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1.
Gerontol Geriatr Med ; 7: 23337214211041800, 2021.
Article in English | MEDLINE | ID: mdl-34541258

ABSTRACT

The national response to the COVID-19 pandemic pressed gerontologists to reflect, redesign, and reform services supporting older adults. Efforts to isolate a peer cohort to stabilize and maintain a standard of health had adverse outcomes and added pressure conflicting with autonomy and individual desires. In this, person-centered care emerges as a meaningful archetype to address dignity and independence. This article presents views from academics and practitioners across an interdisciplinary spectrum, arising from a webinar hosted by Georgetown University Program in Aging & Health. A description of personhood as an extension of the humanities is followed by a robust discussion of safety and autonomy for older adults during the COVID-19 pandemic. We examine the necessary commute between critical gerontological theory and the practice of humanistic gerontology. Further, this article disentangles humanism and person-centered care to balance autonomy and safety for older adults in congregate living situations and focuses on specific populations: people with dementia and their care partners. Discussion on the importance of person-centered policy development in a public health pandemic is also explored. The article concludes with a call to action for the adoption of a comprehensive person-centered care model across the fields of gerontology and geriatric medicine.

2.
Arts Health ; 13(2): 204-212, 2021 06.
Article in English | MEDLINE | ID: mdl-33236667

ABSTRACT

While dance programs for people with Parkinson's disease (PD) have been developed globally over the past two decades, dance programs for people with multiple sclerosis (MS) are just emerging. This article introduces three dance for MS programs and a multi-site partnership that was developed to evaluate and advance a model for dance for MS programs. The program partners convened over 2 days to share program models, consider current and planned program evaluations, and identify unique challenges and promising practices for delivering safe and effective dance for MS programs. This paper presents the findings of this convening and recommendations for dance for MS programs.Background:While dance programs for people with Parkinson's disease (PD) have been developed globally over the past two decades, dance programs for people with multiple sclerosis (MS) are just emerging. This article introduces three dance for MS programs and a multi-site partnership that was developed to evaluate and advance a model for dance for MS programs.Methods: The program partners convened over 2 days to share program models, consider current and planned program evaluations, and identify unique challenges and promising practices for delivering safe and effective dance for MS programs.Results:A set of promising practices for dance for MS programs, including recommendations for partnership, dance and movement approaches, and environmental, physical and psychosocial considerations, was developed by the program partners.Conclusions: These programs suggest that dance may be a useful modality for people with MS. Recommendations are offered to guide safe and evidence-based dance for MS practices.


Subject(s)
Multiple Sclerosis , Parkinson Disease , Humans , Movement , Multiple Sclerosis/therapy , Parkinson Disease/therapy
3.
AMA J Ethics ; 19(7): 704-712, 2017 Jul 01.
Article in English | MEDLINE | ID: mdl-28813243

ABSTRACT

A diagnosis of dementia profoundly impacts a person in terms of both the functional progression of the disease and the social stigma associated with the diagnosis. A growing body of research demonstrates the effectiveness of innovative programs such as the Alzheimer's Poetry Project, Meet Me at MoMA, and TimeSlips™ in counterbalancing social stigma by building a social and emotional framework for strength-based living for people diagnosed with dementia through arts participation. These programs focus on supporting autonomy and generativity through creative expression to help sustain the social, emotional, and community fabric of people's lives in the face of significant counterbalancing forces (e.g., the disease itself, stigma, and institution-centered approaches to care).


Subject(s)
Creativity , Dementia/diagnosis , Social Stigma , Dementia/psychology , Humans
4.
Gerontologist ; 55(2): 271-7, 2015 Apr.
Article in English | MEDLINE | ID: mdl-26035603

ABSTRACT

In advance of the White House Conference on Aging (WHCoA) in 1981, 1995, and 2005, the arts and aging communities held mini-conferences to ensure that arts, culture, and livability were part of larger public policy discussions. This article takes a historical look at recommendations from the 2005 WHCoA Mini-Conference on Creativity and Aging in America, including arts in health care, lifelong learning, and livability through universal design. Overarching recommendations in 2005 requested investments in research, including cost-benefit analyses; identification of best practices and model programs; program dissemination to broaden the availability of arts programs. The "Arts" is a broad term encompassing all forms of arts including music, theater, dance, visual arts, literature, multimedia and design, folk, and traditional arts to engage the participation of all older Americans; promotion of innovative public and private partnerships to support arts program development, including workforce development (e.g., artists, social workers, and health care providers); and public awareness of the importance of arts participation to healthy aging. Through the leadership of the National Endowment for the Arts and U.S. Department of Health and Human Services, thinking about the arts and aging has broadened to include greater emphasis on a whole-person approach to the health and well-being of older adults. This approach engages older adults in arts participation not only as audience members, but as vital members of their community through creative expression focusing on life stories for intergenerational as well as interprofessional collaboration. This article reviews progress made to date and identifies critical gaps in services for future consideration at a 2015 Mini-Conference on Creativity and Aging related to the WCHoA area of emphasis on healthy aging.


Subject(s)
Aging/psychology , Art , Creativity , Health Promotion/organization & administration , Health Status , Quality of Life , Aged , Humans , Mental Health , Personal Satisfaction , Public Policy , Socioeconomic Factors , United States
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