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1.
Adapt Phys Activ Q ; 39(2): 141-159, 2022 04 01.
Article in English | MEDLINE | ID: mdl-35051903

ABSTRACT

Trauma is pervasive, embodied, and can be perpetrated or perpetuated by researchers, educators, and practitioners, including those within adaptive physical activity (APA). In this article, we highlight the need to address trauma within APA as a matter of access and justice. We share various conceptualizations of trauma from psychiatric, embodied, anti-pathologizing, and sociopolitical perspectives. Trauma-informed practice is introduced as a framework for creating safer, more inclusive programs and services, so we can recognize the impacts of trauma and affirm those who experience it. As the first step to a multistep trauma-informed process, our aim is to raise awareness of trauma and introduce resources for enacting trauma-informed practice. We also pose difficult questions about how we, as "helping" practitioners, researchers, and educators may be perpetuating or perpetrating harm and trauma, in particular sanism, within our profession. Ultimately, we invite readers to join us in reflection and action toward anti-pathologizing trauma-informed APA.


Subject(s)
Exercise , Social Justice , Humans
2.
Adapt Phys Activ Q ; 38(4): 525-545, 2021 10 01.
Article in English | MEDLINE | ID: mdl-34077910

ABSTRACT

Countering the declining physical activity patterns of children labeled with autism spectrum disorder (ASD) has gained considerable research attention given its impact on health and quality of life. The purpose of this study was to explore how parents of children labeled with ASD understand the concept of physical literacy, based on their children's participation in community-based physical activity programs. Using interpretive phenomenological analysis, six mothers of children labeled with ASD participated in one-on-one semistructured interviews. The conceptual framework of ecological systems theory supported the rationale for the study purpose, provided structure for the interview guide, and offered a reflexive context for interpretation. Four themes were generated from the thematic analysis: From embodied movement to normative skill expectations, Be flexible, not rigid, Systematic exclusion, and Valuable? . . . Absolutely! Despite experiences of marginalization, exclusion, and trauma within physical activity programs, mothers valued physical literacy development for their children given the positive outcomes of increasing family connections, engagement with peers, and enhanced wellness.


Subject(s)
Autism Spectrum Disorder , Child , Female , Humans , Literacy , Mothers , Quality of Life , Social Discrimination
3.
Adapt Phys Activ Q ; 37(2): 193-210, 2020 04 01.
Article in English | MEDLINE | ID: mdl-32131051

ABSTRACT

Adapted physical activity (APA) practitioners are encouraged to be reflexive practitioners, yet little is known about the moral dilemmas faced as they instruct inclusive physical activity or fitness programs. Professional landscape tensions may arise when diverse organizational demands, policies, traditions, and values merge. The study purpose was to explore how APA professionals experience and resolve moral discomfort in professional practice. Using interpretative phenomenological analysis, seven APA professionals completed one-on-one semistructured interviews. The conceptual framework of relational ethics facilitated deep engagement with the professionals' stories of navigating the ethical minefields of their practice. Four themes were developed from the thematic interpretative phenomenological analysis: The ass(et) of vulnerability, Friends or friendly? "We are fucked either way," and Now what? Grappling with discomfort. The moral discomfort and strategies for resolution described by APA professionals highlighted the need for judgment-free pedagogical spaces where taken-for-granted practices can be contemplated and discussed.


