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1.
J Sport Rehabil ; 33(4): 225-230, 2024 May 01.
Article in English | MEDLINE | ID: mdl-38412853

ABSTRACT

CONTEXT: In March 2020, public health concerns resulted in school closure throughout the United States. The prolonged sport cessation may affect knee injury risk in high school athletes. The purpose of this study was to describe and compare risk of knee injuries in high school athletes during 2019-2020 and 2020-2021 academic years, and stratify by gender, severity, mechanism of injury, injury type, and knee anatomic region. DESIGN: Historical-prospective cohort study. METHODS: This historical-prospective cohort study included 176 schools in 6 states matched by sport participation in control and COVID years from July 1, 2019 to June 30, 2021. Injury rates per 1000 athletes per year were calculated with 95% confidence intervals. A negative binomial regression was performed to assess potential differences in knee injuries between academic years. RESULTS: 94,847 and 72,521 high school athletes participated in the 2019-2020 (19-20) and 2020-2021 (20-21) seasons. Knee injury risk was higher in the 20-21 season (19-20: 28.89% [27.82-29.96]; 20-21: 33.82% [32.50-35.14]). Risk increased for male athletes from 2019-2020 to 2020-2021 (19-20: 29.42% [28.01-30.83]; 20-21: 40.32% [38.89-41.75]). Female knee injury risk was similar between years (19-20: 25.78% [24.29-27.27]; 20-21: 26.03% [24.31-27.75]). Knee injuries increased by a ratio of 1.2 ([95% CI, 1.1-1.3], P < .001) during 2020-2021. CONCLUSIONS: Knee injury risk and relative risk increased among males in 2020-2021. Results indicate changes in knee injury risk following return from COVID shelter in place among high school athletes and implicate potential negative downstream effects of interrupted sports training and participation on high school injury risk.


Subject(s)
Athletic Injuries , Knee Injuries , Humans , Adolescent , Knee Injuries/epidemiology , Male , Female , Prospective Studies , Athletic Injuries/epidemiology , United States/epidemiology , Schools , Risk Factors , Athletes , COVID-19/epidemiology , Sex Factors
2.
Fam Syst Health ; 40(2): 232-238, 2022 06.
Article in English | MEDLINE | ID: mdl-35666896

ABSTRACT

INTRODUCTION: Youth with perinatally-acquired HIV (PHIV) are living well into young adulthood. There has been extensive research on the social impacts of PHIV on adolescents and young adults (AYA). However, little research has examined their broader family system. This qualitative exploratory project examined the perspectives of caregivers raising AYA with PHIV. METHOD: Eighteen caregivers who cared for adolescents and young adults with PHIV over the age of 14 completed semistructured audio-recorded interviews. Questions focused on salient aspects of adolescent development and parenting experiences over the course of their child's life. Transcripts were coded for emergent themes. RESULTS: Past and present caregiving experiences were consistently contextualized by the stigmatized nature of HIV. Daily concerns related to medication adherence and sexual behavior were common. Future-oriented expectations were marked by hope, as well as an acknowledgment of continued struggle. DISCUSSION: Negative experiences with the health care system underscore the need for ongoing education about HIV-related stigma. Findings suggest that caregivers, like other parents of typically developing youth, may need support addressing sexuality. Additionally, caregivers expressed concerns over the appropriate levels of supervision to offer their AYA as they assumed more responsibility for their own health. Collaboration among psychosocial and health care professionals to identify support strategies will benefit both caregivers and AYA living with PHIV. (PsycInfo Database Record (c) 2022 APA, all rights reserved).


Subject(s)
HIV Infections , Parenting , Adolescent , HIV Infections/psychology , HIV Infections/transmission , Humans , Infectious Disease Transmission, Vertical , Parenting/psychology , Sexual Behavior/psychology , Social Stigma , Young Adult
3.
AIDS Care ; 33(10): 1363-1367, 2021 10.
Article in English | MEDLINE | ID: mdl-32741214

