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1.
MedEdPORTAL ; 19: 11346, 2023.
Article in English | MEDLINE | ID: mdl-37745278

ABSTRACT

Introduction: Empathy is a critical competency for health care providers. However, empathy levels in medical students and residents have been shown to paradoxically decrease during training. Arts and humanities education and reflective practice may reduce burnout and promote empathy during medical school. Methods: We developed and implemented an art education elective for medical students focusing on observation and reflective practice and measured its impact on empathy. Between 2017 and 2022, first-year medical students were offered an annual, 4-week elective led by art educators that featured visualization exercises and discussions on the role of bias and perspective in art interpretation. Curriculum effectiveness and impact on empathy were measured using the validated Interpersonal Reactivity Index (IRI) and self-assessments. Results: One hundred twenty-eight students participated in the elective over a 5-year period; 89 (70%) completed assessments. Students reported improvements in empathic communication, recognition of bias, and observation skills. IRI data demonstrated a significant increase in perspective taking (19.0 vs. 20.2; p < .0125). Discussion: Participation in the elective was associated with self-reported improvements in visual observation, awareness of bias, and empathetic communication. IRI results showed that participants also demonstrated improved perspective taking. Since perspective taking is a cognitive component of empathy, we have provided some empirical evidence that arts education in medical school can promote empathic attitudes and skills.


Subject(s)
Students, Medical , Humans , Empathy , Curriculum , Communication , Health Personnel
2.
J Med Humanit ; 44(4): 533-552, 2023 Dec.
Article in English | MEDLINE | ID: mdl-37566168

ABSTRACT

Illness narratives convey a person's feelings, thoughts, beliefs, and descriptions of suffering and healing as a result of physical or mental breakdown. Recognized genres include fiction, nonfiction, poetry, plays, and films. Like poets and playwrights, musicians also use their life experiences as fodder for their art. However, illness narratives as expressed through popular music are an understudied and underutilized source of insights into the experience of suffering, healing, and coping with illness, disease, and death. Greater attention to the value of music within medical education is needed to improve students' perspective-taking and communication. Like reading a good book, songs that resonate with listeners speak to shared experiences or invite them into a universe of possibilities that they had not yet imagined. In this article, we show how uncovering these themes in popular music might be integrated into medical education, thus creating a space for reflection on the nature and meaning of illness and the fragility of the human condition. We describe three kinds of illness narratives that may be found in popular music (autobiographical, biographical, and metaphorical) and show how developing skills of close listening through exposure to these narrative forms can improve patient-physician communication and expand students' moral imaginations.


Subject(s)
Education, Medical , Music , Humans , Narration , Communication , Emotions
3.
J Med Humanit ; 44(2): 207-225, 2023 Jun.
Article in English | MEDLINE | ID: mdl-36690776

ABSTRACT

This essay proposes an expansion of the concept of narrative competence, beyond close reading, to include two more skills: the collaborative construction and compelling performance of stories. To show how this enhanced form of narrative competence can be attained, the essay describes Off Script, a cocurricular medical storytelling program with three phases: 1) creative writing workshop, 2) dress rehearsal, and 3) public performance of stories. In these phases, Off Script combines literary studies, creative writing, reflective practice, collegial feedback, and drama. With increased narrative competence, Off Script participants are likely better equipped to engage in more impactful health advocacy and partner with patients more effectively.


Subject(s)
Narrative Medicine , Humans , Narration , Communication , Learning , Reading , Writing
4.
Acad Med ; 98(2): 201, 2023 02 01.
Article in English | MEDLINE | ID: mdl-36696298
5.
Am J Bioeth ; 23(6): 5-17, 2023 06.
Article in English | MEDLINE | ID: mdl-35616323

ABSTRACT

Extracorporeal membrane oxygenation (ECMO) is typically viewed as a time-limited intervention-a bridge to recovery or transplant-not a destination therapy. However, some patients with decision-making capacity request continued ECMO support despite a poor prognosis for recovery and lack of viability as a transplant candidate. In response, critical care teams have asked for guidance regarding the ethical permissibility of unilateral withdrawal over the objections of a capacitated patient. In this article, we evaluate several ethical arguments that have been made in favor of withdrawal, including distributive justice, quality of life, patients' rights, professional integrity, and the Equivalence Thesis. We find that existing justifications for unilateral withdrawal of ECMO support in capacitated patients are problematic, which leads us to conclude that either: (1) additional ethical arguments are necessary to defend this approach or (2) the claim that it is not appropriate to use ECMO as a destination therapy should be questioned.


