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1.
Oncologist ; 5(4): 336-44, 2000.
Article in English | MEDLINE | ID: mdl-10965002

ABSTRACT

Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH), founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a nonprofit organization dedicated to supporting and advancing compassionate health care delivery, which provides hope to the patient, support to caregivers, and encourages the healing process. The center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members. Psychosocial issues profoundly affect patients with cancer. Of the many complexities that make up the psychosocial dynamic, perhaps the medical profession is most uncomfortable with sexuality. Many elements of sexual behavior remain high-profile taboos. A number of diseases and treatments significantly affect sexual function. Male and female sexuality were discussed in two separate rounds with an emphasis on how to begin a dialogue about sexuality without jeopardizing other aspects of the relationship with patients. Three cases were presented. A patient with prostate cancer considering treatment options for early-stage disease and two patients with gynecologic malignancies; one with a colostomy following cytoreductive surgery for ovarian cancer and the other with a failed vaginal reconstruction for recurrent squamous cell carcinoma of the vagina. Staff discussed the wide diversity of response to sexual dysfunction and the difficulties that patients face. A sensitive and informed approach to discussing sexuality can provide effective support. The elements of successful dialogue are presented in the PLISSIT model.


Subject(s)
Neoplasms/psychology , Physician-Patient Relations , Sexual Dysfunction, Physiological/etiology , Sexuality , Adult , Communication , Female , Humans , Interprofessional Relations , Male , Neoplasms/complications , Neoplasms/therapy , Quality of Life
2.
Oncologist ; 4(5): 417-24, 1999.
Article in English | MEDLINE | ID: mdl-10551558

ABSTRACT

Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH), founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a non-profit organization dedicated to supporting and advancing compassionate health care delivery, which provides hope to the patient, support to caregivers, and encourages the healing process. The center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members. The following case of an HIV-positive woman who was diagnosed with cervical cancer during a twin pregnancy was discussed at the May, 1999 Schwartz Center Rounds. The patient was in drug rehabilitation having been dependent on crack cocaine, with a past history of syphilis and gonorrhea. She was single and her other children were in foster care. Initially she was suspicious and non-compliant. A plan was negotiated to biopsy the cervical lesion after cesarean section and with confirmation of malignancy she underwent radical surgery and subsequently radiotherapy. Despite the almost insurmountable social and educational distance between her and her caregivers, they managed to bond and facilitate care. Although there were compromises with which staff were uncomfortable, the relationship was maintained and continues.


Subject(s)
Carcinoma, Squamous Cell/complications , Cocaine-Related Disorders/complications , HIV Infections/complications , Patient Acceptance of Health Care , Pregnancy Complications/therapy , Uterine Cervical Neoplasms/complications , Adult , Carcinoma, Squamous Cell/psychology , Carcinoma, Squamous Cell/therapy , Cesarean Section , Cocaine-Related Disorders/rehabilitation , Crack Cocaine , Female , HIV Infections/drug therapy , Humans , Infant, Newborn , Male , Pregnancy , Pregnancy Complications/psychology , Pregnancy Complications, Infectious/drug therapy , Pregnancy Complications, Neoplastic , Pregnancy, Multiple , Psychological Distance , Treatment Refusal , Twins , Uterine Cervical Neoplasms/therapy
3.
Cancer Pract ; 6(6): 333-8, 1998.
Article in English | MEDLINE | ID: mdl-9824424

ABSTRACT

PURPOSE: The inclusion of spiritual well-being in healthcare assessments can provide insight into patients' needs and coping resources. This study explored the relationship between spiritual well-being and quality of life (QOL) in gynecologic oncology patients in an attempt to clarify the significance of spiritual well-being in the assessment process. DESCRIPTION OF STUDY: Eighteen women with gynecologic cancer completed a self-administered questionnaire that obtained sociodemographic, medical, spiritual, and functional information. The Spiritual Well-being Scale was used to assess spiritual well-being, and the Functional Living Index: Cancer (FLIC) measured QOL. Data were analyzed using descriptive statistics, comparison of means, and analysis of variance. RESULTS: Patients with gynecologic cancers other than ovarian reported a better QOL and a higher degree of spiritual, existential, and religious well-being. Older patients consistently reported higher degrees of spiritual well-being and QOL than did younger patients. Married patients consistently reported higher degrees of spiritual well-being than patients who were not married (never married or separated). Catholic patients scored higher in degrees of religious and spiritual well-being as well as in FLIC scores than other patients. CLINICAL IMPLICATIONS: Health professionals do not generally assess spiritual well-being in their evaluations of patients' needs. The findings from this study support the inclusion of spirituality as part of routine patient assessment and intervention. Clinical intervention that would increase a patient's level of spiritual awareness and his or her level of comfort associated with a personal perspective on death could help decrease the patient's level of psychosocial distress. Despite the medical establishment's bias to the contrary, religion and spirituality are positively associated with both physical and mental health and may be particularly significant to terminally ill patients. The curricula of medical, nursing, and other health schools should be redesigned appropriately.


Subject(s)
Genital Neoplasms, Female/psychology , Pastoral Care , Quality of Life , Religion and Psychology , Activities of Daily Living , Adaptation, Psychological , Adult , Aged , Analysis of Variance , Female , Genital Neoplasms, Female/nursing , Humans , Middle Aged , Needs Assessment , Nursing Methodology Research , Oncology Nursing , Surveys and Questionnaires
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