ABSTRACT

An increasing number of U.S. families are adopting children with HIV born outside the country. This exploratory qualitative study seeks to understand providers' perspectives on international adoptee and family preparation and adjustment to life in the U.S. Eleven psychosocial and five medical care providers participated in hour-long, semi-structured, recorded interviews focused on their experiences caring for internationally adopted children with HIV (IACH) and their adoptive parents. Transcribed interviews were analyzed to identify emergent themes. Providers described considerable variation among families who adopted children. Some had grown biological children and several adopted multiple children with special needs. Most were connected to communities of faith which served as an inspiration to adopt and offered support. Serious medical and HIV-related issues were minimal. Psychosocial concerns were more common and included attachment, adjustment, and behavioral issues. Participants noted that adoptive parents were well informed about HIV, but less prepared for cognitive delays and emotional challenges. Some providers experienced or expected to have challenges offering sexual and reproductive health education to adolescents due to their adoptive parents' religious beliefs on sexuality. Additional support managing behavioral and emotional challenges, as well as sexual education, may be needed especially as IACH transition into adolescence and young adulthood.


Subject(s)
HIV Infections , Adolescent , Adoption , Adult , Child , HIV Infections/therapy , Humans , Parents , Qualitative Research , Sexual Behavior , Young Adult
4.
Midwifery ; 82: 102622, 2020 Mar.
Article in English | MEDLINE | ID: mdl-31951904

ABSTRACT

OBJECTIVE: To explore the decision making process of women who seek to give birth in water DESIGN: A qualitative design using semi-structured interviews with women who planned a waterbirth was used. Interviews were recorded, transcribed, and coded for emergent themes using a grounded theory approach for analyses SETTING: Twenty-three women (mean age = 33.5 years mean number of children = 2.5) who had planned a waterbirth were recruited from a prenatal care clinic in a mid-sized southeastern city in the United States. Questions explored how they decided to pursue a waterbirth, sources of information, support systems, resistance, and their birth experience FINDINGS: Although all participants used the tub during labor, five did not give birth in the water. Analyses revealed that a belief in their body's ability to give birth along with the desire for limited medical interventions were the primary reasons for choosing waterbirth. Previous positive and negative experiences with birth also shaped their decision. Women actively sought information about waterbirths from the internet and friends. One-third of participants decided to pursue a waterbirth later in pregnancy and changed OB practices in order to have access to a waterbirth. Midwives and doulas were viewed as critical supporters of their waterbirth decision. However, most participants experienced some form of resistance toward their decision from others including family, friends, coworkers, and strangers. The overwhelming majority were positive about their experience and indicated they felt empowered, even if they were unable to give birth in the water, and encouraged other women to consider waterbirth. Most indicated they wanted to have a waterbirth in the future.


Subject(s)
Decision Making , Labor, Obstetric/psychology , Natural Childbirth/psychology , Adult , Female , Humans , Interviews as Topic/methods , Natural Childbirth/standards , North Carolina , Pregnancy , Qualitative Research , Surveys and Questionnaires
5.
Soc Sci Med ; 244: 112648, 2020 01.
Article in English | MEDLINE | ID: mdl-31707144

ABSTRACT

The prevalence of infants born before 37 weeks of gestation continues to rise in the United States. Advances in neonatology have led to improved survival rates among preterm infants, including those born at a very-low-birth-weight (VLBW). Exclusive human milk feeding is a therapeutic intervention for VLBW preterm infants, and mothers are encouraged to provide their own milk. Yet, it is well-established that mothers and infants may face extraordinarily complicated lactation and infant feeding challenges in NICU settings, many of which emanate from birth trauma. The purpose of this study is to gain a deeper understanding of the ways in which the hyper-medicalized management of preterm birth and infant feeding in NICU environments affect mothers' postpartum health and well-being. Seventeen mothers of VLBW preterm infants were interviewed August 2016-June 2017 within three years of their infant's NICU discharge about their feeding decisions and experiences. Narrative analysis yielded five themes: (1) the physical and emotional trauma of giving birth prematurely impacted mothers' lactation experiences; (2) separation from their infants intensified mothers' suffering and disrupted lactation; (3) mothers experienced being marginalized in their infant's NICU care; (4) mothers practiced embodied forms of resistance to cope with both trauma and marginalization; and (5) skilled support was central to mothers' positive lactation experiences in the NICU. We draw upon feminist theory in the anthropology of reproduction to examine the fundamental hierarchies of power in U.S. neonatal critical care systems that fracture mothers' interembodied relationships to their newborns, exacerbate lactation failure, and engender traumatic postpartum neglect. Moreover, we theorize mothers' expressions of suffering in the context of preterm birth and lactation insufficiency as idioms of distress engendered by the violence of neglectful care. Narrative inquiry is instrumental to designing structural transformations in the systems of care available to mothers of preterm infants who are admitted to a NICU.


