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1.
Psychiatr Prax ; 23(3): 117-20, 1996 May.
Article in German | MEDLINE | ID: mdl-8711000

ABSTRACT

Huntington's Disease, a neuropsychiatric disorder with dominant inheritance and late manifestation is related to multiple psychosocial problems of the affected person, his life partner as well as their children (so-called individuals at risk). During a five years project the authors contacted 131 persons, directly and indirectly involved in problems with H.D. In the first part the authors present after a general survey sociodemographic and clinical data of the project.


Subject(s)
Adaptation, Psychological , Huntington Disease/psychology , Sick Role , Activities of Daily Living/psychology , Adult , Child , Cost of Illness , Female , Humans , Huntington Disease/epidemiology , Huntington Disease/genetics , Male , Middle Aged , Self-Help Groups
2.
Psychiatr Prax ; 23(3): 121-5, 1996 May.
Article in German | MEDLINE | ID: mdl-8711001

ABSTRACT

The following article is informing about the experiences from a psychosocial project on Huntington's Disease (HD), a neuropsychiatric disorder with dominant inheritance. The project was running from July 1987 to October 1992 and was funded by the Robert-Bosch-Stiftung. During this project the authors contacted 78 involved families (131 persons), they offered psychotherapies, family-therapies, as well as meetings for patients and explored the subject by semi-structured interviews. The results of this project are presented in the following part.


Subject(s)
Adaptation, Psychological , Huntington Disease/psychology , Sick Role , Adolescent , Adult , Child , Combined Modality Therapy , Family Therapy , Female , Genetic Testing , Humans , Huntington Disease/genetics , Huntington Disease/rehabilitation , Male , Marriage/psychology , Middle Aged , Personality Assessment
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