Subject(s)
Extracorporeal Membrane Oxygenation , Humans , Extracorporeal Membrane Oxygenation/adverse effects , Quality of Life , Critical Care , Patients , Dissent and Disputes
7.
J Clin Ethics ; 31(3): 241-251, 2020.
Article in English | MEDLINE | ID: mdl-32960806

ABSTRACT

Understanding a patient's story is integral to providing ethically supportable and practical recommendations that can improve patient care. Important skills include how to elicit an individual's story, how to weave different narrative threads together, and how to assist the care team, patients, and caregivers to resolve difficult decisions or moral dilemmas. Narrative approaches to ethics consultation deepen dialogue and stakeholders' engagement to reveal important values, preferences, and beliefs that may prove critical in resolving care challenges. Recognizing barriers to narrative inquiry, such as patients who are unable or refuse to share their story, is also important. In this article we offer specific steps and guidelines that ethicists can follow to systematically elicit and construct patients' stories. We provide a case example to illustrate how a narrative approach to ethics consultation illuminates salient ethical issues that may otherwise go unnoticed. We argue that this approach should be part of every consultant's tool kit.


Subject(s)
Ethics Consultation , Ethicists , Ethics, Clinical , Humans , Morals , Narration
9.
Hastings Cent Rep ; 50(1): 10-13, 2020 Jan.
Article in English | MEDLINE | ID: mdl-32068279

ABSTRACT

Mrs. Duong had coronary artery disease, ischemic cardiomyopathy, and mildly altered mental status when her case was presented before an advanced heart therapy medical review board. She was accepted for left ventricular assist device placement pending additional insight into her cognitive state. Before the LVAD could be implanted, however, Mrs. Duong went into cardiogenic shock, and her heart failure team placed an intra-aortic balloon pump in her subclavian artery. Within two weeks, Mrs. Duong became IABP dependent and deconditioned. The attending deemed her as lacking capacity to make complex medical decisions, and the medical review board officially declined her for LVAD placement. The heart failure and CICU teams feel that Mrs. Duong is not being helped by the care they are giving her. They recommend terminal weaning of the IABP and initiation of comfort care. Her family disagrees, pointing to activities like continued eating and interacting with family. At an impasse after yet another family meeting, the attending for the heart failure team asks the clinical ethics consultant, "Do we have to replace the balloon pump when it fails?"


Subject(s)
Intra-Aortic Balloon Pumping/ethics , Intra-Aortic Balloon Pumping/methods , Shock, Cardiogenic/surgery , Aged , Cardiomyopathies/complications , Cognitive Dysfunction/complications , Coronary Artery Disease/complications , Female , Humans , Shock, Cardiogenic/complications , Subclavian Artery/surgery
10.
Am J Bioeth ; 20(3): 9-18, 2020 Mar.
Article in English | MEDLINE | ID: mdl-32105205

ABSTRACT

Efforts to professionalize the field of bioethics have led to the development of the Healthcare Ethics Consultant-Certified (HEC-C) Program intended to credential practicing healthcare ethics consultants (HCECs). Our team of professional ethicists participated in the inaugural process to support the professionalization efforts and inform our views on the value of this credential from the perspective of ethics consultants. In this paper, we explore the history that has led to this certification process, and evaluate the ability of the HEC-C Program to meet the goals it has set forth for HCECs. We describe the benefits and weaknesses of the program and offer constructive feedback on how the process might be strengthened, as well as share our team's experience in preparing for the exam.


Subject(s)
Bioethics/trends , Certification/standards , Consultants , Ethicists/standards , Ethics Consultation/standards , Professional Competence/standards , Certification/history , Ethicists/education , History, 21st Century , Humans , Program Evaluation
11.
Multisens Res ; 32(4-5): 319-346, 2019 01 01.
Article in English | MEDLINE | ID: mdl-31137005

