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1.
BMC Geriatr ; 22(1): 295, 2022 04 07.
Article in English | MEDLINE | ID: mdl-35392818

ABSTRACT

BACKGROUND: Because of the expected increase in the number of people with dementia, and the associated social and economic costs, there is an urgent need to develop effective and cost-effective care for people with dementia and their caregivers. The intervention proposed here combines two approaches to caregiver support that have shown to be effective in empowering caregivers, i.e., multiple components for caregiver support and actively engaging caregivers to involve the person with dementia in activities at home. The aim is to investigate whether the intervention is effective in improving quality of life in the caregiver and the person with dementia. A further aim will be to investigate whether this intervention can improve caregivers' feeling of competence, experience of caregiving, and mood. METHODS: The study design is a pragmatic, cluster randomised controlled trial with cost-effectiveness analysis. The study participants are informal caregivers and home-living persons with dementia for whom they care, recruited in various regions in the Netherlands. The trial will compare outcomes in two groups of participants: 85 dyads who receive the intervention, and 85 dyads who receive care as usual. The intervention is a caregiver support training that is manual based and consists of 6 group sessions over 2 months. Training takes place in small groups of caregivers led by a health care professional presented at dementia day care centres. Randomisation occurs at the level of the day care centre. Participants are assessed on the outcome measures at baseline, prior to the intervention, and at 3 and 6 months after baseline. DISCUSSION: The study will provide insight into effectiveness and cost-effectiveness of an intervention that has not previously been evaluated or implemented in the Netherlands. The intervention potentially adds to the effective support options for informal caregivers of people with dementia without greatly increasing the workload for health- or social care professionals. TRIAL REGISTRATION: The trial is registered at the Dutch Trial Register at NTR6643 ; August 22nd, 2017.


Subject(s)
Caregivers , Dementia , Activities of Daily Living , Cost-Benefit Analysis , Humans , Quality of Life , Randomized Controlled Trials as Topic
2.
Int Psychogeriatr ; 34(2): 113-128, 2022 02.
Article in English | MEDLINE | ID: mdl-33715653

ABSTRACT

OBJECTIVE: There is growing evidence that people with mild dementia can benefit from using tablets and apps. Due to their cognitive decline, people with dementia need support in learning how to use these devices. The objective of this review was to identify which training interventions work best to help people with mild dementia (re)learn how to use technologies, including handheld touchscreen devices. Because the uptake of these devices in people with dementia is quite new, training interventions for the use of other technologies were also included, such as technologies assisting people in Instrumental Activities of Daily Living (IADL). DESIGN: An electronic search was conducted in the following databases: PubMed, APA PsycInfo (EBSCO), and CINAHL (EBSCO). Themes discussed include the learning effects; training method (e.g. errorful (EF) and errorless (EL) learning); training intensity and setting; technology task type; dementia type and severity; and study design and outcome measures. RESULTS: In total, 16 studies were included. All studies reported positive learning effects and improved task performance in people with dementia, regardless of dementia severity, training intensity, setting, and the method used. Although the EL training method was successful more often than the EF training method, it would be inappropriate to conclude that the EL method is more effective, because the majority of studies only investigated EL training interventions with (multiple) single-case study designs. CONCLUSION: Future research should consider using more robust study designs, such as RCTs, to evaluate the effectiveness of training interventions for (re)learning technology-orientated tasks, including operating handheld touchscreen devices.


Subject(s)
Cognitive Dysfunction , Dementia , Activities of Daily Living , Humans , Learning , Technology
3.
Int Psychogeriatr ; 31(6): 857-868, 2019 Jun.
Article in English | MEDLINE | ID: mdl-30560737

ABSTRACT

OBJECTIVES: Various art programs are available for people with dementia. These have been shown to contribute to the patient's quality of life. But are all types of art suitable for this purpose and for the target group? This study investigated whether responsiveness during museum programs depends on the type of art work shown and/or characteristics of the person with dementia, such as severity of dementia or specific cognitive impairments. METHOD: A cross-sectional observational study was conducted in which the responsiveness of people with dementia to different types of art was investigated as part of a study into the implementation of the Unforgettable program, an interactive guided museum tour program in Dutch museums for people with dementia. RESULTS: The appreciative and active responsiveness and interaction with others during the program appeared related to the severity of dementia, to specific cognitive impairments, and to type of artworks. People with more severe dementia responded less to art than people with mild dementia. Artworks with more natural elements revealed less interaction with others. Artifacts (i.e., objects not originally meant as artworks) evoked more reactions than artworks. CONCLUSION: The study results are important to take into account when designing and offering art programs for people with dementia. Knowing which type of art works appeals most to (subgroups of) people with dementia will contribute to the optimization of art programs for this target group and to their active participation in such programs.

