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1.
Pilot Feasibility Stud ; 9(1): 133, 2023 Jul 27.
Article in English | MEDLINE | ID: mdl-37501203

ABSTRACT

BACKGROUND: This study examined the feasibility and acceptability of the low-intensity mental health support via telehealth-enabled network (LISTEN) intervention, for adults with diabetes, facilitated by diabetes health professionals (HPs). METHODS: LISTEN training. Three HPs participated in three half-day online workshops and applied their learnings during training cases (maximum four). Competency was assessed with a validated tool and achieved 'satisfactory' ratings for three consecutive sessions. LISTEN pilot. A single-group, pre-post study (up to four LISTEN sessions) with online assessments at baseline, post-intervention, and 4-week follow-up. Eligible participants were adults with type 1 or type 2 diabetes, with diabetes distress, but excluded if they had moderate/severe depressive and/or anxiety symptoms. Feasibility was assessed via recruitment and session completion rates. Acceptability was assessed with post-intervention self-report data. Changes in diabetes distress and general emotional well-being from baseline (T1) were explored at post-intervention (T2) and at 4-week follow-up (T3). RESULTS: Two HPs achieved competency (median training case sessions required: 7) and progressed to deliver LISTEN in the pilot study. In the pilot, N = 16 adults (Med [IQR] age: 60 [37-73] years; 13 women) with diabetes participated (median sessions per participant: 2). Twelve participants (75%) completed the post-intervention assessment (T2): 92% endorsed the number of sessions offered as 'just right', 75% felt comfortable talking with the HP, and 67% were satisfied with LISTEN. Perceived limitations were the structured format and narrow scope of problems addressed. Diabetes distress scores were lower post-intervention. CONCLUSIONS: This pilot demonstrates the feasibility of training HPs to deliver LISTEN, and the acceptability and potential benefits of LISTEN for adults with diabetes. The findings highlight adaptations that may enhance the delivery of, and satisfaction with, LISTEN that will be tested in a hybrid type 1 effectiveness-implementation trial.

2.
Trials ; 24(1): 350, 2023 May 23.
Article in English | MEDLINE | ID: mdl-37221629

ABSTRACT

BACKGROUND: Mental health problems are common among people with diabetes. However, evidence-based strategies for the prevention and early intervention of emotional problems in people with diabetes are lacking. Our aim is to assess the real-world effectiveness, cost-effectiveness, and implementation of a Low-Intensity mental health Support via a Telehealth Enabled Network (LISTEN), facilitated by diabetes health professionals (HPs). METHODS: A hybrid type I effectiveness-implementation trial, including a two-arm parallel randomised controlled trial, alongside mixed methods process evaluation. Recruited primarily via the National Diabetes Services Scheme, Australian adults with diabetes (N = 454) will be eligible if they are experiencing elevated diabetes distress. Participants are randomised (1:1 ratio) to LISTEN-a brief, low-intensity mental health support program based on a problem-solving therapy framework and delivered via telehealth (intervention) or usual care (web-based resources about diabetes and emotional health). Data are collected via online assessments at baseline (T0), 8 weeks (T1) and 6 months (T2, primary endpoint) follow-up. The primary outcome is between-group differences in diabetes distress at T2. Secondary outcomes include the immediate (T1) and longer-term (T2) effect of the intervention on psychological distress, general emotional well-being, and coping self-efficacy. A within-trial economic evaluation will be conducted. Implementation outcomes will be assessed using mixed methods, according to the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework. Data collection will include qualitative interviews and field notes. DISCUSSION: It is anticipated that LISTEN will reduce diabetes distress among adults with diabetes. The pragmatic trial results will determine whether LISTEN is effective, cost-effective, and should be implemented at scale. Qualitative findings will be used to refine the intervention and implementation strategies as required. TRIAL REGISTRATION: This trial has been registered with the Australian New Zealand Clinical Trials Registry (ACTRN: ACTRN12622000168752) on 1 February, 2022.


Subject(s)
Diabetes Mellitus , Telemedicine , Humans , Adult , Mental Health , Australia , Adaptation, Psychological , Randomized Controlled Trials as Topic
3.
Diabet Med ; 40(7): e15117, 2023 07.
Article in English | MEDLINE | ID: mdl-37052584