Subject(s)
Conflict, Psychological , Disabled Persons , Exercise , Morals , Professional Practice/ethics , Adult , Documentation , Humans , Interviews as Topic , Qualitative Research
4.
Adapt Phys Activ Q ; 36(2): 264-281, 2019 Apr 01.
Article in English | MEDLINE | ID: mdl-30813756

ABSTRACT

Community service learning (CSL), built on collaborative, reciprocal, and diverse disability-community partnerships, is a taken-for-granted pedagogical practice in adapted physical activity. Thus far, the CSL experiences of community members as they support student learning are virtually unknown. The purpose of the study was to understand how community members experienced an undergraduate adapted physical activity CSL course. Using an interpretative phenomenological analysis research approach, 9 adults (2 female, 7 male, mean age 50 years) experiencing disability participated in individual and focus-group interviews. Field notes and artifacts were also gathered. Relational ethics provided a heuristic framework to facilitate the interpretation of the findings. Four themes were crafted: (a) yes, we are willing partners; (b) but . . . we're in the dark; (c) subjected to being the subject; and (d) engage through relationships. Although overlooked as valuable collaborative and reciprocal partners, relational engagement remained central to the participants' CSL experience.


Subject(s)
Disabled Persons , Exercise , Social Welfare , Adult , Aged , Female , Focus Groups , Humans , Interpersonal Relations , Male , Middle Aged , Mobility Limitation , Physical Conditioning, Human , Problem-Based Learning , Qualitative Research , Respect
5.
Adapt Phys Activ Q ; 36(2): 223-241, 2019 Apr 01.
Article in English | MEDLINE | ID: mdl-30813774

ABSTRACT

The indignities imposed by the words and actions of strangers in public recreation facilities can deter families with children experiencing disability from using these spaces. An interpretative phenomenological analysis case study was conducted to gain an understanding of how a young family with a child with autism experiences dignity during family leisure. Three generations (parents, grandmother, and great grandmother) participated in audio-recorded semistructured and conversational interviews. The interviews, thematically analyzed and interpreted using the conceptual framework of relational ethics, depicted the family's experiences of dignity: (a) living under a microscope; (b) "screw your microscope, we're going anyway"; (c) emerging stories of belonging; and (d) retreating, feeling overlooked, and lamenting the future. The family members experienced both dignity-affirming and dignity-removing interactions during community family leisure. Dignity was cyclically maintained, temporarily lost, and regained again as family members (re)formulated perceptions of self-respect, rejected stereotypes, and built relationships.


Subject(s)
Autistic Disorder , Grandparents/psychology , Parents/psychology , Personhood , Recreation , Adult , Aged, 80 and over , Child , Female , Humans , Interpersonal Relations , Interviews as Topic , Male , Middle Aged , Psychological Distance , Respect , Sports and Recreational Facilities
6.
Adapt Phys Activ Q ; 36(2): 282-301, 2019 Apr 01.
Article in English | MEDLINE | ID: mdl-30795688

ABSTRACT

Parents play an essential role in the transition from separate physical activity programs to inclusive settings for their children. The purpose of this study was to explore experiences of parents as they anticipate and prepare for their children experiencing disability to transition, understand strategies used to address transition, and gain insights into the supports important to families during transition. Using an interpretative phenomenological analysis research approach, semistructured one-on-one interviews were conducted with 8 parents whose children were undergoing the transition from separate to inclusive community fitness contexts. Four themes described the experiences of parents as they anticipated, prepared for, and supported their child to transition: My child may be ready, but I am not; fear of outside judgment; playing by their rules; and reframing our thinking. Using Schlossberg's model, the tensions parents faced as they negotiated new roles, relationships, routines, and assumptions as they moved through the transition process were uncovered. The parents experienced transition alongside their children, providing insights for fitness and health-promotion professionals. Without preparation for transition, apprehensions and hesitancy may postpone or prevent their children's transition to community programs.