4.
Int Psychogeriatr ; 30(4): 527-537, 2018 04.
Article in English | MEDLINE | ID: mdl-29145912

ABSTRACT

ABSTRACTBackground:In the MEETINGDEM project, the Meeting Centers Support Program (MCSP) was adaptively implemented and evaluated in three European countries: Italy, Poland, and the United Kingdom. The aim of this study was to investigate overall and country-specific facilitators and barriers to the implementation of MCSP in these European countries. METHODS: A qualitative multiple case study design was used. Based on the theoretical model of adaptive implementation, a checklist was composed of potential facilitators and barriers to the implementation of MCSP. This checklist was administered among stakeholders involved in the implementation of MCSP to trace the experienced facilitators and barriers. Twenty-eight checklists were completed. RESULTS: Main similarities between countries were related to the presence of suitable staff, management, and a project manager, and the fact that the MCSP is attuned to needs and wishes of people with dementia and informal caregivers. Main differences between countries were related to: communication with potential referrers, setting up an inter-organizational collaboration network, receiving support of national organizations, having clear discharge criteria for the MCSP and continuous PR in the region. CONCLUSION: The results of this study provide insight into generic and country specific factors that can influence the implementation of MCSP in different European countries. This study informs further implementation and dissemination of MCSP in Europe and may also serve as an example for the dissemination and implementation of other effective psychosocial support interventions for people with dementia and their informal caregivers across and beyond Europe.


Subject(s)
Continuity of Patient Care/organization & administration , Program Evaluation/methods , Social Support , Caregivers/psychology , Dementia/psychology , Dementia/therapy , Humans , Italy , Outcome Assessment, Health Care , Poland , Qualitative Research , Quality of Life , United Kingdom
5.
Ned Tijdschr Geneeskd ; 161: D1878, 2017.
Article in Dutch | MEDLINE | ID: mdl-28936937

ABSTRACT

- In this article, we describe the current state of affairs with respect to informal care for people with dementia. We focus on the impact of informal care on the caregiver, caregiving strategies and effective ways to support informal caregivers, including e-health and technological support.- Informal care for people with dementia is intense and has consequences, both positive and negative: 78% of informal caregivers has good feelings about the care they give, but 15% feels heavily burdened.- A stimulating and supportive approach creates a positive and safe environment. Person-centred interventions providing several types of support are most effective for people with dementia and their informal caregivers.- E-health and technological interventions have favourable effects on trust, concern and depressive symptoms of informal caregivers.- New interventions should focus more on social health: interactions between people with dementia and their informal caregivers and encouragement of both to use their abilities.


Subject(s)
Caregivers , Dementia/therapy , Patient Care/methods , Humans
6.
Int Psychogeriatr ; 29(12): 2017-2032, 2017 12.
Article in English | MEDLINE | ID: mdl-28829005

ABSTRACT

BACKGROUND: Person-centered care interventions can improve the quality of life and decrease behavioral problems of people with dementia. Although not convincingly proven, person-centered care interventions may benefit the caregivers as well. This study aims to gain insight into how working with the Veder Contact Method (VCM) - a new person-centered care method - influences the job satisfaction of caregivers. METHODS: Within a quasi-experimental study, the job satisfaction of caregivers of six experimental wards (n = 75) was compared with caregivers of six control wards (n = 36) that applied Care-As-Usual. The Leiden Quality of Work Questionnaire (LQWQ) was filled in by caregivers in both conditions. Additionally, on the experimental wards, qualitative research, i.e. focus groups with 42 caregivers and interviews with 11 managers, was conducted to obtain a deeper understanding of the influence of applying VCM on caregivers' job satisfaction. The transcripts were analyzed using deductive analysis. RESULTS: No quantitatively significant differences were found on the subscales of the LQWQ: work and time pressure, job satisfaction, autonomous decision making, social support from colleagues, and social support from supervisors. From the qualitative research, some caregivers and managers reported that implementing VCM contributed to their job satisfaction and that applying VCM supported handling difficult behavior and depressed mood of residents and contributed to team building. CONCLUSIONS: No significant effects on job satisfaction were demonstrated. Qualitative findings indicate that VCM positively influences the daily work performances of nursing home caregivers. The relation between the experience of offering quality care and job satisfaction of caregivers needs further investigation.


