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1.
Advers Resil Sci ; : 1-13, 2023 Mar 15.
Article in English | MEDLINE | ID: mdl-37361563

ABSTRACT

Adverse childhood experiences are associated with deleterious outcomes across the lifespan. However, some individuals who grow up in adverse environments may develop stress-adapted skills or resilience factors that enable them to function in their current lived environments. This study explored whether communication is a stress-adapted skill among young adults with co-occurring forms of childhood adversity and the extent to which these communication skills are implicated in toxic social networks. This cross-sectional study included 384 young adults, ages 18-35 years, who completed an online survey. Mixture modeling was used to conduct latent class models estimating subgroups of young adults with co-occurring forms of early adversity; then, regression models estimated the association between communication skills and toxic social networks among subgroups. Four latent classes were identified: (1) high childhood adversity; (2) high to moderate household dysfunction and emotional abuse; (3) high emotional abuse and moderate physical abuse and emotional neglect; and (4) low or no childhood adversity. Results from regression models indicate that participants classified in the high emotional abuse and moderate physical abuse and emotional neglect class had more adaptive communication skills with friends than their counterparts in the low or no childhood adversity class, and participants in the high childhood adversity or low or no childhood adversity classes with higher communication skills were less likely to report toxic social networks. Findings suggest that stress-adapted communication skills may be one resilience factor that supports adaptation among young adults with early adversity exposures.

2.
Front Psychol ; 14: 1149711, 2023.
Article in English | MEDLINE | ID: mdl-37228339

ABSTRACT

Participation in psychosocial enrichment activities, such as music and arts programming, have shown potential to delay or reduce functional decline - without adverse effects that can be associated with pharmaceuticals. The performing-arts programming described in this community case study was inspired by a community music program called B-Sharp Music Wellness, located in Phoenix, Arizona, which involved small groups of musicians who provided symphony performances for people with dementia. Our community programming sought to engage people with dementia and their informal care partner (typically a spouse) in existing performing-arts programs in their local community, providing social hours and season tickets for either symphony, dance (ballet), or non-musical theater performances. This case study describes the program history and design, including outcomes and lessons learned from the program evaluation of the last full season (2018-19) and partial season (2019-20), when the program was halted due to the COVID-19 pandemic. Program outcomes suggest strategies for, and benefits of, design for performing-arts programs as psychosocial interventions in other communities.

3.
Aging Ment Health ; 26(10): 1971-1978, 2022 10.
Article in English | MEDLINE | ID: mdl-35138225

ABSTRACT

Objective: The degenerative nature of Alzheimer's disease and related dementias (ADRD) means that people diagnosed with ADRD often rely on friends and family to provide care as their cognitive and physical abilities decline. Caring for a person with dementia is complicated, in part because ADRD changes a person's ability to communicate and create memories. Practitioners have increasingly identified communication-centered interventions as one way to address care partner needs while also improving well-being for the person with dementia. In this study, we evaluated one program, the SPECAL® method.Method: Using mixed-methods research, we assessed the effectiveness of a seven-week SPECAL course at facilitating positive outcomes for informal care partners. Participants completed pre- and post-program surveys (n = 17) as well as post-program interviews (n = 20).Results: Results showed several positive changes from pre- to post-program. Participants also reported several key themes in their experiences and implementation of SPECAL, including many beneficial and some challenging outcomes.Conclusion: Results from this study underscore the importance of communication as an intervention target for dementia care partners, identifying opportunities and challenges in working to help care partners communicate with people with ADRD in ways that sustain their relationship and foster mutual well-being.


Subject(s)
Alzheimer Disease , Caregivers , Alzheimer Disease/psychology , Caregivers/psychology , Friends , Humans , Patient Care , Surveys and Questionnaires
4.
Front Psychol ; 12: 541656, 2021.
Article in English | MEDLINE | ID: mdl-34925115

ABSTRACT

This co-design study examined salutogenic potential of mobile virtual reality (VR) experiences as an alternative to participation in a community-based symphonic engagement program (B Sharp), previously found to benefit people with dementia (PWD) and their informal caregivers. Six focus groups were conducted with sixteen adults aged 76-90; three participants had dementia, and two were informal spousal caregivers. No participants had prior VR experience. The study assessed the feasibility of replicating the community-based-arts program in VR, with the goal of enhancing its salutogenic qualities (e.g., positive distraction, engagement, and social connection). Video-recordings of participants while using a mobile head-mounted display (HMD) were analyzed using qualitative thematic analysis to compare perceptions of different virtual experiences, including replication or enhancement of B Sharp and a campus tour. Findings suggest participants had positive perceptions of enhanced VR experiences with no adverse effects, although PWD were less enthusiastic and HMD usability was complicated by eyewear use and comfort with technology. Participants reacted most favorably to the enhanced symphonic experience, where they were "virtually" onstage during the performance, suggesting unique experiences beyond what is possible in the real world have the greatest potential for deep immersion for older adults. Results suggest VR has strong potential to replicate and enhance salutogenic qualities of community-based programming by enabling greater access to experiences for older adults and by increasing enjoyment and engagement through experiences not otherwise feasible. Furthermore, this study illuminates advantages of a user-centered, co-design approach when developing VR experiences with community partners and older adults.