ABSTRACT

AIMS: To test 'Is Insulin Right for Me?', a theory-informed, self-directed, web-based intervention designed to reduce psychological barriers to insulin therapy among adults with type 2 diabetes. Further, to examine resource engagement and associations between minimum engagement and outcomes. METHODS: Double-blind, two-arm randomised controlled trial (1:1), comparing the intervention with freely available online information (control). Eligible participants were Australian adults with type 2 diabetes, taking oral diabetes medications, recruited primarily via national diabetes registry. EXCLUSION CRITERIA: prior use of injectable medicines; being 'very willing' to commence insulin. Data collections were completed online at baseline, 2-week and 6-month follow-up. PRIMARY OUTCOME: negative insulin treatment appraisal scale (ITAS) scores; secondary outcomes: positive ITAS scores and hypothetical willingness to start insulin. ANALYSES: intention-to-treat (ITT); per-protocol (PP) examination of outcomes by engagement. TRIAL REGISTRATION: ACTRN12621000191897. RESULTS: No significant ITT between-arm (intervention: n = 233; control: n = 243) differences were observed in primary (2 weeks: Mdiff [95% CI]: -1.0 [-2.9 to 0.9]; 6 months: -0.01 [-1.9 to 1.9]), or secondary outcomes at either follow-up. There was evidence of lower Negative ITAS scores at 2-week, but not 6-month, follow-up among those with minimum intervention engagement (achieved by 44%) compared to no engagement (-2.7 [-5.1 to -0.3]). CONCLUSIONS: Compared to existing information, 'Is insulin right for me?' did not improve outcomes at either timepoint. Small intervention engagement effects suggest it has potential. Further research is warranted to examine whether effectiveness would be greater in a clinical setting, following timely referral among those for whom insulin is clinically indicated.


Subject(s)
Diabetes Mellitus, Type 2 , Internet-Based Intervention , Humans , Adult , Diabetes Mellitus, Type 2/drug therapy , Insulin/therapeutic use , Australia/epidemiology , Double-Blind Method
4.
Acta Ophthalmol ; 101(7): 766-774, 2023 Nov.
Article in English | MEDLINE | ID: mdl-36959419

ABSTRACT

PURPOSE: Healthcare providers often experience difficulties in discussing depression with adults with visual impairment (VI), obstructing timely referral. The purpose of this study was to examine predictors of routine discussions of depression with adults with VI from the perspective of different healthcare providers from different countries. METHODS: Cross-sectional survey data from Welsh (N = 122), Australian (N = 94) and Dutch (N = 100) healthcare providers, that is eye care practitioners (ECPs) and low-vision care providers (LVCPs), were analysed. Multivariable logistic regression analysis was performed in the Welsh sample to determine predictors for discussing depression. Internal validation was conducted by using a bootstrap method, and the recalibrated model was externally validated in the Australian and Dutch sample. RESULTS: Work experience in eye care services (OR 0.95; 95% confidence interval (CI) 0.92 to 0.99) and perceived barriers (OR 0.95; 95% CI 0.92 to 0.98) was found to predict discussing depression with patients. The area under the curve (AUC) of 0.73 reflected good discrimination of the model. The model showed a slightly better fit in the Australian sample (AUC = 0.77), but a poor fit in the Dutch sample. CONCLUSION: The final prediction model was not generalizable to Dutch healthcare providers. They perceived less barriers in depression management than Welsh and Australian healthcare providers. This could be explained by differences in ECPs and LVCPs roles and responsibilities, increased attention on mental health and differences in organizing health care. Differences between healthcare providers' responsibilities and support needs should be taken into account while creating a facilitating environment to discuss depression.


Subject(s)
Depression , Vision, Low , Adult , Humans , Depression/diagnosis , Depression/epidemiology , Cross-Sectional Studies , Australia/epidemiology , Vision, Low/epidemiology , Health Personnel
5.
BMJ Open ; 12(2): e051524, 2022 Feb 21.
Article in English | MEDLINE | ID: mdl-35190420

ABSTRACT

INTRODUCTION: Psychological barriers to insulin therapy are associated with the delay of clinically indicated treatment intensification for people with type 2 diabetes (T2D), yet few evidence-based interventions exist to address these barriers. We describe the protocol for a randomised controlled trial (RCT) examining the efficacy of a novel, theoretically grounded, psychoeducational, web-based resource designed to reduce psychological barriers to insulin among adults with non-insulin treated T2D: 'Is insulin right for me?'. METHODS AND ANALYSIS: Double-blind, parallel group RCT. A target sample of N=392 participants (n=196/arm) will be randomised (1:1) to 'Is insulin right for me?' (intervention) or widely available online resources (control). Eligible participants include adults (18-75 years), residing in Australia, currently taking oral hypoglycaemic agents to manage T2D. They will be primarily recruited via invitations and reminders from the national diabetes registry (from a purposefully selected sample of N≥12 000). EXCLUSION CRITERIA: experience of self-administered injectable; previously enrolled in pilot RCT; 'very willing' to start insulin as baseline. Outcomes will be assessed via online survey at 2 weeks and 6 months. Primary outcome between-group: difference in mean negative Insulin Treatment Appraisal Scores (ITAS negative) at 2-week and 6-month follow-up. SECONDARY OUTCOMES: between-group differences in mean positive insulin appraisals (ITAS positive) and percentage difference in intention to commence insulin at follow-up time points. All data analyses will be conducted according to the intention-to-treat principle. ETHICS AND DISSEMINATION: Deakin University Human Research Ethics Committee (2020-073). Dissemination via peer-reviewed journals, conferences and a plain-language summary. TRIAL REGISTRATION NUMBER: ACTRN12621000191897; Australian and New Zealand Clinical Trials Registry.


