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1.
Int J Qual Stud Health Well-being ; 14(1): 1632111, 2019 Dec.
Article in English | MEDLINE | ID: mdl-31232674

ABSTRACT

Purpose: Vitamin D deficiency is a complex topic in human health and ill-health and has been studied in a variety of contexts and populations. Few studies examine Vitamin D deficiency among non-western immigrant women and even fewer examine women's perspective on daily life while living with low vitamin D levels after childbirth and undergoing vitamin D treatment. The aim was, therefore, to explore health and ill-health among non-western immigrant women living with low vitamin D levels after childbirth and reaching normalized levels after one year of vitamin D treatment. Method: An explorative qualitative study using qualitative content analysis. Six women aged 25 to 38 years, diagnosed with low 25-hydroxyvitamin D levels during pregnancy, were recruited after having undergone vitamin D treatment. Results: The women told about living a restrained life which gradually transformed into an experience of recaptured vitality. They also experienced a need for continuity in medication, as an interruption of treatment meant returning symptoms. Conclusion: In this study, non-western immigrant women described benefits in everyday life, increased strength, relieved pain and improved sleep quality. The findings can provide valuable knowledge for healthcare providers meeting women with physical weakness, musculoskeletal pain and/or poor sleep quality after childbirth. Further studies using a longitudinal design and larger samples are warranted.


Subject(s)
Delivery, Obstetric/rehabilitation , Emigrants and Immigrants , Vitamin D/analogs & derivatives , Women's Health , Adult , Africa/ethnology , Europe, Eastern/ethnology , Female , Humans , Interviews as Topic , Middle East/ethnology , Qualitative Research , South America/ethnology , Sweden , Vitamin D/administration & dosage
4.
Med Health Care Philos ; 15(3): 295-308, 2012 Aug.
Article in English | MEDLINE | ID: mdl-21484330

ABSTRACT

Modern health care is inextricably bound up with technologically mediated knowledge and practice. It is vital to investigate its use and role in different clinical contexts characterized, on one hand, by face to face practitioner and patient encounters (where technology may be conceptualised as hindering therapeutic relations) and, on the other hand, by practitioners' encounter with bodily parts in laboratories (where conceiving of patients may be thought of as confounding objectivity). To contribute to the latter, I offer an ethnographic analysis of cytology laboratory practitioners' work and microscopic assessment of normal and abnormal cells. First, I discuss the biomedical literature on cytology and the quest for a non-variational bodiless vision. Second, I discuss the concept of multistability, first developed by philosopher of technology Don Ihde, here used to analyse technologically mediated perception and how practitioners interact with technology. Combined with long term ethnographic fieldwork it enables access to, and analysis and articulation of the implicit multifaceted practitioner-technology-cell interface embedded in clinical practice and diagnostic processes. I will also address some implications of my analysis for clinical cytology.


Subject(s)
Biomedical Technology/ethics , Cytological Techniques/ethics , Health Personnel/ethics , Humans , Laboratories , Narration
5.
Integr Cancer Ther ; 8(2): 153-63, 2009 Jun.
Article in English | MEDLINE | ID: mdl-19679624

ABSTRACT

BACKGROUND: Although links between exceptional cancer trajectories (ECTs) and complementary and alternative medicines (CAMs) have been suggested, most research on ECT uses predefined criteria for ECTs without necessarily including CAM use. Little knowledge can be found about subjective perspectives of ECTs in relation to CAM. OBJECTIVES: This Swedish study explores how patients, significant others, and CAM and biomedical health care (BHC) providers reason about ECT, including the role of CAM. METHODS: Using a case study approach, open interviews were conducted with multiple stakeholders about cancer trajectories reported as exceptional. RESULTS: In-depth analysis of 5 cases indicated that although all stakeholders agreed that the reported cases were positive, in no case was the same trajectory considered exceptional by all stakeholders. Different stakeholders shared neither conceptualizations of what constituted an ECT nor attributions for positive trajectories. Patients, significant others, and CAM providers emphasized unexpectedly long survival and well-being in ECTs, whereas BHC providers only referred to survival. CAM and BHC providers normalized reported trajectories, although the forms for this differed between provider groups. CONCLUDING DISCUSSION: Stakeholders' accounts are discussed relative to different health care domains, legitimization processes, and legal constraints, which have led to the lack of a public sphere for CAM use in cancer.


Subject(s)
Complementary Therapies , Neoplasms/therapy , Outcome Assessment, Health Care , Complementary Therapies/economics , Complementary Therapies/legislation & jurisprudence , Complementary Therapies/psychology , Decision Making , Disease-Free Survival , Female , Health Knowledge, Attitudes, Practice , Health Personnel/psychology , Humans , Interviews as Topic , Male , Middle Aged , Neoplasms/mortality , Neoplasms/psychology , Patient Acceptance of Health Care/psychology , Patient Participation , Patient Satisfaction , Physician-Patient Relations , Quality of Life/psychology , Sweden , Treatment Outcome
6.
Soc Sci Med ; 68(3): 479-86, 2009 Feb.
Article in English | MEDLINE | ID: mdl-19081661

