Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 34
Filter
1.
Support Care Cancer ; 29(10): 5681-5690, 2021 Oct.
Article in English | MEDLINE | ID: mdl-33595717

ABSTRACT

OBJECTIVE: We aimed to determine the impact of a primary treatment consultation recording on perception of being informed, satisfaction with cancer care, satisfaction with the oncologist, and psychological distress in patients with brain tumors. METHODS: This was a prospective, double-blind, parallel, randomized controlled trial conducted in 3 Canadian cities, in which patients who had their initial treatment consultation recorded were assigned to either receive their digital recording or not. It was hypothesized that patients who received their recording would realize statistically significant benefit on the outcomes of interest at 1 week, 3 months, and 6 months post-consultation in comparison to patients who did not receive their recording. Outcome measures included the following: Patient Satisfaction with Cancer Scale, Hospital Anxiety and Depression Scale, PrestMan Satisfaction with Doctor Scale, and Perception of Being Informed Scale. RESULTS: Of the 246 eligible patients, 133 participated (60.9% male; age M=52.4 years; 53.4% grade IV disease). Of these, 63 received their consultation recording and 70 did not. Intention-to-treat analysis showed that, compared to baseline, patients who received their consultation recording reported being more fully informed about their disease and treatment at 1 week post-consultation than patients who did not receive their recording (p = 0.007), but this finding was no longer significant at 3 and 6 months. There were no statistically significant differences observed between the two groups on the measures of satisfaction with cancer care, satisfaction with the doctor, and depression or anxiety at any assessment time point, though the study was under-powered. CONCLUSION: The study findings show that primary treatment consultation recordings may provide limited benefit beyond brain tumor patients' perception of being informed, despite being highly valued by these patients, and high listening rates among their significant others. The lack of statistical power should be considered when interpreting the findings. TRIAL REGISTRATION: ClinicalTrials.gov - NCT01866228.


Subject(s)
Brain Neoplasms , Referral and Consultation , Brain Neoplasms/therapy , Canada , Female , Humans , Male , Middle Aged , Patient Reported Outcome Measures , Prospective Studies
2.
Psychooncology ; 22(11): 2470-7, 2013 Nov.
Article in English | MEDLINE | ID: mdl-23712915

ABSTRACT

OBJECTIVE: Treatment decisional preferences impact breast cancer patients' health-related quality of life (HRQoL) and may relate to psychological variables, although many aspects of this relationship remain unknown. This prospective study aimed to assess psychological correlates of treatment decisional preferences and predictors of HRQoL in women with early non-metastatic breast cancer. METHODS: Of the 124 women initially assessed for anxiety (Spielberger's State-Trait Anxiety Inventory) and depressive (Center for Epidemiologic Studies-Depression (CES-D)) symptoms, HRQoL (WHOQOL-BREF), and defense mechanisms (Life Style Index), 82 (66.1%) completed the 1-year follow-up. Mean age was 54.6 years (SD = 9.76), and mean disease duration was 19.4 months (SD = 25.55); 19.5% had stage I, 63.4% stage II and 17.1% stage III disease. The predictive power and moderator effects of psychological variables were tested using multiple and hierarchical regression models. RESULTS: Depressive symptoms and physical HRQoL improved significantly, state anxiety and mental and environment HRQoL remained stable, and social relations HRQoL deteriorated over the 1-year period. Older age (p = 0.021) and higher scores in repression defense (p = 0.044) were independently associated with passive decisional preferences. Earlier stage of cancer (p = 0.043), lower state anxiety (p = 0.039), lower repression scores (p = 0.021) and improvement in depressive symptoms (p < 0.001) predicted physical HRQoL improvement. Moderation analysis showed that active decisional preferences predicted physical HRQoL improvement, but only in those women with lower repression levels. CONCLUSIONS: Defense mechanisms are associated with treatment decisional preferences and interact with factors predicting HRQoL in women with breast cancer. Clinicians should address the patients' anxiety and depressive symptoms and refer patients with high repression tendencies for psychological evaluation and management.


