Adolescer e adoecer na perspectiva de jovem e família / To be an adolescent and sicken in the youth's and family's perspective / Ser un adolescente enfermo en la perspectiva del joven y de la familia

RESUMO Objetivo: Este estudo busca enfatizar a vivência do adolescer concomitante ao adoecer através de linha de ado ecimento e desenvolvimento de jovem que, na adolescência, experienciou a instauração de condição crónica por agravos concomitantes -doença renal e câncer. Método: Pesquisa de abordagem compreensiva, modelado como estudo de situação, através da História de Vida, operacionalizada por Entrevista em Profundidade e ob servação de campo; sendo sujeitos do estudo um jovem adoecido e alguns membros de sua família. Resultados: O desenho de linhas imbricadas do adoecimento e do adolescer possibilitou compreender as diferentes fases da condição crónica por agravos concomitantes e suas significativas repercussões para a vida do jovem. Dessa imbricação entre o adolescer e o adoecer, emergiram diversos enfrentamentos mediante as modificações físico-biológicas, comportamentais e sociais vivenciadas, configurando essa experiência única e complexa. Conclusão: Tal compreensão se mostra importante aos profissionais de saúde, de modo que busquem atender as necessida des do ser humano em desenvolvimento como um todo, não apenas as manifestações da doença.

ABSTRACT Objective: This study seeks to highlight the experience of being an adolescent and concomitantly suffer a chronic condition. The study focuses on a teenager who experienced the establishment of a chronic condition due to concomitant aggravations -kidney disease and cancer during adolescence. Methodology: A comprehensive study modeled as a situational analysis of Life History was performed by means of in-depth interviews and field observations. The test subjects were a teenager suffering from a chronic disease and some of his family members. Results: By intertwining the realities of suffering a chronic condition and going through adolescence, we were able to understand the different stages of said chronic condition due to concomitant aggravations and its significant impact on the life of the teenager. Several conflicts emerged from this overlap of adolescence and disease due to physical, biological, behavioral, and social changes; which make such experience complex and unique. Conclusion: This understanding proves important to health professionals allowing them to holistically meet the needs of a developing human being and not only pay attention to the manifestations of the disease.

RESUMEN Objetivo: En este estudio se pretende dar a conocer la experiencia de ser un adolescente concomitante de caer enfermo a través de la línea de enfermedad y desarrollo del joven, que en la adolescencia ha experimentado el establecimiento de una condición crónica con enfermedades concomitantes: dolencia renal y cáncer. Método: Investigación con enfoque integral modelado como estudio de situación mediante la Historia de Vida, realizada por la Entrevista en Profundidad y observación de campo; el sujeto de estudio fue un joven enfermo y algunos miembros de su familia. Resultados: El diseño de líneas entrelazadas de la enfermedad y del adolescente ha per mitido entender las diferentes etapas de la condición crónica resultante de las enfermedades concomitantes y su impacto significativo en la vida de los jóvenes. De este entrelazamiento entre el adolescente y la enfermedad surgieron varios enfrentamientos por los cambios físicos y biológicos, ajuste conductual y social, vividos en esta experiencia compleja y única. Conclusión: Tal entendimiento es importante para los profesionales de la salud, permitiéndoles satisfacer las necesidades del ser humano en desarrollo en su conjunto, y no sólo las manifesta ciones de la enfermedad.

[Falling ill and dying of a young woman with breast cancer]. / O adoecer e morrer de mulher jovem com câncer de mama.

This study focused on the experience of a young woman with breast cancer and sought to understand the progression of her falling ill, dying and death based on the significance attributed to the events of her life. It concentrates on the idea that one dies from how one has lived and in the way that a new meaning is attributed to this life over the course of time. It is qualitative research that is presented as a situational study that enabled the construction of Beth's Life Line using her Life History in which, judging from her narratives, events considered significant by her and that confirmed her way of living, stand out and are reflected in her death. Besides the detailed description of how the interview meetings occurred, it also discusses two central categories of the study, called "Ebbing of life - the small deaths experienced by Beth" and "Beth living out her dying and death." The study emphasizes the need for the health professionals to assume responsibility for a kind of care that does not only seek a cure, but also focuses on the human dimension, aiming to ensure well-being and maintenance of life, while this is still possible.

[Technologies of the self in nursing: a map and some considerations on a Foucaultian theme]. / Tecnologias do eu na área enfermagem: um mapa e alguns indícios sobre um tema foucaultiano.

This article presents the methodological process and the results of a literature review study aimed at mapping the scientific literature on technologies of the self emphasizing the nursing area, as well as analyzing the use of Michel Foucault's reference framework in this area. In addition to positioning Brazilian production in the international scene, this study shows the gradual consolidation of this author's contribution with respect to this and other specific themes, as part of a tendency that shows the potential of this theoretical perspective.