Subject(s)
Refugees , Transients and Migrants , Child , Humans , Mental Health , Refugees/psychology , Insurance Pools , Health InequitiesABSTRACT
A concerning trend has emerged in the diagnosis and treatment of autism spectrum disorder (ASD) that has a negative impact on care. Quite often, a clinician's diagnosis of ASD using DSM-5 criteria is no longer sufficient for individuals with ASD to access services. Insurance companies, school districts, and developmental disability agencies commonly require an Autism Diagnostic Observation Schedule (ADOS) to be eligible for services.
Subject(s)
Autism Spectrum Disorder/diagnosis , Autism Spectrum Disorder/therapy , Adult , Autism Spectrum Disorder/classification , Autism Spectrum Disorder/psychology , Child , Diagnosis, Differential , Diagnostic and Statistical Manual of Mental Disorders , Humans , Psychometrics/instrumentationABSTRACT
Although data from parent-implemented Naturalistic Developmental Behavioral Interventions have shown positive effects on decreasing core symptoms of autism, there has been limited examination of the effectiveness of Naturalistic Developmental Behavioral Interventions in community settings. In addition, parent perspectives of their involvement in parent-implemented early intervention programs have not been well studied. Using both qualitative and quantitative data to examine parent perspectives and the perceived feasibility of parent training by community providers, 13 families were followed as they received training in the Naturalistic Developmental Behavioral Intervention, Project ImPACT. Data indicate that parent training by community providers is feasible and well received, and parents find value in participating in intervention and perceive benefit for their children. Recommendations for adaptation of program elements and future research are discussed.
Subject(s)
Autistic Disorder/therapy , Parents/psychology , Adult , Attitude to Health , Behavior Therapy/methods , Evidence-Based Practice/methods , Female , Humans , Infant , MaleABSTRACT
This article describes the formation and initial outcomes of a research-community collaborative group that was developed based on community-based participatory research principles. The group includes a transdisciplinary team of practitioners, funding agency representatives, researchers, and families of children with autism spectrum disorders, who partnered to improve community-based care for infants and toddlers at risk for autism through the implementation of evidence-based practices. Data from this group provide support for the feasibility of developing and sustaining a highly synergistic and productive research-community collaborative group who shares common goals to improve community care.
