Subject(s)
Critical Care , Inservice Training/methods , Nursing Staff, Hospital/education , Preceptorship/methods , Chicago , Education, Distance , Humans , Inservice Training/organization & administration , Models, Educational , Patient Simulation , Preceptorship/organization & administration , Program Development , Program EvaluationABSTRACT
Syringomyelia, considered a rare neurological disease, is relatively uninvestigated in the nursing literature. The aims of this qualitative phenomenological case study were to discover the nature, meanings, and dynamics of lived experiences of a 52-year-old Caucasian male with syringomyelia. Using van Manen's Method of Phenomenological inquiry (van Manen, 1990), data were collected, checked, and analyzed according to the philosophy, approach, and methodological procedures of phenomenology. Findings revealed an overarching theme of engulfment by disease. Essential themes included loss of abilities, struggles to adapt to changes, and life as a person who was disabled. Eleven sub-themes were also identified. Implications for nursing practice are discussed.
Subject(s)
Adaptation, Psychological , Attitude to Health , Disabled Persons/psychology , Syringomyelia/psychology , Activities of Daily Living , Anger , Body Image , Grief , Humans , Life Change Events , Male , Men/psychology , Middle Aged , Models, Psychological , Nursing Methodology Research , Qualitative Research , Self Concept , Sick Role , Social Support , Spouses/psychology , Surveys and Questionnaires , Syringomyelia/prevention & controlABSTRACT
The purpose of this phenomenologic case study was to disclose the lived experiences of a woman survivor of invasive bladder cancer who underwent reconstructive surgery resulting in re-established urinary continence. Data revealed the chronic nature of managing reestablished urinary continence, the uncertainty of long-term survival, and the complexity of the sudden loss of urinary continence.
Subject(s)
Adaptation, Psychological , Survivors/psychology , Urinary Bladder Neoplasms/psychology , Women/psychology , Activities of Daily Living , Cystectomy/adverse effects , Cystectomy/psychology , Female , Humans , Nurse's Role , Nursing Methodology Research , Self Concept , Social Support , Surveys and Questionnaires , Urinary Bladder Neoplasms/complications , Urinary Bladder Neoplasms/therapy , Urinary Incontinence/etiology , Urinary Incontinence/psychologyABSTRACT
Syringomyelia is a progressive degenerative disorder that results in numerous life-altering symptoms. People with this disorder frequently are misdiagnosed and most likely will experience intractable pain for many years. Surgical procedures may offer some relief from symptoms through spinal decompression or cerebrospinal fluid shunting; however, these procedures often are unsuccessful in altering the course or progression of the disease process. Information on the implications of the disease offers insight that is helpful for nurses providing care to these patients. This article presents relevant clinical information and discusses surgical procedures, as well as a patient's perspective on living with this relatively unknown disorder.
Subject(s)
Neurosurgical Procedures/nursing , Perioperative Nursing , Syringomyelia/surgery , Adult , Central Nervous System/anatomy & histology , Central Nervous System/physiology , Humans , Life Style , Male , Middle Aged , Syringomyelia/etiology , Syringomyelia/nursing , Wounds and Injuries/complicationsABSTRACT
The objective of this article is to discover meanings of stroke in elderly, non-institutionalized women survivors. Using a qualitative design, a purposive sample of five elderly women in residential settings was studied. Data were gathered through interviews and analyzed using van Manen's method of thematic analysis. An overarching theme of transition with transformation from stroke was identified. Five sub-themes were identified, including deterioration and decline, loss and helplessness, regret, uncertainty and anxiety about the future, and resiliency. Six interwoven additional themes were also identified. Informants experienced numerous changes as a result of stroke that affected ways women perceived themselves and their lives. Knowing meanings of stroke experiences may enable nurses to view stroke survivors with a wider lens, enabling responsive, appropriate care that embraces humanistic perspectives.
