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1.
Issues Ment Health Nurs ; 27(8): 817-35, 2006 Oct.
Article in English | MEDLINE | ID: mdl-16938786

ABSTRACT

The complex management of ventilator-assisted children cared for in the home can place emotional and mental strain on parents, in particular, mothers. The purpose of this study was to explore the relationships among functional status of the child, impact of ventilator-assistance on the family, coping, social support, and depression in mothers caring for ventilator-assisted children at home. Thirty-eight mothers participated in the study. Almost half of the mothers experienced depressive mood symptoms. Impact on family was positively related to depression and social support was inversely related to depression. In addition, social support was a significant predictor of depression. The findings show that the high demands related to the care of ventilator-assisted children can be a significant risk factor for poor mental health outcomes of those mothers providing care at home. Interventions by mental health and pediatric nurses should focus on enhancing mothers' coping skills and assisting mothers in accessing a positive social network to help mediate the stress related to caring for their child.


Subject(s)
Attitude to Health , Caregivers/psychology , Home Nursing/psychology , Mental Health , Mothers/psychology , Respiration, Artificial/psychology , Adaptation, Psychological , Adult , Child , Child Care/psychology , Cost of Illness , Depression/etiology , Depression/prevention & control , Empathy , Female , Humans , Longitudinal Studies , Male , Middle Aged , Models, Psychological , Nursing Methodology Research , Psychiatric Nursing , Regression Analysis , Respiration, Artificial/nursing , Social Support , Surveys and Questionnaires
2.
J Pediatr Nurs ; 19(4): 276-87, 2004 Aug.
Article in English | MEDLINE | ID: mdl-15308977

ABSTRACT

The extensive care a ventilator-assisted child (VAC) requires when cared for in the home can impact the mother's ability to participate in health promotion activities. The purpose of this study was to examine health promotion activities and the relationships among functional status of the child, impact of the illness on the family, coping, social support, and health promotion activities of mothers who care for ventilator-assisted children at home. Thirty-eight primary female caregivers, mostly mothers, participated in the study and completed the Personal Lifestyle Questionnaire (PLQ), measures of child's functional status, impact of the illness on the family, coping, social support, and demographic data. Findings revealed that the mothers scored low on the nutrition, exercise, relaxation, and general health promotion subscales of the PLQ. Functional status of the child and coping were positively correlated with participation in health promotion activities, whereas impact of the child's illness on the family was inversely related to health promotion of the mothers. Regression analysis revealed that functional status of the child and coping were significant predictors of mothers' participation in health promotion activities. The high demands associated with caring for a VAC with poor functioning can be a significant risk factor for not participating in health promotion activities. Nurses need to help mothers with coping and finding resources to help mediate the stress related to caring for their child, thereby helping the mothers to maintain their own health.


Subject(s)
Adaptation, Psychological , Attitude to Health , Life Style , Mother-Child Relations , Mothers/psychology , Respiration, Artificial , Adolescent , Adult , Child , Child, Preschool , Chronic Disease , Female , Health Promotion , Humans , Infant , Middle Aged , Mothers/education , Nursing Evaluation Research , Regression Analysis , Respiration, Artificial/psychology , Risk Factors , Severity of Illness Index , Social Support , Surveys and Questionnaires , Time Factors , United States
3.
Issues Compr Pediatr Nurs ; 27(4): 257-76, 2004.
Article in English | MEDLINE | ID: mdl-15764433

ABSTRACT

Caregiving stress has been associated with considerable demands imposed on parents responsible for the physical and emotional care of medically fragile children. With health care advances in medicine and technology, there are a growing number of children with chronic conditions and disabilities (i.e., the medically fragile) surviving longer and being cared for almost exclusively in the home by parents. The physical strains, financial constraints, emotional effects, and social isolation experienced by parents caring for children with such complex medical needs may ultimately impact their physical and emotional health. Stress associated with the caregiving of older adults has been shown to negatively impact on health and immune functioning with the potential for associated morbidity. Studies exploring the relationship of stress with biological markers of immune functioning in parents have not been widely conducted. Therefore, there is a great opportunity in parent-child health for researchers to investigate implications of stress on immune functioning and health outcomes in parents caring for medically fragile children at home. The purpose of this review article will be to provide an overview of the literature related to caregiving stress and immune functioning and to discuss implications for research in this area with parents of medically fragile children.


Subject(s)
Caregivers/psychology , Health Status , Immunity , Parents/psychology , Stress, Psychological/immunology , Child , Chronic Disease , Humans
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