Subject(s)
Caregivers/psychology , Dementia/nursing , Job Satisfaction , Patient-Centered Care/methods , Quality of Life/psychology , Adult , Female , Focus Groups , Homes for the Aged/organization & administration , Humans , Male , Middle Aged , Nursing Homes/organization & administration , Qualitative Research , Quality of Health Care/organization & administration , Surveys and Questionnaires
7.
BMC Geriatr ; 17(1): 79, 2017 04 04.
Article in English | MEDLINE | ID: mdl-28376895

ABSTRACT

BACKGROUND: The MEETINGDEM study aims to implement and evaluate an innovative, inclusive, approach to supporting community dwelling people with mild to moderate dementia and their family carers, called the Meeting Centers Support Program (MCSP), in three countries in the European Union (EU): Italy, Poland and United Kingdom. Demonstrated benefits of this person-centered approach, developed in The Netherlands, include high user satisfaction, reduced behavioral and mood problems, delayed admission to residential care, lower levels of caregiving-related stress, higher carer competence, and improved collaboration between care and welfare organizations. METHODS: The project will be carried out over a 36 month period. Project partners in the three countries will utilize, and adapt, strategies and tools developed in the Netherlands. In Phase One (month 1-18) activities will focus on establishing an initiative group of relevant organizations and user representatives in each country, exploring pathways to care and potential facilitators and barriers to implementing the program, and developing country specific implementation plans and materials. In Phase Two (month 19­36) training will be provided to organizations and staff, after which the meeting centers will be established and evaluated for impact on behavior, mood and quality of life of people with dementia and carers, cost-effectiveness, changes in service use, user satisfaction and implementation process. DISCUSSION: An overall evaluation will draw together findings from the three countries to develop recommendations for successful implementation of MCSP across the EU. If the Meeting Centers approach can be widely implemented, this could lead to major improvements in dementia care across Europe and beyond. TRIAL REGISTRATION: The trial was retrospectively registered in May 2016: trial number: NTR5936 .


Subject(s)
Caregivers/psychology , Continuity of Patient Care/organization & administration , Dementia/psychology , Social Support , Dementia/therapy , Europe , Humans , Outcome Assessment, Health Care , Program Evaluation , Quality of Life
8.
J Rehabil Assist Technol Eng ; 4: 2055668317710593, 2017.
Article in English | MEDLINE | ID: mdl-31186930

ABSTRACT

Touchscreen devices (e.g. tablets) can be supportive for people with mild dementia. This study identified user requirements for the development of a tool for selecting usable apps in the domains of self-management and meaningful activities. Eight focus groups with people with mild cognitive impairment or mild dementia and informal carers were conducted using an exploratory study design. In study one, we identified meaningful activities and self-management support. In study two, we explored needs, wishes and abilities regarding the use of apps. The outcomes were analysed using inductive content analysis based on grounded theory. Three categories were identified in study one: (1) past meaningful activities, (2) present meaningful activities and (3) self-management support. Two categories emerged from the data of study two, with two and three themes, respectively. (1) Needs and wishes of users with regard to (a) the functionality of apps and (b) technical features of apps. (2) Abilities of users in terms of (a) physical and cognitive condition, (b) independent use of apps on a tablet and (c) skills to use the touchscreen and tablet. Based on these results, we will develop filters for people with mild dementia to select apps which match their individual needs, wishes and abilities.

