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1.
Disabil Rehabil ; : 1-8, 2024 Mar 16.
Article in English | MEDLINE | ID: mdl-38493294

ABSTRACT

PURPOSE: Rural-dwelling stroke survivors have unmet rehabilitation needs after returning to community-living. Virtual rehabilitation, defined as the use of technology to provide rehabilitation services from a distance, could be a viable and timely solution to address this need, especially within the COVID-19 pandemic context. There is still a minimal understanding of virtual rehabilitation delivery within rural contexts. This study sought to explore the perceptions of rural stakeholders about virtual stroke rehabilitation. METHODS: Following an interpretive description approach, 17 qualitative interviews were conducted with stroke survivors (n = 5), caregivers (n = 2), clinicians (n = 7), and health administrators (n = 3), and analyzed to understand their experiences and perceptions of virtual stroke rehabilitation. RESULTS: We identified three overarching themes from the participant responses (1) The Root of the (Rural) Problem considered how systemic inequities impact stroke survivors' and caregivers' access to stroke recovery services; (2) Common Benefits, Different Challenges identified the unique benefits and challenges of delivering virtual rehabilitation within rural contexts; and (3) Ingredients for Success described important considerations for implementing virtual rehabilitation. CONCLUSION: Virtual rehabilitation is generally accepted by all stakeholders as a supplement to in-person services. Addressing the unique barriers faced by rural clinicians and stroke survivors is necessary to provide successful virtual rehabilitation.


Understanding the perceptions of virtual rehabilitation from various stakeholders may contribute to more effective provision of stroke services.Understanding unique rural practice challenges faced by clinicians may inform future protocols for virtual rehabilitation.The need for additional support for clinicians and stroke survivors is a determining factor for successful virtual rehabilitation.Incorporating virtual rehabilitation as an adjunct to face-to-face services is accepted by all stakeholders.

2.
Disabil Rehabil Assist Technol ; : 1-12, 2024 Feb 11.
Article in English | MEDLINE | ID: mdl-38341650

ABSTRACT

PURPOSE: This study aimed to better understand how the powered wheelchair (PWC) impacts the experiences of family caregivers of PWC users, and explore the strategies and resources used by caregivers to cope with their role. MATERIALS AND METHODS: This mixed-methods study was part of a larger cross-sectional research study conducted in four Canadian cities. Twenty-three family caregivers of PWC users, who provided at least 2 h of support per week, completed the Power Mobility Caregiver Assistive Technology Outcome (PM-CATOM), an 18-item measure assessing PWC-related and overall burden experienced by family caregivers. We also conducted semi-structured interviews and analysed them using inductive content analysis. RESULTS: From the quantitative PM-CATOM results, the caregivers perceived low level of burden for the wheelchair-related items, (Median:4.5; Range 3 to 5). Most perceived burden when physically helping the wheelchair user and when providing verbal hints. In terms of overall help, the caregivers experienced some level of burden (Median 3.5: Range 3 to 5). Most caregivers identified burden associated with the limitation to their recreational and/or leisure activities (52.2%) and feeling that they have more to do than they can handle. We identified 3 themes in the interviews: the burden experiences of caring for PWC users, the positive experiences of caregiving, and the coping strategies and resources used by caregivers of PWC users. CONCLUSION: Our study showed that understanding the experiences of caregivers of AT users is central as they are directly and indirectly impacted by the PWC in their lives and caregiving roles.


The caregivers experienced some burden related to wheelchair-related help, especially around the driving of the powered wheelchair (PWC).However, the PWC provide independence not only to the user but also to the family caregivers, allowing them to share quality time and helping each otherThe PWC impact the interaction with the social and physical environment of the caregivers.Caregiver-oriented interventions should build on the strengths of the caregivers and contribute to their well-being.

