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1.
Brain Impair ; 24(3): 611-628, 2023 12.
Article in English | MEDLINE | ID: mdl-38167366

ABSTRACT

OBJECTIVE: This study explored non-specialist audiological clinical practice in the context of traumatic brain injury (TBI), and whether such practices incorporated considerations of TBI-related complexities pertaining to identification, diagnosis and management of associated auditory and vestibular disturbances. DESIGN: A cross-sectional online survey exploring clinical practice, TBI-related training and information provision was distributed to audiologists across Australia via Audiology Australia and social media. Fifty audiologists, 80% female and 20% male, participated in this study. Years of professional practice ranged from new graduate to more than 20 years of experience. RESULTS: Clear gaps of accuracy in knowledge and practice across all survey domains relating to the identification, diagnosis and management of patients with auditory and/or vestibular deficits following TBI were evident. Further, of the surveyed audiologists working in auditory and vestibular settings, 91% and 86%, respectively, reported not receiving professional development for the diagnosis and management of post-traumatic audio-vestibular deficits. CONCLUSION: Inadequate resources, equipment availability and TBI-related training may have contributed to the gaps in service provision, influencing audiological management of patients with TBI. A tailored TBI approach to identification, diagnosis and management of post-traumatic auditory and vestibular disturbances is needed.


Subject(s)
Audiology , Brain Injuries, Traumatic , Humans , Male , Female , Cross-Sectional Studies , Australia/epidemiology , Audiologists , Brain Injuries, Traumatic/diagnosis
2.
Brain Inj ; 36(7): 886-897, 2022 06 07.
Article in English | MEDLINE | ID: mdl-35758048

ABSTRACT

OBJECTIVE: Australian Audiologists' perspectives on standard non-specialized clinical practice in the context of Traumatic Brain Injury (TBI) were examined, including the perceived barriers to optimal service provision. DESIGN: A qualitative research design utilizing semi-structured interviews was conducted using purposive sampling. Nine participants were interviewed about their understanding of the impact of TBI on hearing and balance; identification, diagnosis and management of auditory and vestibular dysfunction following TBI; barriers to service delivery; training relating to complex clients (i.e., TBI); and awareness of referral pathways. RESULTS: Three major themes, each with subthemes, were evident in the data. The major themes reflected general considerations of audiological professional culture and specific issues related to knowledge of TBI and clinical practice with patients. Analysis revealed that professional culture seemed to act as a contextual barrier and interacted with the perceived lack of TBI related knowledge to hinder optimal clinical practice in this patient population. CONCLUSION: Application of the biopsychosocial model, including interdisciplinary care in the management of patients with TBI, is needed. An improvement in theoretical and practical knowledge encompassing the wide-ranging effects of TBI is critical for the optimal audiological service delivery.


Subject(s)
Audiology , Brain Injuries, Traumatic , Audiologists/psychology , Audiology/education , Australia , Brain Injuries, Traumatic/psychology , Humans , Life Change Events
3.
Disabil Rehabil ; 44(11): 2482-2499, 2022 06.
Article in English | MEDLINE | ID: mdl-33049158

ABSTRACT

PURPOSE: Theoretically, individualised funding schemes empower people with disability (PWD) to choose high quality support services in line with their needs and preferences. Given the importance of support, the aim of this scoping review was to understand the factors that influence the quality of paid disability support for adults with acquired neurological disability. METHODS: A comprehensive scoping review of the published literature from 2009-2019 was conducted on five databases: Medline, CINAHL, Embase, PsycINFO and Scopus. RESULTS: Of the 3391 records retrieved, 16 qualitative articles were eligible for review. Thematic synthesis of the findings revealed six key interrelated themes: (1) choice and control, (2) individualised support, (3) disability support worker (DSW) qualities, (4) DSW competence, (5) PWD - DSW relationship, and (6) accessing consistent support. The themes depict factors influencing the quality of paid disability support from the perspective of PWD, close others and DSWs. CONCLUSIONS: Although the evidence base is sparse, the factors identified were in line with international rights legislation and policy ideals. The findings can provide insights to PWD hiring and managing support, and facilitate the delivery of quality disability support. Further research is required to understand the interactions between the factors and how to optimise support in practice.Implications for rehabilitationThe quality of paid disability support is determined by a multitude of interrelated factors influenced by the disability support worker's qualities and competencies, the interaction between the person with disability and the disability support worker, as well as external contextual factors.Optimising choice and control for adults with acquired neurological disability and providing individualised support should be a significant focus for disability support workers.Training modules for disability support workers can be informed by five of the identified themes: (1) choice and control, (2) individualised support, (3) DSW qualities, (4) DSW competence and (5) the relationship between PWD and DSWs.


