ABSTRACT
BACKGROUND: Information concerning the impact of the COVID-19 health crisis on populations most affected by HIV and hepatitis C virus (HCV; or key populations [KP]), and those working with these populations in community settings, is limited. Community-based organizations working in the field of HIV and viral hepatitis are well placed to identify and meet the new needs of KP owing to the health crisis. OBJECTIVE: This study aims to describe the development and implementation of an exploratory and descriptive multicountry, community-based research program, EPIC (Enquêtes Pour évaluer l'Impact de la crise sanitaire covid en milieu Communautaire), within an international network of community-based organizations involved in the response to HIV and viral hepatitis. The EPIC program aimed to study the impact of the COVID-19 health crisis on KP or people living with HIV or HCV and people working with these populations at the community level (community health workers [CHWs]) and to identify the key innovations and adaptations in HIV and HCV services. METHODS: A general protocol and study documents were developed and shared within the Coalition PLUS network. The protocol had a built-in flexibility that allowed participating organizations to adapt the study to local needs in terms of the target population and specific themes of interest. Data were collected using surveys or interviews. RESULTS: From July 2020 to May 2022, a total of 79 organizations participated in the EPIC program. Across 32 countries, 118 studies were conducted: 66 quantitative (n=12,060 among KP or people living with HIV or people living with HCV and n=811 among CHWs) and 52 qualitative (n=766 among KP or people living with HIV or people living with HCV and n=136 among CHWs). CONCLUSIONS: The results of the EPIC program will provide data to describe the impact of the health crisis on KP and CHWs and identify their emerging needs. Documentation of innovative solutions that were put into place in this context may help improve the provision of services after COVID-19 and for future health crises. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/45204.
ABSTRACT
Objetivo. Describir el perfil de las personas que viven con VIH/sida (PVVS) que se contactan con asociaciones de lucha contra el VIH/sida en Ecuador e identificar los factores relacionados con dicho contacto. Métodos. En 2011, se realizó un estudio transversal comunitario en dos hospitales de Guayaquil. Con base en un cuestionario de 125 preguntas administrado a 300 PVVS adultas, se realizó un análisis de regresión multivariada ponderada para identificar los factores relacionados con el contacto con una asociación. Resultados. De los 300 participantes, 34 (11,3%) estuvieron en contacto con una asocia¬ción. Tener más de 35 años, obtener un puntaje elevado en la escala de autoeficacia, haber padecido consecuencias sociales graves tras la revelación de su estatus serológico, poder conversar con sus amistades sobre su vida con el VIH, expresar la necesidad de hablar de su vida con el VIH con un profesional de la salud y obtener un puntaje bajo en el índice del esfuerzo de control de la revelación del estatus serológico se relacionaron con dicho contacto. Conclusiones. Las características de las PVVS en contacto con una asociación fueron tener más de 35 años, haber padecido consecuencias sociales graves tras la revelación de la seroposi¬tividad y sentir necesidades no satisfechas por el sistema de salud en términos de acompañamiento psicosocial. Estas personas manejaban mejor su estatus serológico con el entorno y manifestaban una mayor facilidad para hablar con las amistades sobre su seropositividad. Estos elementos son de utilidad para los actores comunitarios, en aras de mantener y apoyar la movilización sobre el VIH en Ecuador.
Objective. To describe the profile of people living with HIV/AIDS (PLHA) who contact HIV/AIDS associations in Ecuador and to identify the factors related to that contact. Methods. In 2011, a cross-sectional community study was conducted in two hospitals in Guayaquil. Based on a 125-question survey administered to 300 adult PLHA, a weighted multivariate regression analysis was performed to identify the factors related to contact with an association Results. Of the 300 participants, 34 (11.3%) were in contact with an association. Being over the age of 35, scoring high on the self-efficacy scale, having suffered serious social consequences after disclosing their HIV status, being able to talk to friends about living with HIV, expressing the need to talk about living with HIV with a health professional, and scoring low on the index of the HIV status disclosure control effort were related to that contact. Conclusions. The characteristics of the PLHA in contact with an association were: being over the age of 35, having suffered serious social consequences following disclosure of seropositivity, and feeling that their psychosocial needs were not being met by the health system in terms of the services provided. These people more easily managed their HIV status in their social milieu and displayed a greater ability to talk to friends about their seropositivity. This information is useful for community actors to maintain and support mobilization on HIV in Ecuador.