3.
Arch Phys Med Rehabil ; 105(2): 303-313, 2024 02.
Article in English | MEDLINE | ID: mdl-37607656

ABSTRACT

OBJECTIVE: To use structural equation modeling to test research- and theory-informed models of potential predictors and outcomes of subjective experiences of employment and mobility participation in a national sample of people with physical disabilities. DESIGN: Cross-sectional survey. SETTING: Canada. PARTICIPANTS: English or French-speaking adults with a physical impairment affecting mobility and restricting activities or participation, and who participated in employment (n=457) or mobility (n=711) life domains. INTERVENTIONS: N/A. MAIN OUTCOME MEASURES: Participants completed standardized measures of perceived health, and employment-specific and/or mobility-specific measures of perceived abilities, social support, accessibility and policies (predictor variables); the Measure of Experiential Aspects of Participation (MeEAP) in employment and/or mobility; and standardized measures of emotional well-being, social well-being and life satisfaction (outcome variables). RESULTS: Analyses using structural equation modeling showed that in both employment and mobility domains, perceived health, abilities, social support, and accessibility were positively related to experiential aspects of participation. Participation experiences were positively related to social well-being, emotional well-being, and life satisfaction. CONCLUSIONS: Results support and extend current theorizing on participation experiences among adults with physical disabilities. Intrapersonal and environmental factors may play a role in optimizing participation experiences in employment and mobility which, in turn, may lead to better well-being and life satisfaction. These results emphasize the importance of conceptualizing participation from an experiential perspective and provide a basis for advancing theory and practice to understand and improve the participation experiences and well-being of adults living with physical disabilities.


Subject(s)
Disabled Persons , Social Participation , Adult , Humans , Cross-Sectional Studies , Disabled Persons/psychology , Social Support , Employment
4.
Eval Program Plann ; 102: 102367, 2024 02.
Article in English | MEDLINE | ID: mdl-37708627

ABSTRACT

People with disabilities face many barriers in the built environment impacting their mobility, health, and social participation. In the US, under the Americans with Disabilities Act (ADA), municipalities were required to develop and implement barrier-removal plans for pedestrian infrastructure, called ADA transition plans, but very few have done so. Many communities know they need a plan but do not know how to get it done because of a lack of understanding of the many different implementation considerations. Implementation science offers a useful approach for understanding complex policy implementation such as ADA plans. This paper provides a reflection on the adaptation of the Consolidated Framework for Implementation Research (CFIR) to evaluate the implementation of ADA transition planning. To apply the CFIR, we tailored the construct definitions and modified them to fit the specific context of the ADA transition planning process. We documented the constructs that were more challenging to apply, those that were not relevant, and those that were particularly useful. This paper can serve as a valuable example that other researchers can use when considering adapting the CFIR or other implementation frameworks for the evaluation of complex social policy beyond the ADA.


Subject(s)
Implementation Science , Public Policy , Humans , United States , Program Evaluation , Health Plan Implementation , Qualitative Research
5.
Am J Community Psychol ; 72(3-4): 317-327, 2023 12.
Article in English | MEDLINE | ID: mdl-37853910

ABSTRACT

People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along with stigma and marginalization in education, employment, and community life. These multiple and complex barriers often hinder their full and effective participation in society. In this reflection, we curated articles on physical, sensory, intellectual, and/or developmental disabilities published in the American Journal of Community Psychology from 1973 to 2022. We reviewed titles and abstracts to identify themes that grouped manuscripts in relevant community psychology core concepts and values. From our analysis, five themes emerged: (a) promoting empowerment and advocacy; (b) promoting organizations and settings that support people with disabilities; (c) including people with disabilities in knowledge production; (d) promoting social justice in disability research, and (e) promoting support networks of families of people with disabilities. We conclude this reflection with a discussion of recommendations for future research, practice, and a call to action.


