Psicología 2.0: oportunidades y retos para el profesional de la psicología en el ámbito de la eSalud / Psychology 2.0: opportunities and challenges for the psychology professional in the field of ehealth

La eSalud está reconocida a nivel nacional, europeo e internacional como una prioridad estratégica para el sistema sanitario. La Psicología, como profesión sanitaria, tiene la oportunidad y la obligación de profundizar su actividad en un ámbito donde hasta ahora no había tenido una gran presencia. Los principios básicos de la Web 2.0 integrados a la práctica profesional de la Psicología exigen, más allá del uso de la tecnología, una nueva actitud y compromiso hacia la colaboración, adoptar una perspectiva transversal de la tecnología en todos los ámbitos de la actividad de los psicólogos, y la consideración de la capacidad de automanejo de las personas respecto a su salud. Es la Psicología 2.0, que plantea interesantes oportunidades laborales y retos a los que la disciplina y los colegios profesionales deberán dar respuesta para asegurar la calidad del servicio de las personas

eHealth is recognised as a strategic priority for the healthcare system at the national, European and international levels. Psychology, as a health profession, has the opportunity and the obligation to deepen its activity, in an area that has not had a notable presence until now. The basic principles of the Web 2.0 integrated into professional practice require, more than simply the use of technology, a new attitude and commitment towards collaboration, the adoption of a transversal perspective of technology in all areas of activity of psychologists and the consideration of people’s self-management abilities regarding their own health. Psychology 2.0 proposes interesting job opportunities and challenges, to which the discipline and the professional associations must respond, in order to guarantee service quality to the people

Analysis of patient organizations' needs and ICT use--The APTIC project in Spain to develop an online collaborative social network.

BACKGROUND: The purpose of this first part of the APTIC (Patient Organisations and ICT) project is to design and run an online collaborative social network for paediatric patient organizations (PPOs). OBJECTIVE: To analyse the needs of PPOs in Spain to identify opportunities to improve health services through the use of ICT. SETTING AND PARTICIPANTS: A convenience sample of staff from 35 PPOs (54.68% response rate) participated in a structured online survey and three focus groups (12 PPOs). RESULTS: Paediatric patient organizations' major needs are to provide accredited and managed information, increase personal support and assistance and promote joint commitment to health care. Moreover, PPOs believe in the Internet's potential to meet their needs and support their activities. Basic limitations to using the Internet are lack of knowledge and resources. CONCLUSION: The discussion of the data includes key elements of designing an online collaborative social network and reflections on health services provided.

A Pilot Study Designing a Website to Enhance the Well-Being of Caregivers of Children with Cerebral Palsy / Estudio piloto de diseño de un sitio web para el bienestar de cuidadores de niños con parálisis cerebral

The objective is to present a website designed to improve the quality of life of caregivers of children with cerebral palsy and show data concerning its usefulness. The website was developed in accordance with scientific literature about caregivers' burden. We organized the website around different sections (e.g. family communication, learning to relax) and social support forums. The interactive features of the site were designed to accommodate different caregivers' needs and enable them to choose different pathways according to their own individual needs. Participants were 10 caregivers who took part in a pilot study and completed a questionnaire to analyze the usefulness of the website after five months using it. Preliminary results suggested that the website was useful for participants. The most useful sections were the "peer-to-peer" and the professional forums. This study shows the potential of an online intervention for parents of children with cerebral palsy.

El objetivo del artículo es presentar un sitio web diseñado para mejorar la calidad de vida de cuidadores de niños con parálisis cerebral y mostrar los datos correspondientes a su utilidad. Este sitio fue desarrollado acorde con la literatura científica sobre el tema de carga de los cuidadores y se organizó en torno a diferentes secciones (comunicación familiar, aprender a relajarse, entre otros) y foros de apoyo social. Las características interactivas del sitio fueron diseñadas para satisfacer las necesidades de los cuidadores, eligiendo diferentes caminos en función de las propias. En el estudio piloto participó una muestra de 10 cuidadores que completaron un cuestionario para analizar la utilidad del sitio web después de cinco meses de usarlo. Los resultados preliminares sugieren que este fue útil para los participantes y que las secciones de mayor utilidad fueron la denominada "de par a par" y los foros profesionales. El presente trabajo muestra el potencial de una intervención en línea, para padres de niños con parálisis cerebral.