Subject(s)
Anxiety/psychology , Breast Neoplasms/psychology , Defense Mechanisms , Depression/psychology , Quality of Life/psychology , Adult , Aged , Decision Making , Female , Greece , Hospitals, University , Humans , Middle Aged , Patient Preference , Prospective Studies , Psychiatric Status Rating Scales , Regression Analysis , Severity of Illness Index , Sickness Impact Profile , Socioeconomic Factors , Stress, Psychological/psychology , Surveys and Questionnaires
3.
Psychooncology ; 22(6): 1273-82, 2013 Jun.
Article in English | MEDLINE | ID: mdl-22821445

ABSTRACT

OBJECTIVE: The objectives of this implementation study were to (i) address the evidentiary, contextual, and facilitative mechanisms that serve to retard or promote the transfer and uptake of consultation recording use in oncology practice and (ii) follow patients during the first few days following receipt of the consultation recording to document, from the patient's perspective, the benefits realized from listening to the recording. METHODS: Nine medical and nine radiation oncologists from cancer centers in three Canadian cities (Calgary, Vancouver, and Winnipeg) recorded their primary consultations for 228 patients newly diagnosed with breast (n = 174) or prostate cancer (n = 54). The Digital Recording Use Semi-Structured Interview was conducted at 2 days and 1 week postconsultation. Each oncologist was provided a feedback letter summarizing the consultation recording benefits reported by their patients. RESULTS: Sixty-nine percent of patients listened to at least a portion of the recording within the first week following the consultation. Consultation recording favorableness ratings were high: 93.6% rated the intervention between 75 and 100 on a 100-point scale. Four main areas of benefit were reported: (i) anxiety reduction; (ii) enhanced retention of information; (iii) better informed decision making; and (iv) improved communication with family members. Eight fundamental components of successful implementation of consultation recording practice were identified. CONCLUSIONS: Further randomized trials are recommended, using standardized measures of the patient-reported benefit outcomes reported herein, to strengthen the evidence base for consultation recording use in oncology practice.


Subject(s)
Breast Neoplasms/diagnosis , Patient Satisfaction , Physician-Patient Relations , Prostatic Neoplasms/diagnosis , Referral and Consultation/organization & administration , Tape Recording/methods , Adult , Aged , Aged, 80 and over , Anxiety/prevention & control , Canada , Communication , Decision Making , Female , Humans , Male , Medical Oncology/methods , Middle Aged , Physicians
4.
Psychooncology ; 21(8): 809-17, 2012 Aug.
Article in English | MEDLINE | ID: mdl-21557385

ABSTRACT

OBJECTIVE: The purpose of this investigation was to explicate the content of primary treatment consultations in prostate oncology and examine the predictive relationships between patient, significant other, and oncologist consultation factors and patient satisfaction with communication. METHODS: The recorded consultations of 156 newly diagnosed prostate cancer patients from three Canadian cancer centers were examined using the Medical Interaction Process System (MIPS). The MIPS findings, independent observer ratings of patient, significant other, and oncologist affective behavior, and derived consultation ratios of patient centeredness, patient directedness, and psychosocial focus, were used to predict patient satisfaction with communication post-consultation and at 12-weeks post-consultation. RESULTS: Biomedical content categories were predominant in the consultations, accounting for 86% of utterances, followed by administrative (9%) and psychosocial (5%) utterances. Post-consultation satisfaction with communication was significantly lower for patients whose significant others were rated as more assertive during the consultation, and those rated as more anxious during the consultation. Patients who were rated as more anxious during the consultation, those with lower satisfaction with communication immediately post-consultation and those with shorter consultations were significantly less satisfied with communication at 12-weeks post-consultation. CONCLUSIONS: Adjuvant treatment consultations in prostate oncology are characterized by a high degree of information-giving by the physician, a predominance of biomedical discussion, and relatively minimal time addressing patients' psychosocial concerns. Patients may benefit from oncologists who address anxiety and emotional distress during the primary treatment consultation, allowing sufficient time to ensure that patients leave the consultation with their communication needs having been satisfied.


