"Life is Bitter and Sweet": The Lived Experience of Ethnic Minority Elders with Type 2 Diabetes Mellitus in Rural, Thailand.

PURPOSE: The purpose of this study was to describe the lived experience of ethnic minority elders (EME) with type 2 diabetes mellitus (T2DM) to understand an individual's experience, perception, and behaviors connected to T2DM in rural areas where support is limited. METHOD: The hermeneutic phenomenological methodology was used to explore the lived experience of EME with T2DM by using conversational interviews. Twenty EME were interviewed. The data analysis and interpretation followed the thematic analysis by van Manen. RESULTS: Analysis highlighted an overarching theme of "Life is Bitter and Sweet" and three main themes: (1) the struggle of living with diabetes, (2) living with inequalities, and (3) dealing with diabetes that reflects the experiences of EME with T2DM living in underserved areas based on the cultures, beliefs, and spirits. CONCLUSIONS: The finding led to recommendations to strengthen interventions by family members, improve supportive systems and services to improve knowledge, self-management, and maintain physical well-being in order to increase the quality of life for the EME with T2DM.

Just-in-Time Qualitative Research: Methodological Guidelines Based on the COVID-19 Pandemic Experience.

BACKGROUND: Methodological guidelines are required to ensure both the rigor and feasibility of just-in-time, qualitative research addressing the human experience and response to the COVID-19 pandemic and major public health crises. OBJECTIVES: This article presents methodological guidelines for just-in-time qualitative research based on our current, pandemic-relevant research. METHODS: The processes followed while conducting two longitudinal, online qualitative studies addressing the lived experience and response to the COVID-19 pandemic were analyzed. Methodological challenges faced were then identified, and specific design and implementation guidelines were developed. The ways in which these guidelines can be applied to conduct just-in-time research during the COVID-19 pandemic and future public health crises were further delineated using examples from our pandemic-relevant research. RESULTS: Six guidelines were identified: (a) capitalize on fast track review and reporting processes; (b) prioritize accessibility during sample specification and selection; (c) optimize recruitment and retention strategies; (d) maximize current and future data use through strategic research design; (e) tailor data collection to participants' characteristics, preferences, and priorities; and (f) incorporate timeline mapping of personal and contemporaneous phenomena. DISCUSSION: Public health measures taken to slow disease spread during the current COVID-19 pandemic and future public health crises may slow the pace of research and make its implementation all the more challenging. However, just-in-time qualitative research advances our understanding of the human experience and response to the COVID-19 and major public health crises. It also complements existing behavioral theory and research. The guidelines presented may assist researchers to initiate necessary qualitative research more rapidly, with fewer logistic challenges, and with methodological rigor. They may also help expand research on groups experiencing collateral effects of the pandemic and major public health crisis. Lastly, the guidelines may support the development of more robust data for alternate analysis at a later date.

Chapter 22 : Directions for nursing research and development

Conducting research related mass casuality events is a distinct challenge, consequently this chapter is primarily designed to provide a framework for future research efforts. The framework is based on the framework for assessment and evaluation of quality of care and focuses the researcher on the structure, processes, and outcomes of mass casualty events. An adaptation to Donabedian's traditional quality model introduces the client (who can be described as indiviaduals, families, and/or communities) to the quality framework. In addition, a brief overview of research that is related to this effort is described (AU)