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1.
J Cancer Educ ; 39(1): 50-57, 2024 Feb.
Article in English | MEDLINE | ID: mdl-37875743

ABSTRACT

Multiple myeloma, the second most common hematologic malignancy worldwide, is an aggressive disease with high morbidity and mortality rates. Although myeloma remains incurable, new treatments have improved patients' life expectancy and quality of life. However, as these therapies are administered for prolonged and often indefinite periods, their success depends on high treatment adherence and significant patient engagement. This study aimed to evaluate the impact of a novel digital educational strategy on treatment adherence, quality of life, and the development of complications in patients with newly diagnosed myeloma. To this end, a two-arm, randomized, prospective, double-blind study was conducted to compare the conventional educational approach alone or combined with the novel digital strategy. This strategy was based on some principles of the Persuasive Systems Design model and incorporated the educational recommendations of patients and caregivers. Compared to the control group that only received information through the conventional educational approach, patients randomized to the digital strategy showed significantly higher treatment adherence and quality of life, associated with increased functionality and rapid reincorporation into daily routines. The digital strategy empowered patients and caregivers to understand the disease and therapeutic options and helped patients recall treatment information and implement healthy lifestyle habits. These results support that patient-targeted educational strategies can positively influence treatment adherence and thus improve their quality of life.


Subject(s)
Multiple Myeloma , Humans , Multiple Myeloma/drug therapy , Quality of Life , Prospective Studies , Treatment Adherence and Compliance , Life Style
2.
Iowa Orthop J ; 35: 156-9, 2015.
Article in English | MEDLINE | ID: mdl-26361459

ABSTRACT

INTRODUCTION: Congenital Talipes Equinovarus (CTEV) or clubfoot is one of the most common congenital abnormalities(1,2). Early diagnosis by means of ultrasonography allows an opportune intervention and improves the deformity's correction prognosis. GOAL: To describe patients diagnosed with CTEV by means of prenatal sonographies between 2003 and 2012 in Bogotá (Colombia) at both the Institute de Ortopedia Infantil Roosevelt (IOIR) and one of the authors' private office. METHODS: A descriptive, retrospective study on the focus population was made. The equality of the data of the quantitative variables in distance measure was analysed by the Kolmogorov-Smirnov test. For the variables "prenatal diagnoses" and "days from the start of the treatment" the Mann-Whitney U test was used. Finally, an analysis was made by means of the SPSS Statistics software package, version 18.0. RESULTS: 178 patients met the selection criteria. 34.3% of the patients had a prenatal diagnosis by ultrasonography (n=61). Regarding the number of prenatal ultrasounds performed, there were statistically significant differences between the patients with a CTEV prenatal diagnoses and those whose diagnoses came after birth, being higher in the first group (p<0.001). The number of days before the treatment started once the pre or postnatal diagnosis was done was also a subject of study. Significant differences were found in the treatment start between patients with a prenatal diagnosis (mean of 9.9 days) and those diagnosed after birth (mean of 30 days) (p<0.001). CONCLUSIONS: prenatal diagnosis by foetal ultrasonography contributes to an early detection of musculoskeletal abnormalities such as CTEV and promotes an early intervention of the patient.


Subject(s)
Clubfoot/diagnostic imaging , Clubfoot/epidemiology , Early Diagnosis , Ultrasonography, Prenatal/methods , Clubfoot/therapy , Cohort Studies , Colombia/epidemiology , Developing Countries , Female , Humans , Incidence , Infant, Newborn , Male , Pregnancy , Retrospective Studies , Risk Assessment , Ultrasonography, Prenatal/statistics & numerical data
3.
Stud Health Technol Inform ; 160(Pt 1): 559-63, 2010.
Article in English | MEDLINE | ID: mdl-20841749

ABSTRACT

BACKGROUND: Remote consultation was implemented in 2006 in our institution, through an open-access Web-based Teleconsulting service: Doctor Chat. This tool was created with the aim of improving access to health care services in Colombia, especially in underserved areas. OBJECTIVE: The aim of this paper is to report our experience with the free Web-based application for teleconsultation. METHODS: After validating the tool, we analyzed the queries submitted between May 2007 and June 2009. Requests were classified into three axes: purpose of the query, specialty, and geographic area of origin. Descriptive statistics were gathered for each category (name, email, city, country, age, gender). RESULTS: We received 1624 consultations, with an average of 59 requests per month. 52.7% of the users were aged 18 to 29 years. Users asked mainly about sexual and reproductive health issues. 79.2% of consultations came from Colombia and 32.91% of the users were students. CONCLUSIONS: Doctor Chat is an innovative tool to deliver health care information, but advertising, preventive and technical strategies must be implemented to improve its impact on Colombia's health system.


Subject(s)
Community Participation/statistics & numerical data , Consumer Health Information/statistics & numerical data , Information Dissemination/methods , Internet/statistics & numerical data , Physician-Patient Relations , Remote Consultation/statistics & numerical data , Colombia
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