Subject(s)
Communication , Patient Satisfaction , Physician-Patient Relations , Prostatic Neoplasms/psychology , Radiation Oncology , Aged , Canada , Caregivers/psychology , Humans , Male , Middle Aged , Prostatic Neoplasms/radiotherapy , Radiotherapy, Adjuvant , Referral and Consultation
5.
Support Care Cancer ; 19(8): 1097-105, 2011 Aug.
Article in English | MEDLINE | ID: mdl-21494781

ABSTRACT

PURPOSE: Over the past two decades, the fields of psychosocial oncology and supportive care have seen clinically effective tools as underutilized despite proven benefits to cancer patients and their families. The purpose of this paper is to discuss the reasons for the failure of psychosocial and supportive care interventions in oncology to realize broad clinical implementation and to demonstrate how a knowledge management framework offers several advantages for increasing the probability of successful implementation. METHODS: This paper is based on a systematic review of the literature pertaining to efforts to implement psychosocial oncology and supportive care interventions. RESULTS: The struggle to develop, implement, and evaluate promising psychosocial oncology and supportive care innovations has moved academic thought toward the development of models and theories concerning the best ways to move new knowledge into clinical practice. There are critical and common barriers to the successful transfer and implementation of promising interventions, and implementation efforts may be maximized by using knowledge management frameworks to systematically identify and address these barriers. CONCLUSIONS: The successful implementation of empirically promising interventions requires research networks and practice groups to work together in a concerted, theory-guided effort to identify and address the contextual factors most relevant to any particular intervention. The growing support of knowledge implementation activities by research funders, policy-makers, opinion leaders, and advocates of psychosocial and supportive care interventions is a positive move in this direction.


Subject(s)
Neoplasms/therapy , Palliative Care/methods , Social Support , Databases, Factual , Evidence-Based Medicine , Health Knowledge, Attitudes, Practice , Humans , Medical Oncology/methods , Neoplasms/psychology , Practice Patterns, Physicians' , Translational Research, Biomedical
6.
Implement Sci ; 6: 20, 2011 Mar 14.
Article in English | MEDLINE | ID: mdl-21401958

ABSTRACT

BACKGROUND: The time period from diagnosis to the end of treatment is challenging for newly diagnosed cancer patients. Patients have a substantial need for information, decision aids, and psychosocial support. Recordings of initial oncology consultations improve information recall, reduce anxiety, enhance patient satisfaction with communication, and increase patients' perceptions that the essential aspects of their disease and treatment have been addressed during the consultation. Despite the research evidence supporting the provision of consultation recordings, uptake of this intervention into oncology practice has been slow. The primary aim of this project is to conduct an implementation study to explicate the contextual factors, including use of evidence, that facilitate and impede the transfer and uptake of consultation-recording use in a sample of patients newly diagnosed with breast or prostate cancer. METHODS: Sixteen oncologists from cancer centres in three Canadian cities will participate in this three-phase study. The preimplementation phase will be used to identify and address those factors that are fundamental to facilitating the smooth adoption and delivery of the intervention during the implementation phase. During the implementation phase, breast and prostate cancer patients will receive a recording of their initial oncology consultation to take home. Patient interviews will be conducted in the days following the consultation to gather feedback on the benefits of the intervention. Patients will complete the Digital Recording Use Semi-Structured Interview (DRUSSI) and be invited to participate in focus groups in which their experiences with the consultation recording will be explored. Oncologists will receive a summary letter detailing the benefits voiced by their patients. The postimplementation phase includes a conceptual framework development meeting and a seven-point dissemination strategy. DISCUSSION: Consultation recording has been used in oncology, family medicine, and other medicine specialties, and despite affirming evidence and probable applications to a large number of diseases and a variety of clinical contexts, clinical adoption of this intervention has been slow. The proposed study findings will advance our conceptual knowledge of the ways to enhance uptake of consultation recordings in oncology.


Subject(s)
Breast Neoplasms/psychology , Medical Oncology , Physician-Patient Relations , Prostatic Neoplasms/psychology , Referral and Consultation , Tape Recording/instrumentation , Canada , Communication , Evidence-Based Medicine , Female , Focus Groups , Humans , Interviews as Topic , Male , Patient Education as Topic
7.
Psychooncology ; 20(8): 871-9, 2011 Aug.
Article in English | MEDLINE | ID: mdl-20623805

