ABSTRACT
The purpose of the current study was to develop a model from community engagement (CE) process data to guide future CE for a focused health problem. Community-based participatory research was used to engage older adults affected by cancer and their family caregivers in eight cancer clusters in one northeastern U.S. state. CE was focused on informing participants about a national telephone helpline offering psychosocial cancer services. A purposeful sample by settings in the cancer clusters yielded an estimated 200,500 individuals who participated in information sessions, health fairs, sporting events, and the media (i.e., print, radio, or television). A general inductive approach was used to analyze CE data and resulted in a four-phase model that health professionals consider in initiating CE. Strategies are discussed for resolving two roadblocks that were identified. This model serves as a guide to standardize CE that informs a community about available services to address a focused health problem. [Res Gerontol Nurs. 2018; 11(6):293-305.].
Subject(s)
Adaptation, Psychological , Caregivers/psychology , Community Health Services/organization & administration , Interpersonal Relations , Neoplasms/psychology , Patients/psychology , Social Networking , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , New EnglandABSTRACT
By providing care for loved ones in the home, family caregivers save millions of dollars for our overtaxed healthcare system. Support groups can lighten the psychological burden of caregiving. Nonprofessionally facilitated (or peer) online caregiver support groups can help meet a critical need in healthcare as a low-cost resource for caregivers. Online caregiver peer support groups can promote the health and well-being of family caregivers and, by extension, the patients themselves, resulting in cost-savings for society. A better understanding of these types of groups is of critical importance, given the unrelenting pace of demographic shift in the United States. The purpose of this study was to examine content themes emerging from an unstructured, asynchronous online peer support group for family caregivers of people with chronic illness. Qualitative content analysis was used, yielding six themes: "experiencing the emotional toll," "need for catharsis/venting," "finding the silver linings," "seeking specific advice/problem solving," "realizing home is no longer a haven," and "adapting to the caregiver role." The themes reflect what emerged organically in an online support group that was not professionally facilitated or structured in any way. Heterogeneity in the relationship between caregivers and care recipients may negatively affect outcomes and requires further study.
Subject(s)
Caregivers/psychology , Internet , Self-Help Groups , Adaptation, Psychological , Chronic Disease , Female , Humans , Male , Middle Aged , Stress, Psychological/psychology , United StatesABSTRACT
Support groups fill a critical void in the health care system, harnessing the power of shared experiences to provide support to group members. Likewise, family caregivers fill a void in the health care system, providing billions in unpaid care to the chronically ill. Caregiver support groups offer an opportunity for alleviating the psychological burden of caregiving. The power of any group, including a support group, to foster psychological well-being lies in its ability to cultivate Yalom's therapeutic factors. Gaps in the literature remain regarding the ability of non-prototypical groups to promote therapeutic mechanisms of change. The purpose of this study was to determine if and when Yalom's therapeutic group factors emerged in a peer-led support group delivered in an asynchronous, online format. Qualitative content analysis utilizing deductive category application was employed. Participants' responses were coded and frequency counts were conducted. Results revealed that 9 of 11 therapeutic factors emerged over the course of the group, with Group Cohesiveness, Catharsis, Imparting of Information, and Universality occurring most often. Several factors, including Interpersonal Learning, Corrective Recapitulation of the Primary Family Group, Imitative Behavior, and Development of Socializing Techniques were absent or virtually absent, likely due to the peer-led format of the group. Progression of therapeutic factors over the course of the group is presented. Findings demonstrate the presence of a variety of Yalom's therapeutic factors in an asynchronous, peer-led online support group.
Subject(s)
Caregivers/psychology , Leadership , Peer Group , Psychological Theory , Self-Help Groups , Therapy, Computer-Assisted , Adaptation, Psychological , Adult , Cost of Illness , Female , Group Processes , Humans , Male , Middle AgedABSTRACT
The overall objectives of this project were to evaluate whether psychosocial outcomes in employed family caregivers of people with chronic disease, who participate in online support, differ from nonactive participants and whether psychosocial outcomes differ based on the format of online group support. A randomized longitudinal design comparing two types of online support groups and nonactive participants, on the basis of three principal measures, was utilized. Eighty-six self-reported family caregivers of people with chronic disease, who spoke English and had Internet access, took part in the study. Subjects were randomly assigned to professionally facilitated/psychoeducational or moderated/peer-directed online support groups for a period of 12 weeks. The setting was a password-protected Web page housed on a university server. Independent variables were type of online support groups and level of participation; the dependent variables were depressive symptoms, caregiver burden, and caregiver quality of life. There were significant differences in depressive symptoms and quality of life among nonactive participants and either of the two intervention groups, but not between the two intervention groups. Results suggest that professionally facilitated/psychoeducational and moderated/peer-directed online support groups help reduce depressive symptoms and improve quality of life for those who actively participate and that both types of online support groups provided similar benefits. Men and minorities should be targeted in future caregiver research.
Subject(s)
Caregivers/psychology , Family , Internet , Social Support , Adult , Aged , Female , Humans , Male , Middle Aged , Stress, PsychologicalABSTRACT
This article describes the lessons learned by social work practitioners and nurse researcher faculty from a unique partnership between a 501(c) 3 nonprofit community service organization (cancer helpline) and an academic facility to improve outreach to older adults with cancer. In preparing the research proposal, carrying out the procedures, and instituting a community-based participatory research (CBPR) approach lessons learned included the importance of experienced researchers/writers, unpredictability of research activities, importance of collecting complete data, communicating underlying discipline and role-oriented assumptions, and effectiveness of CBPR to increase outreach to older adults with cancer in Delaware's eight cancer clusters.
