Supporting Children and Families in Medical Settings: Insights from Child Life Specialists During the COVID-19 Pandemic.

Medical settings can be frightening and stressful places for pediatric patients and their families. During the COVID-19 pandemic fear and anxiety associated with receiving medical care increased as medical facilities dramatically altered the way they functioned in attempts to stop the spread of the virus. Certified Child Life Specialists (CCLSs) are medical professionals who provide psychosocial support for pediatric patients and their families by helping them understand and cope with medical procedures and the medical environment. In this role, CCLSs are likely to have important insights into the experiences and needs of pediatric patients and their families during COVID-19. Using a mixed-methods design, 101 CCLSs completed an online survey and 15 participated in follow-up interviews examining their experiences with and observations of children and families in medical environments during the pandemic. Participants emphasized a need to maintain a focus on child- and family-centered care for the well-being of patients and their families. While recognizing the need to socially distance to limit the spread of COVID, participants expressed concern about restrictive policies that did not balance the physical and mental health needs of patients and families. Participants also discussed the important role of child life services during the pandemic and the unique and multifaceted contributions CCLSs made to support patients, families, other medical professionals, and communities. Recommendations for supporting children and families in medical environments moving forward are discussed in light of lessons learned during the pandemic.

Pediatric Practitioners' Screening for Adverse Childhood Experiences: Current Practices and Future Directions.

This pilot study surveyed pediatric medical practitioners on their screening of Adverse Childhood Experiences (ACEs). The study focused on perspectives related to engagement in screening and barriers to screening. Practitioners were pediatric and family physicians and physician assistants (N = 48). Results suggest that although practitioners believed it was their role to screen, less than half did so. They were more likely to screen if they were familiar with the research on ACEs, or had received training on ACEs screening. Perceived barriers included lack of professional education on the topic, not enough time to screen, and lack of appropriate screening tools. Other issues such as which ACEs were most likely to be screened for and follow-up practices after positive screening also were explored. Further work is needed to understand screening and treatment practices, and policy changes should be explored in an attempt to increase practitioner involvement in ACEs screening.

Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists.

This study aimed to gain an understanding of Certified Child Life Specialists' (CCLS) experiences with and suggestions for working with children with autism spectrum disorder (ASD) in a medical setting. Using a mixed-method design, 118 CCLS completed an online survey and 16 participated in follow-up interviews. Participants believed many medical professionals, including CCLS, are not adequately prepared to work with children with ASD, negatively impacting quality of care. Participants emphasized that outcomes are best for children with ASD when parents and medical staff collaborate to meet the unique needs of each child. CCLS reported working with children with ASD can provide insights for enhancing the quality of care for all children. Participants' suggestions for training and resource development are discussed.

Insights and Recommendations From Parents Receiving a Diagnosis of Pediatric Multiple Sclerosis for Their Child.

Forty-two parents of 41 children reported on their experiences receiving a diagnosis of pediatric-onset multiple sclerosis for their child through semistructured phone interviews. Time to diagnosis ranged from 8 hours to 16 years, with the mean age at diagnosis of 13.7 years. The most common initial symptoms included visual disturbances and numbness. The mean number of medical visits to receive a diagnosis was 3.6. Parents reported feeling frustrated and overwhelmed during the diagnosis process, as well as shocked when told their child had multiple sclerosis. Parents emphasized the need for more awareness of pediatric-onset multiple sclerosis. Numerous parents reported encountering physicians who believed multiple sclerosis did not occur in childhood, contributing to a longer time to diagnosis. Parents preferred physicians first share the diagnosis with the parents without the child present. Finally, parents appreciated when physicians provided a variety of resources to help them cope with the diagnosis.

Gaining Support for Child and Family Policies by Raising Awareness of the Link between Physical and Mental Health and the Impact of Social Determinants on Both.

Results of a pilot study examining young adults' beliefs about what factors contribute to physical and mental health are reported. Existing research and the results of the pilot study are used to argue for the need for improved education on the connection between physical and mental health, the impact of social determinants on physical and mental health, and the potential for social policies that better the lives of children and families to improve health outcomes. Benefits of and suggestions for increasing understanding of social determinants and social policies on physical and mental health are explored.