ABSTRACT
Background: Appropriate supports and instructional practices contribute to the development of self-determination. Also, research shows that the promotion of skills related to self-determination has been linked to the achievement of desired outcomes over the different life stages. Advances in self-determination require the development of assessment instruments because there is a reciprocal relationship between assessment and instruction. The purpose of this paper is to provide a description of the AUTODDIS Scale, along with evidence of its reliability and external validity. Method: A sample of 541 people with intellectual disabilities aged from 11 to 40 was used to validate the scale. Results: The reliability results indicate that the AUTODDIS Scale shows high internal consistency. The total score and subscale scores indicate moderate inter-rater reliability. The scores were also moderately to highly associated with other related measures of self-determination and quality of life (QoL). Conclusion: Our results demonstrate that consistent and valid information can be obtained from the AUTODDIS Scale.
ABSTRACT
Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on "family quality of life" or "quality of family life" in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0-6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.
Subject(s)
Art , Disabled Persons , Child , Child, Preschool , Family , Humans , Infant , Infant, Newborn , Quality of LifeABSTRACT
BACKGROUND: Advances in international studies on self-determination point out the need for continuous efforts to deepen its understanding and implications. The aim of this study is to obtain a comprehensive pool of items to operationalize the self-determination construct that serves as a starting point towards a valid instrument based on the reports of others. METHOD: We conducted a Delphi study of three rounds involving three panels of experts: ten professionals, five people with intellectual disability and six relatives of people with intellectual disability. Data analysis required both qualitative and quantitative methods. RESULTS: The initial pool of 131 items was refined through the different rounds to a final set composed of 115-some were removed and new ones were added. Content-based evidence is provided. In this study, the present authors generated a potential valid pool of items to develop a new measurement tool based on the latest advances on the self-determination theoretical framework. CONCLUSIONS: The implications for future research focus on strengthening the knowledge of self-determination.
Subject(s)
Consensus , Family , Health Knowledge, Attitudes, Practice , Health Personnel , Intellectual Disability , Personal Autonomy , Adult , Aged , Attitude of Health Personnel , Delphi Technique , Female , Humans , Male , Middle Aged , Young AdultABSTRACT
No disponible
Subject(s)
Humans , Female , Middle Aged , Infections/drug therapy , Ulcer/complications , Ulcer/drug therapy , Amoxicillin/therapeutic use , Leukocytosis/complications , Leukocytosis/diagnosis , Leukocytosis/drug therapy , Levofloxacin/therapeutic use , Ecthyma/complications , Ecthyma/drug therapy , Splenectomy/methods , Hand , Hand, Foot and Mouth Disease/complications , Hand, Foot and Mouth Disease/drug therapy , Biopsy/methods , Pseudomonas aeruginosa , Pseudomonas aeruginosa/isolation & purificationSubject(s)
Foot Ulcer/drug therapy , Postoperative Complications/drug therapy , Splenectomy , Amoxicillin/therapeutic use , Anti-Bacterial Agents/therapeutic use , Diagnosis, Differential , Female , Foot Ulcer/microbiology , Humans , Levofloxacin/therapeutic use , Middle Aged , Postoperative Complications/microbiology , Pseudomonas Infections/drug therapy , Pseudomonas Infections/etiology , Pyoderma Gangrenosum/drug therapy , Pyoderma Gangrenosum/etiologyABSTRACT
The Supports Intensity Scale (SIS) is used to determine the profile and intensity of the supports needed by a person to participate successfully in major life activities. With its publication into 13 languages, a need has arisen to document its reliability and validity across language and cultural groups. Here we explain the adaptation and the validation process of the SIS on a Spanish sample of 885 people with intellectual disability. Results of the study are discussed in terms of the reliability and validity of the SIS on the Spanish sample and its efficacy for multiple uses in Spain.
