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1.
Int J Palliat Nurs ; 25(11): 531-540, 2019 Nov 02.
Article in English | MEDLINE | ID: mdl-31755831

ABSTRACT

BACKGROUND: People with learning disability (LD) have complex comorbidities that develop at an earlier age than the general population and with which they are now living longer. Identification, assessment and management of these conditions is important but challenging. AIM: To develop resources with care staff to enable them to recognise and manage changes and decline in the health of a person with a LD. METHODS: Two resources (PIP-LD and CIRC) were developed through undertaking a literature review; networking with experts; and collaborating with staff in the care homes for people with a LD. Care staff then used these resourcesto review their residents. FINDINGS: The PIP-LD and CIRC were used in 39 care homes. The PIP-LD empowered staff to meet people's immediate health needs, and the CIRC helped them to recognise changes or a decline. CONCLUSIONS: The combined use of the PIP-LD and the CIRC enabled care staff to recognise the signs and symptoms of each person's comorbidities early, and to identify and manage changes when their health declined.


Subject(s)
Intellectual Disability/nursing , Multiple Chronic Conditions/nursing , Palliative Care , Residential Facilities , Adolescent , Adult , Advance Care Planning , Aged , Aged, 80 and over , Autism Spectrum Disorder/epidemiology , Autism Spectrum Disorder/nursing , Cardiovascular Diseases/epidemiology , Cardiovascular Diseases/nursing , Comorbidity , Diabetes Mellitus/epidemiology , Diabetes Mellitus/nursing , Down Syndrome/epidemiology , Down Syndrome/nursing , Epilepsy/epidemiology , Epilepsy/nursing , Female , Fragile X Syndrome/epidemiology , Fragile X Syndrome/nursing , Humans , Intellectual Disability/epidemiology , Learning Disabilities/epidemiology , Learning Disabilities/nursing , Male , Mental Disorders/epidemiology , Mental Disorders/nursing , Middle Aged , Nervous System Diseases/epidemiology , Nervous System Diseases/nursing , Patient Care Planning , Thyroid Diseases/epidemiology , Thyroid Diseases/nursing , Young Adult
2.
Int J Palliat Nurs ; 22(11): 534-540, 2016 Nov 02.
Article in English | MEDLINE | ID: mdl-27885907

ABSTRACT

AIMS: This article aims to share the experience of a hospice in facilitating a multi-centre audit of end-of-life care in care homes, particularly noting the challenges and enablers of carrying out the audit. METHODS: The audit was a retrospective multi-centre survey of bereaved relatives/next of kin of residents who died in the care home, using an anonymous, validated questionnaire: the Family Perception of Care Scale. Questionnaires were sent 3-months after bereavement. Returned questionnaires were analysed using SPSS and Excel. The care homes were in areas encompassing outer and inner city populations. FINDINGS: The team identified eight challenges to the audit process, in particular, embedding procedures within the care homes, non-responses and developing action plans for improvement. CONCLUSION: Overall, the audit provided an indication of where improvements could be made and where care was already excellent, built confidence and increased expertise in the care-home staff.


Subject(s)
Clinical Audit , Family , Hospice Care/standards , Hospice and Palliative Care Nursing/standards , Nursing Homes , Terminal Care/standards , Attitude of Health Personnel , Attitude to Health , Bereavement , Humans , Morale , Quality of Health Care , Retrospective Studies , Surveys and Questionnaires
3.
Urology ; 65(5): 931-6, 2005 May.
Article in English | MEDLINE | ID: mdl-15882726

ABSTRACT

OBJECTIVES: To estimate the incidence of prostate cancer among African-American men and Caribbean immigrants to the United States, to assess the applicability of large-scale prostate screening trials to a community screening program, and to recruit unscreened men. METHODS: African-American and Caribbean-American men were targeted with a community-based prostate cancer screening program in Jamaica, New York. Serum prostate-specific antigen determination and digital rectal examination were used to determine abnormal findings. The incidence of an abnormal screening examination was used to project the incidence of prostate cancer, which was compared with that in other reported trials. RESULTS: The projected incidence of prostate cancer among African-Americans and Caribbean-Americans older than 50 years was 8% and 7%, respectively, similar to that reported in other trials of African-American men. The projected incidence of prostate cancer in Caribbean-American men aged 40 to 49 years was 1%, the same as the high rate reported among Caribbean men. As in other trials, a family history of prostate cancer and age were strong predictors of abnormal findings. Of the recruited men older than 50 years, 58% had never been screened compared with 42% nationally. CONCLUSIONS: Large population-based screening trials have identified ethnic groups at high risk of prostate cancer. This trial detected high rates of abnormal screening findings by targeting ethnicity. The incidence of an abnormal examination was high in Caribbean-American men younger than 50 years old. Finally, this trial successfully recruited underscreened men.


Subject(s)
Black or African American/statistics & numerical data , Ethnicity/statistics & numerical data , Prostate-Specific Antigen/blood , Prostatic Neoplasms/ethnology , Adult , Aged , Aged, 80 and over , Caribbean Region/ethnology , Humans , Incidence , Male , Mass Screening , Middle Aged , New York/epidemiology , Palpation , Predictive Value of Tests , Prostatic Neoplasms/epidemiology
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