ABSTRACT
This commentary was written as a collaboration between the Board of the Metastasis Research Society and two patients with metastatic breast cancer. It was conceived in response to how preclinical scientific research is sometimes presented to non-scientists in a way that can cause stress and confusion. Translation of preclinical findings to the clinic requires overcoming multiple barriers. This is irrespective of whether the findings relate to exciting responses to new therapies or problematic effects of currently used therapies. It is important that these barriers are understood and acknowledged when research findings are summarized for mainstream reporting. To minimize confusion, patients should continue to rely on their oncology care team to help them interpret whether research findings presented in mainstream media have relevance for their individual care. Researchers, both bench and clinical, should work together where possible to increase options for patients with metastatic disease, which is still in desperate need of effective therapeutic approaches.
Subject(s)
Biomedical Research , Breast Neoplasms/therapy , Decision Making , Evidence-Based Medicine , Translational Research, Biomedical , Disease Progression , Female , HumansABSTRACT
The current article presents the experiences of three different child- and family-serving programs in the United States that have successfully implemented interventions to prevent the use of restraint and seclusion (R/S) in their respective facilities. The article also provides family and youth perspectives on the impact of and recommendations for preventing R/S. Over the past decade, a significant shift has occurred toward preventing the use of R/S within programs serving children and adolescents. National efforts have included the work of the Building Bridges Initiative, as well as growing interest and support for the implementation of trauma-informed environments of care.
Subject(s)
Mental Disorders/rehabilitation , Patient Isolation , Program Evaluation/methods , Psychiatric Nursing/methods , Restraint, Physical , Violence/prevention & control , Adolescent , Ambulatory Care/methods , Ambulatory Care/organization & administration , Child , Day Care, Medical/methods , Day Care, Medical/organization & administration , Family/psychology , Humans , Patient Participation/methods , Patient Participation/psychology , Patient Satisfaction , Residential Treatment/methods , Residential Treatment/organization & administration , United States , Violence/psychologyABSTRACT
The Building Bridges Initiative (BBI) provides a framework for achieving positive outcomes for youth and families served in residential and community programs. Founded on core principles, an emerging evidence base, and acknowledged best practices, the BBI emphasizes collaboration and coordination between providers, families, youth, advocates, and policymakers to achieve its aims. Examples are presented of successful state, community, and provider practice changes, and available tools and resources to support all constituencies in achieving positive outcomes.
Subject(s)
Family , Patient Participation/methods , Residential Facilities/methods , Residential Treatment/methods , Adolescent , Humans , Residential Facilities/organization & administration , Residential Treatment/organization & administration , United StatesABSTRACT
Several states and providers have embarked on initiatives to reduce using restraint and seclusion in residential programs. Restraint and seclusion are associated with harm to youth and staff, significant costs, reduced quality of care, and less engagement of youth and families. Successful reduction/prevention strategies have been identified, implemented, and reported. Both states and residential providers have implemented prevention approaches, made significant changes, reduced restraint/seclusion use, and offered their experience and positive outcomes.