ABSTRACT

OBJECTIVES: We aimed at assessing Greek breast cancer patients' preferences for participation in treatment decision making and their information needs. METHODS: In a cross-sectional study, 329 breast cancer patients were administered at the Control Preferences Scale, a card-sort measurement designed to elicit preferences for participation in decision making. Information needs were assessed with Cassileth's Information Styles Questionnaire. RESULTS: The majority of patients (71.1%) preferred to play a passive role in treatment decision making, with most of them wanting to delegate responsibility of the decision completely to their doctor (45.3%). A collaborative role was preferred by 24%, whereas only 4.6% chose an active role. Most women expressed a general desire for as much information as possible about their illness (62.6%), but a substantial proportion (37.4%) did not want detailed information; instead, they wished to avoid awareness of bad news. Women who desired less informational details and preferred a passive role requested less frequently a mammography (p<0.001) and/or Pap test (p<0.0005) prediagnostically. CONCLUSIONS: This study's findings showed that the proportion of patients who wanted to play a passive role in decision making is the highest reported compared to similar studies from other countries, indicating the impact of the dominating paternalistic model of the doctor-patient relationship in the Greek medical encounter. The association of desired information details and decision-making preferences with screening for cancer procedures prediagnostically highlights the significance of providing the patients with the appropriate information and the choices available for their treatment.


Subject(s)
Breast Neoplasms/psychology , Decision Making , Information Seeking Behavior , Age Factors , Aged , Cross-Sectional Studies , Female , Greece , Humans , Mammography/psychology , Middle Aged , Patient Participation/psychology , Patient Preference/psychology , Regression Analysis , Socioeconomic Factors , Vaginal Smears/psychology
8.
Am J Manag Care ; 16(9): 688-96, 2010 Sep.
Article in English | MEDLINE | ID: mdl-20873956

ABSTRACT

OBJECTIVES: To collect normative data, assess differences between demographic groups, and indirectly compare US and Canadian medical systems relative to patient expectations of involvement in cancer treatment decision making. STUDY DESIGN: Meta-analysis. METHODS: Individual patient data were compiled across 6 clinical studies among 3491 patients with cancer who completed the 2-item Control Preferences Scale indicating the roles they preferred versus actually experienced in treatment decision making. RESULTS: The roles in treatment decision making that patients preferred were 26% active, 49% collaborative, and 25% passive. The roles that patients reported actually experiencing were 30% active, 34% collaborative, and 36% passive. Roughly 61% of patients reported having their preferred role; only 6% experienced extreme discordance between their preferred versus actual roles. More men than women (66% vs 60%, P = .001) and more US patients than Canadian patients (84% vs 54%, P <.001) reported concordance between their preferred versus actual roles. More Canadian patients than US patients preferred and actually experienced (42% vs 18%, P <.001) passive roles. More women than men reported taking a passive role (40% vs 24%, P <.001). Older patients preferred and were more likely than younger patients to assume a passive role. CONCLUSIONS: Roughly half of the studied patients with cancer indicated that they preferred to have a collaborative relationship with physicians. Although most patients had the decision-making role they preferred, about 40% experienced discordance. This highlights the need for incorporation of individualized patient communication styles into treatment plans.


Subject(s)
Decision Making , Neoplasms/drug therapy , Patient Participation , Physician-Patient Relations , Role , Aged , Canada , Female , Humans , Male , Middle Aged , United States
9.
Psychooncology ; 19(6): 626-36, 2010 Jun.
Article in English | MEDLINE | ID: mdl-19514095

ABSTRACT

OBJECTIVE: The purpose of this investigation was to explicate the content of primary adjuvant treatment consultations in breast oncology and examine the predictive relationships between patient and oncologist consultation factors and patient satisfaction with communication. METHODS: The recorded consultations of 172 newly diagnosed breast cancer patients from four Canadian cancer centers were randomly drawn from a larger subset of 481 recordings and examined by three coders using the Medical Interaction Process System (MIPS); a system that categorizes the content and mode of each distinct utterance. The MIPS findings, independent observer ratings of patient and oncologist affective behavior, and derived consultation ratios of patient centeredness, patient directedness, and psychosocial focus, were used to predict patient satisfaction with communication post-consultation and at 12-weeks post-consultation. RESULTS: Biomedical content categories were predominant in the consultations, accounting for 88% of all utterances, followed by administrative (6%) and psychosocial (6%) utterances. Post-consultation satisfaction with communication was significantly higher for older patients, those with smaller primary tumors and those with longer consultations. Smaller tumor, lack of patient assertiveness during the treatment consultation and having the consultation with a radiation rather than medical oncologist were significantly predictive of greater satisfaction at 12-weeks post-consultation. CONCLUSIONS: Adjuvant treatment consultations are characterized by a high degree of information-giving by the physician, a predominance of biomedical discussion and relatively minimal time addressing patients' psychosocial concerns. Controlled trials are needed to further identify and address the contextual features of these consultations that enhance patient satisfaction.


