ABSTRACT
El artículo estudia la manera en la que los profesionales sanitarios comunican el diagnóstico de síndrome de Down a los padres. Para eso se analizan los relatos personales de las madres recogidos en las respuestas dadas por aquéllas a las preguntas abiertas de un cuestionario sobre "comunicación del diagnóstico". Los resultados muestran la insatisfacción de las madres ante la información recibida durante el diagnóstico prenatal y postnatal de síndrome de Down
The article studies the way in which health professionals communicate the diagnosis of Down syndrome to parents. For that the personal stories of the mothers collected in the answers given by them to the open questions of a questionnaire on "communication of the diagnosis" are analyzed. The results show the mothers' dissatisfaction with the information received during the prenatal and postnatal diagnosis of Down syndrome
Subject(s)
Humans , Male , Female , Child, Preschool , Adult , Down Syndrome/diagnosis , Mothers/psychology , Professional-Family Relations , Truth Disclosure/ethics , Communication , Cross-Sectional Studies , Self Report , Patient Satisfaction , Surveys and QuestionnairesABSTRACT
The article studies the way in which health professionals communicate the diagnosis of Down syndrome to parents. For that the personal stories of the mothers collected in the answers given by them to the open questions of a questionnaire on â³communication of the diagnosisâ³ are analyzed. The results show the mothers' dissatisfaction with the information received during the prenatal and postnatal diagnosis of Down síndrome.