ABSTRACT

This study aimed to determine whether pitch, tempo, and volume levels of music stimuli affect sensory perception and acceptance of foods. A traditional music piece was arranged into versions at two pitches, two tempos, and two volumes. For each session, chocolate and bell peppers were presented for consumption under three sound conditions: 1) upper or 2) lower level with respect to each of the three music elements, and 3) silence. Over three sessions, participants evaluated flavor intensity, pleasantness of flavor, texture impression, and overall impression of food samples, in addition to the pleasantness and stimulation evoked by the music stimuli. Results showed that lower-pitched and louder music stimuli increased hedonic impressions of foods compared to their respective counterparts and/or the silent condition. While the effects of music element levels on hedonic impressions differed with the type of food consumed, the participants liked the foods more when music stimuli were perceived as more pleasant and stimulating. Flavor was perceived as more intense when participants were more stimulated by the music samples. Although a specific element of music stimuli was manipulated, perceptions of other elements also varied, leading to large variations in the music-evoked pleasantness and stimulation. In conclusion, the findings provide empirical evidence that hedonic impressions of foods may be influenced by emotions evoked by music selections varying in music element levels, but it should be also noted that the influences were food-dependent and not pronounced.


Subject(s)
Emotions/physiology , Food Preferences/physiology , Music , Pitch Perception/physiology , Taste/physiology , Acoustic Stimulation/methods , Adolescent , Adult , Female , Humans , Male , Reference Values , Young Adult
12.
HEC Forum ; 31(3): 201-217, 2019 Sep.
Article in English | MEDLINE | ID: mdl-30820819

ABSTRACT

Developing a care plan in a critical care context can be challenging when the therapeutic alliance between clinicians and families is compromised by anger. When these cases occur, clinicians often turn to clinical ethics consultants to assist them with repairing this alliance before further damage can occur. This paper describes five different reasons family members may feel and express anger and offers concrete strategies for clinical ethics consultants to use when working with angry families acting as surrogate decision makers for critical care patients. We reviewed records of consults using thematic analysis between January 2015 and June 2016. Each case was coded to identify whether the case involved a negative encounter with an angry family. In our review, we selected 11 cases with at least one of the following concerns or reasons for anger: (1) perceived or actual medical error, (2) concerns about the medical team's competence, (3) miscommunication, (4) perceived conflict of interest or commitment, or (5) loss of control. To successfully implement these strategies, clinical ethics consultants, members of the medical team, and family members should share responsibility for creating a mutually respectful relationship.


Subject(s)
Family/psychology , Trust/psychology , Attitude of Health Personnel , Critical Care/psychology , Critical Care/standards , Ethics Consultation , Humans , Professional-Family Relations , Quality of Health Care/standards , Texas
13.
J Crit Care ; 44: 459-461, 2018 04.
Article in English | MEDLINE | ID: mdl-29287932

ABSTRACT

A few weeks ago, Texas took an unprecedented position on unilateral DNRs by passing Senate Bill (SB) 11, which requires patient/surrogate consent for writing DNR orders. The motivation behind the bill was based on the drafters' beliefs that physicians frequently write unilateral DNR orders. SB 11, however, does not stop at requiring physicians to seek consent for DNR orders. Instead, the legislation uncharacteristically exceeds what is typically within the scope and role boundaries for lawmakers by legislating how physicians discuss and implement DNR orders. We contend that this bill is ethically problematic and will have far-reaching, negative consequences that will affect how critical care medicine is practiced. In what follows, we describe how proponents' arguments rely on several ethical assumptions, and we describe potential negative impacts stemming from this legislation. Finally, we offer an alternative approach that would mitigate proponents' concerns. We believe SB 11 and our analytic deconstruction of it should serve as "lessons learned" for other states considering similar legislation.

15.
Kennedy Inst Ethics J ; 28(4): 451-478, 2018.
Article in English | MEDLINE | ID: mdl-30713194

ABSTRACT

The development of ethical guidelines and regulations regarding human subjects research has focused upon protection of vulnerable populations by relying on a categorical approach to vulnerability. This results in several challenges: First, Institutional Review Boards (IRBs) struggle to interpret and apply the regulations because they are often vague and inconsistent. Second, applying the regulations to subjects who fit within multiple categories of vulnerability can lead to contradictions and the rejection of research that would be permissible if only one category were applicable. Finally, some potential subjects have social and other context-based vulnerabilities that are not described in the federal regulations and therefore not considered in IRB deliberations. IRBs and investigators lack guidance on how to address the problem of multiple vulnerabilities in a way that strikes a balance between protection and respect for persons. In this essay, we evaluate the acceptability of the existing federal regulations with respect to research participants with multiple vulnerabilities, offer strategies for rethinking the concept of vulnerability, and outline a context-based normative framework to account for the compounding effects of multiple vulnerabilities.