Subject(s)
Disabled Persons , Intellectual Disability , Humans , Social Justice , Employment , Intellectual Disability/psychology
6.
Afr J Disabil ; 12: 975, 2023.
Article in English | MEDLINE | ID: mdl-36756462

ABSTRACT

Background: Individuals with spinal cord injury (SCI) in less-resourced settings reported barriers to community integration, including inaccessible rehabilitation services, restricted environments and limited social integration. Peer training and entrepreneurial skills training are provided by Motivation, a nonprofit organisation, and Moshi Cooperative University to enhance occupational engagement of individuals with SCI in less-resourced settings. Objective: This study aimed to explore the impact of peer training and entrepreneurial skills training on the social participation of individuals with SCI living in Tanzania. Method: Using a qualitative photovoice approach, 10 participants captured meaningful photos and provided captions according to five standardised questions (PHOTO technique) to convey their messages. Participants selected up to 34 photos that best illustrated their experiences in the community. A mixed inductive-deductive thematic analysis was guided by the International Classification of Functioning, Disability and Health. Results: Two interrelated themes emerged: (1) 'influencing factors', which revealed how participants' inclusion in the community was influenced by their activities and personal and environmental factors and (2) 'empowerment', which highlighted participants' desire to advocate and promote awareness of needs and hopes. Conclusion: Participants emphasised the importance of accessibility and equal opportunities. Whilst some were able to overcome obstacles, others experienced continued inaccessibility that inhibited meaningful occupations. Daily participation challenges of individuals with SCI in rural Tanzania were highlighted. Although the Motivation programmes were perceived to have powerful impacts on social participation, continued efforts and advocacy are needed to overcome accessibility issues and to meet the physical, psychological and social needs of Tanzanians living with SCI. Contribution: This article highlights the importance of accessibility and equal opportunities for individuals with disability living in rural Tanzania. Peer-training and entrepreneurial programs offer community-based rehabilitation services that were perceived by people with disabilities to have a powerful impact on social participation and vocation. However, continued efforts and advocacy are needed to meet the needs of Tanzanians living with spinal cord injury.

7.
Disabil Health J ; 16(1): 101395, 2023 01.
Article in English | MEDLINE | ID: mdl-36396586

ABSTRACT

BACKGROUND: The COVID-19 pandemic has exacerbated the sedentary behavior and inactivity of people, including individuals with disability, who were already less active than their able-bodied counterparts. Therefore, it is particularly important to think about how to maintain and increase their leisure-time physical activity (LTPA). Online adaptive programs may represent a useful tool to do so. However, there is a little research focused on the health impacts of online LTPA. OBJECTIVE: This mixed-methods study aimed to explore the experiences of people with disabilities who participated in online adaptive LTPA along with the factors contributing to or limiting participation. METHOD: First, semi-structured interviews were conducted with 10 individuals participating in online adaptive LTPA offered by a community organization. Based on these interviews, a survey was developed and completed by 104 participants. RESULTS: The results of the study suggested that people with disabilities can get a variety of physical and emotional health benefits when participating in adaptive online LTPA, including a strong social benefit. Staff attitude and knowledge as well as the staff's ability to adapt to participant needs played important roles in facilitating participation. Greater access to equipment was needed. CONCLUSION: This study offers insights into how online LTPA could support the health-promoting behavior of people with disabilities during the pandemic and beyond.


Subject(s)
COVID-19 , Disabled Persons , Humans , Leisure Activities/psychology , Disabled Persons/psychology , Pandemics , Exercise/psychology
8.
Front Rehabil Sci ; 4: 1331971, 2023.
Article in English | MEDLINE | ID: mdl-38259872

