[Patient education in cystic fibrosis: what skills for the patient?]. / L'éducation thérapeutique dans la mucoviscidose: quelles compétences pour le patient? Présentation du référentiel des compétences adulte-enfant.

INTRODUCTION: In France since 2002 two major changes have occurred in the management of patients with cystic fibrosis: systematic neonatal screening and the establishment of specialised CF centres. One of the roles of the CF centres is therapeutic education of the patients and their families. METHODS: The proposed educational approach consists of 4 steps: an educational diagnosis to assess the patient; an educational contract based on the capabilities and objectives previously identified by the team; implementation of the education programme which organises the teaching of the patient and, finally, evaluation. RESULTS: With the goal of facilitating the establishment of patient education in the CF centres we present the learning objectives for patients suffering from cystic fibrosis, based on the capabilities that the patients need to acquire in the course of the education programme. CONCLUSION: Based on the capabilities and learning objectives of the patients the working party are developing valid tools for the instructor/carer. They present the outcomes of the meetings, the educational principles of implementation and the respective roles of the patient and the carer.