Subject(s)
Infant Care/psychology , Infant, Very Low Birth Weight , Intensive Care Units, Neonatal , Lactation , Mothers/psychology , Postpartum Period , Adaptation, Psychological , Adult , Breast Feeding/psychology , Cross-Sectional Studies , Female , Humans , Infant, Newborn , Longitudinal Studies , Medicalization , Mother-Child Relations/psychology , Pregnancy , United States
6.
AIDS Patient Care STDS ; 33(10): 440-448, 2019 10.
Article in English | MEDLINE | ID: mdl-31524504

ABSTRACT

This study explores health care providers' perceptions of similarities and differences in the sexual and reproductive needs of adolescents with perinatally acquired HIV (PHIV) and behaviorally acquired HIV (BHIV). Interviews (n = 13) and online surveys (n = 46) were completed by medical and social service providers (n = 30, n = 29, respectively) who care for adolescents with HIV. Eligible providers were recruited using snowball sampling. Responses to open-ended questions were coded for emergent themes. Sixty-eight percent of participants perceived differences in the sexual and reproductive health needs of adolescents with PHIV and BHIV. Differences included factors related to psychosocial, sexual, and medical needs. Providers believed adolescents with PHIV had integrated their diagnosis into their identity, were more adept at communicating with providers, and were more sexually cautious than youth with BHIV. Providers perceived adolescents with BHIV as more comfortable discussing sex-related issues, and suggested youth with PHIV were more comfortable accessing health care. Adolescents with PHIV were thought to have complex medical histories/treatment and greater knowledge of illness/medications. Existing research on adolescent-reported sexual and reproductive health knowledge and experiences in care suggests that provider and adolescent perspectives do not always align. Mode of transmission may provide some information about psychosocial functioning and sexual behavior. However, assumptions about sexual and reproductive health needs based solely on mode of transmission may contribute to gaps in sexual and reproductive health care. Future research is needed to examine whether these differing perspectives indeed lead to discrepancies in the care provided to adolescents with HIV.


Subject(s)
Adolescent Behavior/psychology , Adolescent Health Services/organization & administration , HIV Infections/congenital , HIV Infections/psychology , Health Personnel/psychology , Health Services Needs and Demand , Reproductive Health , Sexual Behavior/psychology , Sexual Health , Adolescent , Adult , Female , HIV Infections/drug therapy , Health Behavior , Health Services Accessibility , Humans , Infectious Disease Transmission, Vertical , Interviews as Topic , Male , Middle Aged , Perception , Reproduction , Reproductive Health Services/organization & administration , Reproductive Health Services/statistics & numerical data
7.
BMC Health Serv Res ; 19(1): 563, 2019 Aug 13.
Article in English | MEDLINE | ID: mdl-31409336

ABSTRACT

BACKGROUND: Community health workers, known as Village Health Teams (VHTs) in Uganda, play a central role in increasing access to community-based health services. The objective of this research is to explore tensions that may emerge as VHTs navigate multiple roles as community members and care providers particularly when providing sensitive reproductive health and HIV care. METHODS: Twenty-five VHTs from a rural clinic in Uganda completed semi-structured interviews focused on experiences providing services. Interview questions focused on challenges VHTs face providing services and strategies for improving quality care. After translation from Luganda and transcription, interviews were analyzed using content analysis to identify emergent themes. RESULTS: Most VHTs were female (n = 16). The average age was 46, and average length of VHT work, 11 years. Analyses revealed that all VHTs capitalized upon the duality of their position, shifting roles depending upon context. Three themes emerged around VHTs' perceptions of their roles: community insiders, professional outsiders, and intermediaries. A caregiver "insider" role facilitated rapport and discussion of sensitive issues. As community members, VHTs leveraged existing community structures to educate clients in familiar settings such as "drinking places". However, this role posed challenges as some VHTs felt compelled to share their own resources including food and transport money. Occupying a professional outsider role offered VHTs respect. Their specialized knowledge gave them authority to counsel others on effective forms of family planning. However, some VHTs faced opposition, suspicions about their motives, and violence in this role. In balancing these two roles, the VHTs adopted a third as intermediaries, connecting the community to services in the formalized health care system. Participants suggested that additional training, ongoing supervision, and the opportunity to collaborate with other VHTs would help them better navigate their different roles and, ultimately, improve the quality of service. CONCLUSIONS: As countries scale up family planning and HIV services using VHTs, supportive supervision and ethical dilemma training are recommended so VHTs are prepared for the challenges of assuming multiple roles within communities.