5.
Article in English | MEDLINE | ID: mdl-33946957

ABSTRACT

(1) Introduction: Caring for an adult with dementia is both challenging and rewarding. Research indicates that community-based, social support, and/or arts engagement interventions can play a key role in ameliorating the negative outcomes associated with caregiving while enhancing its more positive attributes. This study explores the psychosocial outcomes experienced by dementia caregivers who participated in a multi-year, multidimensional intervention aimed at promoting caregiver and care recipient well-being. This intervention included bringing caregivers and people with Alzheimer's disease or related dementias (ADRD) to local symphony performances, hosting a social reception prior to the performance, and assessing the outcomes of participation for both caregiver and the care recipient. (2) Materials, Methods, and Analysis: Qualitative data from participant phone interviews (n = 55) as well as focus groups are analyzed using thematic analysis from a phenomenological perspective. (3) Results: Across three years of participation, caregivers reported three main program benefits: relationship building (both with other participants as well as within the broader community); restored humanity (experiencing a greater sense of personal dignity and momentary return to normalcy), and positivity (experiencing positive emotions during the program). (4) Discussion: These findings point to the value of creating caregiver programming that brings together multiple dimensions of successful interventions in order to enhance caregiver experiences and positive intervention outcomes.


Subject(s)
Alzheimer Disease , Dementia , Adult , Caregivers , Humanities , Humans , Quality of Life
6.
Support Care Cancer ; 26(4): 1281-1288, 2018 Apr.
Article in English | MEDLINE | ID: mdl-29103150

ABSTRACT

Cancer caregivers often experience significant challenges in their motivation and ability to comfort cancer survivors, particularly in a spousal or romantic context. Spousal cancer caregivers have been known to report even greater levels of burden and distress than cancer sufferers, yet still take on the role of acting as an informal caregiver so they can attend to their partner's needs. The current study tested whether a theoretical model of supportive outcomes-the dual-process model of supportive communication-explained variations in cancer caregivers' motivation and ability to create high-quality support messages. The study also tested whether participant engagement with reflective journaling on supportive acts was associated with increased motivation or ability to generate high-quality support messages. Based upon the dual-process model, we posited that, following supportive journaling tasks, caregivers of spouses currently managing a cancer experience would report greater motivation but also greater difficulty in generating high-quality support messages, while individuals caring for a patient in remission would report lower motivation but greater ability to create high-quality support messages. Findings provided support for these assertions and suggested that reflective journaling tasks might be a useful tool for improving remission caregivers' ability to provide high-quality social support to survivors. Corresponding theoretical and applied implications are discussed.


Subject(s)
Cancer Survivors/psychology , Caregivers/psychology , Neoplasms/psychology , Social Support , Adult , Aged , Communication , Female , Humans , Male , Middle Aged , Neoplasms/therapy , Personality Inventory , Spouses/psychology
7.
J Health Commun ; 22(5): 395-402, 2017 05.
Article in English | MEDLINE | ID: mdl-28339324

ABSTRACT

Despite the growing popularity of mHealth applications, their usage outcomes have received limited empirical attention. Drawing on server-level user activity data and an online survey (N = 384), this study examines the use of an mHealth application for weight loss to elucidate the ways in which it can help individuals harness the power of self-efficacy and group support to enact behavior change and accomplish their health goals. The results of structural equation modeling based on 6-month user activity data demonstrated that (a) self-efficacy had a positive impact on persistent food logging in an mHealth application; (b) social support received from a mobile group was positively associated with food logging and group participation; and (c) both food logging and group participation predicted weight loss success. Extending these findings, this study suggests theoretical and practical implications for designing individually tailored and evidence-based health intervention strategies using advanced mHealth technologies.


Subject(s)
Obesity/prevention & control , Self Efficacy , Self-Help Groups , Telemedicine , Weight Reduction Programs , Adult , Female , Humans , Male , Obesity/psychology , Program Evaluation , Social Support , Surveys and Questionnaires , Weight Loss
8.
Health Commun ; 31(6): 688-94, 2016.
Article in English | MEDLINE | ID: mdl-26507896

ABSTRACT

The Relational Turbulence Model (RTM) is a theoretical tool designed to understand how romantic partners navigate tumultuous events. In this article, we explore two RTM constructs, relational uncertainty and partner interference, in the context of romantic partners' human papillomavirus (HPV) diagnosis outcomes. We examine whether self-reported relational uncertainty and partner interference were differentially associated with a negative self-HPV diagnosis, a positive self-diagnosis, or a partner's positive diagnosis. Findings suggest that diagnosis type predicts relational uncertainty and partner interference in different ways. We also argue that partners' reported expression of affect after experiencing a relationally-relevant transition may manifest in both positive and negative ways. Our results support the contention that partners may express both positive and negative affect toward one another, particularly based on the type of HPV diagnosis outcome they receive.


Subject(s)
Interpersonal Relations , Papillomavirus Infections/diagnosis , Papillomavirus Infections/psychology , Sexual Partners/psychology , Uncertainty , Adolescent , Adult , Alphapapillomavirus , Communication , Female , Humans , Male , Spouses , Truth Disclosure , Young Adult
9.
Qual Health Res ; 24(2): 267-78, 2014 Feb.
Article in English | MEDLINE | ID: mdl-24482423

ABSTRACT

Obesity and being overweight often result in serious health problems. Despite growing awareness of the dangers associated with being overweight, many individuals struggle to lose weight. Investigators have identified social support as a key element in weight-loss attempts. Unfortunately, little has been done to investigate how people solicit social support from members of their pre-existing social network without a structured intervention. To address this limitation, I conducted in-depth interviews with 25 participants. Through grounded theory analysis of these interviews, I developed a typology of support management strategies used by overweight young adults when attempting to lose weight. I outline these strategies, their perceived success, and implications for future research in this article.


Subject(s)
Obesity/psychology , Overweight/psychology , Social Support , Weight Loss , Female , Health Behavior , Humans , Interviews as Topic , Male , Young Adult
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