Non-pharmacological interventions for people living with young-onset dementia and their carers: A scoping review focussing on the support of participants' needs.

WHAT IS KNOWN ON THE SUBJECT?: Young-onset dementia (YOD) refers to a phenomenon in which dementia symptoms appear under age 65. Diagnosing YOD is difficult and its progression is fast. Furthermore, it limits the socio-economic careers of people living with YOD, regardless of their needs. People living with YOD and their carers have unstable occupational status and their dependents also have to face a high burden of care. They claim that existing social support for dementia is limited to the elderly and is not suitable for them. WHAT THE PAPER ADDS TO EXISTING KNOWLEDGE?: The characteristics of non-pharmacological intervention studies for people living with YOD and/or their carers so far, and an analysis of the needs supported via the applied interventions. A theoretical basis and direction for the interventions to be studied in the future. WHAT ARE THE IMPLICATIONS FOR PRACTICE?: Research and intervention development should focus more on the needs of people living with YOD. In addition, it is necessary to understand and reflect on carers who directly care for people living with YOD. A multidisciplinary programme that supports wide area of the needs should be developed. ABSTRACT: INTRODUCTION: Young-onset dementia (YOD) is a highly influential disease that exerts force on the normal life of those who still have to continue social life. Research has been lacking in spite of its seriousness, which accounts for about 9% of all dementia cases. AIM: This study aimed to examine non-pharmacological interventions for people living with YOD and/or their carers, and to analyse how those interventions support their needs. METHOD: A scoping review methodology was utilized to search the studies examining interventions for people living with YOD and/or their carers, and in English or Korean. The information was extracted, summarized and analysed in CANE categories. RESULTS: Sixteen studies were included in the review. Five types of interventions were drawn. 'Memory' was the most covered part of the needs by the interventions. DISCUSSION: This study found that interventions currently do not match the needs of people living with YOD and their carers. Multidisciplinary research would be eligible to cover the subjects' wide range of the needs as much as possible. IMPLICATIONS FOR PRACTICE: We suggest the development of a specialized needs assessment tool and specialized interventions for people living with young-onset dementia and their carers.

Virtual Reality-Based Education Program for Managing Behavioral and Psychological Symptoms of Dementia: Development and Feasibility Test.

This study aims to develop a virtual reality-based education program for managing behavioral and psychological symptoms of dementia for family carers of persons living with dementia and investigate the feasibility for users. The program was developed through literature review, interviews with family carers, surveys, and expert content validity assessment. User feasibility was evaluated quantitatively through a questionnaire on usefulness, ease of use, and satisfaction, and qualitatively through participant interviews. The program was produced in two parts, Type 1 and Type 2, consisting of three and six episodes, respectively. Participants showed a high level of satisfaction with overall program scores of 4.28 ± 0.66 and 4.34 ± 0.41 for the two evaluations. Participants also expressed that both programs were helpful, Type 1 for achieving changes in attitude associated with more understanding of persons living with dementia and Type 2 for acquiring coping methods through communication training. Use of the virtual reality device was not inconvenient and was identified as helpful due to the high immersion experience. Results of this study confirmed that family carers had no resistance to education using new technologies such as virtual reality devices and that virtual reality-based education could be effective for training family carers.

Korean Family Caregivers' Experiences With Managing Behavioral and Psychological Symptoms of Dementia: Keeping Harmony in Daily Life.

Behavioral and psychological symptoms of dementia (BPSD) are symptoms of dementia that family caregivers find difficult to manage. Competence in managing BPSD differs according to individual family caregiver. The current study investigated the competence in managing BPSD, focusing on family caregivers who were recognized as managing them well. Twenty-four Korean family caregivers (83% female, mean age = 67 years) living with persons with dementia (PWD) were interviewed. Four themes were derived from the content analysis: Entering and Looking into the World of PWD, Keeping Daily Life in Harmony With BPSD, Becoming an Expert in BPSD, and Balancing Between Caregiving and Myself. Family caregivers minimized the impact of BPSD and maintained life balance. As a result, they were able to continue a harmonious life with PWD. [Research in Gerontological Nursing, 15(3), 141-150.].

The Competence Scale in Managing Behavioral and Psychological Symptoms of Dementia (CS-MBPSD) for family caregivers: Instrument development and cross-sectional validation study.