Subject(s)
Community-Based Participatory Research , Association , Stereotyping , Self Efficacy , Ecuador , HIVABSTRACT
OBJETIVO: Describir el perfil de las personas que viven con VIH/sida (PVVS) que se contactan con asociaciones de lucha contra el VIH/sida en Ecuador e identificar los factores relacionados con dicho contacto. MÉTODOS: En 2011, se realizó un estudio transversal comunitario en dos hospitales de Guayaquil. Con base en un cuestionario de 125 preguntas administrado a 300 PVVS adultas, se realizó un análisis de regresión multivariada ponderada para identificar los factores relacionados con el contacto con una asociación. RESULTADOS: De los 300 participantes, 34 (11,3%) estuvieron en contacto con una asociación. Tener más de 35 años, obtener un puntaje elevado en la escala de autoeficacia, haber padecido consecuencias sociales graves tras la revelación de su estatus serológico, poder conversar con sus amistades sobre su vida con el VIH, expresar la necesidad de hablar de su vida con el VIH con un profesional de la salud y obtener un puntaje bajo en el índice del esfuerzo de control de la revelación del estatus serológico se relacionaron con dicho contacto. CONCLUSIONES: Las características de las PVVS en contacto con una asociación fueron tener más de 35 años, haber padecido consecuencias sociales graves tras la revelación de la seropositividad y sentir necesidades no satisfechas por el sistema de salud en términos de acompañamiento psicosocial. Estas personas manejaban mejor su estatus serológico con el entorno y manifestaban una mayor facilidad para hablar con las amistades sobre su seropositividad. Estos elementos son de utilidad para los actores comunitarios, en aras de mantener y apoyar la movilización sobre el VIH en Ecuador.
OBJECTIVE:To describe the profile of people living with HIV/AIDS (PLHA) who contact HIV/AIDS associations in Ecuador and to identify the factors related to that contact. METHODS: In 2011, a cross-sectional community study was conducted in two hospitals in Guayaquil. Based on a 125-question survey administered to 300 adult PLHA, a weighted multivariate regression analysis was performed to identify the factors related to contact with an association RESULTS: Of the 300 participants, 34 (11.3%) were in contact with an association. Being over the age of 35, scoring high on the self-efficacy scale, having suffered serious social consequences after disclosing their HIV status, being able to talk to friends about living with HIV, expressing the need to talk about living with HIV with a health professional, and scoring low on the index of the HIV status disclosure control effort were related to that contact. CONCLUSIONS: The characteristics of the PLHA in contact with an association were: being over the age of 35, having suffered serious social consequences following disclosure of seropositivity, and feeling that their psychosocial needs were not being met by the health system in terms of the services provided. These people more easily managed their HIV status in their social milieu and displayed a greater ability to talk to friends about their seropositivity. This information is useful for community actors to maintain and support mobilization on HIV in Ecuador.
Subject(s)
HIV Infections/transmission , HIV , EcuadorABSTRACT
OBJECTIVE: To describe the profile of people living with HIV/AIDS (PLHA) who contact HIV/AIDS associations in Ecuador and to identify the factors related to that contact. METHODS: In 2011, a cross-sectional community study was conducted in two hospitals in Guayaquil. Based on a 125-question survey administered to 300 adult PLHA, a weighted multivariate regression analysis was performed to identify the factors related to contact with an association RESULTS: Of the 300 participants, 34 (11.3%) were in contact with an association. Being over the age of 35, scoring high on the self-efficacy scale, having suffered serious social consequences after disclosing their HIV status, being able to talk to friends about living with HIV, expressing the need to talk about living with HIV with a health professional, and scoring low on the index of the HIV status disclosure control effort were related to that contact. CONCLUSIONS: The characteristics of the PLHA in contact with an association were: being over the age of 35, having suffered serious social consequences following disclosure of seropositivity, and feeling that their psychosocial needs were not being met by the health system in terms of the services provided. These people more easily managed their HIV status in their social milieu and displayed a greater ability to talk to friends about their seropositivity. This information is useful for community actors to maintain and support mobilization on HIV in Ecuador.
Subject(s)
Acquired Immunodeficiency Syndrome , HIV Infections , Cross-Sectional Studies , Ecuador , Humans , Surveys and QuestionnairesABSTRACT
This study examined regret following HIV serostatus disclosure and associated factors in under-investigated contexts (Mali, Morocco, Democratic Republic of the Congo, Ecuador and Romania). A community-based cross-sectional study was implemented by a mixed consortium [researchers/community-based organizations (CBO)]. Trained CBO members interviewed 1,500 PLHIV in contact with CBOs using a 125-item questionnaire. A weighted multivariate logistic regression was performed. Among the 1,212 participants included in the analysis, 290 (23.9 %) declared that disclosure was a mistake. Female gender, percentage of PLHIV's network knowing about one's seropositivity from a third party, having suffered rejection after disclosure, having suffered HIV-based discrimination at work, perceived seriousness of infection score, daily loneliness, property index and self-esteem score were independently associated with regret. Discrimination, as well as individual characteristics and skills may affect the disclosure experience. Interventions aiming at improving PLHIV skills and reducing their social isolation may facilitate the disclosure process and avoid negative consequences.
