1.
Health Aff (Millwood)
; 29(1): 203-6, 2010.
Article
in English
| MEDLINE
| ID: mdl-20048378
ABSTRACT
After her mother is diagnosed with gallbladder cancer, a journalist researches how to help find effective therapies for patients who get rare diseases.
Subject(s)
Gallbladder Neoplasms , Rare Diseases , Anecdotes as Topic , Boston , Female , Fund Raising , Gallbladder Neoplasms/complications , Gallbladder Neoplasms/diagnosis , Gallbladder Neoplasms/psychology , Humans , Medical Oncology , National Institutes of Health (U.S.) , Orphan Drug Production/legislation & jurisprudence , Parent-Child Relations , Patient Advocacy , Physician-Patient Relations , Quality Assurance, Health Care/methods , Rare Diseases/diagnosis , Rare Diseases/psychology , Terminology as Topic , United States
2.
J Clin Oncol
; 27(16): 2575-7, 2009 Jun 01.
Article
in English
| MEDLINE
| ID: mdl-19414666