Subject(s)
Community Health Workers/organization & administration , Quality of Health Care/standards , Reproductive Health Services/organization & administration , Adult , Female , Humans , Male , Middle Aged , Negotiating , Qualitative Research , Reproductive Health Services/standards , Rural Population , Uganda
8.
J Assoc Nurses AIDS Care ; 29(6): 822-834, 2018.
Article in English | MEDLINE | ID: mdl-30369413

ABSTRACT

The goal of our project was to examine health and social service provider views of factors that influence the nature and timing of sexual and reproductive health (SRH) information shared with adolescents with perinatally acquired HIV (PHIV). Health care (n = 6) and social service (n = 7) providers (11.6 mean years caring for adolescents with PHIV) completed audio-recorded interviews that were transcribed, and coded for emerging themes. Analyses revealed multiple levels of influence best understood in the context of the ecological model. Adolescent factors included cognitive development, comfort level with sexuality talk, and disclosure status. Guardian/parent hesitancy, values, and concerns regarding disclosure comprised the microsystem. Exosystem-level factors included disclosure as a prerequisite to SRH education, provider comfort, and relationship with the adolescent. Finally, broader structural aspects of the macrosystem included mandatory disclosure laws and quality of school-based SRH education. Across systems, findings underscored the central importance of disclosure in the provision of SRH information.


Subject(s)
Adolescent Behavior/psychology , Counseling , HIV Infections/congenital , HIV Infections/psychology , Health Knowledge, Attitudes, Practice , Reproductive Health , Sex Education/methods , Sexual Behavior/psychology , Sexual Health , Adolescent , Adult , Female , Health Communication , Health Personnel , Humans , Interviews as Topic , Male , Qualitative Research , Young Adult
9.
AIDS Care ; 30(2): 178-181, 2018 Feb.
Article in English | MEDLINE | ID: mdl-28639838

ABSTRACT

Historically, children with perinatally-acquired HIV (PHIV) were viewed as the "innocent victims" as their HIV infection was not acquired through sexual/drug related means. Today, adolescents with PHIV are surviving into young adulthood and are engaging in developmentally expected behaviors such as establishing intimate, sexual relationships. Like other youth, those living with PHIV often need to access sexual and reproductive health (SRH) services. Previous research has documented stigma and discrimination experienced by adult women living with HIV as they try to access SRH care. However, little is known about the experiences of stigma and discrimination encountered by the maturing adolescents and young adults (AYA) with PHIV when accessing services. HIV health care providers (HHCPs) who frequently care for this population are in a unique position to learn about and understand the stigma and discrimination experienced by their patients in formal service settings. HHCPs (n = 57, 28 medical and 29 social service providers) were recruited using snowball sampling, and completed an online survey based on patient-shared experiences of stigma and discrimination when accessing SRH-related health care and social services. Thirty-eight percent (22/57) of providers reported that their patients with PHIV had shared encounters of stigma or discrimination when accessing SRH services. Coded open-ended provider comments indicated that AYA patients experienced challenges with providers who were unfamiliar with PHIV and expressed surprise that someone with PHIV was still alive. Analyses also revealed prejudicial attitudes towards women with HIV. Patients reported being counseled to terminate their pregnancy and lectured about their "poor choices." As AYA with PHIV transition out of pediatric and adolescent care, it is important for providers to simultaneously help them navigate care in other health settings, as well as educate adult health care providers about possible misconceptions of caring for individuals with PHIV.