9.
Aging Ment Health ; 21(1): 40-48, 2017 01.
Article in English | MEDLINE | ID: mdl-27982713

ABSTRACT

OBJECTIVES: The implementation of new health services is a complex process. This study investigated the first phase of the adaptive implementation of the Dutch Meeting Centres Support Programme (MCSP) for people with dementia and their carers in three European countries (Italy, Poland, the UK) within the JPND-MEETINGDEM project. Anticipated and experienced factors influencing the implementation, and the efficacy of the implementation process, were investigated. Findings were compared with previous research in the Netherlands. METHOD: A qualitative multiple case study design was applied. Checklist on anticipated facilitators and barriers to the implementation and semi-structured interview were completed by stakeholders, respectively at the end and at the beginning of the preparation phase. RESULTS: Overall, few differences between countries were founded. Facilitators for all countries were: added value of MCSP matching needs of the target group, evidence of effectiveness of MCSP, enthusiasm of stakeholders. General barriers were: competition with existing care and welfare organizations and scarce funding. Some countries experienced improved collaborations, others had difficulties finding a socially integrated location for MCSP. The step-by-step implementation method proved efficacious. CONCLUSION: These insights into factors influencing the implementation of MCSP in three European countries and the efficacy of the step-by-step preparation may aid further implementation of MCSP in Europe.


Subject(s)
Caregivers/psychology , Community Health Centers/organization & administration , Continuity of Patient Care/organization & administration , Dementia/therapy , Social Support , Aged , Dementia/psychology , Female , Humans , Italy , Male , Middle Aged , Netherlands , Poland , Program Development , Qualitative Research , United Kingdom
10.
Aging Ment Health ; 21(1): 4-17, 2017 01.
Article in English | MEDLINE | ID: mdl-27869503

ABSTRACT

BACKGROUND: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia. METHOD: Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD). RESULTS: The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified. CONCLUSION: A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.


Subject(s)
Consensus , Dementia/psychology , Social Support , Activities of Daily Living , Aged , Chronic Disease/psychology , Chronic Disease/therapy , Dementia/therapy , Europe , Health Knowledge, Attitudes, Practice , Humans , Quality of Life , Social Validity, Research/standards , Surveys and Questionnaires
11.
Int Psychogeriatr ; 28(5): 801-13, 2016 May.
Article in English | MEDLINE | ID: mdl-26632631

ABSTRACT

BACKGROUND: The aim was to develop an evidence-based model that focuses specifically on factors that enable the provision of personalized care to facilitate and promote the implementation of community-based personalized dementia care interventions. The model is based on our previous research and additional literature. METHODS: The theoretical model of adaptive implementation was used as a framework to structure our model. Facilitators and barriers considered relevant for personalized care were extracted from our studies and additional literature, and were synthesized into the new evidence-based implementation model and checklist for personalized dementia care in the community. RESULTS: Extraction of data led to a composition of an evidence-based model for the implementation of personalized psychosocial care interventions that incorporates core components of personalized care. The model addresses several issues, e.g. how personalized care interventions should be offered and to whom; whether these are able to adapt to personal characteristics and needs of clients and informal caregivers; and whether both organizational management and staff that provide the intervention support personalized care and are able to focus on providing individualized care. CONCLUSIONS: Our model provides a checklist for researchers, professional caregivers, and policy-makers who wish to develop, evaluate, or implement personalized care interventions.


Subject(s)
Checklist/standards , Dementia/therapy , Evidence-Based Practice/methods , Models, Theoretical , Humans , Netherlands , Review Literature as Topic
12.
Disabil Rehabil Assist Technol ; 11(1): 61-71, 2016.
Article in English | MEDLINE | ID: mdl-24989993

ABSTRACT

PURPOSE: This research aimed to integrate three previously developed assistive technology (AT) systems into one modular, multifunctional system, which can support people with dementia and carers throughout the course of dementia. . In an explorative evaluation study, the integrated system, called Rosetta, was tested on usefulness, user-friendliness and impact, in people with dementia, their informal carers and professional carers involved. The Rosetta system was installed in participants' homes in three countries: The Netherlands, Germany and Belgium. METHODS: Controlled trial with pre- and post-test measures across three countries (randomized controlled trial in Germany; matched groups in the Netherlands and Belgium). Participants completed questionnaires for impact measurement and participated in semi-structured interviews regarding usefulness and user-friendliness of Rosetta. RESULTS: All participants agreed that Rosetta is a very useful development. They did not rate the user-friendliness of the system highly. No significant effects were found on impact measurements. CONCLUSION: All participants found Rosetta a very useful development for future care, and would consider using it. Since Rosetta was still in development during evaluation, a discrepancy between expectations and actual functioning of Rosetta existed, which may explain the lack of findings on the impact of the system and the low appreciation of user-friendliness. Implications for Rehabilitation People with dementia and carers find assistive technology (AT) a useful future development and they are willing to use it in the future. People with dementia and carers have little privacy issues with AT. If they have concerns, they are willing to accept the trade-off of reduced privacy in exchange for the ability to live in their own homes for longer. Given that a system works flawlessly, informal carers indicate that integrated AT can reduce their burden and stress. This can in turn help informal carers to provide better care for a longer period of time.


