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2.
Int J Health Policy Manag ; 12: 7701, 2023.
Article in English | MEDLINE | ID: mdl-37579393

ABSTRACT

In health policy-making, various deliberative mechanisms can be used to engage the members of the public in exploring what might be a reasonable course of action. Scurr et al take power dynamics into consideration to analyse a deliberative dialogue involving stakeholders with diverse points of view. Given such asymmetries at play, the conclusions of deliberations could be biased. Scholars would benefit from guidance on designing and evaluating deliberative processes. This commentary aims to broadly reflect on the possible sources of power and information asymmetries in deliberative dialogues, and to bring the biographical resources approach to deal with such asymmetries.


Subject(s)
Health Policy , Policy Making , Humans , Community Participation
5.
Gac Sanit ; 35(5): 499-501, 2021.
Article in Spanish | MEDLINE | ID: mdl-33994254

ABSTRACT

There are still few publications that analyse the effects on migrants or ethnic minorities of COVID-19 or of measures taken to curb this pandemic, although early studies point to a greater impact on black, asian and ethnic minority populations in the UK or on migrants in Mexico. In addition to barriers to access to information and health services, we consider it a priority to focus on their living conditions, particularly those in situations of vulnerability or social exclusion. People who are unemployed or with precarious jobs, without social benefits, in overcrowded conditions, may be more at risk of infection and not receiving adequate treatment. Confinement has predictably more negative impact on migrants in irregular administrative situations, victims of gender-based violence and those unable to comply with physical estrangement measures, such as refugees in camps or migrants under-living and settlements, without adequate hygienic conditions. Recommendations such as suspending deportations, extending or facilitating residence and work permits, closing detention centres for foreign persons, evacuating those in prisons and refugee camps or settlements have been applied unequally in different countries. Only a strong political commitment to global health equity can ensure the health of migrant populations and ethnic minorities, as well as their access to protection measures, information, medical testing and health services.Keywords: Migrants, COVID-19, Minority Groups, Vulnerable Populations, Social Determinants of Health.


Subject(s)
COVID-19 , Refugees , Transients and Migrants , Ethnicity , Humans , Minority Groups , SARS-CoV-2
7.
Article in English | MEDLINE | ID: mdl-30602656

ABSTRACT

Social support is an important predictor of the health of a population. Few studies have analyzed the influence of caregivers' personal networks from a gender perspective. The aim of this study was to analyze the composition, structure, and function of informal caregiver support networks and to examine gender differences. It also aimed to explore the association between different network characteristics and self-perceived health among caregivers. We performed a social network analysis study using a convenience sample of 25 female and 25 male caregivers. A descriptive analysis of the caregivers and bivariate analyses for associations with self-perceived health were performed. The structural metrics analyzed were density; degree centrality mean; betweenness centrality mean; and number of cliques, components, and isolates. The variability observed in the structure of the networks was not explained by gender. Some significant differences between men and women were observed for network composition and function. Women received help mainly from women with a similar profile to them. Men's networks were broader and more diverse and they had more help from outside family circles, although these outcomes were not statistically significant. Our results indicate the need to develop strategies that do not reinforce traditional gender roles, but rather encourage a greater sharing of responsibility among all parties.


Subject(s)
Caregivers/statistics & numerical data , Social Support , Aged , Caregivers/psychology , Female , Health Status , Humans , Male , Self Concept , Sex Factors , Surveys and Questionnaires
9.
Support Care Cancer ; 22(2): 545-52, 2014 Feb.
Article in English | MEDLINE | ID: mdl-24122406

ABSTRACT

AIMS: This study aims to describe the information needs of urological and breast cancer patients and factors related to use of the Internet as a source of health information. METHODOLOGY: A cross-sectional descriptive study was carried out, using individual questionnaire-based interviews held during the oncology appointments of 169 patients with urological cancer and 100 with breast cancer at the Virgen de las Nieves University Hospital in Granada, Spain. The variables studied were use of the Internet as a source of health information, health status, patient's role in the decision-making process, information sources, satisfaction with the health-care system, type of information received, and Internet use. A multivariate logistic regression analysis was carried out. RESULTS: Breast cancer patients are more concerned with long-term results and the effects on their family and personal life. They are also interested in the experiences of other patients and support groups or staff who could help them to cope with their illness. The information needs of patients with urological cancer are linked to short-term alternative treatments, their sex life, keeping healthy, and exercise. More clinical aspects, such as tests and experiments linked to their treatment, are not a frequent information need. The factors linked to use of the Internet as a source of health information are younger age, high level of education, the patient's active role in the decision-making process, and undergoing more aggressive treatment. There is no link between using the Internet as a source of health information and level of satisfaction with the health-care system, or with Internet use in general. CONCLUSION: Patients need additional information about their illness on top of that given to them by health-care staff, and they often use the Internet to find it. The greatest information need is related to the effects of their illness on their day-to-day life. Health-care staff should provide patients with advice about reliable websites and how to search the Internet.


