ABSTRACT
BACKGROUND: Using a combination of videos and online short stories, we conducted four face-to-face deliberative workshops in Montreal (Quebec, Canada) with members of the public who later joined additional participants in an online forum to discuss the social and ethical implications of prospective technologies. This paper presents the participants' appraisal of our intervention and provides novel qualitative insights into the use of videos and online tools in public deliberations. METHODS: We applied a mixed-method study design. A self-administered survey contained open- and close-ended items using a 5-level Likert-like scale. Absolute frequencies and proportions for the close-ended items were compiled. Qualitative data included field notes, the transcripts of the workshops and the participants' contributions to the online forum. The qualitative data were used to flesh out the survey data describing the participants' appraisal of: 1) the multimedia components of our intervention; 2) its deliberative face-to-face and online processes; and 3) its perceived effects. RESULTS: Thirty-eight participants contributed to the workshops and 57 to the online forum. A total of 46 participants filled-in the survey, for a response rate of 73 % (46/63). The videos helped 96 % of the participants to understand the fictional technologies and the online scenarios helped 98 % to reflect about the issues raised. Up to 81 % considered the arguments of the other participants to be well thought-out. Nearly all participants felt comfortable sharing their ideas in both the face-to-face (89 %) and online environments (93 %), but 88 % preferred the face-to-face workshop. As a result of the intervention, 85 % reflected more about the pros and cons of technology and 94 % learned more about the way technologies may transform society. CONCLUSIONS: This study confirms the methodological feasibility of a deliberative intervention whose originality lies in its use of videos and online scenarios. To increase deliberative depth and foster a strong engagement by all participants, face-to-face and online components need to be well integrated. Our findings suggest that online tools should be designed by considering, one the one hand, the participants' self-perceived ability to share written comments and, on the other hand, the ease with which other participants can respond to such contributions.
Subject(s)
Biomedical Technology , Inventions , Public Opinion , Adult , Comprehension , Female , Humans , Learning , Male , Multimedia , Perception , Problem Solving , Prospective Studies , Quebec , Research Design , Surveys and Questionnaires , Video RecordingABSTRACT
Objetivos Identificar sitios web con información en castellano sobre salud de adolescentes y jóvenes, y evaluar su adecuación a códigos de conducta. Material y métodos Estudio transversal de adecuación a códigos de conducta de Web sobre salud de adolescentes y jóvenes, identificados de la misma manera como suelen buscar en Internet (buscadores). Tres evaluadores determinaron los sitios web independientemente a través de un cuestionario. Dimensiones: 1) cumplimiento global; 2) responsabilidad; 3) política editorial; 4) protección de datos; 5) autoría; 6) actualización; 7) accesibilidad, y 8) contenido. Se realizó un análisis descriptivo y se estimó el coeficiente κ para valorar la concordancia entre evaluadores. Resultados El 66,7% de los sitios web tenían proveedores españoles. Destacan con cumplimiento global alto 13 sitios web (30,9%): información para adolescentes de la Asociación Española de Pediatría (España), Centro de Salud Manuel Merino Alcalá de Henares (España), Federación de Planificación Familiar Estatal (España), Web de adolescentes de la Generalitat Cataluña (España), información para jóvenes de institutos de salud (Estados Unidos), información sobre mujeres adolescentes (Estados Unidos), información sobre diabetes tipo i de médicos y educadores (España), Portal sobre asma para profesionales (10 países), información para adolescentes del Grupo Puleva (España), información sobre bulimia y anorexia de la Comunidad de Madrid (España), salud y adolescencia de PulsoMed S. A. (España), Asociación Americana de Médicos de Familia (Estados Unidos) e información para jóvenes de la Caja de Salud de Mapfre (España). La dimensión más deficiente fue la de actualización de la información (el 57,1% con cumplimiento bajo) y la protección de datos personales (el 21% de los sitios web con cumplimiento bajo). Se observó un nivel de concordancia entre evaluadores considerable. Conclusiones e obtuvo un listado de sitios web con información sobre salud de adolescentes y jóvenes con variabilidad en la adecuación en códigos de conducta(AU)