Subject(s)
Diabetes Mellitus, Type 2 , Internet-Based Intervention , Adult , Australia , Diabetes Mellitus, Type 2/drug therapy , Humans , Insulin/therapeutic use , Randomized Controlled Trials as Topic , Treatment Outcome
6.
Diabet Med ; 39(3): e14759, 2022 03.
Article in English | MEDLINE | ID: mdl-34865232

ABSTRACT

AIMS: Acceptable and accessible interventions are needed to address 'psychological insulin resistance', which is a common barrier to insulin uptake among adults with type 2 diabetes (T2D). Our aim was to test the feasibility of a randomised controlled trial (RCT) study design and acceptability of a theoretically grounded, psycho-educational, web-based resource to reduce negative insulin appraisals among adults with T2D. METHODS: A double-blinded, parallel group, two-arm pilot RCT (1:1), comparing intervention with active control (existing online information about insulin). Eligible participants were Australian adults with T2D, taking oral diabetes medications. EXCLUSION CRITERIA: prior use of injectable medicines; being 'very willing' to commence insulin. Primary outcomes: study feasibility (recruitment ease, protocol fulfilment, attrition, data completeness); secondary outcomes: intervention acceptability (intervention engagement, user feedback) and likely efficacy (negative Insulin Treatment Appraisal Scale [ITAS] scores at follow-up). Online surveys completed at baseline and 2 weeks. RESULTS: During 4-week recruitment, 76 people expressed interest: 51 eligible and 35 enrolled (intervention = 17, control = 18; median[interquartile range] age = 62[53, 69] years; 17 women). Protocol fulfilment achieved by 26 (74%) participants (n = 13 per arm), with low participant attrition (n = 6, 17%). Intervention acceptability was high (>80% endorsement, except format preference = 60%). ITAS negative scores differed between-groups at follow-up (M diff = -6.5, 95% confidence interval: -10.7 to -2.4), favouring the intervention. CONCLUSIONS: This novel web-based resource ("Is insulin right for me?") is acceptable and associated with a likely reduction in negative insulin appraisals, relative to existing resources. This pilot shows the study design is feasible and supports conduct of a fully powered RCT.


Subject(s)
Diabetes Mellitus, Type 2/drug therapy , Insulin/therapeutic use , Internet-Based Intervention , Patient Acceptance of Health Care/psychology , Aged , Australia , Double-Blind Method , Feasibility Studies , Female , Humans , Male , Middle Aged , Pilot Projects , Surveys and Questionnaires
7.
Diabet Med ; 39(2): e14681, 2022 02.
Article in English | MEDLINE | ID: mdl-34465005

ABSTRACT

AIMS: This qualitative study aims to explore beliefs, attitudes and experiences of injectable glucagon-like-peptide-1 receptor agonists (GLP-1RAs) use and discontinuation, as well as attitudes to further injectable treatment intensification, among adults with type 2 diabetes (T2D). METHODS: Nineteen in-depth semi-structured interviews lasting (mean ± standard deviation) 45 ± 18 min were conducted, face-to-face (n = 14) or via telephone (n = 5). Transcripts were analysed using inductive template analyses. Eligible participants were English-speaking adults with T2D who had recently initiated (≤3 years) GLP-1RA treatment. RESULTS: Participants were aged 28-72 years, who predominantly lived in metropolitan areas (n = 15), and had an experience of daily (n = 11) and/or once-weekly (n = 13) GLP-1RA formulations. Six participants had discontinued treatment and seven had trialled two or more formulations. Expectations and experiences of GLP-1RA were related to the perceived: (1) symbolism and stigma of injectable diabetes treatment; (2) ease of injectable administration and device preferences; (3) treatment convenience and social impact; (4) treatment efficacy and benefits, and; (5) negative treatment side effects. Some participants reported increased receptiveness to insulin therapy following their GLP-1RA experience, others emphasised unique concerns about insulin beyond injectable administration. CONCLUSIONS: This study provides a novel understanding of expectations and experience of non-insulin injectables among Australian adults with T2D. Our data suggest expectations may be informed by attitudes to insulin therapy, while perceived treatment benefits (e.g. weight-related benefits, administration frequency) may motivate uptake and ongoing use despite concerns. Experience of GLP-1RA injections may impact receptiveness to future insulin use.


