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1.
J Palliat Med ; 26(4): 517-526, 2023 04.
Article in English | MEDLINE | ID: mdl-36576866

ABSTRACT

Background: The Emergency Department (ED) has increasingly been recognized as an important site of care for older adults with unmet palliative care needs. Despite this, no clear model of care delivery has emerged. Aim: To assess the acceptability and feasibility of a scripted palliative care communication intervention in the ED directed by social workers. We hypothesized that the intervention would be feasible, acceptable to patients and ED social workers, and that the collection of patient outcomes would be possible. Design: A prospective, unblinded, pilot randomized clinical trial of older adults with serious illness presenting to the ED. Patients were randomized to either receive a social worker-directed palliative care intervention (n-65), which consisted of a conversation focused on patients' goals, values, hopes and worries, or to usual care (n-52). The intervention was evaluated for feasibility and acceptability. Results: Of patients randomized to the intervention arm, 66% (43/65) completed a conversation with the social worker. Focus group feedback with the social workers further demonstrated the feasibility of these conversations. There was minimal (12%) loss to follow-up. Of the patients who received the intervention, the majority reported that they appreciated the social workers bringing up their goals for the future (77%), their social workers asking about their fears and worries (72%), and they liked the way the conversation was set up (81%). Social workers administered 95% of the conversation components. Conclusions: This pilot trial demonstrated the feasibility and acceptability of a social worker-directed, scripted palliative care communication intervention in a single urban, academic ED.


Subject(s)
Goals , Social Workers , Humans , Aged , Prospective Studies , Feasibility Studies , Emergency Service, Hospital , Palliative Care , Communication
2.
Palliat Support Care ; 15(3): 348-358, 2017 06.
Article in English | MEDLINE | ID: mdl-27819204

ABSTRACT

OBJECTIVE: The death of a child from cancer is an intense and life-changing loss for a parent. Guided by the principles of patient- and family-centered care, hospital-based caregivers developed a program to provide bereavement support for parents through phone calls and mailings. The aim of the present qualitative phenomenological study was to understand how parents experienced participating in this bereavement program. METHOD: A total of eight parents from six families participated in a focus-group evaluation of the two-year hospital-based bereavement program. Two social work clinicians/researchers independently analyzed the transcript of the focus group to define themes. RESULTS: Four themes were identified: (1) lived experience of grief, (2) importance of relationships with the hospital-based team, (3) bereavement support from hospital-based providers, and (4) extending bereavement care. SIGNIFICANCE OF RESULTS: Participants indicated the value of ongoing communication and connection with members of the healthcare team, who were often central to a family's life for years during their child's cancer treatment. Parents also provided suggestions for extending bereavement support through continued contact with providers and informal annual gatherings, as well as through a peer (parent-to-parent) support program.


Subject(s)
Bereavement , Neoplasms/psychology , Parents/psychology , Program Evaluation/methods , Adult , Attitude to Death , Child , Child Health/standards , Female , Focus Groups , Hospitals/standards , Humans , Life Change Events , Male , Neoplasms/mortality , Personal Satisfaction , Qualitative Research , Social Support
3.
Oncol Nurs Forum ; 35(4): 625-33, 2008 Jul.
Article in English | MEDLINE | ID: mdl-18591166

ABSTRACT

PURPOSE/OBJECTIVES: To evaluate the implementation of a domestic violence screening protocol in an oncology clinic. DESIGN: A retrospective review of a random sample of clinic medical records and qualitative surveys of nursing staff. SETTING: A gynecologic oncology clinic in a large teaching hospital. SAMPLE: 204 charts were abstracted and six oncology nurses completed surveys. METHODS: A random sample of patients from clinic appointment schedules was selected 6 and 12 months after the implementation of a domestic violence screening protocol. A brief written survey of nursing staff also was conducted. MAIN RESEARCH VARIABLES: Documentation of domestic violence screening, barriers to screening and documentation, and potential solutions to the barriers. FINDINGS: Sixty-three percent of the charts reviewed had a domestic violence screening record present, but only 12% of the charts with a screening record had documentation. Patients with domestic violence screening documentation were more likely to have had five or more clinic visits during the study period. The most frequent barriers to protocol implementation cited by nursing staff were forgetting to screen or document domestic violence screening. Nursing staff recommended adding domestic violence screening questions to forms and providing reminders to screen. CONCLUSIONS: Several barriers to successful implementation of a domestic violence screening protocol in a gynecologic oncology clinic, including documentation issues, were encountered. IMPLICATIONS FOR NURSING: Nurses interested in implementing a domestic violence screening protocol in their oncology clinic should consider reviewing the barriers to domestic violence screening and documentation and the potential solutions identified in this study.


Subject(s)
Attitude of Health Personnel , Genital Neoplasms, Female/nursing , Mass Screening/organization & administration , Nursing Assessment/organization & administration , Nursing Staff, Hospital/psychology , Spouse Abuse/diagnosis , Adult , Aged , Documentation , Female , Genital Neoplasms, Female/complications , Health Services Needs and Demand , Hospitals, Teaching , Humans , Mass Screening/nursing , Massachusetts/epidemiology , Middle Aged , Nursing Evaluation Research , Nursing Methodology Research , Nursing Records , Nursing Staff, Hospital/education , Nursing Staff, Hospital/organization & administration , Oncology Nursing/education , Oncology Nursing/organization & administration , Outpatient Clinics, Hospital , Program Evaluation , Qualitative Research , Retrospective Studies , Spouse Abuse/prevention & control , Spouse Abuse/statistics & numerical data , Surveys and Questionnaires
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