1.
J Law Med Ethics
; 47(1): 12-20, 2019 03.
Article
in English
| MEDLINE
| ID: mdl-30994067
ABSTRACT
Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical information commons (MIC). We identify participant-centricity and trustworthiness as the most important features of an MIC and discuss the implications for those seeking to create a sustainable, useful, and widely available collection of linked resources for research and other purposes.