Subject(s)
Disabled Persons , Adult , Humans
4.
Disabil Rehabil ; 44(7): 1141-1155, 2022 04.
Article in English | MEDLINE | ID: mdl-32645274

ABSTRACT

PURPOSE: Worldwide, disability systems are moving away from congregated living towards individualized models of housing. Individualized housing aims to provide choice regarding living arrangements and the option to live in houses in the community, just like people without disability. The purpose of this scoping review was to determine what is currently known about outcomes associated with individualized housing for adults with disability and complex needs. METHODS: Five databases were systematically searched to find studies that reported on outcomes associated with individualized housing for adults (aged 18-65 years) with disability and complex needs. RESULTS: Individualized housing was positively associated with human rights (i.e., self-determination, choice and autonomy) outcomes. Individualized housing also demonstrated favourable outcomes in regards to domestic tasks, social relationships, challenging behaviour and mood. However, outcomes regarding adaptive behaviour, self-care, scheduled activities and safety showed no difference, or less favourable results, when compared to group homes. CONCLUSIONS: The literature indicates that individualized housing has favourable outcomes for people with disability, particularly for human rights. Quality formal and informal supports were identified as important for positive outcomes in individualized housing. Future research should use clear and consistent terminology and longitudinal research methods to investigate individualized housing outcomes for people with disability.Implications for rehabilitationIndividualized housing models can foster self-determination, choice and autonomy for adults with disability and complex needs.Having alignment between paid and informal support is important for positive outcomes of individualized housing arrangements.A more substantial evidence base regarding individualized housing outcomes, in particular long-term outcomes, and outcomes for people with an acquired disability, is required.


Subject(s)
Disabled Persons , Housing , Adult , Group Homes , Humans , Residence Characteristics
5.
Int J Audiol ; 60(7): 479-494, 2021 07.
Article in English | MEDLINE | ID: mdl-32907431

ABSTRACT

OBJECTIVE: To establish the frequency of occurrence of peripheral vestibular dysfunction in adults who have sustained non-blast-related traumatic brain injury (TBI) as measured through the standard audiological vestibular test battery. DESIGN: A systematic search of English language literature using MEDLINE, EMBASE, PsycINFO, CINAHL, hand-searching of reference lists and SCOPUS author search was conducted from January 1, 1990 to May 14, 2019. STUDY SAMPLES: Twenty-three out of 417 originally identified articles were retained. TBI and peripheral vestibular findings were extracted and synthesised. RESULTS: Quality appraisal using the Oxford Centre for Evidence-Based Medicine (OCEBM) revealed Level 2b as the highest level of evidence. None of the primary studies explored vestibular deficits in acute settings, with data collected from tertiary institutions and in 20 of 23 studies retrospectively. Although retrospective studies provided important data, they fail to control for numerous threats to internal validity. BPPV was the most frequently identified peripheral vestibular deficit following TBI, diagnosed in 39.7% of 239 participants across six of 23 studies. CONCLUSIONS: Further prospective longitudinal research into comparative recovery trajectories in patients across TBI severity levels would provide additional information to guide clinical diagnosis, prognosis and management of this patient population.