Subject(s)
Breast Neoplasms/psychology , Communication , Physician-Patient Relations , Breast Neoplasms/therapy , Female , Humans , Medical Oncology/standards , Middle Aged , Patient Education as Topic , Patient Satisfaction , Referral and Consultation/standards
10.
Psychooncology ; 19(6): 606-16, 2010 Jun.
Article in English | MEDLINE | ID: mdl-19557823

ABSTRACT

PURPOSE: The purpose of this secondary investigation was to examine the impact of the type of treatment received and the perceived role in treatment decision making in predicting distress and cancer-specific quality of life in patients newly diagnosed with breast or prostate cancer. METHOD: Participants included 1057 newly diagnosed breast and prostate cancer patients from four Canadian cancer centers who partook in a randomized controlled trial examining the utility of providing patients with an audio-recording of their treatment planning consultation. A MANCOVA was performed to predict distress and cancer-specific quality of life at 12 weeks post-consultation based on control variables (patient age, education, residence, tumor size (breast sample), gleason score (prostate sample), and receipt of an initial treatment consultation recording), predictor variables (treatment type--chemotherapy, hormone therapy, radiation therapy; decisional role--active, collaborative, passive), and interactions between these predictors. RESULTS: Women who received chemotherapy and reported having played a more passive role in treatment decision making had significantly greater distress and lower cancer-specific quality of life at 12-week post-consultation. There were no statistically significant predictors of these outcomes identified for men with prostate cancer. CONCLUSION: Receipt of chemotherapy places women with breast cancer at risk for distress and reduced quality of life, but only for the subset of women who report playing a passive role in treatment decision making. Prospective, longitudinal studies are needed to confirm the present findings and to explicate the antecedents, composition, and consequences of the 'passive' decisional role during the treatment phase of the cancer trajectory.


Subject(s)
Breast Neoplasms/psychology , Patient Participation/psychology , Prostatic Neoplasms/psychology , Quality of Life/psychology , Stress, Psychological/etiology , Adult , Age Factors , Aged , Analysis of Variance , Antineoplastic Agents/therapeutic use , Breast Neoplasms/drug therapy , Breast Neoplasms/pathology , Breast Neoplasms/therapy , Depression/etiology , Depression/psychology , Educational Status , Female , Humans , Male , Middle Aged , Multivariate Analysis , Prostatic Neoplasms/pathology , Prostatic Neoplasms/therapy , Regression Analysis , Stress, Psychological/psychology , Tape Recording , Treatment Outcome
11.
Eur J Oncol Nurs ; 14(2): 160-5, 2010 Apr.
Article in English | MEDLINE | ID: mdl-19811950

ABSTRACT

BACKGROUND: Prostate cancer (PC) is the most common type of male-specific cancer in North American men, and many men choose radical prostatectomy (RP) to remove their cancer. Although penile length shortening (PLS) occurs in a reported 68% to 71% of men undergoing RP, little is known about it. In an electronic journal search, only 9 medical articles (with no nursing publications) were published between 1980 and 2007. PURPOSE: To provide an account of patients' perceptions and responses to living with PLS after RP. METHODS AND SAMPLE: Semi-structured interviews and a grounded theory approach were used to discover the basic social processes regarding men's perceptions of a shortened penis and overall sense of self. A total of six men who underwent RP and consequently noticed PLS were recruited from a local PC support group for semi-structured interviews lasting between 40-60 min. RESULTS: Based on subjects' own definitions of masculinity, no significant changes in the constructs of masculinity and overall self-image perception were reported. CONCLUSIONS: Men undergoing RP may not be fully aware that PLS is a possible consequence related to treatment. In spite of this, subjects were not negatively affected by its occurrence.