Burden on Caregivers of Children with Cerebral Palsy: Predictors and Related Factors / Carga de los cuidadores de niños con parálisis cerebral: predictores y factores relacionados

The main objective of this research was to explore which factors best predict the occurrence of burden on primary caregivers of children with cerebral palsy (CP). Understanding these factors enables the identification of those caregivers at risk of having their physical and psychological health adversely affected, and the implementation of intervention strategies to reduce the negative impact of caring on parents of children with chronic medical conditions. The study sample consisted of a total of 62 caregivers (89% women) aged between 30 and 54 years (Mean = 41.98, SD = 5.64). CP affected children were aged between 1 and 17 years (Mean = 7.69, SD = 4.18) and the average degree of disability (% reflected in the medical record assessed by the Ministry of health, social services and equality of Spain) was 77.098 (scale of 100) (SD = 14.62). A burden model was constructed based on multiple linear regressions. The model included the following variables: degree of disability, depression (assessed by Beck Depression Inventory-II) and self-efficacy (measured by the Revised Scale for Caregiving Self-Efficacy). The regression model explained 40.9% of the total variance. It was found that self-efficacy had a negative linear association with burden, while the degree of disability and depression showed a positive linear association. The most important predictors of caregiver burden were degree of disability, depression and self-efficacy. For this reason, we believe that it is necessary to develop interventions to reduce depression and enhance self-efficacy in parents of children with CP as one of the primary objectives for minimizing the burden on caregivers of disabled children.

El objetivo principal de esta investigación fue explorar cuáles son los factores que mejor predicen la ocurrencia de la carga sobre los cuidadores primarios de niños con parálisis cerebral (CP). La comprensión de estos factores permite identificar cuidadores en riesgo de presentar problemas físicos o psicológicos y la implementación de estrategias de intervención para reducir el impacto negativo del cuidado de los padres de niños con condiciones médicas crónicas. La muestra del estudio consistió en un total de 62 cuidadores (89 % mujeres) con edades entre 30 y 54 años (M = 41.98, DE = 5.64). Los niños con CP afectados tenían edades entre 1 y 17 años (M = 7.69, DE = 4.18) y el grado promedio de discapacidad (% reflejado en la historia clínica evaluada por el Ministerio de Salud, Servicios Sociales e Igualdad de España ) fue de 77.098 (escala sobre 100) (DE = 14.62). Se construyó un modelo de carga basado en regresiones lineales múltiples. El modelo incluyó las siguientes variables: grado de discapacidad, la depresión (evaluada por el Inventario de Depresión de Beck -II) y auto-eficacia (medida por la Escala Revisada de Autoeficacia para Cuidado). El modelo de regresión explicó 40.9 % de la varianza total. Se encontró que la autoeficacia tenía una asociación lineal negativa con la carga, mientras que el grado de discapacidad y depresión mostró una asociación lineal positiva. Los predictores más importantes de la carga de los cuidadores fueron el grado de discapacidad, la depresión y la autoeficacia. Por esta razón, creemos que es necesario desarrollar intervenciones para reducir la depresión y aumentar la auto-eficacia en padres de niños con CP como uno de los objetivos primordiales para reducir al mínimo la carga de los cuidadores de niños con discapacidad.

Quality of life and mental health among parents of children with cerebral palsy: the influence of self-efficacy and coping strategies.