ABSTRACT

Introduction: Outdoor physical activity (PA) contributes to the physical and mental health and well-being of individuals with a mobility impairment. However, individuals are commonly excluded from outdoor PA because of accessibility challenges. No reviews summarizing evidence on factors that facilitate/hinder participation and inclusion of individuals with mobility disabilities in adaptive outdoor PA were identified.. This makes it challenging to establish the key components for implementing inclusive outdoor PA interventions. A scoping review was conducted to identify barriers and facilitators to participation in adaptive outdoor PA and identify suggestions for adaptive outdoor PA design. Methods: A scoping review of qualitative and quantitative studies was conducted based on the methodological framework of Arksey and O'Malley with modifications by Levac. Barriers and facilitators were categorized into four levels based on a Social Ecological Model (SEM). Suggestions for interventions designed to overcome accessibility issues of outdoor PA were classified based on Universal Design (UD). Results: Thirty-seven factors regarding barriers and facilitators of outdoor adaptive PA were extracted from 19 studies published between 2002 and 2023. Barriers and facilitators were identified primarily in four levels of the SEM, including intrapersonal, social-environmental, physical-environmental, and policy-related. Eleven design suggestions were identified and categorized according to the seven principles of UD. This study identified gaps in the presented barriers and facilitators and the design suggestions of the included studies, mainly at the social and environmental level, such as a lack of innovation in program delivery and logistics. Conclusion: This study identified gaps in knowledge about facilitators and barriers to outdoor adaptive PA and in the design of interventions addressing them. Future research should focus on the strategies addressing these gaps by involving individuals with mobility disability in designing interventions to gain a better insight into their needs.

9.
JMIR Res Protoc ; 11(10): e38715, 2022 Oct 07.
Article in English | MEDLINE | ID: mdl-36206037

ABSTRACT

BACKGROUND: Although there have been recent efforts to improve access to Canadian national parks, many remain not fully accessible to people with disabilities. Winter conditions, in particular, present challenges that limit their participation in outdoor activities. OBJECTIVE: This study aimed to develop a novel method to assess park access during winter, which will inform recommendations for national park standards to meet the needs of all park visitors (regardless of ability) during winter conditions. METHODS: A larger participatory mixed methods research project exploring park access was adapted. A 3-phase approach has already been proposed to achieve the study objectives. In the first phase, a scoping review of the existing accessibility standards will be conducted. In the second phase, objective audits of trails and features in 6 parks, 3 in western Canada and 3 in eastern Canada, will be conducted, as well as mobile interviews with 24 various participants in each region regarding their experiences of and recommendations for improving the park's accessibility. In the final phase, a Delphi participatory consensus development process will be used, based on the data gathered in the first 2 phases, to prioritize recommendations for standards. This paper will focus on the second phase of the study, specifically on whether the in-person winter mobile interviews (ie, walking and wheeling interviews) with people who have a wide range of disabilities while visiting 3 parks in 2 provinces were modified. Changes were made to accommodate the extreme winter weather conditions in Quebec while using safe and informative data collection methods. RESULTS: In Quebec, one park, where winter conditions are safer, has been assessed in person (n=4). Web-based interviews were used to facilitate the assessment of other winter and summer conditions in two other parks (n=8). Winter and web-based interviews were completed in April 2022. Data are currently being collected and analyzed, and results will be completed by December 2022. CONCLUSIONS: We expect that adapting the protocol to gather further information on winter conditions and access to parks will provide high-quality and rich data to better inform park access standards. This participatory mixed methods research will inform the development of park standards that consider the accessibility needs of all people. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/38715.

10.
JMIR Res Protoc ; 11(3): e33611, 2022 Mar 31.
Article in English | MEDLINE | ID: mdl-35357324

ABSTRACT

BACKGROUND: Canada's national parks are world-renowned. However, despite recent attempts to improve access, many are not accessible to people with disabilities. With the advent of provincial and federal legislation, standards are being developed to assist with the design and management of parks. OBJECTIVE: The overarching objective of this study is to inform accessibility standards for federal parks that meet the needs of all park visitors, regardless of ability. The specific objectives of this study are to identify park accessibility standards that exist internationally, identify the accessibility challenges that people with disabilities face in park environments, and prioritize and recommend accessibility standards for national parks. METHODS: A 3-phase approach will be used to achieve the study objectives. In the first phase, a scoping review of the existing accessibility standards will be conducted. The second phase will include objective audits of trails and features in 6 parks, 3 in western Canada and 3 in eastern Canada, as well as mobile interviews with 24 diverse participants in each region regarding their experiences of and recommendations for improving the park's accessibility. In the final phase, a Delphi participatory consensus development process will be used, based on the data gathered in the first 2 phases, to prioritize recommendations for standards. RESULTS: We expect to find gaps in existing standards that do not account for the diverse range of accessibility requirements that people with disabilities have for visiting parks. We also expect to find that existing standards, on their own, may not be enough to ensure equitable access to all the experiences and amenities that parks have to offer. Development of subsequent guidelines and best practices may be necessary to address complex scenarios for which standards may not be the best approach to ensuring accessibility. CONCLUSIONS: The participatory and mixed methods approaches used in this study will provide rich insights for developing accessible park standards that consider the diverse needs of people with disabilities. The findings will also support the development or enhancement of park standards at all levels of government. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/33611.