Subject(s)
Discrimination, Psychological , HIV Infections/psychology , Health Personnel/psychology , Health Services Accessibility , Reproductive Health Services/statistics & numerical data , Reproductive Health , Sexual Behavior , Social Stigma , Adolescent , Adult , Child , Female , HIV Infections/congenital , Humans , Interpersonal Relations , Perception , Qualitative Research , Sexual Health , Young Adult
10.
Fam Syst Health ; 34(4): 378-385, 2016 Dec.
Article in English | MEDLINE | ID: mdl-27571541

ABSTRACT

INTRODUCTION: Parents and caregivers of typically developing teens are often a source of information about sexual health and relationships. However, little is known about the information offered to adolescents with perinatally acquired HIV (APHIV) by caregivers who may provide support and guidance to their teen as they explore sexuality and childbearing. METHOD: This qualitative exploratory study involved the in-depth interviews of 18 caregivers (17 females), including biological mothers (9), relatives (5), and adoptive/foster mothers (4), who care for APHIV. Interviews explored views regarding their adolescent's engagement in romantic relationships, sexual behaviors, and childbearing. The guardian's knowledge of mother-to-child-transmission (MTCT) was also assessed for accuracy. Transcribed interviews were coded for emergent themes. RESULTS: Analyses indicated that the majority of caregivers discussed sexual health and dating with their adolescent. However, guidance regarding disclosure to partners of the adolescent's HIV status varied. Some biological mothers and all relatives cautioned against disclosure, contrary to foster/adoptive mothers. Most caregivers wanted their adolescent to experience parenthood. Reasons affirming childbearing included the belief their child would be a good parent and wanted to experience parenthood, childbearing as a normative experience, and decreased HIV-related stigma. Biological mothers and most relatives did not know the risk of MTCT, as opposed to all foster/adoptive mothers who accurately stated the risk was 1% to 2%. DISCUSSION: The type of guardian influenced the nature of shared information related to disclosure and risk of MTCT. Sexual and reproductive health education should be provided to caregivers because they could be an important source of information for APHIV. (PsycINFO Database Record


Subject(s)
Caregivers/psychology , HIV Infections/psychology , Pregnancy in Adolescence/psychology , Social Stigma , Adolescent , Adult , Aged , Female , Grandparents/psychology , Health Knowledge, Attitudes, Practice , Humans , Infectious Disease Transmission, Vertical , Interpersonal Relations , Male , Middle Aged , Parturition/psychology , Pregnancy , Qualitative Research , Sexual Partners/psychology
11.
Front Public Health ; 4: 140, 2016.
Article in English | MEDLINE | ID: mdl-27446903

ABSTRACT

Adolescents and young adults (AYA) with perinatally acquired HIV (PHIV) engage in developmentally expected behaviors, such as establishing relationships and having children. Previous research has focused on pregnancy management/outcomes of AYA with PHIV. However, little research has focused on the parenting experiences of this emerging cohort and on their views of disclosure to their offspring. This article examines data from a pilot study of five AYA parents with PHIV on disclosure to their child(ren) (n = 7, 6 HIV-negative). Disclosure of their own HIV status to their children is on the minds of parents with PHIV. However, few currently have children old enough to understand the parent's diagnosis. Three parents indicated they would disclose their HIV status when their child was "old enough to understand" so that their child would be knowledgeable about HIV. One father also noted that he currently had more pressing parenting responsibilities beyond disclosure. When discussing their perspectives on disclosure, many referenced their personal stories indicating a link between their decision to disclose/not disclose to their child and their own disclosure narrative. One mother cited she did not plan to reveal her diagnosis to her son because he was uninfected, while another mother explained she did not want to worry her child. The mother of the only infected child "did not want to wait like my mother did" and planned to tell her son at an earlier age than when she learned of her own diagnosis. Clinical implications related to disclosure will be discussed and future areas of research identified.

12.
J Pediatr Nurs ; 30(5): 684-90, 2015.
Article in English | MEDLINE | ID: mdl-26117807

ABSTRACT

Youth with perinatally-acquired HIV infection (PHIV) routinely survive into adulthood requiring transition to adult care. Research underscores the importance of assessing transition perspective congruence between adolescents and guardians. Interviews focused on transition decisions were conducted with 18 adolescents with PHIV and their guardians recruited from a southeastern US pediatric infectious disease clinic. Transcribed responses were coded as congruent or divergent. Adolescents and guardians held congruent views that the transition process had not started. Fewer dyads agreed upon the level of adolescent and guardian involvement in transition decisions. Providers should assess congruence of adolescent and guardian perspectives regarding transition-related decisions.