Subject(s)
Exercise , Parents/psychology , Adolescent , Adult , Child , Disabled Persons , Fear , Female , Financing, Government , Fitness Centers , Government Programs , Humans , Internal-External Control , Interviews as Topic , Male , Middle Aged , Qualitative Research , Young Adult
7.
Adapt Phys Activ Q ; 35(4): 342-360, 2018 Oct 01.
Article in English | MEDLINE | ID: mdl-30336688

ABSTRACT

Locating suitable, inclusive community physical activity programs for disabled children can be challenging for parents. The aim of this study was to uncover everyday hidden labor experienced by parents, as they sought inclusive physical activity opportunities for their children. Focus group interviews with eight families of youth aged 13-19 years were completed using an interpretative phenomenological case study research approach. Four themes, interpreted through the framework of relational ethics, captured their experiences: (a) inclusion is immensely effortful; (b) judged by their impairments, not their possibilities; (c) ongoing education needed to open doors and sustain participation; and (d) the guilt of staying home. Reliance on hidden parental labor highlighted an exclusion agenda in community, accentuated by ableist belief systems.


Subject(s)
Disabled Children , Emotions , Exercise , Parents/psychology , Psychological Distance , Adolescent , Adult , Female , Focus Groups , Humans , Male , Young Adult
9.
Adapt Phys Activ Q ; 35(3): 285-292, 2018 Jul 01.
Article in English | MEDLINE | ID: mdl-29569462

ABSTRACT

Dr. Arya M. Sharma challenges the conventional wisdom of relying simply on "lifestyle" approaches involving exercise, diet, and behavioral interventions for managing obesity, suggesting that people living with obesity should receive comprehensive medical interventions similar to the approach taken for other chronic diseases such as Type 2 diabetes or hypertension. He purports that the stigma-inducing focus on self-failing (e.g., coping through food, laziness, lack of self-regulation) does not address biological processes that make obesity a lifelong problem for which there is no easy solution. Interdisciplinary approaches to obesity are advocated, including that of adapted physical activity. Physical activity has multifaceted impacts beyond increasing caloric expenditure, including improved sleep, better mood, increased energy levels, enhanced self-esteem, reduced stress, and an enhanced sense of well-being. The interview with Dr. Sharma, transcribed from a keynote address delivered at the North American Adapted Physical Activity Symposium on September 22, 2016, in Edmonton, AB, Canada, outlines his rationale for approaching obesity as a chronic disease.


Subject(s)
Chronic Disease , Obesity , Bariatric Surgery , Canada , Concept Formation , Exercise Therapy , Humans , Obesity/epidemiology , Obesity/genetics , Obesity/surgery , Weight Loss
10.
Adapt Phys Activ Q ; 32(2): 106-24, 2015 Apr.
Article in English | MEDLINE | ID: mdl-25799592

ABSTRACT

Dignity, as an essential quality of being human, has been overlooked in exercise contexts. The aim of this interpretative phenomenological study was to understand the meaning of dignity and its importance to exercise participation. The experiences of 21 adults (11 women and 10 men) from 19 to 65 yr of age who experience disability, who attended a specialized community exercise facility, were gathered using the methods of focus-group and one-on-one interviews, visual images, and field notes. The thematic analysis revealed 4 themes: the comfort of feeling welcome, perceptions of otherness, negotiating public spaces, and lost autonomy. Dignity was subjectively understood and nurtured through the respect of others. Indignities occurred when enacted social and cultural norms brought dignity to consciousness through humiliation or removal of autonomy. The specialized exercise environment promoted self-worth and positive self-beliefs through shared life experiences and a norm of respect.


Subject(s)
Architectural Accessibility/standards , Disabled Persons/psychology , Exercise/psychology , Personal Autonomy , Personhood , Social Environment , Adult , Aged , Consumer Behavior , Exercise/physiology , Female , Fitness Centers/standards , Focus Groups , Humans , Male , Middle Aged , Qualitative Research , Safety , Young Adult
11.
Adapt Phys Activ Q ; 29(4): 295-309, 2012 Oct.
Article in English | MEDLINE | ID: mdl-23027144

ABSTRACT

There has been little critical exploration of the ethical issues that arise in professional practice common to adapted physical activity. We cannot avoid moral issues as we inevitably will act in ways that will negatively affect the well-being of others. We will make choices, which in our efforts to support others, may hurt by violating dignity or infringing on rights. The aim of this paper is to open a dialogue on what constitutes ethical practice in adapted physical activity. Ethical theories including principlism, virtue ethics, ethics of care, and relational ethics provide a platform for addressing questions of right and good and wrong and bad in the field of adapted physical activity. Unpacking of stories of professional practice (including sacred, secret, and cover stories) against the lived experiences of persons experiencing disability will create a knowledge landscape in adapted physical activity that is sensitive to ethical reflection.