11.
Am J Phys Med Rehabil ; 101(4): 324-330, 2022 04 01.
Article in English | MEDLINE | ID: mdl-34050064

ABSTRACT

OBJECTIVE: We conducted an intersectional analysis to explore how demographic characteristics and mobility device use were associated with psychological distress (depression and anxiety) and confidence negotiating physical and social environments. DESIGN: Cross-sectional data were collected using the Hospital Anxiety and Depression Scale, modified Wheelchair Use Confidence Scale, and self-reported functional independence scale. PARTICIPANTS: The sample included 105 participants. Primary mobility devices used included mobility scooters (27%), power wheelchairs (26%), manual wheelchairs (25%), walkers (11%), and cane or crutch (12%). The mean age of participants was 58 yrs, 53% were female, and 52% lived alone and were functionally independent with the use of assistive technology. RESULTS: We were able to explain between 39% and 65% of the variance (adjusted R2) in the dependent variables with parsimonious regression models. Age was an independent predictor of all outcomes. Women were less confident negotiating the physical environment, and walker use was associated with depression and lower confidence negotiating physical environments, but increased confidence negotiating social environments. CONCLUSIONS: Age is associated with psychosocial outcomes for assistive device users, and those who use walkers may experience increased challenges with depression and negotiating the physical environment. Pending confirmatory research, the findings may have important implications for targeted interventions related to device provision.


Subject(s)
Disabled Persons , Psychological Distress , Self-Help Devices , Wheelchairs , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Negotiating , Social Environment
12.
Top Stroke Rehabil ; 29(5): 392-400, 2022 07.
Article in English | MEDLINE | ID: mdl-34057404

ABSTRACT

BACKGROUND: Stroke is an acute condition that requires immediate care and long-term community-based chronic care supports. Communities vary in their ability to support the complex needs of this population. OBJECTIVES: To bring stroke recovery stakeholders together to discuss the needs of community-based stroke recovery and develop possible solutions across one province in Canada. METHODS: The participatory research approach of the World Café was used to explore topics related to community-based stroke recovery. Three World Cafés were held in three communities, including rural, urban-multicultural, and indigenous communities. Sixty-one stakeholders participated in this study. The data was analyzed following an inductive approach for all three Word Cafés. RESULTS: Four main themes were revealed from the data. First, Individual Needs, but Holistic Care encompassed the idea that stroke survivors' needs are complex and changing. Second, Whole of the Community indicated that all the people in stroke survivors' communities should be considered when designing solutions. Third, Transition in Care focused on the needs and solutions during the transition from hospital to community. Lastly, participants emphasized that better Connection, Collaboration, and Communication are needed among all stakeholders. CONCLUSIONS: While some similarities in needs and solutions were identified for stroke survivors across three diverse communities, differences between them were also reported. Approaches to enhance better communication among all stakeholders and facilitate a continuous transition from hospital to community are needed. Co-creating solutions with each local community should be considered as individual needs, and challenges are specific to each community.