Subject(s)
Body Image , Penis/pathology , Prostatectomy , Prostatic Neoplasms/surgery , Aged , Erectile Dysfunction/etiology , Erectile Dysfunction/psychology , Humans , Interviews as Topic , Male , Middle Aged , Social Support
12.
Clin J Oncol Nurs ; 12(5): 749-55, 2008 Oct.
Article in English | MEDLINE | ID: mdl-18842531

ABSTRACT

Prostate cancer is the second most common type of cancer in men living in the United States and the most common type of malignancy in Canadian men, accounting for 186,320 new cases in the United States and 24,700 in Canada in 2008. Uncertainty, a component of all illness experiences, influences how men perceive the processes of treatment and adaptation. The Reconceptualized Uncertainty in Illness Theory explains the chronic nature of uncertainty in cancer survivorship by describing a shift from an emergent acute phase of uncertainty in survivors to a new level of uncertainty that is no longer acute and becomes a part of daily life. Proper assessment of certainty and uncertainty may allow nurses to maximize the effectiveness of patient-provider communication, cognitive reframing, and problem-solving interventions to reduce uncertainty after cancer treatment.


Subject(s)
Prostatic Neoplasms/diagnosis , Uncertainty , Canada/epidemiology , Humans , Male , Nurse-Patient Relations , Oncology Nursing , Prostatic Neoplasms/pathology , Prostatic Neoplasms/therapy , United States/epidemiology
14.
J Clin Oncol ; 25(34): 5381-9, 2007 Dec 01.
Article in English | MEDLINE | ID: mdl-18048819

ABSTRACT

PURPOSE: To examine symptom prevalence, intensity, and association with distress in patients with inoperable lung cancer (LC), using time to death as point of reference. PATIENTS AND METHODS: A consecutive sample of 400 patients completed the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire C30 plus a 13-item LC-specific scale and the Thurstone Scale of Symptom Distress-Lung Cancer at six time points during the first year after diagnosis. Patients were divided into subgroups, using data from the time point closest to death (< 1; 1 to 2; > 2 to 3; > 3 to 6; > 6 to 12; and > 12 months before death) for analysis. RESULTS: More than 50% of patients in all subgroups reported problems related to physical, role, and emotional functioning; fatigue; dyspnea; and cough. In general, functional levels were lower and symptoms higher in subgroups closer to death. Notably, clinically relevant differences were also found in role and social functioning and appetite loss between the two groups furthest from death. A consistent pattern was found among the six subgroups, with breathing, pain, and fatigue rated as the symptoms most associated with distress. CONCLUSION: High prevalence of symptoms was found in all subgroups, with higher intensity in subgroups closer to death, indicating a need for prophylactic and proactive symptom management. Less concordance was found among symptom prevalence, intensity, and association with distress in subgroups further from death. Future studies should investigate longitudinal associations between symptoms with low intensity and high distress, and examine their clinical implications.


Subject(s)
Lung Neoplasms/mortality , Lung Neoplasms/pathology , Aged , Female , Humans , Longitudinal Studies , Lung Neoplasms/psychology , Male , Middle Aged , Quality of Life , Time Factors
15.
Psychooncology ; 16(6): 543-52, 2007 Jun.
Article in English | MEDLINE | ID: mdl-16991107

ABSTRACT

BACKGROUND: The purpose of this investigation was to systematically examine the efficacy of providing men with prostate cancer with an audiotape of their primary treatment consultation. METHOD: Participants included 425 men newly diagnosed with prostate cancer and 15 radiation oncologists from 4 cancer centers in Canada. Patients were block randomized to one of four consultation groups: 1. Standard care control--not audio-taped; 2. Audio-taped--no audiotape given; 3. Audio-taped--patient given audiotape; and 4. Audio-taped--patient offered choice of receiving audiotape or not (4 patients declined; 94 accepted). Patient outcomes were measured at 12 weeks post-consultation: perceived degree of information provision; audiotape satisfaction and use; communication satisfaction with oncologist; mood state; and cancer-specific quality of life. RESULTS: Patients receiving the consultation audiotape reported having been provided with significantly more disease and treatment information in general (p=0.04), and more information about treatment alternatives (p=0.04) and treatment side effects (p=0.01) in particular, than patients who did not receive the audiotape. Audiotape benefit was not significantly related to patient satisfaction with communication, mood state or quality of life at 12 weeks post-consultation, and was not significantly affected by choice of receiving the audiotape. Patients rated the audiotape intervention positively, with an average score of 83.0 out of 100. CONCLUSION: Consultation audiotapes are rated highly by men with prostate cancer, and these audiotapes help to enhance their perception of having been provided with critical disease- and treatment-related information.


