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1.
Health Promot Pract ; 20(5): 760-769, 2019 09.
Article in English | MEDLINE | ID: mdl-29759012

ABSTRACT

Heart disease is the leading cause of death in the United States. African Americans and people of low socioeconomic status suffer disproportionately from heart disease-related morbidity and mortality. In Detroit, Michigan, a primarily African American and low-income urban area, heart disease mortality is at twice the national rate. Despite evidence for the effectiveness of self-management support interventions in reducing chronic disease burden for older adults, few are adapted for communities most in need. This article describes the process of adapting Take PRIDE, an evidence-based heart disease self-management intervention, for older adults in Detroit via the Replicating Effective Programs (REP) framework. Working within a community-academic partnership, we found REP useful in facilitating the identification of diverse stakeholders, core versus adaptable elements of the intervention and barriers to implementation. We also made several modifications to the REP framework in order to better fit our project needs. Overall, we found REP to be an effective, flexible tool that allowed us to successfully adapt a disease-management intervention for this setting. Processes, lessons learned, and recommendations offered in this article may help researchers and practitioners working to expand access to self-management support for populations most affected by chronic disease.


Subject(s)
Black or African American , Cardiovascular Diseases/prevention & control , Health Promotion/organization & administration , Cardiovascular Diseases/ethnology , Chronic Disease , Humans , Michigan , Poverty , Program Evaluation , Residence Characteristics , Self-Management , Socioeconomic Factors , United States , Urban Population
2.
Brain Inj ; 27(12): 1338-47, 2013.
Article in English | MEDLINE | ID: mdl-23923818

ABSTRACT

PRIMARY OBJECTIVE: This study investigated clinicians' perceptions on factors linked to patient complexity in traumatic brain injury (TBI) outpatient rehabilitation. METHOD: Twelve clinicians from various disciplines, working in TBI outpatient programmes from three rehabilitation institutions in Montreal, Quebec, were recruited using convenience and snowball sampling. Data was collected through focus groups and individual interviews and thematic analysis was used to identify themes. MAIN OUTCOMES AND RESULTS: Participants identified complexity factors falling under the following themes: sequelae of TBI (cognitive/behavioural/psychological impacts), personal factors (personality traits, pre-medical state, lifestyle and age), patients' environment (architectural, social, language, cultural and financial) and therapeutic relationship (mismatch, misunderstanding and personality clashes). Clinicians also reported facilitators to optimal treatment delivery such as quality of services and working in an interdisciplinary team. Limited time, training and resources were identified as barriers to treatment. CONCLUSION: A substantial proportion of patients in outpatient TBI programmes seem to follow an atypical evolution and exhibit added complexity. In order to optimize quality of care, clinicians recommended increased community awareness about TBI, increased resources for rehabilitation clinicians and specialized services post-discharge. These findings are insightful for stakeholders; providing a basis for discussions on policy changes that can better meet this population's needs.


Subject(s)
Brain Injuries/rehabilitation , Health Personnel , Health Services Needs and Demand , Outpatients , Social Perception , Cognitive Behavioral Therapy , Female , Focus Groups , Humans , Life Style , Male , Personality Assessment , Practice Guidelines as Topic , Qualitative Research , Quality Improvement , Quebec/epidemiology , Risk Assessment , Risk Factors , Social Environment
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