Subject(s)
Stroke Rehabilitation , Stroke , Canada , Communication , Community Integration , Humans , Stroke/therapy , Survivors
13.
Disabil Rehabil ; 43(15): 2219-2226, 2021 07.
Article in English | MEDLINE | ID: mdl-31778324

ABSTRACT

INTRODUCTION: Literature supports the benefits of involvement for people with disabilities in adaptive snow sports. However, the literature is lacking in understanding the experiences of those involved in these programs or understanding what facilitates participation in adaptive snow sports. OBJECTIVES: This project aims to (1) explore the experiences of people with disabilities participating in adaptive snow sports; and (2) to explore the factors which impact participation in adaptive snow sports. MATERIALS AND METHODS: We recruited 20 former and current participants from an adaptive snow sports program using a volunteer recruitment strategy. Data were collected through individual or dyadic semi-structured interviews and on-site observations. Data were transcribed verbatim and thematic data analyses were conducted. RESULTS: Three main themes emerged from this study: (1) mountain top moments, which described the outcomes of successful participation in adaptive snow sports; (2) finding your line, which refers to the facilitators involved in adaptive snow sports participation; and (3) icy slopes and trailblazing, which includes the social, physical, and institutional environmental factors that impede quality participation. CONCLUSION: Adaptive snow sports provide people with disabilities opportunities to develop community, engage in new and meaningful experiences, and to overcome challenges. The accounts given by people with disabilities of their experiences in adaptive snow sports suggest that key factors for participation are the involvement of student-centered instructors and the provision of adaptive equipment.Implications for rehabilitationAdaptive snow sports provide opportunities for people with disabilities to learn new and meaningful skills, develop meaningful relationships, and enjoy the outdoors.Knowledgeable instructors who are able to meet people with disabilities unique needs is an essential component to adaptive snow sport programs.Additionally, the provision of adaptive equipment is an important aspect of adaptive snow sport programs.


Subject(s)
Disabled Persons , Snow Sports , Sports for Persons with Disabilities , Humans , Social Participation
14.
Disabil Rehabil ; 43(20): 2945-2951, 2021 10.
Article in English | MEDLINE | ID: mdl-32058823

ABSTRACT

PURPOSE: Research has yet to examine the experiences of paddle boarders, or of kayakers with disabilities other than spinal cord injuries. The goal of this study was to explore the experiences of kayakers and paddle boarders in two adaptive paddling programs. METHOD: Participants were children and adults requiring physical, cognitive, and/or psychosocial supports. Using an ethnographic approach, participant observations (n = 24) and semi-structured interviews (n = 11) were completed. Data were analyzed thematically. RESULT: We identified three main themes. "Different Strokes" described the personal meaning participants ascribed to aspects of paddling, including valuing fun, exercise and relaxation. "Turning the Tide" illustrated the process of becoming a paddler, from doubting capacity to feeling competent. "Headwinds" explored paddlers' interactions with the broader social, institutional, and economic environments, such as inadequate funding and program aversion to risk. CONCLUSIONS: Programs offering a variety of adaptive paddle boarding and kayaking configurations enable paddlers to make valued choices about their participation. In addition to providing equipment and support to meet paddlers' functional abilities, program developers and clinicians should also consider individual preferences for exercise, socialization, risk taking, self-presentation of disability, and independence.IMPLICATIONS FOR REHABILITATIONPeople living with physical, cognitive, and/or psychosocial impairments perceive kayaking and paddle boarding as meaningful activities offering opportunities to exercise, have fun, achieve goals, socialize, and/or relax on the water.Kayakers and paddle boarders value equipment options that meet their physical and disability-disclosure preferences.Despite the existence of adaptive paddling programs, participation may be restricted by program availability, risk management policies, and leisure funding.


Subject(s)
Disabled Persons , Water Sports , Adult , Child , Exercise , Humans
15.
J Community Psychol ; 49(1): 44-57, 2021 01.
Article in English | MEDLINE | ID: mdl-32696990

ABSTRACT

The aim of this study was to understand the mobility experiences of mobility device users regarding the environmental and social barriers and facilitators in their community and to discuss the benefits and challenges of using photovoice, as a participatory methodology, to increase social participation for people with disabilities. Photovoice was used with mobility device users (n = 70) in two different locations in Canada. The participants took pictures for two weeks and then participated in individual interviews and focus group sessions to discuss their photographs. The participants took over 1,000 pictures that were grouped into five themes around social participation and accessibility. They chose the most illustrative pictures to share in an exhibit to create a dialogue with different stakeholders. Using photovoice offered many benefits such as allowing the participants to be equal partners of the research and made their voices heard, but also presented disability and study-related challenges.


