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J Cyst Fibros ; 18(3): 378-381, 2019 05.
Article in English | MEDLINE | ID: mdl-29551462

ABSTRACT

The aim of this report is to assess whether the research issues priorities are perceived differently according to the Stakeholders (SH)'s individual knowledge of research topics and degree of training in biomedical research. Four groups of SH were enrolled in this study: 1. Skilled SH, specifically trained in biomedicine; 2. Unskilled untrained SH who responded to a written questionnaire in 2015; 3. SH who were trained for one year in a course delivered by professionals; 4. Untrained SH who responded to an online questionnaire in 2017. The large ranking order variability observed among groups addresses the question that the choices are markedly influenced by the SH's backgrounds. Such results emphasize the need to consider the education level and the delivery of ad hoc training activities by professionals to broaden the base of SH who may be considered qualified to transfer the Patient Centered Outcome Research principles into practice.


Subject(s)
Biomedical Research , Cystic Fibrosis , Patient Participation , Research/organization & administration , Stakeholder Participation , Translational Research, Biomedical , Biomedical Research/education , Biomedical Research/standards , Educational Measurement , Humans , Needs Assessment , Patient Outcome Assessment , Surveys and Questionnaires , Translational Research, Biomedical/education , Translational Research, Biomedical/organization & administration
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