AIMS AND OBJECTIVES: To explore the quality of life and mental health of caregivers of children with cerebral palsy and to examine the impact of self-efficacy and coping strategies on these outcomes. BACKGROUND: Few studies analyse the impact of caring for a child with cerebral palsy on the caregivers' quality of life besides mental health. Also, less attention has been paid to the influence of caregiver's personal resources like self-efficacy or coping strategies on how they adjust to the child's illness and the care situation. DESIGN: Cross-section correlational design. METHODS: Sixty two parents of children with cerebral palsy completed measures to assess the quality of life (i.e. physical, environmental and social relationships), mental health (i.e. general mental health, depression and anxiety), self-efficacy and coping strategies. RESULTS: Parents of children with cerebral palsy had, in general terms, low levels of quality of life and mental health. Self-efficacy was related to most of the outcomes, whereas any of the coping strategies assessed was significantly related to the outcomes. CONCLUSIONS: Quality of life and mental health can be affected in caregivers of children with CP. Personal resources like self-efficacy also need attention as they can help in the understanding of the differences in these outcomes and the design of effective interventions. RELEVANCE OF CLINICAL PRACTICE: Self-efficacy should be a key element in interventions addressed to parents of children with CP to elicit a process of empowerment that can improve the well-being of the family as a whole.

Working women's lifestyles and quality of life in the information society.

We investigate the lifestyles of Spanish women workers engaged in the information and communication society and analyze key indicators of lifestyle as predictors of their quality of life. In this study, 207 women aged between 19 and 54 years responded to questions related to daily activities and to a quality-of-life questionnaire. We concluded that Spanish women in this study show regular and healthy habits in diet and prevention behaviors, and we also identify important quality-of-life predicting factors in issues related to personal time management.

Prevalence of mental disorders in children and adolescents from a Spanish slum.

This paper reports rates of psychopathology in a population of 9- and 13-yr olds from a Spanish slum. Two cohorts of all the children born in 1989 and in 1993 and registered in the census of a municipality in 2001 were assessed over a 3-yr period with structured diagnostic interviews and functional measures. In the first year of the study 79 (53.7%) children of the adolescent 13-yr-old population and 72 (59.5%) of the pre-adolescent 9-yr-old population participated. Between 30% and 60% of preadolescents and between 30% and 50% of adolescents presented some mental disorder. Anxiety and disruptive behavior disorders were the most frequent disorders in both cohorts. For both genders, the highest risk for any psychopathology was at 10 yr. We found that, psychopathology and functional impairment decreased with age, and that the psychopathology of children in a peripheral slum of a big city is 3 times higher than the median of the general population. This information should be useful for administrators providing services for children from the most disadvantaged segment of the population.

Perception of need for help and use of mental health services in children and adolescents. Do they share the same predictors? / Percepción de necesidad de ayuda y uso de servicios de salud mental en niños y adolescentes. ¿Comparten los mismos predictores?

The study identifies the variables that predict the perception of need for psychiatric help and the use of mental health services in children and adolescents from 7 to 17 years old attending psychiatric and pediatric outpatient consultation. The perception of problems and consultation depend on the degree of functional impairment, parents’ perception of the existence of problems, the age of the child, temperamental traits, parental rearing style and severe stressful life-events. The variables that permit realization of the existence of problems but do not lead to consultation are primarily developmental difficulties. Families consult with professionals, despite not perceiving the existence of psychiatric problems, when children have difficulties in their behavioral style. The presence of psychopathology is not enough to explain the perception of the need for help by the subject or the fact of attending consultation. Resultant indicators may be useful for planning mental health services (AU)

El estudio identifica las variables que pueden predecir la percepción de necesidad de ayuda psicológica y el uso de los servicios de salud mental en jóvenes de 7 a 17 años que acudían a consultas ambulatorias psiquiátricas y pediátricas. La percepción de la existencia de problemas y la consulta por ellos depende de que los padres los perciban, de la incapacidad funcional que producen, la edad de niño, su temperamento, los acontecimientos estresantes que ha sufrido, y del estilo educativo de los padres. Las dificultades evolutivas se perciben como problemas pero no conducen a consulta. Las familias consultan con los profesionales, a pesar de que no perciban la existencia de problemas, cuando los niños presentan dificultades menores en su comportamiento. La presencia de psicopatología no es suficiente para explicar la percepción de la necesidad de ayuda o de acudir a consulta. Los indicadores hallados pueden ser útiles para planificar los servicios de salud mental (AU)