Subject(s)
Disabled Persons , Social Inclusion , Canada , Focus Groups , Humans , Social Participation
16.
Article in English | MEDLINE | ID: mdl-32121293

ABSTRACT

Urban areas offer many opportunities for people with disabilities, but limited accessibility may prevent their full engagement in society. It has been recommended that the experience-based perspective of people with disabilities should be an integral part of the discussion on urban accessibility, complementing other stakeholder expertise to facilitate the design of more inclusive environments. The goals of this mixed-method study were to develop knowledge mobilization (KM) strategies to share experience-based findings on accessibility and evaluate their impact for various urban stakeholders. Using a participatory approach, various KM strategies were developed including videos, a photo exhibit and an interactive game. These strategies were evaluated based on various impact indicators such as reach, usefulness, partnerships and practice changes, using quantitative and qualitative methods. The findings suggested that the KM strategies were effective in raising the awareness of various urban stakeholders and providing information and guidance to urban planning practices related to accessibility.


Subject(s)
Administrative Personnel/education , Architectural Accessibility/standards , City Planning/education , City Planning/standards , Disabled Persons , Environment Design/standards , Guidelines as Topic , Administrative Personnel/statistics & numerical data , Adult , Canada , Female , Humans , Male , Middle Aged
17.
Appl Ergon ; 85: 103058, 2020 May.
Article in English | MEDLINE | ID: mdl-32174346

ABSTRACT

Determining ways to facilitate participation of persons with a physical disability is crucial and clothing may play a central role. This review aims to synthesize and examine the role of clothing on participation of persons with a physical disability. Six research databases and grey literature were searched following Arksey & O'Malley's six steps, including multiple expert consultations. English and French articles contributing to how clothing affects participation were included and tabulated based on the International Classification of Functioning, Disability and Health. Fifty-seven articles and 88 websites were included. A variety of stakeholder perspectives, diagnoses, and types of clothing were represented. Clothing mostly influences mobility and self-care, as well as various personal factors. Forty-nine percent of articles reported essential clothing design features to consider. Clothing is an important and complex environmental factor that interacts with all health domains, including participation. Future research should consider intersectoral initiatives.


Subject(s)
Clothing/psychology , Disabled Persons/psychology , Social Participation/psychology , Textile Industry/trends , Adolescent , Adult , Aged , Female , Humans , Male , Middle Aged , Young Adult
18.
Arch Phys Med Rehabil ; 100(4): 656-662, 2019 04.
Article in English | MEDLINE | ID: mdl-30914119

ABSTRACT

OBJECTIVE: To examine the change over 1 year in the burden, wheelchair skills, social support, social participation, and mental health of family caregivers providing assistance to older adult powered wheelchair users. DESIGN: Longitudinal study. SETTING: Community. PARTICIPANTS: Participants (N=35) included family caregivers (mean age ± SD=63.7±10.2y) who provided at least 2 hours of general care per week for a powered wheelchair user. INTERVENTION: Not applicable. MAIN OUTCOME MEASURES: The Power Mobility Caregiver Assistive Technology Outcome Measure (frequency of care and subjective burden), the Wheelchair Skills Test Questionnaire for caregivers (wheelchair skills), the Interpersonal Support Evaluation List-6 (social support), the Late-Life Function and Disability Instrument (social participation), the Hospital Anxiety and Depression Scale (mental health). Measures were taken at baseline, 1, 3, 6, and 12 months. Descriptive statistics were calculated, and a linear mixed model was used to assess changes over time in the outcomes. RESULTS: The results showed that the caregivers helped on average with 3 powered wheelchair-related activities and 10 other caregiving activities. They also experienced moderate subjective burden and social participation and were within the normal range for depression and anxiety. Moreover, those outcomes remained stable over the 1-year study period. However, the wheelchair skills scores showed significant changes over time, as the scores improved during the first 6 months of the study. CONCLUSION: Given that previous research indicated that subjective burden tends to decline over time among caregivers, the findings of stability in this study may reflect increasing needs among this population of caregivers, who may benefit from additional support and interventions. This would need further consideration.