ABSTRACT

While there is a large body of research on cervical cancer screening, fewer studies address the experiences of women receiving abnormal Pap smear results after routine screening. Those studies highlighting such experiences tend to concentrate on resulting psychosocial distress, with an absence in the literature about women's experiences of their bodies during medical follow-up for dysplasia, and no studies were found that explore such experiences over time. In this article, we focus on bodily experiences over time during medical follow-up of an abnormal Pap smear among a group of women in Sweden. This qualitative analysis is based on interview data from a total of 30 women, and with in-depth analysis of the content of 34 transcribed interviews with nine women who were followed longitudinally. We found that medical follow-up involved an experience of both "having" and "being" a body, which changed over time. Women described a process that ranged from having a cervix that was neither felt, 'heard', nor seen, to having a body that became known to them first indirectly through professional mediation and later through direct experience after professional manipulation. The conceptualization of bodily boundaries appeared to change, e.g. through visualization of the previously unfamiliar cervix, pain, vaginal discharge, and bleeding, as well as linkages to the bodies of women in their extended families through the generations. Thus, bodily experiences appear to be an intrinsic part of medical follow-up of an abnormal Pap smear through which health, disease, and risks in the past, present, and future were reconceptualised.


Subject(s)
Body Image , Papanicolaou Test , Self Concept , Sickness Impact Profile , Stress, Psychological/etiology , Uterine Cervical Neoplasms/psychology , Uterine Cervical Neoplasms/therapy , Vaginal Smears/psychology , Adult , Biopsy/adverse effects , Biopsy/psychology , Cryosurgery/adverse effects , Cryosurgery/psychology , Female , Gynecology , Health Knowledge, Attitudes, Practice , Humans , Interviews as Topic , Longitudinal Studies , Medical Oncology , Middle Aged , Professional-Patient Relations , Qualitative Research , Sweden , Uterine Cervical Neoplasms/diagnosis , Young Adult
7.
BMC Complement Altern Med ; 8: 48, 2008 Aug 08.
Article in English | MEDLINE | ID: mdl-18691393

ABSTRACT

BACKGROUND: While the use of complementary and alternative medicine (CAM) among cancer patients is common and widespread, levels of commitment to CAM vary. "Committed" CAM use is important to investigate, as it may be associated with elevated risks and benefits, and may affect use of biomedically-oriented health care (BHC). Multiple methodological approaches were used to explore and map patterns of CAM use among individuals postulated to be committed users, voluntarily reporting exceptional experiences associated with CAM use after cancer diagnosis. METHOD: The verbatim transcripts of thirty-eight unstructured interviews were analyzed in two steps. First, manifest content analysis was used to elucidate and map participants' use of CAM, based on the National Center for Complementary Medicine (NCCAM)'s classification system. Second, patterns of CAM use were explored statistically using principal component analysis. FINDINGS: The 38 participants reported using a total of 274 specific CAM (median = 4) consisting of 148 different therapeutic modalities. Most reported therapies could be categorized using the NCCAM taxonomy (n = 224). However, a significant number of CAM therapies were not consistent with this categorization (n = 50); consequently, we introduced two additional categories: Spiritual/health literature and Treatment centers. The two factors explaining the largest proportion of variation in CAM usage patterns were a) number of CAM modalities used and b) a category preference for Energy therapies over the categories Alternative Medical Systems and Treatment centers or vice versa. DISCUSSION: We found considerable heterogeneity in patterns of CAM use. By analyzing users' own descriptions of CAM in relation to the most commonly used predefined professional taxonomy, this study highlights discrepancies between user and professional conceptualizations of CAM not previously addressed. Beyond variations in users' reports of CAM, our findings indicate some patterns in CAM usage related to number of therapies used and preference for different CAM categories.


Subject(s)
Complementary Therapies/statistics & numerical data , Neoplasms/therapy , Patient Satisfaction/statistics & numerical data , Self Care/statistics & numerical data , Adult , Choice Behavior , Complementary Therapies/classification , Cross-Sectional Studies , Female , Health Behavior , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Neoplasms/psychology , Patient Acceptance of Health Care/statistics & numerical data , Surveys and Questionnaires , Sweden/epidemiology , Treatment Outcome
8.
Sociol Health Illn ; 26(3): 306-25, 2004 Apr.
Article in English | MEDLINE | ID: mdl-15043601

ABSTRACT

Cervical cancer screening is a preventive intervention directed towards women to both detect cervical cancer and identify those at risk for developing this disease. It has been argued that participation in screening programmes and early detection situations may lead to new kinds of sickness experiences. This article is based on qualitative phenomenological hermeneutical analysis of interviews with women who have received abnormal Pap smear test results through a population-based outreach screening programme in urban Sweden. The aim of this article is to illuminate the meaning, for the participating women, of the lived experience of receiving notification about an abnormal Pap smear result. The data are presented in terms of two themes: Pap smear for routine and recurrent confirmation of health and unexpected and ambiguous communication about Pap smear results. The findings are discussed as an unintentional transition from confirmation of health to liminality. Whereas medical diagnosis has been discussed as structuring the inchoate, an abnormal Pap smear did not create order for the interviewed women. On the contrary, the notification of an abnormal Pap smear created disorder as the women had expected to be confirmed as healthy but instead neither health nor disease were confirmed or excluded. Even 'simple' technology is shown to have an ontological dimension, with the ability to transform daily taken-for-grantedness of ourselves as primarily healthy to (potentially) unhealthy.


Subject(s)
Cervix Uteri/pathology , Mass Screening/psychology , Uterine Cervical Neoplasms/diagnosis , Female , Humans , Papanicolaou Test , Preventive Medicine , Sweden , Uterine Cervical Neoplasms/pathology , Uterine Cervical Neoplasms/psychology , Vaginal Smears
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