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1.
Clin Pediatr (Phila) ; 62(6): 622-632, 2023 06.
Article in English | MEDLINE | ID: mdl-36475313

ABSTRACT

Postural orthostatic tachycardia syndrome (POTS) is an autonomic dysfunction that impairs quality of life (QoL). Increased familiarity with the lived experiences of youth with POTS better informs our understanding of this condition and its impact on QoL, provides context and depth to existing research, and improves patient-centered care. Thus, this qualitative study seeks to develop a more robust understanding of QoL in this understudied population. Youth with POTS (N = 6) and their parents (N = 8) participated in semi-structured interviews. Following saturation, data were analyzed via conventional content analysis, including code/theme identification and member-checking. Four themes were identified (1) negative changes in functioning, (2) invalidation and difficulties living with an invisible condition, (3) trust and advocacy, and (4) need for increased resources and understanding. Findings suggest POTS negatively impacts adolescents' QoL across domains. Based on participants' responses, developing POTS-specific resources and integrating mental health services into interdisciplinary POTS treatment may improve youth's QoL.


Subject(s)
Postural Orthostatic Tachycardia Syndrome , Humans , Adolescent , Postural Orthostatic Tachycardia Syndrome/therapy , Quality of Life , Heart Rate/physiology , Health Status
2.
Int J Eat Disord ; 56(1): 257-262, 2023 01.
Article in English | MEDLINE | ID: mdl-35906993

ABSTRACT

OBJECTIVE: We aimed to identify trends of patients with eating disorders (EDs) requiring hospitalization before and during the pandemic at a children's hospital in the southeastern United States. METHOD: A retrospective chart review was completed for 71 adolescents and young adults (ages 10-21 years; M = 14.61, SD = 2.121). RESULTS: Results indicated a 188% increase in ED hospital admissions since the pandemic, with patients presenting with increased rates of comorbid mental health diagnoses (p = .009). During COVID-19, the development of temporary outpatient multidisciplinary discharge plans (i.e., "bridge plans") were utilized more often due to difficulties accessing the appropriate level of care (p = .039). DISCUSSION: Results suggest a significant increase in youth requiring medical stabilization for EDs since the start of the COVID-19 pandemic (2.9 times more than prepandemic), as well as a need for greater advocacy to increase specialized mental health services along the full continuum of care. PUBLIC SIGNIFICANCE STATEMENT: This study brings awareness to the significant increase in patients needing medical stabilization secondary to restrictive EDs and increased rates of comorbid mental health diagnoses in this patient population since the onset of the COVID-19 pandemic. Patients during COVID-19 were less likely to directly transition to treatment likely secondary to the strain COVID-19 placed on mental health systems/treatment centers. Increased advocacy for specialized care for eating disorder patients.


Subject(s)
COVID-19 , Feeding and Eating Disorders , Child , Young Adult , Humans , Adolescent , Adult , Pandemics , Retrospective Studies , Feeding and Eating Disorders/diagnosis , Feeding and Eating Disorders/epidemiology , Feeding and Eating Disorders/therapy , Health Services Accessibility
3.
Prim Care ; 48(2): 271-282, 2021 Jun.
Article in English | MEDLINE | ID: mdl-33985704

ABSTRACT

Expand at first use ("lesbian, gay, bisexual, transgender, queer (or questioning), and others"? Sexual health is a state of physical, emotional, mental, and social well-being in relation to sexuality. Factors that contribute to the sexual health of an LGBTQ+-identified patient include not only the physical state of the patient but also cultural and contextual factors that influence other aspects of well-being. To be effective in promoting sexual health, providers must maintain an attitude of accepting the patient's sexual orientation and gender identity as core aspects of sexual health. Providers need to examine paperwork, office space, and cultural competence in providing a safe medical home for the LGBTQ+ community.


Subject(s)
Sexual Health , Sexual and Gender Minorities , Female , Gender Identity , Humans , Male , Sexual Behavior , Sexuality
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