Subject(s)
Breast Neoplasms/psychology , Breast Neoplasms/therapy , Consumer Health Information/statistics & numerical data , Internet/statistics & numerical data , Urologic Neoplasms/psychology , Urologic Neoplasms/therapy , Consumer Health Information/methods , Cross-Sectional Studies , Decision Making , Female , Health Services Needs and Demand , Health Status , Humans , Logistic Models , Male , Middle Aged , Patient Satisfaction , Self-Help Groups , Spain , Surveys and Questionnaires
10.
Telemed J E Health ; 19(2): 137-45, 2013 Feb.
Article in English | MEDLINE | ID: mdl-23368890

ABSTRACT

This exploratory study has two aims: (1) to find out if and how social media (SM) applications are used by hospitals in Spain and (2) to assess hospital managers' perception of these applications in terms of their evaluation of them, reasons for use, success factors, and difficulties encountered during their implementation. A cross-sectional survey has been carried out using Spanish hospitals as the unit of analysis. Geographical differences in the use of SM were found. Social networks are used most often by larger hospitals (30% by medium-size, 28% by large-size). They are also more frequently used by public hospitals (19%, p<0.01) than by private ones. Respondents with a negative perception of SM felt that there is a chance they may be abused by healthcare professionals, whereas those with a positive perception believed that they can be used to improve communication both within and outside the hospital. Reasons for the use of SM include the idea of maximizing exposure of the hospital. The results show that Spanish hospitals are only just beginning to use SM applications and that hospital type can influence their use. The perceptions, reasons for use, success factors, and difficulties encountered during the implementation of SM mean that it is very important for healthcare professionals to use SM correctly and adequately.


Subject(s)
Attitude of Health Personnel , Hospitals , Social Media/statistics & numerical data , Cross-Sectional Studies , Humans , Information Dissemination , Internet , Marketing of Health Services , Organizational Objectives , Spain , Surveys and Questionnaires
11.
Support Care Cancer ; 20(12): 3087-94, 2012 Dec.
Article in English | MEDLINE | ID: mdl-22415609

ABSTRACT

AIMS: The aims of this study were to describe the profile of urological cancer patients who look for health information on the Internet and to analyse the factors related to use of the Internet as a source of health information. METHODOLOGY: A cross-sectional descriptive study using individual, semi-structured, questionnaire-based interviews was carried out in oncology clinics in a hospital in Granada (Spain) in a sample group of 169 patients with prostate, bladder and kidney cancer. The dependent variable was use of the Internet as a source of health information. The independent variables were sociodemographic variables, health status, relationship with healthcare services, patient's role in decision-making process, satisfaction with healthcare, Internet use, Internet skills and attitude. Data analyses include descriptive, bivariate and multivariate analyses. RESULTS: Of the patients in the sample group, 72.2 % had prostate cancer, 19.4 % had bladder cancer and 8.3 % had kidney cancer. Only 11.2 % of patients in the group used the Internet as a source of health information. These patients were typically men of an average age of 62 years, who live in urban areas, who have completed secondary or university education, with a high income and who usually share the role of decision maker with their doctor. Patients who use the Internet as a source of health information usually look for support from psychological support groups, have family members who also look for information on the Internet and prefer sources of information other than those provided by the health services. CONCLUSIONS: The study outlines the profile of urological cancer patients who use the Internet as a source of health information. Internet use is related to a patient's attitude towards decision making, level of education and whether or not they look for information from sources other than the health system itself.