Subject(s)
Brain Injuries, Traumatic , Vestibule, Labyrinth , Adult , Brain Injuries, Traumatic/complications , Brain Injuries, Traumatic/diagnosis , Humans , Retrospective Studies
6.
Brain Inj ; 34(11): 1446-1460, 2020 09 18.
Article in English | MEDLINE | ID: mdl-32897740

ABSTRACT

OBJECTIVE: In Australia, over 6,000 adults younger than 65 have been inappropriately placed in nursing homes designed to accommodate older adults. The primary aim of this review was to map the literature on the experiences and outcomes of young people with disability who are placed in aged care. METHODS: A scoping review of the published literature from 2009-2018 was conducted using Embase, Medline, PsycINFO and Scopus. RESULTS: Eleven articles were identified (7 qualitative, 3 mixed methods, 1 quantitative). Results demonstrated the inability of aged care facilities to meet the basic human needs of young people (e.g., privacy, physical, sexual, social, nutritional, emotional need) and highlighted the lack of choice young people with disability have in regards to rehabilitation and housing. There was limited data relating to the trajectory and support needs of young people placed in aged care facilities. CONCLUSIONS: This review highlights the negative outcomes young people experience while living in aged care. Future research should investigate the trajectory and support needs of young people in aged care facilities. Systemic changes are required to meet the needs of young people with complex needs at risk of admission to aged care including timely rehabilitation and housing and support options.


Subject(s)
Disabled Persons , Nursing Homes , Adolescent , Adult , Australia , Humans , Middle Aged , Young Adult
7.
Aust Health Rev ; 44(6): 831-837, 2020 Dec.
Article in English | MEDLINE | ID: mdl-32723471

ABSTRACT

Objective Over the past decade, various programs and reforms have targeted the issue of people aged <65 years living in 'permanent' residential aged care (PRAC). As context for ongoing policy discourse, the aim of this study was to evaluate trends in rates of young people entering and leaving PRAC from 2008 to 2018. Methods Counts of people aged <65 years entering, remaining in and exiting PRAC were obtained from the National Aged Care Data Clearinghouse. Age standardisation was used to control for changes in the age and size of the Australian population. Annual age-standardised rates of admissions (subtracting transfers) and exits to the community were calculated. Linear regression models tested for a sustained increase or decrease in age-standardised rates nationally and within state and age subgroups. Results Notwithstanding year-to-year variation, neither admissions (subtracting transfers) nor exits to the community showed statistically significant increasing or decreasing trends in the national age-standardised rates. Admission rates varied by age and state. Conclusions Many more young people are admitted to PRAC each year than return to community living, with no sustained change between 2008 and 2018 at the national level. Age standardisation is crucial for evaluating systemic population-level change regarding younger people in PRAC. What is known about the topic? As at June 2018, over 6000 people aged <65 years still live in PRAC in Australia. Previous research has demonstrated that this cohort experiences a much poorer quality of life on average than people of similar age and disability who reside in other community settings. Various strategies for improving outcomes have been trialled, many aiming to reduce the number of younger people living in aged care; the National Disability Insurance Scheme (NDIS) also has this among its aims. What does this paper add? This paper reports trends in the number of young people entering and exiting aged care, after statistically controlling for changes due to population growth and aging. The paper highlights that national admission rates did not increase or decrease in a sustained manner, and that most of those admitted never return to community living before turning 65 years of age. What are the implications for practitioners? Programs and policies aimed at reducing the number of young people in aged care must grapple with the scale of the issue and its apparent resistance to amelioration over the past 10 years. The results of this study provide a benchmark against which to judge the future impact of the NDIS.


Subject(s)
Hospitalization , Quality of Life , Adolescent , Aging , Australia/epidemiology , Delivery of Health Care , Humans
8.
Neuropsychol Rehabil ; 29(1): 73-91, 2019 Jan.
Article in English | MEDLINE | ID: mdl-27911168

ABSTRACT

People with traumatic brain injury (TBI) describe everyday interactions as a long-term challenge frequently associated with ongoing stress. Communication-specific Coping Intervention (CommCope-I) is a new treatment developed to target coping in the context of communication breakdown. The intervention incorporates principles of cognitive behavioural therapy, self-coaching and context-sensitive social communication therapy. The purpose of this study was to examine the effectiveness of CommCope-I in a group of adults with severe TBI and ongoing functional communication difficulties. Participants were 13 adults with severe TBI (GCS = 3-8; mean age = 35.2 years; mean time post-injury = 7.6 years). The project involved three phases: (1) Control/pre-intervention wait phase (multiple assessments), (2) Treatment (6 weeks), and (3) Follow-up (12 weeks). Repeated measures ANOVA with planned pairwise comparisons were used to test the significance of change. Intervention elicited statistically significant improvements in communication-specific coping, functional communication and stress that were maintained for three months. Improved use of communication-specific coping strategies was evident in clinician blind ratings. Clients reported significant reduction in stress at the end of treatment and one and three months later. This intervention provides a promising means of improving communication-specific coping and reducing communication dysfunction and its negative consequences for people with TBI.


