ABSTRACT
The purpose of this study was to understand the self-identity transformation in women with adolescent autistic children. In this study, in-depth interviews were used to collect data. Eight mothers were recruited who had autistic children aged 13-21 and who were those children's primary caregivers. Each mother was interviewed from one to four times. Four themes emerged through these mothers rethinking their connection with others during middle age. These included (1) relationships revisited; (2) self-awareness inspiration; (3) reconnection constructed; and (4) new self-identity formed. Results are hoped to provide valuable information for health professionals to understand how mothers of autistic adolescents connect with others and with their self-identity during middle age.
Subject(s)
Adaptation, Psychological , Attitude to Health , Autistic Disorder/psychology , Human Development , Mothers/psychology , Self Concept , Adolescent , Adult , Cost of Illness , Family Health , Female , Humans , Interpersonal Relations , Life Change Events , Longitudinal Studies , Maternal Behavior , Narration , Nurse's Role , Nursing Methodology Research , Psychology, Adolescent , Social Support , Surveys and Questionnaires , Taiwan , WorkloadABSTRACT
The purpose of this study was to analyze the processes by which support groups assist mothers with autistic children, in order to understand how mothers adapt themselves and reestablish relationships within the environment of the support group. In this qualitative study, eight mothers were recruited to form a support group. The group met for 10 sessions, each lasting 90 minutes. All the sessions were recorded in full on both audio and video tape. The data were analysed by the content analysis method. The results were used to analyze the process of change within mothers who took care of their autistic children, including transitions involving the termination of a fond dream, emerging from confusion, finding hope and seeking help; facing the family--reversing the course of events and taking responsibility; facing society--respecting life. The results show the changes in mothers caused by the group experience and the effects on them of interaction between themselves and their spouse, relatives and the autistic child since the time of the child's birth. The results should help health workers to gain a deeper understanding of mothers with autistic children.