Subject(s)
Information Seeking Behavior , Internet/statistics & numerical data , Urologic Neoplasms/psychology , Aged , Aged, 80 and over , Attitude to Computers , Cross-Sectional Studies , Educational Status , Female , Humans , Income/statistics & numerical data , Kidney Neoplasms/psychology , Male , Middle Aged , Multivariate Analysis , Patient Participation/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Prostatic Neoplasms/psychology , Rural Population/statistics & numerical data , Spain , Surveys and Questionnaires , Urban Population/statistics & numerical data , Urinary Bladder Neoplasms/psychology
12.
BMC Med Inform Decis Mak ; 10: 6, 2010 Jan 29.
Article in English | MEDLINE | ID: mdl-20113486

ABSTRACT

BACKGROUND: The Internet is a fundamental part of the daily life of adolescents, they consider it as a safe and confidential source of information on health matters. The aims is to describe the experience of Spanish adolescents searching for health information on the Internet. METHODS: A cross-sectional study of 811 school-age adolescents in Granada was carried out. An adapted and piloted questionnaire was used which was controlled by trained personnel. Sociodemographic and health variables were included together with those concerning the conditions governing access to and use of information and communication technologies (ICT). RESULTS: 811 adolescents were surveyed (99.38% response rate), mean age was 17 years old. Of these, 88% used the Internet; 57.5% used it on a daily or weekly basis and 38.7% used it occasionally. Nearly half the sample group (55.7%) stated that they used the Internet to search for health-related information. The main problems reported in the search for e-health were the ignorance of good web pages (54.8%) and the lack of confidence or search skills (23.2%). CONCLUSIONS: In conclusion, it seems plausible to claim that websites designed and managed by health services should have a predominant position among interventions specifically addressed to young people.


Subject(s)
Consumer Health Information/statistics & numerical data , Internet/statistics & numerical data , Adolescent , Computer Literacy , Cross-Sectional Studies , Female , Humans , Information Services/statistics & numerical data , Male , Spain , Surveys and Questionnaires
13.
Telemed J E Health ; 16(2): 145-53, 2010 Mar.
Article in English | MEDLINE | ID: mdl-20136560

ABSTRACT

BACKGROUND: The Internet is a fundamental part of the day-to-day lives of adolescents. Faced with the difficulties of accessing conventional health services, adolescents use the Internet as a confidential and safe means of accessing information about health issues. OBJECTIVES: To describe sex differences in the way in which adolescents search for health information on the Internet. METHODS: Cross-sectional survey with a questionnaire administered by an interviewer. Sociodemographic and health variables and those related to the conditions of access and use of information and communication technologies were gathered (multivariate analysis). RESULTS: About 823 school-age youths were interviewed (21 questionnaires were discarded due to low quality), among whom 54.1% were girls and 46% were boys. The girls had a lower self-assessed level of health than the boys. About 86.5% of the girls used the Internet, compared with 89.9% of the boys (p = 0.155). About 21.7% and 48.3% of the boys used it daily/weekly and occasionally, respectively, compared with 17.9% and 59.1% of the girls who used it daily/weekly and occasionally, respectively. The multivariate analysis shows that girls (odds ratio [OR], 1.709; 95% confidence interval [CI], 1.277-2.287), those in their last year of secondary school (OR, 1.369; 95% CI, 1.025-1.830) and those who had visited the doctor most often the previous year (OR, 1.061; 95% CI, 1.017-1.107), were statistically significantly more likely to search for health information on the Internet. CONCLUSION: Adolescent girls tend to seek more information about health than boys and there are differences in the way in which these girls search for health information on the Internet. The Internet provides adolescents, especially adolescent girls, with an opportunity for relaying health recommendations.


Subject(s)
Adolescent Behavior , Health Education , Health Knowledge, Attitudes, Practice , Adolescent , Confidence Intervals , Cross-Sectional Studies , Data Collection , Demography , Female , Gender Identity , Humans , Interviews as Topic , Male , Multivariate Analysis , Odds Ratio , Pilot Projects , Sex Factors , Socioeconomic Factors , Surveys and Questionnaires
14.
Rev. esp. geriatr. gerontol. (Ed. impr.) ; 44(6): 342-348, nov.-dic. 2009. tab
Article in Spanish | IBECS | ID: ibc-75556