Subject(s)
Adaptation, Psychological/physiology , Brain Injuries, Traumatic/psychology , Brain Injuries, Traumatic/rehabilitation , Cognitive Behavioral Therapy/methods , Communication , Adolescent , Adult , Analysis of Variance , Feedback, Psychological/physiology , Female , Follow-Up Studies , Glasgow Coma Scale , Humans , Male , Middle Aged , Psychiatric Status Rating Scales , Surveys and Questionnaires , Young Adult
9.
Brain Inj ; 33(2): 111-128, 2019.
Article in English | MEDLINE | ID: mdl-30415586

ABSTRACT

PRIMARY OBJECTIVE: To understand the effects of non-blast-related TBI on peripheral auditory function in adults, as measured through basic and advanced audiological assessments. BACKGROUND: Despite numerous studies demonstrating hearing loss post TBI there has been no systematic investigation of the prevalence, nature and severity of peripheral hearing loss. DATA IDENTIFICATION: An English-language systematic search using MEDLINE, CINAHL, PsychINFO, PubMed and hand-searching of reference lists was conducted from 1 January 1990 to 31 October 2016. STUDY SELECTION: After independent review by the authors, 20 of 281 originally identified articles were retained. DATA EXTRACTION: Audiological findings were extracted and synthesized across studies. RESULTS: Using the Oxford Centre for Evidence Based Medicine levels of evidence (2009), 3b was the highest level of evidence within the review. Sensorineural hearing loss was the most consistent auditory deficit reported post TBI. CONCLUSION: The range and frequency of auditory dysfunction in patients with TBI remain unclear. Future research should focus on understanding the nature, frequency and change of auditory deficits over time following TBI. Knowledge in this area will provide crucial information for clinicians and facilitate the development of diagnostic and best practice guidelines which currently are lacking for the management of this patient population.


Subject(s)
Auditory Diseases, Central/etiology , Auditory Diseases, Central/physiopathology , Brain Injuries, Traumatic/complications , Brain Injuries, Traumatic/physiopathology , Animals , Audiometry , Auditory Pathways/injuries , Auditory Pathways/physiopathology , Hearing Loss, Sensorineural/etiology , Hearing Loss, Sensorineural/physiopathology , Humans
10.
Brain Inj ; 32(8): 1000-1010, 2018.
Article in English | MEDLINE | ID: mdl-29757682

ABSTRACT

PRIMARY OBJECTIVE: Many adults with very severe acquired brain injury (ABI) do not receive adequate rehabilitation, limiting their recovery and leading to admission to inappropriate living environments. The aim of this scoping review was to map the existing literature relating to the nature and outcomes of rehabilitation programmes for adults experiencing prolonged recovery after very severe ABI. DESIGN: A comprehensive scoping of the literature was undertaken, including systematic searching of databases, grey literature, and hand searching. Eligible studies had to report on (a) extended rehabilitation for (b) adults with very severe ABI and complex support needs and describe (c) the outcomes of the intervention. RESULTS: From an initial total of 17,829 citations, 18 records were retained for review. Data extraction focused on (i) participant characteristics, (ii) programme information, and (iii) programme outcomes. Studies were characterised by substantial diversity. However, findings suggested that extended rehabilitation assisted participants to live more independently in more home-like environments and contributed towards significant savings in their lifetime care costs. CONCLUSIONS: Extended specialised rehabilitation can maximise the independence and participation of adults with very severe ABI. Advocacy is required to ensure that adults with very severe injuries have access to individually tailored, non-time-limited intervention programmes.