Aims To identify health Websites in Spanish on adolescence and youth and to assess the adequacy of their codes of conduct. Methods Cross sectional study of the adequacy of codes of conduct, identified in the same way as young people tend to look on the Internet (search engines). Websites have been independently assessed using a questionnaire by 3 evaluators. Dimensions: 1) accountability, 2) transparency and honesty, 3) author, 4) editorial policy, 5) protection of personal data, 6) updating of information and accessibility. A descriptive analysis was performed and the kappa coefficient was estimated to assess the correlation between evaluators. Results A total of 66.7% of Websites had Spanish suppliers. There were 13 Websites (30.9%) with high compliance: Information for adolescents from the Spanish Association of Pediatrics (Spain), Health Center Manuel Merino Alcala de Henares (Spain), State Family Planning Federation (Spain), Webteens of the Generalitat Catalonia (Spain), Young Information Institutes Health (USA), Information on Female teenagers (USA), Information doctors and educators on type I diabetes (Spain), occupational asthma Portal (10 countries), teenage Information Puleva Group (Spain), Information bulimia and anorexia of the Community of Madrid (Spain), Health of adolescence PulsoMed, SA (Spain), American Association of Family Physicians (USA) and Information for young people from the Mapfre Health Fund (Spain). The worst dimension was updating of information (57.1% with low fullfilment) and protection of personal data, 21% with low fullfilment. The level of concordance between observers was considerable. Conclusions A list was obtained of websites with health information on adolescence and youth, with variability in adequacy in codes of conduct(AU)
Subject(s)
Humans , Male , Female , Adolescent , Adult , Adolescent Health , Adolescent Health Services/organization & administration , Adolescent Health Services/statistics & numerical data , Adolescent Health Services/standards , Adolescent Behavior/physiology , Internet/organization & administration , Internet/statistics & numerical data , Adolescent Health Services/ethics , Adolescent Health Services/trends , Adolescent Health Services , Quality of Life , /methods , Cross-Sectional Studies , Adolescent Development/physiology , Internet/standards , Internet , Surveys and QuestionnairesABSTRACT
AIMS: To identify health Websites in Spanish on adolescence and youth and to assess the adequacy of their codes of conduct. METHODS: Cross sectional study of the adequacy of codes of conduct, identified in the same way as young people tend to look on the Internet (search engines). Websites have been independently assessed using a questionnaire by 3 evaluators. Dimensions: 1) accountability, 2) transparency and honesty, 3) author, 4) editorial policy, 5) protection of personal data, 6) updating of information and accessibility. A descriptive analysis was performed and the kappa coefficient was estimated to assess the correlation between evaluators. RESULTS: A total of 66.7% of Websites had Spanish suppliers. There were 13 Websites (30.9%) with high compliance: Information for adolescents from the Spanish Association of Pediatrics (Spain), Health Center Manuel Merino Alcala de Henares (Spain), State Family Planning Federation (Spain), Webteens of the Generalitat Catalonia (Spain), Young Information Institutes Health (USA), Information on Female teenagers (USA), Information doctors and educators on type I diabetes (Spain), occupational asthma Portal (10 countries), teenage Information Puleva Group (Spain), Information bulimia and anorexia of the Community of Madrid (Spain), Health of adolescence PulsoMed, SA (Spain), American Association of Family Physicians (USA) and Information for young people from the Mapfre Health Fund (Spain). The worst dimension was updating of information (57.1% with low fullfilment) and protection of personal data, 21% with low fullfilment. The level of concordance between observers was considerable. CONCLUSIONS: A list was obtained of websites with health information on adolescence and youth, with variability in adequacy in codes of conduct.