ABSTRACT

IntroducciónEl desarrollo y difusión de Internet ofrece nuevas posibilidades para atender las necesidades de las personas mayores. Para desarrollar este potencial debe garantizarse la accesibilidad a los recursos disponibles.En este trabajo nos proponemos1) Identificar sitios web en castellano con información sobre salud para personas mayores, y 2) evaluar la accesibilidad de los sitios web seleccionados.Material y métodosEstudio descriptivo del cumplimiento de los criterios de accesibilidad de sitios web sobre salud para mayores. Para seleccionar los sitios web con información sobre salud dirigida a personas mayores se adoptó una metodología de búsquedas con palabras clave en dos de los principales buscadores de Internet. Se realizó un estudio descriptivo a partir de un cuestionario diseñado para tal fin. Los sitios fueron evaluados independientemente por 3 evaluadores. Las dimensiones estudiadas fueron aspectos visuales, motrices, cognitivos, auditivos, otros aspectos y total general. Se calculó la accesibilidad A, AA y AAA mediante el test de accesibilidad a la web (TAW). Se realizó un análisis descriptivo del cumplimiento y se estimó el coeficiente kappa para valorar la concordancia entre evaluadores (criterios de Fleiss) y se calculó el número de errores según los criterios del TAW.ResultadosSe elaboró una lista de 35 sitios web. La mayoría de los sitios web tenía un proveedor español (74,3%), 2 sitios web provenían de Estados Unidos (5,7%) y el resto de Latinoamérica (1 de Cuba, 2 de Argentina, 2 de México y 1 de Uruguay)...(AU)


BackgroundThe development and dissemination of the Internet offers new opportunities to meet the needs of older people. To develop this potential, access to the available resources must be guaranteed.Our aims are(1) To identify web sites in Spanish with information on healthcare for older adults and (2) to assess the accessibility of the web sites selected.Instruments and methodsWe performed a descriptive study of compliance with accessibility criteria among web sites on healthcare for the elderly. To select the sites with health information aimed at older people, a search method with keywords was used in two of the major Internet search engines. The descriptive study was carried out by using a specially-designed questionnaire. The web sites were independently evaluated by three evaluators. The dimensions studied were visual, motor, cognitive, auditory and global factors. Accessibility A, AA and AAA was evaluated with the TAW test. A descriptive analysis of compliance was carried out and the kappa coefficient was estimated to evaluate the concordance between evaluators (Fleiss’ criteria), while the number of errors was calculated according to the TAW criteria.ResultsA list of 35 web sites was created. Most of the web sites had a Spanish web hosting provider (74.3%), two sites were from United States (5.7%) and the remainder were from Latin America (Cuba 1, Argentina 2, Mexico 2 and Uruguay 1)...(AU)


Subject(s)
Humans , Male , Female , Aged , Internet , Access to Information , Health of the Elderly , Surveys and Questionnaires , Information Services/supply & distribution
15.
Rev Esp Geriatr Gerontol ; 44(6): 342-8, 2009.
Article in Spanish | MEDLINE | ID: mdl-19926357

ABSTRACT

BACKGROUND: The development and dissemination of the Internet offers new opportunities to meet the needs of older people. To develop this potential, access to the available resources must be guaranteed. Our aims are: (1) To identify web sites in Spanish with information on healthcare for older adults and (2) to assess the accessibility of the web sites selected. INSTRUMENTS AND METHODS: We performed a descriptive study of compliance with accessibility criteria among web sites on healthcare for the elderly. To select the sites with health information aimed at older people, a search method with keywords was used in two of the major Internet search engines. The descriptive study was carried out by using a specially-designed questionnaire. The web sites were independently evaluated by three evaluators. The dimensions studied were visual, motor, cognitive, auditory and global factors. Accessibility A, AA and AAA was evaluated with the TAW test. A descriptive analysis of compliance was carried out and the kappa coefficient was estimated to evaluate the concordance between evaluators (Fleiss' criteria), while the number of errors was calculated according to the TAW criteria. RESULTS: A list of 35 web sites was created. Most of the web sites had a Spanish web hosting provider (74.3%), two sites were from United States (5.7%) and the remainder were from Latin America (Cuba 1, Argentina 2, Mexico 2 and Uruguay 1). A high degree of accessibility was found for the IMSERSO Portal, the Disc@PNET portal, the section on public health protection of the Spanish Ministry of Health web site and the Community of Madrid web site. Fourteen web sites complied with more than 42% of the items evaluated. The dimension with the lowest compliance was cognitive features. When the TAW tool was applied, only the IMSERSO web site fulfilled all the criteria A, AA and AAA. CONCLUSIONS: The present study obtained a accessibility ranking of web sites with information on health for seniors. Accessibility level varied among these web sites.