Subject(s)
Disabled Persons/psychology , Motor Activity , Professional Practice/ethics , Professional-Patient Relations/ethics , Disabled Persons/education , Ethical Theory , Humans , Knowledge , Physical Education and Training , Principle-Based Ethics , Professional Role , Virtues
12.
Adapt Phys Activ Q ; 29(3): 205-23, 2012 Jul.
Article in English | MEDLINE | ID: mdl-22811563

ABSTRACT

The play experiences of daughters who were caregivers to their mothers with multiple sclerosis were described. The experiences of four Caucasian women aged 19-26 years were captured using the interpretive phenomenological methods of interviews, field notes, and artifacts. Family systems theory provided the conceptual framework for the study and facilitated the interpretation of the findings. The thematic analysis revealed three themes: (a) being a good daughter, (b) blurred relationship boundaries, and (c) encumbered play. Being a good daughter encompassed personal caregiving for their mothers. The associated guilt and worry was perceived to mature the participants beyond their years. Excessive caregiving exacerbated by limited social networks contributed to the blurring of mother-daughter relationships. Play, although restricted, provided a welcomed escape from caregiving responsibilities. Impoverished play experiences as caregivers were reported to negatively impact adult physical activity and recreation pursuits.


Subject(s)
Child of Impaired Parents , Mother-Child Relations , Play and Playthings , Adult , Caregivers , Female , Humans , Young Adult
13.
Adapt Phys Activ Q ; 28(1): 40-55, 2011 Jan.
Article in English | MEDLINE | ID: mdl-21282847

ABSTRACT

The social meaning of a one-week residential summer sports camp to young people with visual impairments is described. The experiences of 13 youths (7 females and 6 males) with visual impairments (3 B1, 1 B2, and 9 B3) between 9 and 15 years of age were gathered using the phenomenological methods of focus groups, conversational interviews, and field notes. The thematic analysis revealed three themes: connected, reaching out, and resisting and acquiescing. Experiences of group membership and shared emotional connection to others with visual impairments surfaced in a supportive sport context although resistance to others' assumptions of ability was evident. The theory of psychological sense of community (McMillan & Chivas, 1986) provided the conceptual framework for interpreting the findings.


Subject(s)
Blindness/psychology , Camping/psychology , Disabled Children/psychology , Sports/psychology , Adolescent , Child , Emotions , Female , Humans , Interpersonal Relations , Male , Peer Group , Residence Characteristics , Social Support
14.
Adapt Phys Activ Q ; 24(1): 38-58, 2007 Jan.
Article in English | MEDLINE | ID: mdl-17703061

ABSTRACT

This study described the meaning 7 mothers of children with spina bifida ascribed to their children's physical education, the mothers' roles in the schools, and the importance of the IEP in home and school communication. The stories of 4 mothers of elementary and 3 mothers of secondary aged children were gathered using the phenomenological methods of semistructured interviews, artifacts, and field notes. The thematic analysis revealed three themes: a good thing but . . . , connection to sports, and beyond the curriculum. The mothers valued their children's participation in physical education and provided instrumental support to teachers and teaching associates. They also valued sport as an avenue for developing sport specific skills, which in turn enriched the school experience. The findings are discussed within the context of Peters' (1996) model of disablement.


Subject(s)
Consumer Behavior , Mothers/psychology , Physical Education and Training , Spinal Dysraphism , Adolescent , Adult , Child , Female , Humans , Interviews as Topic , Male , Saskatchewan
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