ABSTRACT
There has been an influx of new educational resources for atopic dermatitis (AD) patients in recent years. The two primary organizations in the United States offering educational materials, online resources, and other forms of support include the National Eczema Association (NEA) and the American Academy of Dermatology (AAD). Educational workshops and interventions have emerged as tools that can deliver comprehensive information on AD, such as symptoms, treatments, and disease management. In regard to these workshops, studies have proven longer interventions to be more effective. Studies have also found multidisciplinary teams, including psychologists, dietitians, and AD specialists, to be more effective in AD treatment and education. Additionally, video-based education was found to be the most effective delivery medium compared to various written modes of education. Given the psychosocial impacts of AD, support groups have been found to improve life quality and decrease disease severity, with age-specific groups offering the greatest benefits. Technology such as social media and smartphones has also improved education. Social media has allowed the rapid exchange of information to wider audiences, but due to its unregulated nature, false information has also been disseminated. Despite this, web-based interventions have still been found to be satisfying, convenient, and effective in increasing treatment awareness. The advent of smartphone applications has provided patients with access to information on AD symptoms and treatment on demand. While the effectiveness of these promising applications hasn't been confirmed by studies, patient provider interactions via smartphone (teledermatology) have been found to be as effective as in-person appointments. This chapter will discuss these different types of emerging resources available to AD patients including educational materials, interventions, support groups, organizational support, and technological resources and their effectiveness.
Subject(s)
Dermatitis, Atopic , Patient Education as Topic , Humans , Dermatitis, Atopic/therapy , Patient Education as Topic/methods , Social MediaABSTRACT
Atopic dermatitis is a skin condition that is increasing burdensome to patient's lives. Patients require effective strategies to cope with the condition as well as the vast amount of new research that is coming to the forefront. This chapter discusses the patient education aspect of atopic dermatitis. We drew from various sources-such as peer-reviewed academic journals, online groups, and organizational websites-to provide a brief survey of the available types of patient educational resources. We discuss educational materials and interventions, such as workshops and support groups. In addition to the content of the workshops, we also explore the importance of their facilitators. We also review organizations in the US that pertain to atopic dermatitis and eczema care, such as the National Eczema Association and the American Academy of Dermatology. Lastly, we survey the role of technology-such as social media, web-based applications and teledermatology-in facilitating patient education. Despite the promising impacts of these technological interventions in the way patients consume educational materials, we also acknowledge that they are not widely used.