BACKGROUND: Families' caring competence plays a key role in caring for the elderly with dementia. In particular, the management of the behavioural and psychological symptoms of dementia is different from the management of other symptoms of dementia. However, there is no tool for evaluating family caregiver competence for managing the behavioural and psychological symptoms of dementia. OBJECTIVE: This study aimed to develop a competence scale in managing the behavioural and psychological symptoms of dementia for family caregivers and to evaluate its psychometric properties. DESIGN: An instrument development and cross-sectional validation study was conducted. SETTINGS: Twenty-one local dementia centres in Seoul, Korea. PARTICIPANTS: A total of 460 community-dwelling family caregivers of people living with dementia (mean age = 69.82 ± 11.08, female = 78.7%, spouse = 65.7%) participated in the study. METHODS: This study was conducted in two steps: (1) instrument development and (2) psychometric tests (N = 460). After item generation and the evaluation of content validity and face validity, a total of 39 preliminary items were tested. For the psychometric tests, item analysis using the corrected item-to-total correlations and construct validity with exploratory and confirmatory factor analysis were performed. Using measurement tools of the Behaviour Management Skill, a Visual Analogue Scale, and a general question of the scale developed in this study, the concurrent validity was examined by calculating Pearson's correlation coefficient. Reliability was evaluated with Cronbach's α, test reliability with the standard error of measurement, and test-retest reliability with the intraclass correlation coefficient. RESULTS: The exploratory and confirmatory factor analyses yielded a six-factor solution with 28 items. The six factors were 'person-centred attitude', 'introspection for improvement', 'symptom occurrence analysis', 'application of various strategies', 'awareness of symptoms' and 'caring for one's own mind and body'. The concurrent validity was established. The reliability was demonstrated to be acceptable (Cronbach's α = 0.922, ICC = 0.781). CONCLUSIONS: The competence scale in managing the behavioural and psychological symptoms of dementia for family caregivers was found to be a valid and reliable instrument. The scale is potentially useful for promoting better dementia care in both research and clinical practice settings by enabling the identification of needs to be improved for family caregivers in coping with dementia symptoms.

Family caregiver competence in managing behavioral and psychological symptoms of dementia: A concept synthesis.

AIM: This study aimed to identify the attributes of "family caregiver competence in managing behavioral psychological symptoms of dementia". METHODS: Six electronic databases were searched for studies published between January 1990 and June 2017 with the key words "dementia", "behavioral psychological symptoms of dementia", "caregiver", "coping (managing)", and "competence". From the final fully reviewed 26 articles, descriptions related to family caregiver's dealing with behavioral psychological symptoms of dementia were extracted first. Then, based on Walker and Avant's concept synthesis, the concept of "family caregiver competence in managing behavioral psychological symptoms of dementia" was explored. RESULTS: Four attributes, namely "Judging", "Empathizing", "Adjusting", and "Reflecting", comprised of ten categories were identified as constituting the concept of family caregiver competence in managing the behavioral psychological symptoms of dementia. As a meta competence, "reflecting" may play a significant role in improving family caregiver competence by interacting with the other dimensions of competence in managing symptoms. CONCLUSIONS: Based on the suggested conceptual model, education or training programs could be developed to improve family caregiver competence in managing behavioral psychological symptoms of dementia. To refine the attributes found in this study, field studies including observations of and interviews with family caregivers need to be conducted. Studies exploring the associations between these attributes are also of value.

Guidelines for Designing Surface Ion Traps Using the Boundary Element Method.

Ion traps can provide both physical implementation of quantum information processing and direct observation of quantum systems. Recently, surface ion traps have been developed using microfabrication technologies and are considered to be a promising platform for scalable quantum devices. This paper presents detailed guidelines for designing the electrodes of surface ion traps. First, we define and explain the key specifications including trap depth, q-parameter, secular frequency, and ion height. Then, we present a numerical-simulation-based design procedure, which involves determining the basic assumptions, determining the shape and size of the chip, designing the dimensions of the radio frequency (RF) electrode, and analyzing the direct current (DC) control voltages. As an example of this design procedure, we present a case study with tutorial-like explanations. The proposed design procedure can provide a practical guideline for designing the electrodes of surface ion traps.