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1.
Soc Sci Med ; 291: 112928, 2021 12.
Article in English | MEDLINE | ID: mdl-32204948

ABSTRACT

Within palliative care, clear and open communication about death is encouraged. Euphemisms are discouraged as threats to promoting clear understanding of the prognosis; to opening communication about what a good death means to individual patients and families; and to fostering collaborative planning aimed at achieving this 'good death'. Principles of patient-centred and culturally competent care, however, which reflect trends of individualisation, plurality and multiculturalism that are characteristic of late modernity, encourage respect for and support of patients' and families' preferences. These may include wishes to avoid open communication, preferences for euphemisms, and definitions of a 'good death' that vary from the practitioner's, and within families. The aim of this study was to examine how physicians navigate these competing priorities. Analysis is based on interviews with 23 doctors, ranging in experience from medical students through to senior palliative care specialists, and eight recorded observations of palliative care multidisciplinary team meetings with 52 clinicians collected in 2017 at two hospitals in one Australian metropolitan area. Findings show that synonyms familiar to clinicians are often used to communicate prognoses in multidisciplinary meetings. In communication with patients and families, doctors rely on emotional and cultural cues to decipher the preferred terminology and response. Drawing on a late modern re-imagination of emotion management, we conceptualise the work performed in this context as emotionally reflexive labour. These findings suggest that blanket protocols for direct communication overlook the complexity of end-of-life communication in an era where a 'good death' is understood to be culturally relative.


Subject(s)
Communication , Terminal Care , Australia , Death , Humans , Palliative Care , Qualitative Research
2.
Pediatr Dent ; 37(1): 51-5, 2015.
Article in English | MEDLINE | ID: mdl-25685974

ABSTRACT

PURPOSE: To determine if there was an association between the type of dental procedure being performed on children and parental desire to be present in the operatory. METHODS: Parents (N=339) whose children had dental appointments at a university pediatric dental clinic or affiliated practices in Southern Nevada completed a survey. Parents identified attitudes/preferences associated with five commonly conducted pediatric dental procedural scenarios. Data were analyzed using chi-square tests (P=.05). RESULTS: Most respondents (N=339) were female (N=248) and/or Hispanic (N=204), had a household income of less than $50,000 annually (N=251), and a high school education. The primary reason (78 percent) parents wanted to be present during their child's dental treatment was comfort. Most parents wanted to observe exams/X-rays (70 percent), sedation procedures (69 percent), fillings and crowns (66 percent), extractions (64 percent), and physical restraint (61 percent). Only 38 percent of parents would be content with the dentist unilaterally deciding about their presence in the operatory. CONCLUSIONS: Parents in this study expressed a preference to remain with their child during any dental treatment. Practitioners are encouraged to consider their presence customary and establish office policies and protocols that beneficially involve parents in the pediatric patient's care.


Subject(s)
Attitude to Health , Consumer Behavior , Dental Care for Children/psychology , Dental Offices , Parents/psychology , Adult , Child , Child, Preschool , Conscious Sedation/psychology , Crowns/psychology , Dental Restoration, Permanent/psychology , Dentists , Educational Status , Female , Hispanic or Latino/psychology , Humans , Income , Longitudinal Studies , Male , Mothers/psychology , Parent-Child Relations , Professional-Family Relations , Radiography, Dental/psychology , Restraint, Physical/psychology , Tooth Extraction/psychology
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