ABSTRACT
Christine Baveux is a classics teacher. After having worked in various schools, she joined the team of the Maison de Solenn - Maison des adolescents of the Cochin Hospital as a schooling manager in 2005. Her career, rich in experience, has enabled her to appreciate the suffering that some adolescents may experience at school, a suffering often expressed on the physical level.
Subject(s)
Anxiety , Schools , Adolescent , Child , Female , HumansSubject(s)
Anemia/etiology , Anorexia Nervosa/complications , Colitis, Ischemic/etiology , Adolescent , Female , HumansABSTRACT
OBJECTIVE: Beliefs about the causes of SLE have rarely been investigated. The purpose of this study was to explore these beliefs. METHODS: Face-to-face interviews were carried out with a total of 33 women with SLE, fulfilling the ACR criteria, with a median age of 40 (range 15-65) years. Data were analysed using interpretative phenomenological analysis. RESULTS: Women attributed SLE to many causes, some of them being not congruent with biomedical models. The most frequent beliefs about the causes of SLE related to autoimmunity, psychological and familial causes, heredity, magico-religious causes (especially in first- and second-generation migrants) and infectious causes. Autoimmunity was often seen as a self-destructive process. CONCLUSIONS: Being diagnosed with SLE prompted 'Why me?' and 'Why now?' questioning among these women, who attempted to reconstruct coherence in their life histories. For clinicians, analysis of the beliefs about the causes clarifies what is at stake for the patient. The objective is to allow patients to produce narrative to describe their chronic illness experience in order to facilitate a long-term treatment alliance. Further studies are required to understand relationships between beliefs about causes, psychological distress and SLE morbidity.
Subject(s)
Health Knowledge, Attitudes, Practice , Lupus Erythematosus, Systemic/etiology , Lupus Erythematosus, Systemic/psychology , Adolescent , Adult , Aged , Autoimmune Diseases/psychology , Autoimmunity , Female , Genetic Predisposition to Disease , Guilt , Humans , Interviews as Topic , Lupus Erythematosus, Systemic/genetics , Middle Aged , Psychometrics , Punishment , Religion and Medicine , Stress, Psychological/complications , Transients and Migrants/psychology , Young AdultSubject(s)
Cultural Competency/organization & administration , Cultural Diversity , Islam/psychology , Mental Disorders , Adult , Emigrants and Immigrants/psychology , Female , Hospitals, Public , Hospitals, University , Humans , Mental Disorders/diagnosis , Mental Disorders/ethnology , Mental Disorders/therapy , Paris , Psychiatric Nursing/organization & administration , SecularismSubject(s)
Pediatric Nursing , Adult , Child , Cross-Cultural Comparison , Family , Female , Humans , Male , Marriage , Mother-Child Relations , ViolenceABSTRACT
Systemic lupus erythematosus (SLE), a chronic and unpredictable disease accompanied by functional disability and a possible involvement of the central nervous system, leads to considerable psychological distress. A review of studies on stress and/or coping strategies in SLE since 1990 is presented. Many studies have investigated the place of major and minor stress and coping strategies in SLE morbidity (disease activity, organ damage, and physical and mental components of quality of life). Stress as a causal factor is not proved, but it seems to act as an exacerbating factor in disease activity and to have an impact on the quality of life. Coping strategies are more consistently associated with quality of life than with disease activity. Organ damage appears to be less associated with psychosocial factors than disease activity or quality of life. Despite the limitations of these studies, therapeutic interventions should be proposed to reduce psychological distress, to improve the quality of life and possibly to moderate the evolution of the disease.
Subject(s)
Adaptation, Psychological , Lupus Erythematosus, Systemic/psychology , Stress, Psychological , Humans , Quality of LifeABSTRACT
UNDENIABLE PSYCHOLOGICAL IMPACT: Systemic lupus erythematosus (SLE), a chronic and unpredictable disease with functional disability and with a possible involvement of the central nervous system, leads to severe psychological distress. THE ROLE OF STRESS AND COPING: Many studies have investigated the place of major and minor stress and coping strategies in SLE morbidity (activity, organ damage, and physical and mental component of quality of life). Stress as a provoking factor is not proved, but stress seems to act as an exacerbating factor in the activity and to have an impact on quality of life. Coping strategies are more consistently associated with quality of life than activity. Organ damage appears to be less associated with psychosocial factors than activity or quality of life. THE NEED FOR ACTION: Despite the limitations of these studies, therapeutic interventions have to be proposed to reduce psychological distress, to improve quality of life, and maybe to moderate the progression of the disease.