Subject(s)
Brain Injuries/rehabilitation , Treatment Outcome , Adolescent , Adult , Aged , Databases, Bibliographic/statistics & numerical data , Female , Humans , Male , Middle Aged , Recovery of Function/physiology , Young Adult
11.
Disabil Rehabil ; 39(22): 2250-2260, 2017 11.
Article in English | MEDLINE | ID: mdl-27547914

ABSTRACT

PURPOSE: Although adults who sustain a severe traumatic brain injury (TBI) require support to make decisions in their lives, little is known about their experience of this process. The aim of this study was to explore how participation in decision making contributes to self-conceptualization in adults with severe TBI. METHOD: We used constructivist grounded theory methods. Data included 20 in-depth interviews with adults with severe TBI. Through a process of constant comparison, analysis involved open and focused coding until clear categories emerged and data saturation was achieved. RESULTS: Self-conceptualization emerged as a complex and multifaceted process, as individuals with TBI aimed to reestablish a sense of autonomy. We describe a recursive relationship in which decision-making participation assists the dynamic construction of self, and self-concept contributes to the experience of making decisions. The role of an individual's social support network in acting as a bridge between participation and self-conceptualization is presented. CONCLUSIONS: Findings emphasize that contributing to decisions about one's own goals across a range of life areas can reinforce a positive self-concept. It is vital that supporters understand that participation in decision making provides a pathway to conceptualizing self and aim to maximize the person's participation in the decision-making process. Implications for Rehabilitation Previous research has identified that the experience of sustaining TBI has a significant impact on a person's conceptualization of self. This study identified that decision-making experiences play an important role in the ongoing process of self-conceptualization after injury. Decision-making experiences can reinforce a person's self-concept or lead them to revise (positively or negatively) their sense of self. By maximizing the person's decision-making participation, those around them can support them to develop positive self-attributes and contribute to shaping their future goals.


Subject(s)
Brain Injuries, Traumatic/psychology , Decision Making , Self Concept , Adult , Australia , Female , Grounded Theory , Humans , Male , Middle Aged , Personal Autonomy , Social Support , Young Adult
12.
J Voice ; 31(2): 142-148, 2017 Mar.
Article in English | MEDLINE | ID: mdl-27515560

ABSTRACT

OBJECTIVES: The Transsexual Voice Questionnaire (TVQMtF) is a population-specific self-report tool designed to capture the perceptions of male-to-female transsexual women (MtF women) regarding their vocal functioning and the voice-related impact on their everyday life. The aim of this study was to further the psychometric evaluation of the TVQMtF by examining its construct validity and confirming its reliability. STUDY DESIGN: This is a prospective validity and reliability study. METHODS: One hundred fifty-one MtF women provided data for principal components analysis with oblimin rotation. Data from 133 of these participants were also analyzed to evaluate the internal consistency of the TVQMtF. RESULTS: Principal components analysis identified a two-factor structure. The largest component (accounting for 51.99% of the variance) captured individuals' perceptions of their vocal functioning and included items related to the link between voice and gender identity. This component was labeled vocal functioning. The second component (5.82% of the variance) contained items that related to the impact of voice on the individual's participation in everyday life and was labeled social participation. Internal consistency was high (Cronbach's α = .97). CONCLUSIONS: The findings support the construct validity of the TVQMtF. Additionally, the high internal consistency of the TVQMtF found in the current study confirms that the content of the TVQMtF reliably measures the self-perceptions of MtF women regarding their voice. The current findings also support the clinical utility of the TVQMtF providing a means of organizing TVQMtF responses to inform the voice training process.


Subject(s)
Speech Acoustics , Surveys and Questionnaires , Transgender Persons/psychology , Voice Quality , Adolescent , Adult , Aged , Female , Gender Identity , Humans , Loudness Perception , Male , Middle Aged , Personal Satisfaction , Pitch Perception , Predictive Value of Tests , Principal Component Analysis , Prospective Studies , Psychometrics , Quality of Life , Reproducibility of Results , Self Concept , Sex Factors , Speech Perception , Young Adult
13.
J Speech Lang Hear Res ; 59(3): 511-20, 2016 06 01.
Article in English | MEDLINE | ID: mdl-27124205