Subject(s)
Diabetes Mellitus, Type 2/drug therapy , Glucagon-Like Peptide-1 Receptor/agonists , Insulin/administration & dosage , Qualitative Research , Adult , Aged , Diabetes Mellitus, Type 2/blood , Female , Glycated Hemoglobin/metabolism , Humans , Hypoglycemic Agents/administration & dosage , Injections , Male , Middle Aged
8.
BMJ Open ; 11(9): e045853, 2021 09 24.
Article in English | MEDLINE | ID: mdl-34561252

ABSTRACT

OBJECTIVE: To develop a theory and evidence-based web intervention to reduce psychological barriers towards insulin therapy among adults with non-insulin-treated type 2 diabetes (T2D). METHODS: Salient psychological barriers towards insulin were identified from the literature and classified using the Theoretical Domains Framework (TDF). Relevant TDF domains were mapped to evidence-based behaviour change techniques (BCTs), which informed the content for each barrier. Acceptability was explored using cognitive debriefing interviews (n=6 adults with T2D). RESULTS: 'Is Insulin Right for Me' addresses eight barriers, phrased as common questions: Does insulin mean my diabetes is more serious? Do insulin injections cause complications? Is it my fault I need to inject insulin? Will I gain weight? Will injecting hurt? What about hypos? Will injecting insulin be a burden? What will others think of me? BCTs, including persuasive communication and modelling/demonstration, were delivered using appropriate methods (eg, demonstration of the injection process). Participant suggestions for improvement included clear and direct messages, normalising insulin and avoiding confronting images. CONCLUSIONS: 'Is Insulin Right for Me' is the first theory and evidence-based, web intervention designed to reduce psychological barriers towards insulin therapy for adults with T2D. Evaluation is needed to determine its impact on negative appraisals and receptiveness towards insulin.


Subject(s)
Diabetes Mellitus, Type 2 , Adult , Behavior Therapy , Diabetes Mellitus, Type 2/drug therapy , Humans , Insulin , Internet , Psychological Theory
9.
Article in English | MEDLINE | ID: mdl-36994350

ABSTRACT

The aim of this study was to take 'snapshots' of how people with diabetes are feeling emotionally during the coronavirus disease 2019 (COVID-19) pandemic. Three 'snapshot' surveys were conducted during May 2020, August 2020 and April 2021, each over a two-week period. Adults (≥18 years) with diabetes calling the Australian Government's National Diabetes Services Scheme Helpline (NDSS) were invited to participate. Those who accepted were asked three questions sourced/adapted from the Problem Areas in Diabetes scale. Responses were recorded on a 5-point scale (0='not a problem', 4='serious problem'). Of interest were scores ≥2, indicating this was at least a 'moderate problem'. The survey was administered by NDSS Helpline staff via telephone. Basic demographic and clinical data were collected. In total, 1,278 surveys were completed over the three 'snapshots' (1st N=449; 2nd N=414; 3rd N=415). Participants were aged (median[IQR]) 62[47,72] years, 56% were women, and 57% had type 2 diabetes. At the 3rd 'snapshot', 21% had received a COVID-19 vaccine. Our findings show that feeling at least moderately 'burned out' by the constant effort needed to manage diabetes is salient, and consistently experienced by adults with diabetes calling the NDSS Helpline at three timepoints during the coronavirus pandemic. Those who participated in the 3rd 'snapshot' survey were less likely to report that feeling 'alone with their diabetes' or 'worrying about their diabetes because of the COVID-19 pandemic' were moderate or serious problems for them. Except for younger adults, findings indicate that the easing of restrictions may mitigate some of the effects of the pandemic on diabetes-specific emotional problems, including feeling 'burned out', 'alone' with diabetes, and/or worried about diabetes due to COVID-19. Prospective data are needed to improve our understanding of the emotional impact of COVID-19 on people with diabetes and to inform when and how to target support for those who need it most.