Subject(s)
HIV Infections/therapy , HIV Infections/transmission , Infectious Disease Transmission, Vertical , Transition to Adult Care/organization & administration , Transitional Care/organization & administration , Adolescent , Female , HIV Infections/diagnosis , Health Knowledge, Attitudes, Practice , Humans , Infant, Newborn , Interpersonal Relations , Interviews as Topic , Legal Guardians/psychology , Male , Patient Compliance/statistics & numerical data , Patient Education as Topic/organization & administration , Program Evaluation , Qualitative Research , Risk Assessment , United States
13.
AIDS Patient Care STDS ; 28(11): 587-93, 2014 Nov.
Article in English | MEDLINE | ID: mdl-25290765

ABSTRACT

The population of adolescents and young adults (AYA) with perinatally-acquired HIV (PHIV) present challenges to HIV healthcare providers (HHCPs). Originally not expected to survive childhood, they are now living well into young adulthood. Little is known about the type of sexual and reproductive (SRH) information/services offered to AYA with PHIV by HHCPs. HHCPs (n=67) were recruited using snowball sampling, and completed an online survey. Providers' most frequently endorsed SRH topics discussed with both male and female patients included condom use (77.3%), STD prevention (73.1%), and screening (62.1%). Providers' reports indicated that females received significantly more education about SRH topics overall. The most frequently noted barriers to SRH communication included more pressing health concerns (53.0%), parent/guardian not receptive (43.9%), and lack of time during appointment (43.9%). Provider-reported SRH conversations with HHCPs were highly focused on horizontal transmission and pregnancy prevention. Salient social aspects of SRH promotion for AYAs with PHIV (e.g., managing disclosure and romantic relationships) were less commonly discussed, though such conversations may serve to reduce secondary transmission and enhance the overall well-being of AYA with PHIV. Findings indicated that further work must be done to identify strategies to address unmet SRH needs of the aging population of AYA with PHIV.


Subject(s)
Adolescent Health Services/organization & administration , Communication Barriers , Counseling , HIV Infections/psychology , Health Personnel , Reproductive Health , Sexual Behavior/psychology , Adolescent , Adult , Female , Health Care Surveys , Health Knowledge, Attitudes, Practice , Health Services Needs and Demand , Humans , Male , Reproduction , Reproductive Health Services/organization & administration , Safe Sex , Young Adult
14.
J Midwifery Womens Health ; 58(5): 552-7, 2013.
Article in English | MEDLINE | ID: mdl-24015798

ABSTRACT

INTRODUCTION: South Africa has the highest rate of individuals infected with HIV in the world. Women in particular are at increased risk for HIV infection and typically receive care from nurses and midwives who are on the front lines of health care policy and program implementation. The primary objective of this study was to compile and analyze suggestions generated by health care professionals on how to improve HIV-related maternal care in South Africa. This information can then be used to inform the direction of future programs across the country and beyond. METHODS: Two hundred forty-nine nurses, midwives, and nursing students enrolled in a South African university completed surveys as part of this qualitative cross-sectional study. Responses were transcribed and coded by independent researchers who met frequently to discuss and come to consensus on emerging themes. RESULTS: Four primary strategies to improve HIV-related maternal care emerged from the data. These women's health professionals suggested improving education, increasing grassroots-level participation by government officials, improving resources, and developing strategies aimed at decreasing the risk of secondary transmission of HIV. DISCUSSION: Nurses and midwives are frontline health care professionals who are in unique positions to offer feedback on how HIV-related maternal care can be improved. The identified strategies should be integrated into future programs, and human rights implications must be examined.