ABSTRACT

PURPOSE: Return to competitive employment presents a major challenge to adults who survive traumatic brain injury (TBI). This study was undertaken to better understand factors that shape employment outcome by comparing the communication profiles and self-awareness of communication deficits of adults who return to and maintain employment with those who do not. METHOD: Forty-six dyads (46 adults with TBI, 46 relatives) were recruited into 2 groups based on the current employment status (employed or unemployed) of participants with TBI. Groups did not differ in regard to sex, age, education, preinjury employment, injury severity, or time postinjury. The La Trobe Communication Questionnaire (Douglas, O'Flaherty, & Snow, 2000) was used to measure communication. Group comparisons on La Trobe Communication Questionnaire scores were analyzed by using mixed 2 × 2 analysis of variance (between factor: employment status; within factor: source of perception). RESULTS: Analysis yielded a significant group main effect (p = .002) and a significant interaction (p = .004). The employed group reported less frequent difficulties (self and relatives). Consistent with the interaction, unemployed participants perceived themselves to have less frequent difficulties than their relatives perceived, whereas employed participants reported more frequent difficulties than their relatives. CONCLUSION: Communication outcome and awareness of communication deficits play an important role in reintegration to the workplace following TBI.


Subject(s)
Brain Injuries, Traumatic/psychology , Communication , Return to Work , Adult , Analysis of Variance , Awareness , Diagnostic Self Evaluation , Educational Status , Family , Female , Humans , Male
14.
Neuropsychol Rehabil ; 26(2): 236-60, 2016.
Article in English | MEDLINE | ID: mdl-25751119

ABSTRACT

There is growing recognition of the right of all individuals, including those with cognitive impairment, to make decisions about their own lives. However, little is known about how the process of decision making is experienced after severe traumatic brain injury (TBI). This study used constructivist grounded theory to explore processes used by adults with severe TBI and their parents in making decisions about life after injury. Data consisted of 18 individual, in-depth interviews with four dyads (consisting of an individual with severe TBI and his or her parent). The overlying construct emerging from the data was a process of reimagining the future, which influenced how participants approached and participated in making decisions. In line with this construct, two central themes described processes of joint decision making within parent-adult child relationships after severe TBI over time: (1) making decisions with parental support, and (2) reducing parental involvement. These findings emphasise the complexity of supporting decision making after injury, and illustrate that both parents and their adult children with TBI use explicit and implicit strategies to facilitate increased participation in making decisions. This study also underscores the need for brain injury clinicians to consider the needs of parents who find themselves in this role.


Subject(s)
Brain Injuries/psychology , Caregivers/psychology , Decision Making , Parent-Child Relations , Parents/psychology , Adult , Grounded Theory , Humans , Middle Aged , Social Support
15.
Brain Inj ; 29(6): 745-57, 2015.
Article in English | MEDLINE | ID: mdl-25831457

ABSTRACT

PRIMARY OBJECTIVE: To understand how the spouses of individuals with severe TBI experience the process of supporting their partners with decision-making. DESIGN: This study adopted a constructivist grounded theory approach, with data consisting of in-depth interviews conducted with spouses over a 12-month period. Data were analysed through an iterative process of open and focused coding, identification of emergent categories and exploration of relationships between categories. PARTICIPANTS: Participants were four spouses of individuals with severe TBI (with moderate-severe disability). Spouses had shared committed relationships (marriage or domestic partnerships) for at least 4 years at initial interview. Three spouses were in relationships that had commenced following injury. MAIN OUTCOME AND RESULTS: Two main themes emerged from the data. The first identified the saliency of the relational space in which decision-making took place. The second revealed the complex nature of decision-making within the spousal relationship. CONCLUSIONS: Spouses experience decision-making as a complex multi-stage process underpinned by a number of relational factors. Increased understanding of this process can guide health professionals in their provision of support for couples in exploring decision-making participation after injury.


Subject(s)
Brain Injuries/psychology , Caregivers/psychology , Decision Making , Adult , Australia , Brain Injuries/rehabilitation , Communication , Emotional Adjustment , Emotions , Female , Humans , Interview, Psychological , Male , Middle Aged , Spouses
16.
Disabil Rehabil ; 35(22): 1926-32, 2013.
Article in English | MEDLINE | ID: mdl-23390880