Subject(s)
Attitude to Computers , Caregivers/psychology , Dementia/psychology , Dementia/rehabilitation , Self-Help Devices/psychology , Accidental Falls , Activities of Daily Living , Adult , Aged , Aged, 80 and over , Analysis of Variance , Belgium , Female , Germany , Humans , Male , Middle Aged , Netherlands , Surveys and Questionnaires , User-Computer Interface
13.
Int J Nurs Stud ; 52(8): 1310-22, 2015 Aug.
Article in English | MEDLINE | ID: mdl-25952337

ABSTRACT

BACKGROUND: The community-based Meeting Centres Support Programme for people with dementia and their carers has been proven more effective in influencing behaviour and mood problems of people with dementia and improving sense of competence of carers compared to nursing home-based day care centres for people with dementia. Six Dutch nursing home-based day care centres were transformed into Community-based day care centres with carer support, according to this Meeting Centres model. OBJECTIVES: To determine which factors facilitate or impede the transition to Community-based day care. DESIGN: A process evaluation was conducted with a qualitative study design. SETTINGS: Six nursing home-based day care centres transformed into Community-based day care centres for people with dementia and their carers. STUDY PARTICIPANTS: Stakeholders (n=40) that were involved during the transition. METHODS: Factors that facilitated or impeded the transition were traced by means of (audiotaped and transcribed) interviews with stakeholders and document analysis. All data were coded by two independent researchers and analyzed using thematic analysis based on the Theoretical framework of adaptive implementation. RESULTS: Six nursing home-based day care centres successfully made the transition to Community-based day care with carer support. Success factors for the start of the project were: the innovation being in line with the current trend towards more outpatient care and having motivated pioneers responsible for the execution of the transition. Barriers were difficulties reaching/recruiting the target group (people with dementia and carers), inflexible staff and little or no experience with collaboration with community-based care and welfare organizations. Facilitating factors during the implementation phase were: finding a suitable location in the community, positive changes in staff attitude and adoption of the new vision, and good cooperation with care and welfare organizations. Barriers were insufficient involvement of, and support from the managers of the responsible organizations, and communication problems with referrers of other organizations, including the GPs and case managers. CONCLUSIONS: The transition from nursing home-based psychogeriatric day care support to a community-based combined support programme for people with dementia and their informal carer is shown to be feasible. Successful implementation of this community-based combined support programme requires - besides motivated pioneers, a change in staff attitude and working style, a suitable pleasant location and collaboration with other care and welfare organizations - special attention for effective communication with the target user group and the referrers, and also how the management of the pioneer organizations can facilitate the staff during the transition process.


Subject(s)
Continuity of Patient Care , Dementia/nursing , Nursing Homes/organization & administration , Aged , Humans , Netherlands
14.
Aging Ment Health ; 19(10): 902-11, 2015.
Article in English | MEDLINE | ID: mdl-25564968