Subject(s)
HIV Infections/epidemiology , Maternal Health Services , Quality Improvement , Adult , Cross-Sectional Studies , Female , Humans , Nurses , Pregnancy , South Africa/epidemiology , Students, Nursing , Surveys and Questionnaires , Women's Health
15.
AIDS Patient Care STDS ; 26(7): 423-9, 2012 Jul.
Article in English | MEDLINE | ID: mdl-22686235

ABSTRACT

The increased life expectancy of perinatally HIV-infected adolescents necessitates the transition from pediatric to adult infectious disease care. Significant differences exist between pediatric and adult HIV clinic models, and adequate preparation is critical for successful transition. The expectations of youth on the cusp of this transition and their guardians have not previously been explored. Semistructured interviews were conducted with 40 perinatally infected adolescents (mean age, 17.3 years; 90% African American; 57.5% female; 57.5% in high school) currently receiving care in a pediatric infectious disease clinic in the southeast United States and 17 guardians about their expectations related to the pending transition to adult care. Interviews were transcribed and coded for emergent themes. Many adolescents had difficulty articulating expectations of their transition to an adult clinic, reporting they did not know what to expect. Others looked forward to increased responsibility and control, while some expressed concerns over leaving their current providers and having to establish new relationships. Most guardians viewed the transition to adult care as a tool to facilitate maturity. Several indicated they had not discussed transition with their child and were waiting for their child to initiate a conversation about it. Given the importance providers place on preparing youth for transition, it is surprising that many adolescents had no expectations about this impending change. This indicates a need for improved communication between providers and adolescents to enhance preparation and ultimately transition success. Additionally, guardians play an important role in the transition process and may need support to discuss this process with their child.


Subject(s)
HIV Seropositivity/psychology , Infectious Disease Transmission, Vertical , Legal Guardians/psychology , Medication Adherence/psychology , Transition to Adult Care , Adolescent , Adolescent Behavior , Adult , Communication , Delivery of Health Care , Female , HIV Seropositivity/epidemiology , Health Knowledge, Attitudes, Practice , Healthcare Disparities , Humans , Infectious Disease Transmission, Vertical/statistics & numerical data , Male , Medication Adherence/statistics & numerical data , Middle Aged , Surveys and Questionnaires , United States/epidemiology
16.
Midwifery ; 28(1): 39-44, 2012 Feb.
Article in English | MEDLINE | ID: mdl-21458895

ABSTRACT

OBJECTIVES: This paper explores the relationship between perceptions of prenatal control, expectations for childbirth, and experienced control in labour and birth and how they individually and collectively affect birth satisfaction. DESIGN: A repeated measures exploratory study was conducted with 31 primiparous women between 26 and 40 weeks pregnant. Standardised interviews were conducted prior to birth to assess levels of prenatal control and expectations for control during childbirth. Six weeks after the birth, women were interviewed again to assess experiences of control and birth satisfaction. SETTING: Prenatal clinic, North Carolina, USA. FINDINGS: Results show experienced control to be a significant predictor of birth satisfaction, with high levels of control correlating with high satisfaction levels. However, no correlations were found between the three aspects of control, and both prenatal control and birth expectations were found to have no significant effect on birth satisfaction. Findings also indicate that women cared for by midwives have significantly higher experienced control and birth satisfaction than women whose care was provided by obstetricians, while incidence of caesarean birth did not affect either measure. CONCLUSIONS: Experienced control during labour and birth is an important predictor of birth satisfaction. Health care providers should collaborate with the women they care for to use techniques that maximize the experience of control especially during labour and birth.


Subject(s)
Delivery, Obstetric/psychology , Internal-External Control , Labor, Obstetric/psychology , Patient Satisfaction , Pregnancy/psychology , Self Efficacy , Adult , Decision Making , Female , Humans , North Carolina , Nursing Methodology Research , Parturition/psychology , Social Support , Surveys and Questionnaires , Young Adult
17.
AIDS Care ; 23(8): 965-70, 2011 Aug.
Article in English | MEDLINE | ID: mdl-21390882

ABSTRACT

Rates of HIV infection among adolescents in the US continues to rise, resulting in more individuals who must eventually transition from pediatric to adult care. It is critical that this process go smoothly to ensure continuity of care and to maximize patient outcomes. While research has examined youths' experiences with the transition process, disease-specific indicators of successful transition from pediatric to adult care remain undefined. Identifying indicators will facilitate the evaluation of transition processes, and, ultimately, the empirical determination of best practices. Interviews were conducted with 19 professionals who provide care for children and adults with HIV in southeastern state in the US. Approximately half of the providers self-identified as pediatric care providers. Nine of those interviewed were nurses and physicians and 10 were social workers. Providers had been working in the field of HIV for an average of 11.2 years. Interviews were taped, transcribed, and coded for emergent themes. Providers who care for HIV-infected youth identified both behavior and seriologic indicators of succesful transitions. Behavioral indicators identified were keeping appointments, medication adherence, and demonstrating ownership of medical care. Providers also identified serological markers of a succesful transition, specifically,viral load and CD4 count. Findings provided valuable insight into the perspectives of infectious disease care providers on indicators of successful transition from pediatric to adult care for adolescents with HIV. This is an important first step in developing empirical evaluation measures for transition practices and models. Similar research should be conducted with other groups of providers to assess the generalizability of these findings. Additionally, future research should seek to operationalize the identified behavioral indicators and determine appropriate values to indicate success for all indicators.