Subject(s)
Biomedical Research/ethics , Biomedical Research/legislation & jurisprudence , Minors/legislation & jurisprudence , Research Subjects/legislation & jurisprudence , Vulnerable Populations/legislation & jurisprudence , Ethics Committees, Research , Humans , United States
16.
Obstet Gynecol Surv ; 71(8): 488-500, 2016 Aug.
Article in English | MEDLINE | ID: mdl-27526872

ABSTRACT

IMPORTANCE: Obstetricians and gynecologists frequently deal with hemorrhage so they should be familiar with management of patients who refuse blood transfusion. Although there are some reports in the literature about management of Jehovah's Witness patients in obstetrics and gynecology, most of them are case reports, and a comprehensive review about these patients including ethicolegal perspective is lacking. OBJECTIVE: This review outlines the medical, ethical, and legal implications of management of Jehovah's Witness patients in obstetrical and gynecological settings. EVIDENCE ACQUISITION: A search of published literature using PubMed, Ovid Medline, EMBASE, and Cochrane databases was conducted about physiology of oxygen delivery and response to tissue hypoxia, mortality rates at certain hemoglobin levels, medical management options for anemic patients who refuse blood transfusion, and ethical/legal considerations in Jehovah's Witness patients. RESULTS: Early diagnosis of anemia and immediate initiation of therapy are essential in patients who refuse blood transfusion. Medical management options include iron supplementation and erythropoietin. There are also some promising therapies that are in development such as antihepcidin antibodies and hemoglobin-based oxygen carriers. Options to decrease blood loss include antifibrinolytics, desmopressin, recombinant factor VII, and factor concentrates. When surgery is the only option, every effort should be made to pursue minimally invasive approaches. CONCLUSION AND RELEVANCE: All obstetricians and gynecologists should be familiar with alternatives and "less invasive" options for patients who refuse blood transfusions.


Subject(s)
Anemia, Iron-Deficiency/drug therapy , Blood Transfusion , Hematologic Agents/therapeutic use , Jehovah's Witnesses , Pregnancy Complications, Hematologic/drug therapy , Anemia, Iron-Deficiency/prevention & control , Blood Transfusion/ethics , Blood Transfusion/legislation & jurisprudence , Delivery, Obstetric/ethics , Female , Hemorrhage/drug therapy , Humans , Physician-Patient Relations/ethics , Postpartum Hemorrhage/prevention & control , Pregnancy , Pregnancy Complications, Hematologic/prevention & control , Treatment Refusal/ethics , Treatment Refusal/legislation & jurisprudence
17.
Chest ; 149(6): 1577-8, 2016 06.
Article in English | MEDLINE | ID: mdl-27287576
18.
Chest ; 149(2): 562-567, 2016 Feb.
Article in English | MEDLINE | ID: mdl-26502321

ABSTRACT

There is little guidance on what clinicians should do when advance directives (or living wills, specifically) are challenged, particularly when surrogate decision-makers' interpretations of patients' wishes conflict with the living will. In our commentary, we make a controversial argument suggesting that overriding living wills can be ethically preferable to the alternative of strictly adhering to them. We propose four ethical considerations for determining whether it is ethically supportable to override living wills.


Subject(s)
Advance Directives/ethics , Decision Making , Living Wills/ethics , Terminal Care/ethics , Humans , Morals
19.
J Med Humanit ; 37(4): 371-387, 2016 Dec.
Article in English | MEDLINE | ID: mdl-26561349

ABSTRACT

Throughout its fifty-year history, the role of the medical humanist and even the name "medical humanities" has remained raw, dynamic and contested. What do we mean when we call ourselves "humanists" and our practice "medical humanities?" To address these questions, we turn to the concept of origin narratives. After explaining the value of these stories, we focus on one particularly rich origin narrative of the medical humanities by telling the story of how a group of educators, ethicists, and scholars struggling to define their relatively new field rediscovered the studia humanitatis, a Renaissance curriculum for learning and teaching. Our origin narrative is composed of two intertwined stories-the history of the studia humanitatis itself and the story of the scholars who rediscovered it. We argue that as an origin narrative the studia humanitatis grounds the medical humanities as both an engaged moral practice and pedagogical project. In the latter part of the paper, we use this origin narrative to show how medical humanists working in translational science can use their understanding of their historical roots to do meaningful work in the world.


Subject(s)
Curriculum , Humanities/education , Humanities/history , History, 20th Century
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