10.
Trials ; 19(1): 650, 2018 Nov 26.
Article in English | MEDLINE | ID: mdl-30477548

ABSTRACT

BACKGROUND: Older adults in residential aged care facilities have unnecessarily high levels of vision impairment (VI) which are largely treatable or correctable. However, no current comprehensive eye health service model exists in this setting in Australia. We aimed to determine the clinical, person-centered, and economic effectiveness of a novel eye care model, the Residential Ocular Care (ROC). METHODS/DESIGN: This protocol describes a multicentered, prospective, randomized controlled trial. A total of 395 participants with distance vision < 6/12 (0.30 LogMAR) and/or near vision N8 (1.00 M) or worse will be recruited from 38 urban and rural aged care facilities across Victoria, Australia. Aged care facilities will be randomized (1:1) to one of two parallel groups. Participants in the ROC group will receive a comprehensive and tailored eye care pathway that includes, as necessary, refraction and spectacle provision, cataract surgery, low vision rehabilitation, and/or a referral to an ophthalmologist for funded treatment. Usual care participants will be referred for an evaluation to the eye care service associated with the facility or an eye care provider of their choice. The primary outcome will be presenting near and distance vision assessed at the two- and six-month follow-up visits, post baseline. Secondary outcomes will include vision-specific quality of life, mobility, falls, depression, and eye care utilization at two and six months. An incremental cost-effectiveness analysis will also be undertaken. DISCUSSION: The ROC study is the first multicentered, prospective, customized, and cluster randomized controlled trial in Australia to determine the effectiveness of a comprehensive and tailored eye care model for people residing in aged care facilities. Results from this trial will assist health and social care planners in implementing similar innovative models of care for this growing segment of the population in Australia and elsewhere. TRIAL REGISTRATION: Australian and New Zealand Clinical Trials Registry, ACTRN12615000587505 . Registered on 4 June 2015 - retrospectively registered.


Subject(s)
Delivery of Health Care, Integrated , Eye/physiopathology , Homes for the Aged , Nursing Homes , Ophthalmology/methods , Vision Disorders/therapy , Vision, Ocular , Age Factors , Cost-Benefit Analysis , Diagnostic Techniques, Ophthalmological , Health Care Costs , Health Status , Homes for the Aged/economics , Humans , Multicenter Studies as Topic , Nursing Homes/economics , Ophthalmology/economics , Prospective Studies , Randomized Controlled Trials as Topic , Time Factors , Treatment Outcome , Victoria , Vision Disorders/diagnosis , Vision Disorders/economics , Vision Disorders/physiopathology
11.
Invest Ophthalmol Vis Sci ; 57(7): 3032-8, 2016 06 01.
Article in English | MEDLINE | ID: mdl-27281268

ABSTRACT

PURPOSE: To investigate the mediating role of coping self-efficacy (CSE) between two types of illness cognitions (i.e., acceptance and helplessness) and depressive symptoms in persons with low vision. METHODS: This was a single-group, cross-sectional study. Patients with visual acuity < 6/12 in the better eye and at least minimal depressive symptoms (≥5 on the Patient Health Questionnaire-9 [PHQ-9]) were recruited from vision rehabilitation services and participated in telephone-administered structured interviews at one time point. Measures were the PHQ-9, CSE Scale, and Illness Cognition Questionnaire. Structural equation modeling (SEM) devised the causal flow of illness cognitions and their observed indirect effects on depressive symptoms via the CSE mediators: problem focused, emotion focused, and social support. RESULTS: The study comprised 163 patients (mean age 62 years; 61% female), most with age-related macular degeneration (26%) and moderate vision impairment (44%, <6/18-6/60). Structural equation modeling indices indicated a perfect fit (χ2 < 0.001, P = 1.00), accounting for 55% of the variance in depressive symptoms. Lower levels of acceptance and higher levels of helplessness illness cognitions were associated with lower self-efficacy in problem-focused coping (ß = 0.38, P < 0.001, ß = -0.28, P < 0.01, respectively), which in turn was associated with greater depressive symptom severity (ß = -0.54, P < 0.001). CONCLUSIONS: Lack of acceptance and greater helplessness relating to low vision led to a lack of perceived capability to engage in problem-focused coping, which in turn promoted depressive symptoms. Third-wave cognitive-behavioral treatments that focus on acceptance may be efficacious in this population.


Subject(s)
Adaptation, Psychological , Cognition/physiology , Depressive Disorder/psychology , Vision, Low/psychology , Adult , Aged , Aged, 80 and over , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Visual Acuity
13.
Aust J Prim Health ; 21(2): 169-75, 2015.
Article in English | MEDLINE | ID: mdl-26509203