Subject(s)
Geriatrics , Internet , Aged , Humans , Surveys and Questionnaires
16.
Aten. prim. (Barc., Ed. impr.) ; 41(7): 360-366, jul. 2009. tab, graf
Article in Spanish | IBECS | ID: ibc-74060

ABSTRACT

ObjetivoIdentificar sitios web con información sobre medicamentos a través de expertos y evaluar su adecuación a códigos de conducta y las recomendaciones de la Organización Mundial de la Salud.DiseñoEstudio transversal de la adecuación a los criterios, a partir de un cuestionario diseñado ad hoc (efectuado independientemente por dos evaluadores). Los sitios web fueron identificados a partir de la técnica Delphi (35 expertos).EmplazamientoSitios web con información sobre medicamentos.Unidad de análisis35 sitios web seleccionados por la técnica Delphi. En la tercera ronda se alcanzó un nivel de estabilidad (variabilidad intercuartílica) aceptable (< 0,05).Mediciones principalesResponsabilidad, transparencia y honestidad, autoría de la información, política editorial, protección de datos personales, actualización de la información y accesibilidad. Se realizó un análisis descriptivo del cumplimiento y se estimó el coeficiente kappa para valorar la concordancia entre evaluadores (criterios de Fleiss).ResultadosDestacan con cumplimiento general alto el National Prescribing Service Limited (NPS), PubMed, British Medical Journal, New England Journal of Medicine, Journal of American Medical Association, The Lancet, Fisterra y National Institute for Health and Clinical Excellence. La dimensión de actualización de la información es la que presentó una menor valoración para los diferentes sitios web.ConclusionesLa calidad de los sitios web sobre medicamentos recomendada por expertos es variable. Sin embargo, hay diversos sitios web de cumplimiento alto, que se detallan en el informe(AU)


AimsTo identify websites with information on medicines and assess, using experts, their adherence to codes of conduct and recommendations by the WHO.DesignCross-sectional study based on an ad hoc designed questionnaire (performed independently by 2 reviewers). The websites were identified by the Delphi technique (35 experts).SettingWebsites with information on medicines.ParticipantsA total of 35 websites selected by the Delphi technique. An acceptable level of stability was achieved in the third round (interquartile variability; <0.05).ResultsThe National Prescribing Service Limited (NPS), PubMed, British Medical Journal, New England Journal of Medicine, Journal of American Medical Association, The Lancet, Fisterra and National Institute for Health and Clinical Excellence stood out with an overall high fulfilment of the questionnaire. The updated information dimension was the lowest evaluation for the different websites.ConclusionsThe quality of the web sites evaluated varied widely. Although there are several websites, which are detailed in the article, with high overall scores(AU)


Subject(s)
Internet , 51835 , Quality Control , Pharmaceutical Preparations , Consumer Health Information , Cross-Sectional Studies , Access to Information
17.
Gac Sanit ; 21(3): 204-9, 2007.
Article in Spanish | MEDLINE | ID: mdl-17565894

ABSTRACT

OBJECTIVES: To assess adherence to four codes of conduct in websites providing information useful for pharmacotherapy follow-up. METHODS: We performed a descriptive study of adherence to quality criteria in 19 websites. These sites had been identified in a previous study as being those most frequently used by pharmacists. A descriptive analysis was performed and the kappa coefficient was calculated to evaluate interrater concordance (Fleiss' criteria for evaluation of the kappa index). RESULTS: The most highly rated source of clinical practice guidelines and that which adhered most closely to the 4 codes of conduct was Fisterra. The websites most highly rated in reviews and secondary sources were the Cochrane Library and PubMed. The most highly rated journals were JAMA and the BMJ, followed by Atención Primaria and Medicina Clínica. Among drug information guides, the highest scores were obtained by BOT and Martindale's. The highest rated drug bulletins were the Boletín Terapéutico Andaluz and Butlletí Groc. The most highly rated agency was the World Health Organization. The journals with the lowest scores were Pharmaceutical Care and Seguimiento Farmacoterapéutico followed by the Spanish Internacional Vademecum MediMedia-Medicom. According to Fleiss's criteria, interrater concordance was acceptable for the 4 codes. CONCLUSIONS: The quality of the web sites evaluated varied widely, although most received scores of more than 60 points (out of 100) in the 4 codes of conduct used for evaluation.