ABSTRACT

PURPOSE: To raise professional awareness of factors that may influence the support offered by clinicians to people with acquired brain injury (ABI), and to consider the potential implications of these factors in terms of post-injury rehabilitation and living. METHOD: A review of the literature was conducted to identify factors that determine how clinicians provide support and influence opportunities for individuals with ABI to participate in decision making across the rehabilitation continuum. Clinical case studies are used to highlight two specific issues: (1) hidden assumptions on the part of the practitioner, and (2) perceptions of risk operating in clinical practice. RESULTS: There are a range of factors which may influence the decision-making support provided by clinicians and, ultimately, shape lifetime outcomes for individuals with ABI. A multidimensional framework may assist clinicians to identify relevant factors and consider their potential implications including those that influence how clinicians involved in supporting decision making approach this task. CONCLUSIONS: Participation in decision making is an undisputed human right and central to the provision of person-centred care. Further research is required to understand how clinical practice can maximise both opportunities and support for increased decision-making participation by individuals with ABI. IMPLICATIONS FOR REHABILITATION: There is an increasing focus on the rights of all individuals to be supported to participate in decision making about their life. A number of changes associated with ABI mean that individuals with ABI will require support with decision making. Clinicians have a critical role in providing this support over the course of the rehabilitation continuum. Clinicians need to be aware of the range of factors that may influence the decision-making support they provide. A multidimensional framework may be used by clinicians to identify influences on the decision-making support they provide.


Subject(s)
Attitude of Health Personnel , Brain Injuries/rehabilitation , Decision Making , Patient Participation , Patient Rights , Patient-Centered Care/methods , Brain Injuries/psychology , Female , Humans , Male , Risk Assessment , Young Adult
17.
J Voice ; 27(3): 312-20, 2013 May.
Article in English | MEDLINE | ID: mdl-23415146

ABSTRACT

OBJECTIVE: This study reports on the preliminary psychometric evaluation of the Transsexual Voice Questionnaire for Male-to-Female Transsexuals (MtF)-TVQ(MtF), a tool designed to measure the perceptions of MtF transsexuals regarding their voice. The TVQ(MtF) evolved from an extensive review of the existing Transgender Self-evaluation Questionnaire (TSEQ). STUDY DESIGN: This study was conducted in two phases. In phase I, the TSEQ was reviewed. In phase II, classical test theory was applied to examine two psychometric properties (internal consistency and test-retest reliability) of the TVQ(MtF). METHOD: In phase I, two speech pathologists and two MtF individuals reviewed the TSEQ, and a comparison was made with the results of a thematic analysis of 137 voice-related extracts from the transcripts of in-depth interviews with 14 MtF individuals. In phase II, 29 Australian and six Canadian MtF transsexuals completed the new tool, the TVQ(MtF) twice with an interim period of 4-6 weeks to enable psychometric evaluation. RESULTS: Phase I led to substantial changes to the content and structure of the original measure, the TSEQ, and the subsequent development of the TVQ(MtF). In phase II, internal consistency of the TVQ(MtF) was found to be high (time 1 Cronbach's α=.964; time 2 α=.974). Excellent test-retest reliability was demonstrated (intraclass correlation coefficient=0.979; 95% confidence interval=0.968-0.988). CONCLUSIONS: This study provides psychometric evidence of the reliability of the TVQ(MtF). The MtF participants in this study reported a wide range of vocal functioning and voice-related difficulties. Voice pitch was reported as the most problematic aspect of vocal functioning, and psychosocial issues were the most frequently reported voice-related impacts.


Subject(s)
Self Concept , Speech Acoustics , Speech Perception , Speech-Language Pathology/methods , Surveys and Questionnaires , Transgender Persons/psychology , Transsexualism/diagnosis , Voice Quality , Adult , Aged , British Columbia , Female , Humans , Male , Middle Aged , Predictive Value of Tests , Psychometrics , Reproducibility of Results , Sex Factors , Transsexualism/physiopathology , Transsexualism/psychology , Victoria
18.
Brain Inj ; 27(1): 60-74, 2013.
Article in English | MEDLINE | ID: mdl-23252437

ABSTRACT

PRIMARY OBJECTIVE: To explore how adults who have sustained severe traumatic brain injury (TBI) conceptualize self several years after injury. DESIGN: Self-conceptualization was explored from the perspective of the injured individual within a constructivist Grounded Theory approach using in-depth interviews. Qualitative analysis moved through a process of data-driven open and focused coding, identification of emergent self-related categories and exploration of relations between these categories. PARTICIPANTS: Sixteen men and four women with severe-very severe injury participated in the study. Severity of injury was indexed by either a Glasgow Coma Scale (GCS) score ≤8 or duration of post-traumatic amnesia (PTA) ≥14 days. At the time of interview, the average age of participants was 35.2 years and a minimum of 5 years had elapsed since injury. MAIN OUTCOMES AND RESULTS: Three main themes emerged from the data. The first two themes together described a model of self-concept. The third theme captured the insider's perspective on factors that had helped to create and maintain a sense of connection between self and society. CONCLUSION: Conceptualization of self after brain injury is a dynamic and multi-faceted process. Insight into the process can guide the development of therapeutic endeavours to facilitate the ongoing construction of self after severe TBI.