Subject(s)
Continuity of Patient Care/trends , Delivery of Health Care/organization & administration , HIV Infections/therapy , Health Personnel/psychology , Patient Care Planning , Adolescent , Adult , Child , Continuity of Patient Care/organization & administration , Female , Health Knowledge, Attitudes, Practice , Health Personnel/organization & administration , Humans , Interviews as Topic , Male , Quality Indicators, Health Care
18.
J Am Coll Health ; 59(4): 273-80, 2011.
Article in English | MEDLINE | ID: mdl-21308587

ABSTRACT

OBJECTIVE: The relationship between condom use and 2 less visible categories of intimate partner violence (IPV), sexual coercion and verbal aggression, was examined among college students. METHODS: In March 2007 a random cross-sectional sample of undergraduates from the southeast region of the United States was taken to collect information about sexual coercion and verbal aggression, in addition to condom use consistency. Alcohol use was also assessed. RESULTS: Of the 142 participants, 31.7% reported being victims of sexual coercion, and 78% reported having verbally aggressive partners. Participants who reported experiencing sexual coercion in their relationship were significantly less likely to consistently use condoms. Additionally, alcohol use before or during episodes of verbal aggression was negatively associated with condom use. Alcohol use was also significantly associated with heightened incidents of coercion and aggression. CONCLUSIONS: Results indicate that among college students, the presence of sexual coercion adversely affects condom use, as does alcohol use.


Subject(s)
Aggression/psychology , Coercion , Condoms/statistics & numerical data , Sexual Behavior/psychology , Students/psychology , Universities/statistics & numerical data , Adolescent , Alcohol Drinking/epidemiology , Female , Health Knowledge, Attitudes, Practice , Humans , Male , Multivariate Analysis , Pennsylvania , Psychometrics , Risk Factors , Risk-Taking , Sex Factors , Sexual Behavior/statistics & numerical data , Spouse Abuse/psychology , Spouse Abuse/statistics & numerical data , Spouses , Students/statistics & numerical data , Verbal Behavior , Young Adult
19.
Psychol Health Med ; 15(5): 515-27, 2010 Oct.
Article in English | MEDLINE | ID: mdl-20835962

ABSTRACT

Recently, national attention has been drawn to the increasing number of adolescents infected with HIV in the US, particularly in the South. According to the Center for Disease Control and Prevention (2007), at least 50% of new HIV infections occur in persons 15-25 years of age, and the majority of these persons are likely infected in their teens. Adolescents with HIV present new challenges to health and social-service providers. Infected teens are typically identified and initially followed by pediatricians and pediatric staff upon diagnosis. The transition to adult infectious disease care can be difficult due to the increased responsibility for self-care and monitoring placed on the young adult. Interviews were conducted with 19 professionals who provide care for children and adults with HIV in North Carolina in order to identify the best practices for transition to adult care. Approximately half of the providers self-identified as pediatric care providers. Nine of those interviewed were nurses and physicians and 10 were social workers. Interviews were transcribed and emergent themes were identified. Findings indicate that promoting medical independence among adolescents, close communication between pediatric and adult providers, and addressing system level concerns, including helping patients' families navigate health insurance and other social services, as well as having a separate clinic for adolescents with HIV, constitute best practices for transitioning youth with HIV from pediatric to adult care.


Subject(s)
Continuity of Patient Care/organization & administration , Evidence-Based Practice , HIV Seropositivity , Health Personnel , Infectious Disease Medicine , Adult , Female , Humans , Interviews as Topic , Male , North Carolina , Primary Health Care , Young Adult
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