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1.
J Appl Gerontol ; 40(12): 1751-1757, 2021 12.
Article in English | MEDLINE | ID: mdl-33655775

ABSTRACT

Meaningful engagement is an important dimension of quality of life and care for persons living with dementia, including the growing number who reside in assisted living communities. This report presents preliminary findings from an ongoing qualitative study aimed at identifying best care practices to create and maintain meaningful engagement among persons with dementia. Over a 1-year period, we conducted interviews, residents' record review, and participant observations in four diverse care communities. Our analysis identified four approaches that successfully promote meaningful engagement: (a) knowing the person, (b) connecting with and meeting people where they are, (c) being in the moment, and (d) viewing all encounters as opportunity. Incorporation of these approaches in care routines and adoption by all care partners can promote meaningful engagement, including during crises such as COVID-19.


Subject(s)
COVID-19 , Dementia , Delivery of Health Care , Humans , Quality of Life , SARS-CoV-2
2.
J Am Geriatr Soc ; 68(3): 511-518, 2020 03.
Article in English | MEDLINE | ID: mdl-31784987

ABSTRACT

OBJECTIVES: Developing scalable strategies for the early identification of Alzheimer's disease and related dementia (ADRD) is important. We aimed to develop a passive digital signature for early identification of ADRD using electronic medical record (EMR) data. DESIGN: A case-control study. SETTING: The Indiana Network for Patient Care (INPC), a regional health information exchange in Indiana. PARTICIPANTS: Patients identified with ADRD and matched controls. MEASUREMENTS: We used data from the INPC that includes structured and unstructured (visit notes, progress notes, medication notes) EMR data. Cases and controls were matched on age, race, and sex. The derivation sample consisted of 10 504 cases and 39 510 controls; the validation sample included 4500 cases and 16 952 controls. We constructed models to identify early 1- to 10-year, 3- to 10-year, and 5- to 10-year ADRD signatures. The analyses included 14 diagnostic risk variables and 10 drug classes in addition to new variables produced from unstructured data (eg, disorientation, confusion, wandering, apraxia, etc). The area under the receiver operating characteristics (AUROC) curve was used to determine the best models. RESULTS: The AUROC curves for the validation samples for the 1- to 10-year, 3- to 10-year, and 5- to 10-year models that used only structured data were .689, .649, and .633, respectively. For the same samples and years, models that used both structured and unstructured data produced AUROC curves of .798, .748, and .704, respectively. Using a cutoff to maximize sensitivity and specificity, the 1- to 10-year, 3- to 10-year, and 5- to 10-year models had sensitivity that ranged from 51% to 62% and specificity that ranged from 80% to 89%. CONCLUSION: EMR-based data provide a targeted and scalable process for early identification of risk of ADRD as an alternative to traditional population screening. J Am Geriatr Soc 68:511-518, 2020.


Subject(s)
Alzheimer Disease/diagnosis , Early Diagnosis , Electronic Health Records , Adult , Aged , Case-Control Studies , Dementia/diagnosis , Female , Humans , Indiana , Male , Middle Aged , Sensitivity and Specificity
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