ABSTRACT

OBJECTIVES: In the Netherlands, many community-dwelling people with dementia and behavioral disturbances and their family caregivers receive mental health care from a community psychiatric nurse (CPN). To promote continuity of care for these persons after moving to a nursing home, a transfer intervention was developed. The aim of this explorative study was to evaluate this intervention and its implementation. METHOD: A qualitative explorative study design was used. CPNs visited professional nursing home carers, people with dementia and family caregivers six weeks after moving, advised on how to manage behavioral problems of their former clients and provided support to family caregivers. Twenty-two interviews were conducted with participants exposed to the intervention (5 CPNs, 5 family and 12 nursing home carers) and with 11 stakeholders (i.e., nursing home and mental health care managers, professional caregivers) to identify facilitators and barriers to the implementation. Data were collected in 2012 and 2013. RESULTS: The follow-up visit at six weeks met the need for background information of new admitted patients and helped family caregivers close off the period prior to the move. It did not meet the original purpose of providing nursing home staff with advice about problem behaviors on time: six weeks after the move was experienced as too late. CONCLUSION: The transfer intervention increased the awareness of nursing home staff about personal and behavioral characteristics of residents with dementia and supported caregivers in coping with the new situation. The timing of the intervention could be improved by scheduling it immediately after the move.


Subject(s)
Caregivers/psychology , Continuity of Patient Care , Dementia/nursing , Nursing Homes , Nursing Staff/psychology , Patient Transfer/organization & administration , Problem Behavior , Aged , Dementia/psychology , Female , Hospitalization , Humans , Male , Mental Health , Netherlands , Qualitative Research
15.
Tijdschr Gerontol Geriatr ; 46(1): 1-11, 2015 Feb.
Article in Dutch | MEDLINE | ID: mdl-25112667

ABSTRACT

BACKGROUND: In this study, the transition of a nursing home based psychogeriatric day care centre to an easy-access community day care centre plus caregiver support (DC-plus CS) is followed closely. The transition was based on the proven effective Meeting Centres Support Program. METHOD: By means of qualitative analysis of documents and interviews with key persons (n=11) we investigate facilitating and impeding factors for making this transition. Besides, we evaluate the satisfaction of participants and informal caregivers that used the new support program longer than 6 months. RESULTS: Several characteristics of the innovation (DC-plus CS) help to establish cooperation with other care and welfare services in the region, such as: the easy-access location, the social integration in the community, and the focus on combined support for people with dementia and their informal carers. The good cooperation and the suitable location in the community facilitate the implementation. At first, the presence of other community care-centres for people with dementia and their informal carers in the neighbourhood impedes the recruitment of new participants for the DC-plus CS. In general, the satisfaction of participants and informal carers about the support program is high. CONCLUSION AND DISCUSSION: The transition is made successfully and this study gives other psychogeriatric day care centres in the nursing home insight in how to make a similar transition to DC-plus CS.


Subject(s)
Caregivers/psychology , Community Health Centers/organization & administration , Day Care, Medical/organization & administration , Health Services Accessibility , Nursing Homes/organization & administration , Process Assessment, Health Care , Adaptation, Psychological , Aged , Aged, 80 and over , Alzheimer Disease/psychology , Alzheimer Disease/therapy , Dementia/psychology , Dementia/therapy , Female , Geriatric Psychiatry , Humans , Interdisciplinary Communication , Male , Needs Assessment , Netherlands , Pilot Projects , Social Environment , Social Support
16.
Tijdschr Gerontol Geriatr ; 45(2): 105-16, 2014 Apr.
Article in Dutch | MEDLINE | ID: mdl-24691857

ABSTRACT

BACKGROUND: Dementia care in The Netherlands is shifting from fragmented, ad hoc care to more coordinated and personalized care. Case management contributes to this shift. The linkage model and a combination of intensive case management and joint agency care models were selected based on their emerging prominence in The Netherlands. It is unclear if these different forms of case management are more effective than usual care in improving or preserving the functioning and well-being at the patient and caregiver level and at the societal cost. OBJECTIVE: The objective of this article is to describe the design of a study comparing these two case management care models against usual care. Clinical and cost outcomes are investigated while care processes and the facilitators and barriers for implementation of these models are considered. DESIGN: Mixed methods include a prospective, observational, controlled, cohort study among persons with dementia and their primary informal caregiver in regions of The Netherlands with and without case management including a qualitative process evaluation. Community-dwelling individuals with a dementia diagnosis with an informal caregiver are included. The primary outcome measure is the Neuropsychiatric Inventory for the people with dementia and the General Health Questionnaire for their caregivers. Costs are measured from a societal perspective. Semi-structured interviews with stakeholders based on the theoretical model of adaptive implementation are planned. RESULTS: 521 pairs of persons with dementia and their primary informal caregiver were included and are followed over two years. In the linked model substantially more impeding factors for implementation were identified compared with the model. DISCUSSION: This article describes the design of an evaluation study of two case management models along with clinical and economic data from persons with dementia and caregivers. The impeding and facilitating factors differed substantially between the two models. Further results on cost-effectiveness are expected by the beginning of 2015. This is a Dutch adaptation of MacNeil Vroomen et al., Comparing Dutch case management care models for people with dementia and their caregivers: The design of the COMPAS study.


