a lived-experience of caring for a young person with mental illness, and 10 ED mental health clinicians participated in focus groups. The first phase of qualitative analysis involved a phenomenological analysis and second phase included a deductive content analysis. The paper is following the Consolidated Criteria for Reporting Qualitative Research. RESULTS: First phase, a phenomenological analysis identified three foundational themes to structure future follow-up phone interventions: a person-centred focus, the phone-call dynamic, and the phone-call purpose. Second phase, a deductive content analysis found that participants preferred an intervention that was structured, consistent, and finite. Moreover, an intervention that was authentic, able to facilitate and empower growing independence, and achievable of young people after an ED presentation was desired. CONCLUSIONS: Participants expressed their desire for a responsive, structured, and clearly focused phone call that would recognise the young person and parent/carer's needs while providing tailored support to ease transition from the ED to available community and family led care.
ABSTRACT
OBJECTIVE: While suicide prevention interventions should be informed by lived experience, there are no reviews examining involvement of lived experience (LE) thus far. This rapid review aimed to synthesize available studies using LE of suicidality to guide the development of suicide prevention interventions. METHOD: A rapid review following PRISMA guidelines was conducted. Key electronic databases were searched for the literature for the last 10 years (2010 until June 2019) to identify studies that have incorporated the lived experience of people of suicide to develop a suicide prevention intervention. Key features of the LE intervention development process were synthesized and discussed. RESULTS: A final 11 studies from 13 papers were selected for synthesis. Most studies employed focus groups (73%). Research questions focused on participant preferences, experiences, and recommendations for suicide prevention interventions. Considering the qualitative nature, majority of studies used thematic analyses to study participant responses and generate intervention components based on identified themes. Translation from research findings into a physical intervention was described in limited detail across all studies. The rapid review was limited to the literature about development of interventions using LE of suicide published in English in last 10 years. CONCLUSIONS: With an increased focus on person-centered care and LE in suicide prevention, such valuable expertise should be integrated into intervention development. This review provides insight into the process to ensure responses to suicidal persons are well aligned with the needs of those they serve. HighlightsLimited studies have involved lived experience in the development of interventionsFocus groups and thematic analysis are common methods to develop interventionsLimited description of translating themes into intervention components is described.