Subject(s)
Adaptation, Psychological , Brain Injuries/psychology , Concept Formation , Interpersonal Relations , Self Concept , Verbal Behavior , Adult , Brain Injuries/physiopathology , Brain Injuries/rehabilitation , Communication , Emotions , Female , Glasgow Coma Scale , Humans , Male , Middle Aged , Prognosis , Psychometrics , Surveys and Questionnaires , Time Factors , Treatment Outcome
19.
Semin Speech Lang ; 31(3): 197-204, 2010 Aug.
Article in English | MEDLINE | ID: mdl-20683809

ABSTRACT

Since his publications began to appear in the mid 1980s, Mark Ylvisaker has shaped the way clinicians worldwide approach brain injury rehabilitation. His body of work reflects his exceptional ability to draw together theories, ideas, and practices from multiple disciplines and paradigms culminating in the development of a clinically powerful framework to facilitate change in behavior. The focus of this article is two core aspects of Mark Ylvisaker's work that have had a significant impact on my own work. These aspects involve (1) using conceptualization of self or identity construction as a guide for developing rehabilitation goals and (2) centralizing meaningful activity within the intervention process. In a small way, this article is a tribute to an exceptional man who was dedicated to improving the lives of people with brain injury and in doing so succeeded in improving the lives of all who had the privilege of knowing him and knowing his work.


Subject(s)
Behavior Therapy/history , Brain Injuries/history , Communication Disorders/history , Mental Disorders/history , Rehabilitation/history , Self Concept , History, 20th Century , History, 21st Century , Humans , United States
20.
J Speech Lang Hear Res ; 53(2): 365-82, 2010 Apr.
Article in English | MEDLINE | ID: mdl-20360462

ABSTRACT

PURPOSE: This study was designed to explore the behavioral nature of pragmatic impairment following severe traumatic brain injury (TBI) and to evaluate the contribution of executive skills to the experience of pragmatic difficulties after TBI. METHOD: Participants were grouped into 43 TBI dyads (TBI adults and close relatives) and 43 control dyads. All TBI participants had sustained severe injury (mean posttraumatic amnesia duration = 45.19 days, SD = 39.15) due to a moving vehicle-related trauma. A minimum of 2 years had elapsed since injury (M = 5.36 years, SD = 3.61). The La Trobe Communication Questionnaire (LCQ; Douglas, O'Flaherty, & Snow, 2000) was administered to all participants. Measures of executive function included the following: the FAS verbal fluency task (Spreen & Benton, 1969), the Speed and Capacity of Language Processing test (Baddeley, Emslie, & Nimmo-Smith, 1992), and the Rey Auditory Verbal Learning Task (Rey, 1964). RESULTS: Perceptions of TBI participants and their relatives were significantly correlated (r = .63, p < .001) and significantly different from those of controls, F(1, 84) = 37.2, p < .001. Pragmatic difficulties represented violations in 3 domains of Grice's (1975) Cooperative Principle (Quantity, Relation, and Manner), and executive function measures predicted 37% (32% adjusted) of the variability in LCQ scores. CONCLUSIONS: The study demonstrates evidence of a significant association between executive impairment and the pragmatic communication difficulties experienced by individuals with TBI.


Subject(s)
Brain Injuries , Executive Function , Language Disorders , Adolescent , Adult , Brain Injuries/complications , Brain Injuries/diagnosis , Family , Female , Humans , Language Disorders/diagnosis , Language Disorders/etiology , Language Tests , Male , Middle Aged , Neuropsychological Tests , Regression Analysis , Severity of Illness Index , Surveys and Questionnaires , Young Adult
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