ABSTRACT

Adults with vision impairment commonly experience depression; however, depression often remains undetected and therefore untreated in this group. Using a prospective longitudinal design, the aim of this study was to determine the rate of uptake for a referral to a general practitioner (GP), in vision-impaired adults, who were screened for depression in low vision rehabilitation and eye-care settings. Fifty-seven vision-impaired adults (aged ≥ 18 years) were recruited from low vision rehabilitation centres across Australia and the Royal Victorian Eye and Ear Hospital, Melbourne, Victoria, between June 2010 and May 2012. Participants screened positive for depressive symptoms and were referred to their GP for follow up. Telephone assessments took place at baseline, 3 and 6 months to determine uptake of a GP referral and changes in depressive symptoms over 6 months. Forty-six per cent of participants followed through with the GP referral. A desire for emotional support and stigma towards seeking support from a psychologist were significantly associated with uptake (both P < 0.05). GPs were more likely to recommend anti-depressant medication compared with a psychologist consultation (69% v. 54%) and patients themselves were more likely to take anti-depressant medication (94% v. 14% who saw a psychologist). Depressive symptoms decreased significantly over 6 months for those who followed through with a GP referral (baseline M = 10.04, s.d. = 5.76 v. 6-months M = 6.20, s.d. = 3.38; z = -2.26, P = 0.02) but not for those who did not use the GP referral (z = -1.92, P = 0.55). This method of referral to a GP following depression screening may provide an effective pathway to detect and manage depression in vision-impaired adults.


Subject(s)
Depression/therapy , General Practice , Referral and Consultation/statistics & numerical data , Visually Impaired Persons/psychology , Aged , Depression/diagnosis , Female , Humans , Longitudinal Studies , Male , Middle Aged , Patient Satisfaction , Practice Patterns, Physicians'/statistics & numerical data , Prospective Studies , Surveys and Questionnaires , Victoria
14.
Invest Ophthalmol Vis Sci ; 56(4): 2416-22, 2015 Apr.
Article in English | MEDLINE | ID: mdl-26066595

ABSTRACT

PURPOSE: To determine the longitudinal impact of specific coping strategies on vision-related quality of life (VRQoL) in patients with low vision. METHODS: This was a single-group, longitudinal study utilizing telephone-administered interviews conducted at baseline and at 3 and 6 months with patients (visual acuity < 6/12 in the better eye) recruited from low vision services. The Coping Strategy Indicator (CSI) assessed three strategies used specifically in relation to vision-related problems: avoidant coping, problem-solving coping, and seeking social support. Vision-related quality of life was assessed using the Impact of Vision Impairment (IVI) questionnaire, which comprises two domains: vision-related functioning and vision-related emotional well-being. We used multivariable mixed linear regression including time as an independent variable to assess change in VRQoL. RESULTS: The study comprised 162 patients (mean age = 69.8 years, 66% female), most with age-related macular degeneration (42%) and moderate vision impairment (41%; <6/18-6/60). Multivariable mixed linear regression showed that avoidant coping was a significant determinant of decline in vision-related functioning (ß = -0.11, 95% confidence interval [CI] -0.22 to -0.01, P = 0.036) and emotional well-being (ß = -0.29, 95% CI -0.45 to -0.13, P < 0.001) over a 6-month period. CONCLUSIONS: Our findings showed that avoidant coping has a detrimental impact on VRQoL over time. Low vision specialists should be aware of their patients' coping strategies and encourage them to engage in active rather than avoidant coping to deal with the impact of their vision impairment.


Subject(s)
Quality of Life/psychology , Vision, Low/psychology , Adaptation, Psychological , Aged , Female , Follow-Up Studies , Humans , Longitudinal Studies , Macular Degeneration/complications , Male , Prospective Studies , Surveys and Questionnaires , Vision Disorders/complications , Vision, Low/etiology , Visual Acuity
15.
Patient Educ Couns ; 98(5): 553-64, 2015 May.
Article in English | MEDLINE | ID: mdl-25670052

ABSTRACT

OBJECTIVE: To evaluate the effectiveness of problem-solving interventions on psychosocial outcomes in vision impaired adults. METHODS: A systematic search of randomised controlled trials (RCTs), published between 1990 and 2013, that investigated the impact of problem-solving interventions on depressive symptoms, emotional distress, quality of life (QoL) and functioning was conducted. Two reviewers independently selected and appraised study quality. Data permitting, intervention effects were statistically pooled and meta-analyses were performed, otherwise summarised descriptively. RESULTS: Eleven studies (reporting on eight trials) met inclusion criteria. Pooled analysis showed problem-solving interventions improved vision-related functioning (standardised mean change [SMC]: 0.15; 95% CI: 0.04-0.27) and emotional distress (SMC: -0.36; 95% CI: -0.54 to -0.19). There was no evidence to support improvements in depressive symptoms (SMC: -0.27, 95% CI: -0.66 to 0.12) and insufficient evidence to determine the effectiveness of problem-solving interventions on QoL. CONCLUSION: The small number of well-designed studies and narrow inclusion criteria limit the conclusions drawn from this review. However, problem-solving skills may be important for nurturing daily functioning and reducing emotional distress for adults with vision impairment. PRACTICE IMPLICATIONS: Given the empirical support for the importance of effective problem-solving skills in managing chronic illness, more well-designed RCTs are needed with diverse vision impaired samples.