Subject(s)
Case Management/organization & administration , Dementia/nursing , Research Design , Aged , Caregivers , Case Management/economics , Cohort Studies , Female , Humans , Male , Models, Theoretical , Netherlands , Prospective Studies , Surveys and Questionnaires
17.
Int Psychogeriatr ; 26(5): 769-79, 2014 May.
Article in English | MEDLINE | ID: mdl-24507571

ABSTRACT

BACKGROUND: In the European Rosetta project three separate, previously developed, ICT systems were improved and integrated to create one modular system that helps community-dwelling people with mild cognitive impairment and dementia in different stages of the disease. The system aims to support them in daily functioning, monitor (deviations from) patterns in daily behaviour and to automatically detect emergency situations. The study aimed to inventory the end users' needs and wishes regarding the development and design of the new integrated Rosetta system, and to describe the to be developed Rosetta system. METHODS: Qualitative user-participatory design with in total 50 persons: 14 people with dementia, 13 informal carers, 6 professional carers, 9 dementia experts, 7 care partners within the project, and 1 volunteer. In the Netherlands user focus group sessions were performed and in Germany individual interviews. Dementia experts were consulted by means of a questionnaire, an expert meeting session, and interviews. RESULTS: Persons with dementia and informal carers appreciated the following functionalities most: help in cases of emergencies, navigation support and the calendar function. Dementia experts rated various behaviours relevant to monitor in order to detect timely changes in functioning, e.g. eating, drinking, going to the toilet, taking medicine adequately, performance of activities and sleep patterns. No ethical issues regarding the use of sensors and cameras were mentioned. CONCLUSION: The user participatory design resulted in valuable input from persons with dementia, informal carers and professional carers/dementia experts, based on which a first prototype Rosetta system was built.


Subject(s)
Activities of Daily Living , Caregivers , Cognition Disorders , Mental Competency , Patient Participation , Aged , Cognition Disorders/physiopathology , Cognition Disorders/psychology , Cognition Disorders/rehabilitation , Consumer Behavior , Female , Germany , Health Knowledge, Attitudes, Practice , Humans , Independent Living/psychology , Male , Medical Informatics/methods , Medical Informatics/organization & administration , Netherlands , Patient Participation/methods , Patient Participation/statistics & numerical data , Program Evaluation , Qualitative Research , Severity of Illness Index , Social Support
18.
Dementia (London) ; 12(5): 536-50, 2013 Sep.
Article in English | MEDLINE | ID: mdl-24337328

ABSTRACT

BACKGROUND: Successful implementation is a vital precondition for investigating the outcome of care innovation. This study concerned the evaluation of the implementation of integrated emotion-oriented care (IEOC) in psychogeriatric nursing home wards. The main question was whether the trained caregivers actually applied the knowledge and techniques of IEOC during their daily work. METHODS: The study was conducted within the framework of a randomized clinical trial into the effectiveness of IEOC in 16 wards. Preceding the experimental period, staff from 16 wards were educated and trained to work with a standardized care plan, resulting in a similar level of quality of care at the start of the trial. On the experimental wards IEOC was then implemented by training on the job in addition to training courses for personnel. To examine the implementation effectiveness, a self-report questionnaire, 'Emotion-oriented Skills in the Interaction with Elderly People with Dementia', was administered at baseline and after 7 months to a sample of caregivers from the experimental and the control wards. In addition, participant observation was conducted on four experimental and four control wards, and time spent by care personnel on different type of care tasks was registered. RESULTS: The implementation of IEOC resulted in increased emotion-oriented skills and more knowledge of the residents among the caregivers. Providing IEOC was not more time consuming for the caregivers than providing usual care. CONCLUSION: This study shows that the implementation of IEOC was effective. It is recommended that in intervention studies the correct application of a new intervention or care approach is examined before jumping to conclusions about the effectiveness of the intervention or care approach itself.


