ABSTRACT
CONTEXT: The Edmonton Symptom Assessment System (ESAS) is a brief, widely adopted, multidimensional questionnaire to evaluate patient-reported symptoms. OBJECTIVES: The objective of this study was to define a standard French version of the ESAS (F-ESAS) to determine the psychometric properties in French-speaking patients. METHODS: In a first pilot study, health professionals (n = 20) and patients (n = 33) defined the most adapted terms in French (F-ESAS). In a prospective multicentric study, palliative care patients completed the three forms of F-ESAS (F-ESAS-VI, F-ESAS-VE, and F-ESAS-NU, where VI is visual, VE, verbal, and NU, numerical), the Hospital Anxiety and Depression Scale. All patients had a test-retest evaluation during the same half-day. Standardized distraction material was used between each scale. RESULTS: One hundred twenty-four patients were included (mean age [±SD]: 68.3 ± 12; 70 women; 54 men). Test-retest reliability was high for all three F-ESAS, and the correlation between these scales was nearly perfect (Spearman rs = 0.66-0.91; P < 0.05). F-ESAS-VI, F-ESAS-VE, and F-ESAS-NU performed similarly and were equally reliable, although there was a trend toward lower reliability for F-ESAS-VI. Correlation between F-ESAS depression and anxiety and HADS depression and anxiety, respectively, were positive (Spearman rs = 0.38-0.41 for depression; Spearman rs = 0.48-0.57 for anxiety, P < 0.05). Among patients, 59 (48%), 45 (36%), and 20 (16%) preferred to assess their symptoms with F-ESAS-VE, F-ESAS-NU, and F-ESAS-VI, respectively. CONCLUSION: The F-ESAS is a valid and reliable tool for measuring multidimensional symptoms in French-speaking patients with an advanced cancer. All forms of F-ESAS performed well with a trend for better psychometric performance for F-ESAS-NU, but patients preferred the F-ESAS-VE.
Subject(s)
Palliative Care , Symptom Assessment , Aged , Female , Health Personnel , Humans , Male , Neoplasms/diagnosis , Neoplasms/physiopathology , Neoplasms/psychology , Palliative Care/methods , Pilot Projects , Prospective Studies , Psychiatric Status Rating Scales , Psychometrics , Reproducibility of Results , Surveys and Questionnaires , TranslatingABSTRACT
Advance directives (AD) and Advance Care Planning (ACP) are two measures a person may undertake to assure that their treatment preferences will be respected until the end of his / her life. Anticipation is based on an open and honest communication between the patient, the durable medical power of attorney and the health care professionals. ADs and ACPs are based on a person's values and beliefs that are important to his quality of life. ACP is a continuing process, initiated by health care professionals and integrated into the health care plan of a person. It should be adjusted all along the disease trajectory and favors communication and anticipation in the health care network. ADs are often a personal initiative to ensure one's wishes in relation to health issues. In Switzerland, they are based on a legal framework and their application is therefore mandatory for health care professionals.
Les directives anticipées (DA) et la planification anticipée du projet thérapeutique (PAPT) permettent d'établir les préférences et souhaits d'une personne en lien avec des soins thérapeutiques. L'élaboration du projet de soins repose sur la communication entre le patient, son proche de confiance et les professionnels de la santé. La qualité de vie et les valeurs de la personne sont les éléments clés de la construction de la PAPT et des DA. La PAPT est un processus qui s'adapte au fur et à mesure de la prise en soins. Elle est relayée et transmise dans un souci de coordination, d'anticipation au fil des épisodes de santé à domicile et / ou en milieu hospitalier. Les DA émanent d'une démarche personnelle le plus souvent et ont une base légale et contractuelle pour les professionnels de la santé.
Subject(s)
Advance Care Planning , Advance Directives , Humans , Palliative Care , Quality of LifeABSTRACT
AIMS AND OBJECTIVES: Sleep disorders are frequent in patients with advanced cancer receiving palliative care. The objective of this study was to demonstrate whether relaxation therapy can improve their satisfaction with sleep. BACKGROUND: Few studies have investigated the effectiveness of relaxation in patients hospitalized with an advanced chronic disease. DESIGN: Prospective randomized study with an immediate intervention group (IIG; relaxation days 3-6) and a delayed intervention group (DIG; relaxation days 6-9). METHODS: The main measure was the overall satisfaction of sleep measured on a Numerical Rating Scale of Satisfaction of Sleep (NRSSS) between 0 and 10. RESULTS: Totally 18 (IIG: 9; DIG: 9) patients were included in this study (mean age 66 ± 10.7). The NRSSS improved in both the groups (almost statistically significant) between the day of inclusion and day 2. Because of the dropout of the patients during the last days of the study, we analyzed the improvement in sleep satisfaction only between day 2 and 5. The NRSSS D5 for the immediate and delayed groups were 4.0 ± 23 and 3.8 ± 2.3, respectively. There was no significant improvement in both the groups. CONCLUSION: The results demonstrated the difficulty to include patients with advanced cancer in a randomized study with a DIG. We were not able to demonstrate the effectiveness of relaxation therapy on sleep satisfaction. RELEVANCE TO CLINICAL PRACTICE: Techniques that can be easily used to improve sleep in patients with an advanced cancer should be developed and used already early in the disease.
