ABSTRACT
OBJECTIVE: To describe the social representations of illness among people with chronic kidney disease undergoing haemodialysis. METHOD: Descriptive, qualitative research, anchored on the social representations theory. This study was conducted in the municipality of Ponta Grossa, Paraná State, Brazil, with 23 adults with chronic kidney disease. Data were collection between February and November 2012 by means of a semi-structured interview, and analyzed using Content Analysis. RESULTS: The interviews led to the categories "the meaning of kidney disease": awareness of finitude, and "survival": the visible with chronic kidney disease. The representation of illness unveiled a difference and interruption in life projects, and haemodialysis meant loss of freedom, imprisonment and stigma. CONCLUSION: Family ties and the individuals´ social role are determining representations for healthcare.
Subject(s)
Renal Dialysis/psychology , Renal Insufficiency, Chronic/psychology , Self Concept , Adult , Attitude to Death , Attitude to Health , Cost of Illness , Emotions , Female , Frustration , Humans , Interpersonal Relations , Male , Middle Aged , Personal Autonomy , Renal Insufficiency, Chronic/therapy , Social Stigma , Socioeconomic Factors , Stress, PsychologicalABSTRACT
OBJECTIVE: To describe the social representations of illness among people with chronic kidney disease undergoing haemodialysis. METHOD: Descriptive, qualitative research, anchored on the social representations theory. This study was conducted in the municipality of Ponta Grossa, Paraná State, Brazil, with 23 adults with chronic kidney disease. Data were collection between February and November 2012 by means of a semi-structured interview, and analyzed using Content Analysis. RESULTS: The interviews led to the categories "the meaning of kidney disease": awareness of finitude, and "survival": the visible with chronic kidney disease. The representation of illness unveiled a difference and interruption in life projects, and haemodialysis meant loss of freedom, imprisonment and stigma. CONCLUSION: Family ties and the individuals´ social role are determining representations for healthcare. .
OBJETIVO: Describir las representaciones sociales de las personas con enfermedad renal crónica en la hemólisis sobre su proceso de enfermedad. MÉTODO: Estudio cualitativo descriptivo, anclado en la teoría de la representación social. Realizada en la ciudad de Ponta Grossa (PR), abarcando 23 personas con enfermedad renal. La recogida de datos se realizó entre febrero y noviembre de 2012, a través de entrevistas semiestructuradas. Los datos fueron analizados utilizando el análisis de contenido categorial. RESULTADOS: Surgió la categoría el "significado de enfermedad renal": la realización de la finitud, más allá de la categoría: "supervivencia": lo visible en la enfermedad renal crónica. La representación de la enfermedad reveló una diferencia y la interrupción de los proyectos de vida, y la hemodiálisis significó la pérdida de la libertad, el encarcelamiento y el estigma. CONCLUSIÓN: Se considera que los vínculos familiares y el papel social del individuo en la sociedad construyendo representaciones determinantes para su cuidado. .
OBJETIVO: Descrever as representações sociais de pessoas com doença renal crônica em hemodiálise sobre seu processo de adoecimento. MÉTODO: Pesquisa qualitativa, descritiva, ancorada na teoria da representação social. Realizada no município de Ponta Grossa (PR), envolveu 23 adultos com doença renal. A coleta ocorreu entre fevereiro e novembro de 2012, por meio de entrevista semiestruturada. Os dados foram analisados mediante o uso de análise de conteúdo categorial. RESULTADOS: Surgiu a categoria "significado do adoecimento renal": constatação da finitude; além da categoria "sobrevivência": o visível no adoecimento renal crônico. A representação de adoecimento revelou diferença e interrupção dos projetos de vida, e a hemodiálise significou perda de liberdade, prisão e estigma. CONCLUSÃO: Considerou-se que os vínculos familiares e o papel social do indivíduo constroem representações determinantes para o cuidado. .
