ABSTRACT
There is very little law-either case law or statutory law - that regulates delivery room decisions about resuscitation of critically ill newborns. Most of the case law that exists is decades old. Thus, physicians cannot look to the law for much guidance about what is permissible or prohibited. Local hospital policies and professional society statements provide some guidance, but they cannot be all-inclusive and encompass all potentially encountered scenarios. Ultimately, the physician, the medical team, and the parents must try to reach a shared decision about the best course of action for each individual infant and each unique family. In this paper, we review some of the case law that may be applicable to such decisions and make recommendations about how decisions should be made.
Subject(s)
Critical Illness , Delivery Rooms , Delivery, Obstetric , Infant, Newborn, Diseases , Physician-Patient Relations/ethics , Resuscitation , Adult , Critical Illness/psychology , Critical Illness/therapy , Decision Making, Shared , Delivery Rooms/ethics , Delivery Rooms/legislation & jurisprudence , Delivery Rooms/organization & administration , Delivery, Obstetric/ethics , Delivery, Obstetric/legislation & jurisprudence , Delivery, Obstetric/psychology , Emergencies/psychology , Female , Humans , Infant, Newborn , Infant, Newborn, Diseases/psychology , Infant, Newborn, Diseases/therapy , Liability, Legal , Obstetric Labor Complications/therapy , Pregnancy , Resuscitation/ethics , Resuscitation/psychologyABSTRACT
OBJECTIVE: To determine whether the use of family members as educators in a structured educational intervention would increase neonatology fellows' confidence in performing core communication skills targeted to guide family decision-making. STUDY DESIGN: Neonatology fellows at two centers participated in simulation-based training utilizing formally trained family members of former patients. Fellows completed self-assessment surveys before participating, immediately following participation, and 1-month following the training. Family members also evaluated fellow communication. RESULTS: For each core competency assessed, there was a statistically significant increase in self-perceived preparedness from pre-course to post-course assessments. Fellows additionally endorsed using skills learned in the curriculum in daily clinical practice. Family educators rated fellow communication highest in empathetic listening and nonverbal communication. CONCLUSIONS: Participation in a communication skills curriculum utilizing formally trained family members as educators for medical trainees successfully increased fellows' self-perceived preparedness in selected core competencies in communication. Family educators provided useful, generalizable feedback.
Subject(s)
Communication , Decision Making, Shared , Education, Medical, Graduate/methods , Neonatology/education , Professional-Family Relations , Simulation Training , Curriculum , Family , Fellowships and Scholarships , Humans , Infant, Newborn , Professional Competence , Self-AssessmentABSTRACT
Pain management in the neonatal ICU remains challenging for many clinicians and in many complex care circumstances. The authors review general pain management principles and address the use of pain scales, non-pharmacologic management, and various agents that may be useful in general neonatal practice, procedurally, or at the end of life. Chronic pain and neonatal abstinence are also noted.
Subject(s)
Analgesics, Opioid/therapeutic use , Hypnotics and Sedatives/therapeutic use , Kangaroo-Mother Care Method/methods , Pain Management , Palliative Care , Amines/therapeutic use , Anti-Anxiety Agents/therapeutic use , Barbiturates/therapeutic use , Chronic Pain/therapy , Cyclohexanecarboxylic Acids/therapeutic use , Dexmedetomidine/therapeutic use , Gabapentin , Humans , Infant, Newborn , Intensive Care Units, Neonatal , Ketamine/therapeutic use , Lorazepam/therapeutic use , Midazolam/therapeutic use , Neonatal Abstinence Syndrome/therapy , Pain Measurement , Propofol/therapeutic use , Sucking Behavior , Sucrose/therapeutic use , Terminal Care , gamma-Aminobutyric Acid/therapeutic useABSTRACT
For more than half a century neonatologists and ethicists alike have struggled with ethical dilemmas surrounding infants born at the limits of viability. Both doctors and parents face difficult decisions. Do we try to save these babies, knowing that such efforts are likely to be unsuccessful? Or do we provide only comfort care, knowing that, in doing so, you will inevitably allow some babies to die who might have been saved? In this paper, we review the outcome data on these babies and offer ten suggestions for doctors: (1) accept that there is a 'gray zone' during which decisions are not black and white; (2) do not place too much emphasis on gestational age; (3) dying is generally not in an infant's best interest; (4) impairment does not necessarily equal poor quality of life; (5) just because the train has left the station doesn't mean you can't get off; (6) respect powerful emotions; (7) be aware of the self-fulfilling prophecies; (8) time lag likely skews all outcome data; (9) statistics can be both confused and confusing; (10) never abandon parents.