Subject(s)
Codes of Ethics , Drug Therapy , Internet/standards , Pharmaceutical Services , Data Interpretation, Statistical , Follow-Up Studies , Humans , Periodicals as Topic , Practice Guidelines as Topic , PubMed , Quality Indicators, Health Care
18.
Gac. sanit. (Barc., Ed. impr.) ; 21(3): 204-209, mayo 2007. tab
Article in Es | IBECS | ID: ibc-058951

ABSTRACT

Objetivos: Evaluar la adecuación de los sitios web destinados a proporcionar información para la realización de seguimiento farmacoterapéutico a 4 códigos de conducta. Métodos: Estudio descriptivo del cumplimiento de los criterios de calidad de 19 sitios web seleccionados por ser los de mayor utilización por los farmacéuticos en un estudio previo. Se realizó un análisis descriptivo y se estimó el coeficiente kappa para valorar la concordancia entre evaluadores (criterios de Fleiss) . Resultados y conclusiones: Fisterra fue la página mejor valorada en los 4 códigos, y la fuente de acceso a guías clínicas mejor calificada. La Cochrane Library y Pubmed las mejor valoradas en revisiones y fuentes secundarias. JAMA y British Medical Journal fueron las revistas mejor calificadas seguidas de Atención Primaria y Medicina Clínica. Entre los vademécums, el BOT y el Martindale obtuvieron las mejores calificaciones y el Boletín Terapéutico Andaluz y el Butlletí Groc recibieron altas calificaciones de entre los boletines de medicamentos. La Organización Mundial de la Salud fue la agencia mejor calificada. Los sitios con menor calificación fueron Pharmaceutical Care, Seguimiento Farmacoterapéutico y el Vademécum Internacional España MediMedia-Medicom. La concordancia entre evaluadores fue aceptable para los 4 códigos. Conclusiones: La calidad de los sitios web que utilizan los farmacéuticos es muy variable, aunque la mayoría superan los 60 puntos (sobre 100) en los 4 códigos de conducta usados en la evaluación


Objectives: To assess adherence to four codes of conduct in websites providing information useful for pharmacotherapy follow-up. Methods: We performed a descriptive study of adherence to quality criteria in 19 websites. These sites had been identified in a previous study as being those most frequently used by pharmacists. A descriptive analysis was performed and the kappa coefficient was calculated to evaluate interrater concordance (Fleiss' criteria for evaluation of the kappa index). Results: The most highly rated source of clinical practice guidelines and that which adhered most closely to the 4 codes of conduct was Fisterra. The websites most highly rated in reviews and secondary sources were the Cochrane Library and PubMed. The most highly rated journals were JAMA and the BMJ, followed by Atención Primaria and Medicina Clínica. Among drug information guides, the highest scores were obtained by BOT and Martindale's. The highest rated drug bulletins were the Boletín Terapéutico Andaluz and Butlletí Groc. The most highly rated agency was the World Health Organization. The journals with the lowest scores were Pharmaceutical Care and Seguimiento Farmacoterapéutico followed by the Spanish Internacional Vademecum MediMedia-Medicom. According to Fleiss's criteria, interrater concordance was acceptable for the 4 codes. Conclusions: The quality of the web sites evaluated varied widely, although most received scores of more than 60 points (out of 100) in the 4 codes of conduct used for evaluation


Subject(s)
Humans , Internet , Biomedical Research/trends , Access to Information , 51706 , Codes of Ethics , Drug Therapy/trends , Pharmacists/statistics & numerical data
19.
Aten Primaria ; 38(5): 268-74, 2006 Sep 30.
Article in Spanish | MEDLINE | ID: mdl-17020711