Subject(s)
Adaptation, Psychological , Quality of Life/psychology , Social Support , Vision, Low/psychology , Humans , Problem Solving , Randomized Controlled Trials as Topic , Social Adjustment , Stress, Psychological/psychology
16.
Australas J Ageing ; 34(4): 229-34, 2015 Dec.
Article in English | MEDLINE | ID: mdl-24854153

ABSTRACT

AIM: To investigate characteristics associated with screening positive for depressive symptoms among older adults accessing low-vision rehabilitation and eye-care services and to determine client acceptability of depression screening using the Patient Health Questionnaire-2 (PHQ-2) in these settings. METHODS: One-hundred and twenty-four older adults (mean = 77.02 years, SD = 9.12) attending low-vision rehabilitation and eye-care services across Australia were screened for depression and invited to complete a telephone-administered questionnaire to determine characteristics associated with depressive symptoms and client acceptability of screening in these settings. RESULTS: Thirty-seven per cent (n = 46/124) of participants screened positive for depressive symptoms, and the majority considered the new depression screening method to be a 'good idea' in vision services (85%). Severe vision loss (<6/60 in the better eye) was associated with an increased odds of screening positive for depressive symptoms (odds ratio 2.37; 95% confidence interval 1.08-6.70) even after adjusting for potential confounders. Participants who screened positive had a preference for 'talking' therapy or a combination of medication and 'talking therapy' delivered within their own home (73%) or via telephone (67%). CONCLUSION: The PHQ-2 appears to be an acceptable method for depression screening in eye-care settings among older adults. Targeted interventions that incorporate home-based or telephone delivered therapy sessions may improve outcomes for depression in this group.


Subject(s)
Delivery of Health Care, Integrated , Depression/diagnosis , Mass Screening/methods , Ophthalmology , Patient Acceptance of Health Care , Psychiatric Status Rating Scales , Vision, Low/rehabilitation , Vision, Ocular , Aged , Aged, 80 and over , Antidepressive Agents/therapeutic use , Australia/epidemiology , Combined Modality Therapy , Depression/epidemiology , Depression/psychology , Depression/therapy , Female , Health Care Surveys , Home Care Services , Humans , Longitudinal Studies , Male , Middle Aged , Patient Preference , Predictive Value of Tests , Prospective Studies , Psychotherapy/methods , Surveys and Questionnaires , Vision, Low/diagnosis , Vision, Low/epidemiology , Vision, Low/physiopathology , Vision, Low/psychology
17.
Asia Pac J Ophthalmol (Phila) ; 3(5): 286-93, 2014.
Article in English | MEDLINE | ID: mdl-26107915

ABSTRACT

PURPOSE: The objective of this study was to identify the prevalence and determinants of desire for and use of psychological support in patients with low vision. DESIGN: The study was cross-sectional, utilizing telephone-administered interviews. METHODS: Patients were recruited from Vision Australia and the Royal Victorian Eye and Ear Hospital with visual acuity of less than 6/12 in the better eye. Measures were the 9-item Patient Health Questionnaire, Stigma Scale for Receiving Psychological Help, Brief Illness Perception Questionnaire, and Impact of Vision Impairment Questionnaire. RESULTS: Of the total 161 participants (mean ± SD, 69.94 ± 15.76 years; 67% female), 63% desired psychological support, but only 20% reported ever receiving this. Higher levels of depressive symptoms and poorer coping in relation to vision impairment were significantly associated with desire for psychological support. Younger age, experience/s of depression, and beliefs about depression and its treatment were associated with use of professional support. CONCLUSIONS: Many patients with low vision desired psychological support but were not receiving this, suggesting barriers to receipt of care. This highlights the need for early screening of emotional difficulties, depression education, and easy access to psychological support within low vision services.

18.
Invest Ophthalmol Vis Sci ; 54(12): 7431-8, 2013 Nov 13.
Article in English | MEDLINE | ID: mdl-24150757

ABSTRACT

PURPOSE: To determine the relative importance and associated risk factors of vision-specific distress and depressive symptoms in people with visual impairments. METHODS: In this cross-sectional study, 162 adult patients with visual acuity less than 6/12 were interviewed using telephone-administered questionnaires. Vision-specific distress was assessed with the emotional well-being scale of the Impact of Vision Impairment Questionnaire. Depressive symptoms were assessed with the Patient Health Questionnaire-9. Other measures including vision-specific functioning, coping, and social support were also assessed. Multiple regression and commonality analysis were used to determine the relative contribution of factors explaining variance in vision-specific distress and depressive symptoms. RESULTS: Vision-specific distress and depressive symptoms were strongly associated. Vision-specific functioning (ßs = 0.47, P < 0.001), avoidant coping (ßs = -0.32, P < 0.001), social coping efficacy (ßs = -0.17, P = 0.001), and depressive symptoms (ßs = 0.18, P = 0.006) were significant determinants of vision-specific distress. Vision-specific functioning accounted for 37.7% of the unique variance in this model. Vision-specific distress was an important risk factor for depression, accounting for 36.6% of the unique variance in depressive symptoms. CONCLUSIONS: Vision-specific distress is related to a person's ability to manage the practical and social challenges of vision impairment. Further work is required to distinguish vision-specific distress and depression and to examine what interventions are best to target vision-specific distress.