Subject(s)
Adaptation, Psychological , Physician-Patient Relations , Prostatic Neoplasms/psychology , Referral and Consultation , Tape Recording , Aged , Aged, 80 and over , Canada , Communication , Female , Humans , Male , Middle Aged , Patient Participation , Patient Satisfaction , Prostatic Neoplasms/therapy , Quality of Life , Radiation Oncology
16.
J Pediatr Nurs ; 21(5): 350-61, 2006 Oct.
Article in English | MEDLINE | ID: mdl-16980135

ABSTRACT

This study examined the factors that parents identified as influencing their role in treatment decision making (TDM) for their child with cancer. Content analysis of qualitative data from semistructured interviews with 36 parents as part of a mixed-methods study revealed numerous themes related to parents' TDM roles. Factors that were frequently identified included: relationship with the physician, nature of communication, trust in the physician, parents' and physician's knowledge and experience, and importance of parental role. Parents acknowledged a strong sense of responsibility and feeling of "ownership" of their child. Parents initially lacked knowledge and experience, but acquiring these over time contributed to a more active participation in TDM.


Subject(s)
Attitude to Health , Decision Making , Neoplasms/therapy , Parents/psychology , Role , Adult , Canada , Child , Communication , Cooperative Behavior , Female , Health Knowledge, Attitudes, Practice , Humans , Internal-External Control , Male , Models, Psychological , Nursing Methodology Research , Parents/education , Professional-Family Relations , Prognosis , Qualitative Research , Self Efficacy , Socioeconomic Factors , Surveys and Questionnaires , Trust
17.
J Adv Nurs ; 53(6): 691-701, 2006 Mar.
Article in English | MEDLINE | ID: mdl-16553677

ABSTRACT

AIM: The aim of this paper is to examine the concepts of opinion leaders, facilitators, champions, linking agents and change agents as described in health, education and management literature in order to determine the conceptual underpinnings of each. BACKGROUND: The knowledge utilization and diffusion of innovation literature encompasses many different disciplines, from management to education to nursing. Due to the involvement of multiple specialties, concepts are often borrowed or used interchangeably and may lack standard definition. This contributes to confusion and ambiguity in the exactness of concepts. METHODS: A critical analysis of the literature was undertaken of the concepts opinion leaders, facilitators, champions, linking agents and change agents. A literature search using the concepts as keywords was conducted using Medline, CINAHL, Proquest and ERIC from 1990 to March 2003. All papers that gave sufficient detail describing the various concepts were included in the review. Several 'older' papers were included as they were identified as seminal work or were frequently cited by other authors. In addition, reference lists were reviewed to identify books seen by authors as essential to the field. FINDINGS: Two similarities cut across each of the five roles: the underlying assumption that increasing the availability of knowledge will lead to behaviour change, and that in essence each role is a form of change agent. There are, however, many differences that suggest that these concepts are conceptually unique. CONCLUSIONS: There is inconsistency in the use of the various terms, and this has implications for comparisons of intervention studies within the knowledge diffusion literature. From these comparisons, we concluded that considerable confusion and overlap continues to exist and these concepts may indeed be similar phenomena with different labels. All concepts appear to be based on the premise that interpersonal contact improves the likelihood of behavioural change when introducing new innovations into the health sector.


Subject(s)
Concept Formation , Information Management , Knowledge , Terminology as Topic , Delivery of Health Care , Diffusion of Innovation , Humans , Information Storage and Retrieval
18.
Oncol Nurs Forum ; 33(2): 273-82, 2006 Nov 03.
Article in English | MEDLINE | ID: mdl-16518443