Subject(s)
Caregivers/education , Dementia/nursing , Health Knowledge, Attitudes, Practice , Homes for the Aged/standards , Nursing Homes/standards , Process Assessment, Health Care , Adult , Caregivers/psychology , Caregivers/standards , Emotions/physiology , Female , Health Services Research , Humans , Male , Middle Aged , Netherlands , Program Evaluation , Quality of Health Care , Workforce
19.
Tijdschr Gerontol Geriatr ; 43(6): 283-95, 2012 Dec.
Article in Dutch | MEDLINE | ID: mdl-23371871

ABSTRACT

BACKGROUND: Recently, a new communication method was introduced in nursing homes for people with dementia. This so-called Veder Method, developed by professional actors with former educational background in care,combines proven effective emotion-oriented care methods, like reminiscence,with theatrical stimuli like songs and poetry. The method is applied during theatre shows and living room theatre activities. In this exploratory study the surplus value of a living room theatre activity according to the Veder method compared to a reminiscence group activity was evaluated. METHOD: Within a quasi experimental design, three groups of nursing home residents with dementia were compared: Experimental group 1 (E1; N=64)joined a 'living room theatre activity' offered by trained caregivers. Experimental group 2 (E2; N=31) joined a 'living room theatre activity' offered by professional actors. The control group (N=52) received a reminiscence group activity. Behaviour, mood and quality of life were measured using standardized observation scales at three points in time: (T1) pretest; (T2)during the intervention and; (T3) posttest, two hours after the intervention. RESULTS: During and after the intervention, positive effects were found in favour of E2 on behaviour (i.e. laughing, recalled memories), mood (i.e. happy/content) and quality of life (i.e. social involvement, feeling at home). CONCLUSION: A living room theatre activity according to the Veder Method has more positive effect on nursing home residents compared to a normal reminiscence group activity, if offered by professional actors.This article is a slightly edited translation of Does theatre improve the quality of life of people with dementia? International Psychogeriatrics2012;24: 36r381 by the same authors.


Subject(s)
Dementia/psychology , Dementia/therapy , Geriatric Psychiatry/methods , Psychotherapy, Group/methods , Quality of Life , Aged , Aged, 80 and over , Emotions , Female , Homes for the Aged , Humans , Inservice Training , Male , Memory, Episodic , Nursing Homes , Social Behavior
20.
Int J Geriatr Psychiatry ; 26(7): 711-22, 2011 Jul.
Article in English | MEDLINE | ID: mdl-20845397

ABSTRACT

OBJECTIVE: To evaluate the scalability and reliability of Qualidem, a quality of life observation instrument rated by professional caregivers of persons with mild to very severe dementia living in residential settings. METHOD: Data from four field surveys in the Netherlands were used. The instrument consists of nine subscales for mild to severe dementia; of which six can be applied in very severe dementia. The Mokken scaling model was used to compute scalability and reliability coefficients for each subscale and dementia group. RESULTS: Seven hundred fifty nine persons with mild to severe dementia and 214 persons with very severe dementia residing in 36 nursing homes and 4 homes for the elderly were included. In general, the subscales for the mild to severely demented group were scalable and (moderate) sufficiently reliable; the results confirmed the results of previous research to develop Qualidem. For the very severe demented group, four out of six subscales were scalable (Care relationship, H = 0.56; Positive affect, H = 0.55; Restless tense behavior, H = 0.42; and Social isolation, H = 0.34); they were also sufficiently reliable to measure quality of life (0.57 ≤ ρ ≤ 0.82). From the other two measured subscales, Social relations was considered not scalable (H = 0.26) and Negative affect was scalable (H = 0.36), but insufficiently reliable (ρ = 0.40). CONCLUSION: Qualidem is an easy to administer and overall moderately sufficient reliable rating scale that provides a quality of life profile of persons with mild to even very severe dementia living in residential settings.


Subject(s)
Dementia/psychology , Psychiatric Status Rating Scales/standards , Quality of Life/psychology , Aged , Aged, 80 and over , Dementia/diagnosis , Female , Homes for the Aged , Humans , Male , Middle Aged , Netherlands , Nursing Homes , Psychometrics , Reproducibility of Results
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