ABSTRACT
PURPOSE: In 2008, the Royal College of Physicians (RCP) and MS Trust conducted a second audit of NHS services for people with MS (PwMS). Using the free text comments obtained from the RCP and MS Trust audit, this study aimed to perform content analysis on the views of PwMS about MS services, focussing on physiotherapy provision. METHOD: A total of 757 PwMS included a free text comment on MS services and an additional 41 commented separately about physiotherapy services. The data were analysed using content analysis, which identified three main themes, positive, negative and neutral and subsequent categories and sub-categories. Intra- and inter-rater reliability were assessed and the data were manipulated to address the research aim. RESULTS: This study found that the majority of the free text comments on MS services were negative (55%). Physiotherapy provision was rated the most negative of NHS services (38%), with the primary complaints being lack of information about services and excessive waiting times for appointments. CONCLUSION: This study has revealed that NHS physiotherapy provision is not meeting the needs of PwMS.
Subject(s)
Multiple Sclerosis/therapy , Patient Satisfaction , Physical Therapy Modalities , Adult , Aged , Female , Humans , Information Management/standards , Male , Medical Audit , Middle Aged , Needs Assessment , Physical Therapy Modalities/psychology , Physical Therapy Modalities/standards , Social Perception , State Medicine/standards , State Medicine/statistics & numerical data , United Kingdom , Waiting ListsABSTRACT
BACKGROUND: Updated, robust estimates of the incidence and prevalence of rare long-term neurological conditions in the UK are not available. Global estimates may be misrepresentative as disease aetiology may vary by location. OBJECTIVES: To systematically review the incidence and prevalence of long-term neurological conditions in the UK since 1988. SEARCH STRATEGY: Medline (January 1988 to January 2009), Embase (January 1988 to January 2009), CINAHL (January 1988 to January 2009) and Cochrane CENTRAL databases. SELECTION CRITERIA: UK population-based incidence/prevalence studies of long-term neurological conditions since 1988. Exclusion criteria included inappropriate diagnoses and incomprehensive case ascertainment. DATA COLLECTION AND ANALYSIS: Articles were included based on the selection criteria. Data were extracted from articles with ranges of incidence and prevalence reported. MAIN RESULTS: Eight studies met the criteria (3 on motor neurone disease; 4 on Huntington's disease; 1 on progressive supranuclear palsy). The incidence of motor neurone disease ranged from 1.06 to 2.4/100,000 person-years. The prevalence ranged from 4.02 to 4.91/100,000. The prevalence of Huntington's disease ranged from 4.0 to 9.94/100,000. The prevalence of progressive supranuclear palsy ranged from 3.1 to 6.5/100,000. CONCLUSIONS: The review updates the incidence/prevalence of long-term neurological conditions. Future epidemiological studies must incorporate comprehensive case ascertainment methods and strict diagnostic criteria.