Subject(s)
Adaptation, Psychological , Depression/diagnosis , Surveys and Questionnaires , Vision, Low/complications , Visual Acuity , Adult , Aged , Aged, 80 and over , Cross-Sectional Studies , Depression/epidemiology , Depression/etiology , Female , Humans , Incidence , Male , Middle Aged , Risk Factors , Victoria/epidemiology , Vision, Low/epidemiology , Vision, Low/psychology
19.
Ophthalmic Epidemiol ; 20(5): 321-9, 2013 Oct.
Article in English | MEDLINE | ID: mdl-24070104

ABSTRACT

PURPOSE: Depression is a common problem among people with visual impairment and contributes to functional decline. This article presents a study protocol to evaluate a new model of care for those patients with depressive symptoms in which psychological treatment is integrated into low vision rehabilitation services. Low vision staff will be trained to deliver "problem solving therapy for primary care" (PST-PC), an effective psychological treatment developed specifically for delivery by non-mental health care staff. PST-PC is delivered in 8 weekly telephone sessions of 30-45 minutes duration and 4 monthly maintenance sessions. We predict this new integrated model of care will significantly reduce depressive symptoms and improve the quality of life for people with visual impairment. METHODS AND DESIGN: A randomized controlled trial of PST-PC will be implemented nationally across low vision rehabilitation services provided by Vision Australia. Clients who screen positive for depressive symptoms and meet study criteria will be randomized to receive PST-PC or usual care, consisting of a referral to their general practitioner for more detailed assessment and treatment. Outcome measures include depressive symptoms and behaviors, quality of life, coping and psychological adjustment to visual impairment. Masked assessments will take place pre- and post-intervention as well as at 6- and 12-month follow-up. CONCLUSION: We anticipate that this innovative service delivery model will lead to sustained improvements in clients' quality of life in a cost effective manner and provide an innovative service delivery model suitable for other health care areas in which depression is co-morbid.


Subject(s)
Delivery of Health Care, Integrated/organization & administration , Depressive Disorder/therapy , Models, Organizational , Vision, Low/rehabilitation , Visually Impaired Persons/rehabilitation , Adaptation, Psychological , Humans , Quality of Life , Referral and Consultation
20.
Clin Exp Ophthalmol ; 40(9): 840-8, 2012 Dec.
Article in English | MEDLINE | ID: mdl-22394378

ABSTRACT

BACKGROUND: To describe the integration of depression screening training into the professional development programme for low vision rehabilitation staff and report on staff evaluation of this training. DESIGN: Pre-post intervention study, in a single population of low vision rehabilitation staff. PARTICIPANTS: Three hundred and thirty-six staff from Australia's largest low vision rehabilitation organization, Vision Australia. METHODS: Staff completed the depression screening and referral training as part of a wider professional development programme. A pre-post-training questionnaire was administered to all staff. MAIN OUTCOME MEASURES: Descriptive and non-parametric statistics were used to determine differences in self-reported knowledge, confidence, barriers to recognition and management of depression between baseline and post training. RESULTS: One hundred and seventy-two participants completed both questionnaires. Following training, participants reported an increased knowledge of depression, were more likely to respond to depression in their clients and reported to be more confident in managing depression (P < 0.05). A range of barriers were identified including issues related to the client (e.g. acceptance of referrals); practitioners (e.g. skill, role); availability and accessibility of psychological services; time and contact constraints; and environmental barriers (e.g. lack of privacy). Additional training incorporating more active and 'hands-on' sessions are likely to be required. CONCLUSIONS: This training is a promising first step in integrating a depression screening tool into low vision rehabilitation practice. Further work is needed to determine the barriers and facilitators to implementation in practice and to assess clients' acceptability and outcomes.


Subject(s)
Depressive Disorder/diagnosis , Education, Professional/organization & administration , Health Personnel/education , Program Development/standards , Vision, Low/rehabilitation , Visually Impaired Persons/rehabilitation , Adult , Aged , Clinical Competence , Depressive Disorder/rehabilitation , Female , Humans , Male , Mass Screening , Middle Aged , Referral and Consultation , Surveys and Questionnaires , Young Adult
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