ABSTRACT

OBJECTIVES: To design a questionnaire to evaluate compliance with quality criteria on health web sites and to analyse its reliability. DESIGN: A descriptive study on the reliability of a questionnaire. PARTICIPANTS: Twenty web sites on health topics. SETTING: Internet. MAIN MEASUREMENTS: The questionnaire was based on analysis of content of the criteria of the e-Europe 2002 code of conduct, comparing these with the criteria underlying the AMA, the Summit code and the e-Health Code of Ethics regulations and current directives. The dimensions studied were transparency, absence of conflicts of interest, authorship, data protection, updating, accountability, and accessibility. A preliminary questionnaire was drawn up for a pilot test conducted by 3 researchers for 20 web sites, its reliability was appraised, adjustments were made and the definitive questionnaire was designed. Reliability was evaluated again for 26 web sites evaluated by 3 researchers. To evaluate concordance in the answers of the participants, Cohen's Kappa index with a 95% confidence level was used. RESULTS: All the quality directives of e-Europe 2002, the European regulations and relevant points from other questionnaires were included in the questionnaire designed. Reliability was acceptable (kappa > or = 0.60) for 12 of the 18 quality criteria included. The least concordant aspects of the questionnaire were information update (kappa = 0.310) and accessibility (search for contents and access for persons with disability). CONCLUSIONS: Reliability of the questionnaire designed was acceptable.


Subject(s)
Internet/standards , Delivery of Health Care/standards , Europe , Health Care Sector/standards , Humans , Medical Informatics/standards , Research Design , Surveys and Questionnaires
20.
Aten. prim. (Barc., Ed. impr.) ; 38(5): 268-274, sept. 2006. tab
Article in Es | IBECS | ID: ibc-051499

ABSTRACT

Objetivo. Diseñar un cuestionario para evaluar el cumplimiento de criterios de calidad de sitios web sanitarios y analizar su fiabilidad. Diseño. Estudio descriptivo de la fiabilidad de un cuestionario. Participantes. Veinte sitios web relacionados con salud. Emplazamiento. Internet. Mediciones principales. El cuestionario se diseñó a partir de los criterios del código de conducta e-Europe 2002, comparándolos con los del AMA, Summit, e-Health Code of Ethics, normativa y directrices vigentes. Las dimensiones estudiadas fueron la transparencia y la ausencia de conflicto de intereses, autoría, protección de datos, actualización, responsabilidad y accesibilidad. Se elaboró un cuestionario preliminar, se midió la fiabilidad, se efectuaron ajustes y se diseñó el definitivo. Se evaluó nuevamente la fiabilidad utilizando 26 sitios web por parte de 3 investigadores. La concordancia se midió con el índice kappa de Cohen. Resultados. En el cuestionario diseñado se incluyeron todas las directrices de calidad de la guía Europea e-Europe 2002, la normativa Europea y los aspectos relevantes contemplados por otros códigos. Se obtuvo una fiabilidad aceptable (kappa ≥ 0,60) para 12 de los 18 criterios incluidos. Los aspectos menos concordantes fueron actualización (kappa = 0,310) y accesibilidad (búsqueda de contenidos y acceso para discapacitados). Conclusiones. Se obtuvo un cuestionario con una fiabilidad aceptable


Objectives. To design a questionnaire to evaluate compliance with quality criteria on health web sites and to analyse its reliability. Design. A descriptive study on the reliability of a questionnaire. Participants. Twenty web sites on health topics. Setting. Internet. Main measurements. The questionnaire was based on analysis of content of the criteria of the e-Europe 2002 code of conduct, comparing these with the criteria underlying the AMA, the Summit code and the e-Health Code of Ethics regulations and current directives. The dimensions studied were transparency, absence of conflicts of interest, authorship, data protection, updating, accountability, and accessibility. A preliminary questionnaire was drawn up for a pilot test conducted by 3 researchers for 20 web sites, its reliability was appraised, adjustments were made and the definitive questionnaire was designed. Reliability was evaluated again for 26 web sites evaluated by 3 researchers. To evaluate concordance in the answers of the participants, Cohen's Kappa index with a 95% confidence level was used. Results. All the quality directives of e-Europe 2002, the European regulations and relevant points from other questionnaires were included in the questionnaire designed. Reliability was acceptable (kappa ≥ 0.60) for 12 of the 18 quality criteria included. The least concordant aspects of the questionnaire were information update (kappa =0.310) and accessibility (search for contents and access for persons with disability). Conclusions. Reliability of the questionnaire designed was acceptable


Subject(s)
Humans , Internet/classification , Quality Control , Databases, Bibliographic/trends , Information Dissemination , Information Storage and Retrieval/standards , Biomedical Research/standards , Surveys and Questionnaires , Technology Assessment, Biomedical
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