ABSTRACT

PURPOSE/OBJECTIVES: To test the effects of different perspective-taking instructional sets, gender, caregivers' personal histories with cancer, and caregiving relationship factors on family caregiver and patient perceptual agreement of symptom experiences of patients with lung cancer. DESIGN: Counterbalanced. SETTING: Thoracic oncology outpatient clinical setting in Canada. SAMPLE: 98 dyads consisting of patients with lung cancer and their family caregivers. METHODS: Data were collected on a one-time basis by employing an abbreviated version of the Memorial Symptom Assessment Scale targeting lack of energy and worrying. Caregivers were randomized to one of six counterbalanced conditions of perspective-taking instructions. MAIN RESEARCH VARIABLES: Caregiver discrepancy scores, instructional sets (i.e., neutral, self-report, and imagine-self and imagine-patient perspective-taking), order effects, gender, caregivers' personal history with cancer, and caregiving relationship factors. FINDINGS: No order effects were found for the instructional sets. Instructions to imagine the patient's perspective over imagining how the caregiver would feel if he or she had cancer were most effective in enhancing the caregiver's ability to estimate the patient's lack of energy and worrying. Gender had no significant effects. The amount of patient-caregiver communication had a positive impact on the accuracy of caregivers' perspectives. CONCLUSIONS: The patient-oriented instructions had a limited impact on enhancing patient-caregiver congruence on patient symptoms. This likely is related to the study's convenience sample of caregivers who appear to naturally engage in empathic processes of patient-oriented perspective-taking when they assessed and reported on patient symptom conditions. IMPLICATIONS FOR NURSING: Further exploratory work should identify interpersonal conditions that negatively hamper the effects of caregiver perspective-taking on their reasonable understanding of patient symptoms.


Subject(s)
Caregivers/psychology , Health Knowledge, Attitudes, Practice , Lung Neoplasms/nursing , Lung Neoplasms/psychology , Adaptation, Psychological , Aged , Anxiety/etiology , Anxiety/psychology , Family Relations , Fatigue/etiology , Fatigue/psychology , Female , Humans , Lung Neoplasms/complications , Male , Middle Aged , Sex Factors , Social Perception
19.
Psychooncology ; 15(1): 9-19, 2006 Jan.
Article in English | MEDLINE | ID: mdl-15669023

ABSTRACT

This study sought to examine the relationships between decisional role (preferred and assumed) at time of surgical treatment (baseline), congruence between assumed role at baseline and preferred role 3 years later (follow-up), and quality of life at follow-up. Two hundred and five women diagnosed with breast cancer completed the decisional role preference scale at baseline and follow-up, and the EORTC QLQ-C30 at follow-up. A statistically significant number of women had decisional role regret, with most of these women preferring greater involvement in treatment planning than was afforded them. Women who indicated at baseline that they were actively involved in choosing their surgical treatment had significantly higher overall quality of life at follow-up than women who indicated passive involvement. These actively involved women had significantly higher physical and social functioning and significantly less fatigue than women who assumed a passive role. Quality of life was significantly related to reports of experienced involvement in treatment decision making, but not to reports of preferred involvement, or congruence between preferred and experienced involvement.


Subject(s)
Breast Neoplasms/psychology , Decision Making , Patient Participation , Aged , Breast Neoplasms/surgery , Demography , Female , Follow-Up Studies , Humans , Middle Aged , Quality of Life/psychology , Social Behavior , Surveys and Questionnaires
20.
Psychooncology ; 14(10): 831-45; discussion 846-7, 2005 Oct.
Article in English | MEDLINE | ID: mdl-16200519

ABSTRACT

The aim of this review paper is to critique the empirical literature pertaining to the communication needs and goals of cancer patients, and to provide direction for research in this area. According to the conceptual framework of Feldman-Stewart et al., patient-physician communication occurs for the fundamental purpose of addressing each participant's goal(s). This review is divided into two categories of goals: (a) optimal medical management of the cancer, and (b) optimal attention to the patient's psychosocial response to cancer. Optimal medical management includes discussions about disease status and the treatment plan, and the effectiveness of these discussions is frequently determined by assessing patient understanding, satisfaction, and well-being. The literature suggests that cancer patients continue to have unmet communication needs, and communication outcomes are enhanced when physicians attend to the emotional needs of patients. Research gaps in communication research are highlighted, including the need for additional study of several external factors affecting the patient and provider.


Subject(s)
Communication , Goals , Needs Assessment , Neoplasms/psychology , Physician-Patient Relations , Health Status , Humans , Patient Satisfaction , Prognosis
SELECTION OF CITATIONS
SEARCH DETAIL