Subject(s)
Caregivers/psychology , Disabled Persons/psychology , Wheelchairs/psychology , Aged , Anxiety/psychology , Canada , Cost of Illness , Depression/psychology , Electric Power Supplies , Equipment Design , Female , Humans , Longitudinal Studies , Male , Middle Aged , Social Participation , Social Support , Surveys and Questionnaires
19.
Disabil Health J ; 12(2): 287-295, 2019 04.
Article in English | MEDLINE | ID: mdl-30448102

ABSTRACT

BACKGROUND: Increasing participation in recreational leisure activities (RLA) could be an effective vehicle for social inclusion and improvement - people's with disabilities health. Unfortunately, many barriers limit their participation in RLA. Interventions to improve access to RLA are often limited to therapeutic or adaptive sports in rehabilitation. Knowledge about the benefits of adaptive RLA in the community is still needed. OBJECTIVE/HYPOTHESIS: The aim of this study was to assess the benefits of adaptive RLA offered in the community for people with disabilities, and to document the facilitators and barriers to participation. METHODS: This paper presents the qualitative results of a mixed-methods study. The participants were members with disabilities (n = 19), volunteers (n = 9), and staff members (n = 8) of an organization offering various adaptive RLA in the community. Semi-structured interviews, focus groups, and naturalistic observations were conducted. The data were analyzed using an inductive content analysis approach. RESULTS: Three overarching themes emerged from the analysis: 1) "Personal enrichment" illustrated the individual benefits experienced by the member with disabilities; 2) "Collective impact" represented the social benefits for the members and their communities; and 3) "Contributors to the RLA experience" concerned the facilitators and barriers to participation. CONCLUSIONS: Considering the numerous benefits of adaptive RLA, it is necessary to implement specific policies to support integrated community programs or accessible public transports to allow full participation of people with disabilities, thereby increasing their social inclusion.


Subject(s)
Community Integration , Disabled Persons/rehabilitation , Leisure Activities , Social Isolation , Social Participation , Adult , Female , Focus Groups , Humans , Male , Middle Aged , Policy , Qualitative Research , Residence Characteristics
20.
Front Psychol ; 9: 1583, 2018.
Article in English | MEDLINE | ID: mdl-30214420

ABSTRACT

Most research exploring the psychological benefits of the natural environment has focused on direct exposure to the outdoors. However, people spend most of their time indoors, particularly in office buildings. Poor employee mental health has become one the most prevalent and costly occupational health issues. The integration of high quality environmental features (e.g., access to sunlight) in green-certified office buildings offers a superior work environment. These nature-based experiences are anticipated to provide beneficial outcomes to wellbeing. This study is the first to empirically investigate these benefits. Participants in a green (LEED gold certified) office building (N = 213) in Canada completed an assessment of environmental features, measures of hedonic, eudaimonic and negative wellbeing (NWB) and assessments of psycho-environmental potential, environmental behaviors and social belonging. Linear regression analyses confirmed the benefits of indoor environmental features for all aspects of wellbeing. Multiple regression analyses were conducted to assess the effect of specific indoor environmental features on wellbeing. We explored physical features (e.g., air quality, light), and social features (e.g., privacy), as well as windows to the outside. Results suggest that physical features are important in promoting hedonic wellbeing, while social features prevent NWB. Both features equally predicted eudaimonic wellbeing (EWB). A view to the outside was positively correlated to wellbeing, although it did not uniquely predict it after accounting for other environmental features. Path analyses revealed the importance of person-environment fit, pro-environmental behavior and social belonging in mediating the association of indoor environmental features with hedonic and EWB. The results suggests that, by fostering person-environment fit, pro-environmental behaviors and feeling of community in a high quality setting, green buildings may lead to benefits on an array of wellbeing dimensions. The theoretical and practical implications of these findings are discussed.

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