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J Pediatr Urol ; 14(3): 242.e1-242.e5, 2018 06.
Article in English | MEDLINE | ID: mdl-29559274

ABSTRACT

INTRODUCTION: Congenitalism is an emerging field that recognizes the complex needs of adult patients with congenital urologic issues. Despite the onset of transitional care clinics, these patients remain difficult to care for due to resource availability, insurance coverage, and multi-disciplinary needs. OBJECTIVE: The current study sought to characterize practice patterns and opinions regarding care for urologic transition patients. DESIGN: An anonymous 20-question survey was sent to members of the Society of Pediatric Urology listserv. Questions pertained to physician background, practice demographics, clinic structure, and quality. Five-point Likert scales were used to assess quality markers (5 = most/best). Data were analyzed in R, and subgroup analyses were performed. Subgroups included presence of formal transition clinic, city size, and practice type. RESULTS: The response rate was 53%, with 124 respondents. A formal transition clinic was reported by 32%. Those with formal clinics reported higher enthusiasm (3.9 vs 3.4, P < 0.01) for care of these patients and believed they provided better care compared to other institutions (P < 0.001) Summart Table. There was no significant difference in perceived quality between respondents in academic vs other practices. There was a small trend towards higher-quality ratings in smaller cities (3.8 vs 3.5, P = 0.13). The majority (64%) felt that transition patients are best cared for by specialized adult providers; however, these formalized clinics found to be staffed primarily by pediatric providers (54%). DISCUSSION: This study supported the general consensus in the literature that transition clinics improve care for urologic transition patients, while underlining discordance between current practice patterns and recommendations for optimal care. CONCLUSION: The majority of practices appeared to lack a formal transition clinic, and there was variation in their structure. Those with formal clinics tended to rate themselves as providing higher-quality care. The majority of respondents believed that adult specialists in either reconstructive or neuro-urology are best suited to care for these complex patients.


Subject(s)
Patient Transfer/trends , Pediatrics/methods , Practice Patterns, Physicians'/statistics & numerical data , Quality of Health Care , Transition to Adult Care/organization & administration , Urologic Diseases/therapy , Urology/methods , Child , Female , Humans , Male , Retrospective Studies , Surveys and Questionnaires , United States
2.
Mil Med ; 161(2): 123-7, 1996 Feb.
Article in English | MEDLINE | ID: mdl-8857228

ABSTRACT

The prevalence and incidence of HIV-1 infection in the U.S. military has been higher in minorities than in whites. In order to understand the reason for this disproportionate impact of the epidemic, military HIV research efforts were reviewed for race/ethnic-specific differences in a conference held in July 1993. Studies presented were from the areas of epidemiology, natural history, treatment, and prevention. This report summarizes the presentations made at that conference. Few race/ethnic-related differences were identified in this setting of early diagnosis of HIV-1 infection and equal access to a quality health care system. More information of this type will be needed to allow the targeting of interventions for maximal effect in decreasing the risk of HIV infection.


Subject(s)
Black or African American , HIV Infections/prevention & control , Hispanic or Latino , Military Personnel , Adult , Disease Progression , Female , HIV Infections/drug therapy , HIV Infections/epidemiology , HIV Infections/physiopathology , HIV Infections/transmission , HIV Infections/virology , Humans , Male , Risk Factors , United States
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